Jump to content


E-Newsletter Signup Like us on Facebook Sign Up For Our e-Newsletter
Photo

Sensitive question


  • Please log in to reply
15 replies to this topic

#1 Jenette

Jenette

    Advanced Member

  • Members
  • PipPipPip
  • 481 posts
  • LocationPennsylvania

Posted 29 March 2013 - 06:17 AM

Ok, here goes..........

Every morning it takes me well over an hour to move my bowels, and not from hard stool. It just takes that long for the muscles to do their job. Anyone else? I'm assuming its the PD

#2 Luthersfaith

Luthersfaith

    Advanced Member

  • Members
  • PipPipPip
  • 883 posts
  • LocationIndiana

Posted 29 March 2013 - 09:08 AM

Not that long, but
it does take longer.
"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)

#3 williamg

williamg

    Advanced Member

  • Members
  • PipPipPip
  • 337 posts
  • LocationTrapped in a body of Chaos and Confusion

Posted 29 March 2013 - 09:10 AM

Hello Jenette, Wow every morning? I am lucky to go #2 once a week if that. I don't know if it is a muscle issue or not and I have had this issue for years! I abuse Miralax which seems to do nothing. If I understand it correctly, it very well could be from the PD effecting the muscles that move the poo through it's coarse. Hopefully someone else will give you some useful info.
I'm not crazy, I'm just special!! ..No, wait..... Maybe I am Crazy. One second...... I have to talk to myself about this... Hold on......................

#4 Beau's Mom

Beau's Mom

    Advanced Member

  • Members
  • PipPipPip
  • 1,432 posts
  • LocationSeattle, WA

Posted 29 March 2013 - 09:40 AM

It is, most emphatically, from PD. Every single muscle in our bodies is affected by the slowness of PD, including bowel muscles. And the muscles in our eyes that cause slow blink rate and, for me, corneal damage due to extreme dry eye. These non-motor symptoms appeared 15+ years before the rigidity, bradykinesia and tremor which are the more obvious signs of PD.

Things that make constipation worse: Lack of water intake, pain meds, antihistamines, lack of fiber, generally poor diet, and lack of exercise. I know there are more; I just can't remember them right now. I call that brain constipation.
Dianne

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

#5 Jenette

Jenette

    Advanced Member

  • Members
  • PipPipPip
  • 481 posts
  • LocationPennsylvania

Posted 29 March 2013 - 10:09 AM

Lol thanks everyone!

#6 Rogerstar1

Rogerstar1

    Advanced Member

  • Members
  • PipPipPip
  • 1,564 posts
  • LocationWashington, DC

Posted 29 March 2013 - 10:24 AM

Some where along the way I've read that PD eventually kills it's victims off (in the absence of other, intervening morbid conditions) by asphyxiation when choking on food or by extreme constipation and one's bowel essentially blowing up. Not sure about this but it seems reasonable to me.

But other abdominal centered problems/symptoms can make a PWP life pretty miserable well before constipation does one in.

Look up gastroparesis as I recently did and discover it is cited as a PD symptom.

Also, review this insightful recent piece from the Washington Post:

http://www.washingto...=emailtoafriend

Lastly, be cognizant that some cleansing products like Metamusil (sp?) can make certain kinds of constipation worse by adding water to the stool and creating a sticky quality that makes full elimination less likely. Sorry, but that's about the only way to explain it...:-(. ...when food remains in the stomach too long being digested, I think it can stick to the walls of the intestines to the extent patients can bloat. Consult the dietician about all of my musings here, especially 'cause it's a dangerous condition AND a treatable one.

#7 Mihai

Mihai

    Advanced Member

  • Members
  • PipPipPip
  • 204 posts
  • LocationCleveland, Ohio

Posted 29 March 2013 - 02:53 PM

Hey all,

This is a timely question for me... Three nights ago, upon going to bed, my stomach began to hurt. That was about midnight. Long story short... I was up until 4:30 am with the worst intestinal pain that I have ever experienced. Waves of pain went through me every three minutes or so that doubled me over and took my breath away (if pregnancy labor feels anything close to that, I don't ever want any part of it...not that I could...well, that's for another forum!). I realized that I had eaten way too much fiber during the day and taken in little water. I also ate some rather "explosive" food before bed... Needless to say, I was in a bad spot for several hours. Finally at 4:30 I took some milk of magnesia, which was the best relief I could have asked for (well, about a half an hour later!). All this to say that I hear ya'...PD also blesses us with intestinal slowness, which we all need to be aware of and address through diet, exercise, and medications as they are appropriate. I sure hope to never go through that kind of pain again...

Empathizing with you,

Mihai
Diagnosed in 2001 at 33 years of age

#8 christie

christie

    Advanced Member

  • Members
  • PipPipPip
  • 584 posts

Posted 29 March 2013 - 04:37 PM

Some where along the way I've read that PD eventually kills it's victims off (in the absence of other, intervening morbid conditions) by asphyxiation when choking on food or by extreme constipation and one's bowel essentially blowing up.



Roger, i seriously doubt the blowing up part...on the other hand, just to be on the safe side, that super-sized pizza for dinner might not be a good idea. unless we are heavily insured for external damages ! LOL!

-English is not my first language !

-Aged 39. Diagnosed at 35. On levodopa monotherapy (500mg daily).


#9 Rogerstar1

Rogerstar1

    Advanced Member

  • Members
  • PipPipPip
  • 1,564 posts
  • LocationWashington, DC

Posted 29 March 2013 - 06:09 PM

yes, 'rupture' would have been the better word and descibed more accurately what I was trying to say.

#10 woodbee

woodbee

    Advanced Member

  • Members
  • PipPipPip
  • 549 posts

Posted 29 March 2013 - 11:09 PM

Jenette,

Miralax works best for me but before that I used metamucil which made things worse. At that time i was like you, 30-50 min in the bathroom. and hemmoroids too. one thing that is useful if you can make an adjustment in your private bathroom at home is to find a low short stainless bowl or pan and set it on the floor. instead of pooping in the toilet you squat over the bowl like many people in other cultures around the world who squat over a hole of some sort. some people are helped to eliminate by assuming this squatting position. It may take practice and perhaps changing to clothing that best accomodates squatting. But it does not take so long to learn and if it helps then it's worth the change. and have you tried adjusting your breathing so that when you exert you are slowly EXHALING. this may seem counter intuitive but its what we are trained to due when giving birth. Exhaling while pushing enlists your diaphram to push down and help you to eliminate, Another reason to exhale is to keep your blood pressure from rising. When you hold your breath and push that's when blood pressure can go way up.So Exhale when you push.

and if we can strengthen other muscles why not these muscles too. I never took the class but a friend of mine taught belly dancing and i learned a few moves from her that sure seemed like they could help. I can't explain those here but you might see if there is anyone around who can teach you some belly dancing movements to practice. here is a a different exercise (not from my friend but a typical isometric exercise) where you firm up/ tighten your lower abdominal muscles and hold for a count of 10 relax and do it again. Do this 30 - 60 times a day 5- 10 reps each time after you urinate. IT has nothing to do with urinating other than you are tying the exercise to some other activity you already do to help you to remember to do them fairly often durng the day.

And then as mentioned by others above...lots of water...does coffee help? high fiber foods too but be sure to include water soluble fiber too like what's in apples for example. Also...eliminate sugar as much as possible. eat lots pf prunes if necessary. LAst but not least i would eat tons of cabbage...a head a day if you can manage it...cooked, slaw, juiced anyway you like it

Good luck. it's a miserable pattern to deal with. I hope you get relief soon . oh...and you know it already I think but Vicodin is notoriuus for constipating people. Can you get medical hypnosis for pain relief? and dump the vicodin...just brain storming. It's no laughing matter I know but maybe you can enlist someone to scare the shit out of you! HA...best to you Jenette

eileen

Edited by woodbee, 29 March 2013 - 11:11 PM.


#11 christie

christie

    Advanced Member

  • Members
  • PipPipPip
  • 584 posts

Posted 30 March 2013 - 03:47 AM

yes, 'rupture' would have been the better word and descibed more accurately what I was trying to say.


Roger, i was trying to lighten up a bit this rather morbid information. I suppose this is a remote possibility, but very very rare.

GI problems in PD are treatable. Lifestyle changes can make a ton of difference. (for constipation, number one is exercise and proper hydration). Probably much more than meds. We should always consult a GI specialist-and not just our neurologist- on these issues. Most neurologists tend to think that if we can get up and walk everything is fine and the sun is always shining. Somebody should spread the word to them that non-motor symptoms-including constipation and gastroparesis-may become more bothersome and life-altering than the classic PD symptoms (tremor, rigidity and bradykinesia).

PS: GI symptoms in PD may be caused or worsened by drugs. Especially by opioids like Vicodin. (good point eileen).

Edited by christie, 30 March 2013 - 04:35 AM.

-English is not my first language !

-Aged 39. Diagnosed at 35. On levodopa monotherapy (500mg daily).


#12 Luthersfaith

Luthersfaith

    Advanced Member

  • Members
  • PipPipPip
  • 883 posts
  • LocationIndiana

Posted 30 March 2013 - 04:49 AM

All of this over a pile of s&@t !

Edited by Luthersfaith, 30 March 2013 - 06:40 AM.

"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)

#13 Drummergirl

Drummergirl

    Advanced Member

  • Members
  • PipPipPip
  • 302 posts
  • LocationWhite River Jct. Vermont

Posted 30 March 2013 - 06:25 PM

Hi All,
Kathrynne suggestion to include magnesium citrate in my diet and it has made a huge impact....Get it! lol

Anyway, I take one 250 mg at dinner time and this ensures a morning bowel movement. I eat plenty of fruits, veggies, nuts, flax seeds, drink plenty of water and exercise daily.
Sometimes it is difficult to find in 250 mg, usually find it in 500 mg, but Kathrynne suggested a lower dose than 500 it's absorbed easier.

But check with her posting back a month ago to e regarding Gastroparisis or check in with her. She seems more knowledgeable than Docs.
Dx in 95' at 35- Normal MRI, Abnormal Da t Scan- Resting tremor- right foot, leg tremors. RX- 25/100 Carb/ l =600 mg,
0.5 Azilect 1 daily Comtan 200mg 2 day, 0.5 mg Clonazepam 1 daily.

#14 Drummergirl

Drummergirl

    Advanced Member

  • Members
  • PipPipPip
  • 302 posts
  • LocationWhite River Jct. Vermont

Posted 30 March 2013 - 07:12 PM

http://www.ncbi.nlm....pubmed/22743836

Here is the link to Gastroparesis from Kathrynne.
Dx in 95' at 35- Normal MRI, Abnormal Da t Scan- Resting tremor- right foot, leg tremors. RX- 25/100 Carb/ l =600 mg,
0.5 Azilect 1 daily Comtan 200mg 2 day, 0.5 mg Clonazepam 1 daily.

#15 Jenette

Jenette

    Advanced Member

  • Members
  • PipPipPip
  • 481 posts
  • LocationPennsylvania

Posted 31 March 2013 - 06:00 AM

Thanks

#16 Sister411

Sister411

    Advanced Member

  • Members
  • PipPipPip
  • 45 posts
  • LocationHill Country, Texas

Posted 09 August 2013 - 07:02 PM

My first neuro gave me the best advice and its worked a small sip of Milk of Magnesia every night. A full dose makes you have to run for he hills in the morning but just a little everyday.
"She is clothed in strength and dignity and she Laughs without fear of the future". Proverbs 31:25




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users