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Drooling


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#1 Sean

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Posted 02 April 2013 - 10:47 AM

Hello All,
Thank you so much to all of you who have been so kind to me in my short time here. I can deal with the tremor, the aches and pains associated with PD, but really have difficulties with one particular aspect of dealing with this disease, drooling! This has only surfaced w/in the past year but I find it especially difficult and it only seems to get worse with each passing week. I bend over and saliva pours out of my mouth or I find it slowly dripping out of the corner of my mouth while working or doing just about everything! I find having to remind myself to swallow so the saliva doesn't pile up to the point that it seeks escape.
Any others out there battling this issue? I have a 3 month old grandson, Nicholas, and it seems we have much in common! I drool, as does he. I have tremor in my arms and legs, as does he as he learns to control his arm and leg movements, and so on. We make a funny pair, eh?
Take care,
Sean

#2 Beau's Mom

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Posted 02 April 2013 - 11:21 AM

Hi Sean,

I've had drooling issues for not quite a year. To treat the drooling, every three months I get Botox injections in my saliva glands. It's almost painless and works like a charm! I wouldn't recommend it for your grandson, though! :)

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#3 Sean

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Posted 02 April 2013 - 11:30 AM

Thank you, Dianne! I hadn't given a thought to such a thing! Botox, eh? Wonder if he would shoot a few into other facial areas while he's got the needle out?!
Take care,
Sean

#4 Luthersfaith

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Posted 02 April 2013 - 12:38 PM

I have started to chew tobacco, so I have to spit a lot!















NOT!
Yes it is a problem...

Edited by Luthersfaith, 01 September 2013 - 06:06 AM.

"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)

#5 Kristakj78

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Posted 03 April 2013 - 02:33 PM

I drool at night, and we won't talk about how my pillow is in the morning :oops: I also had excessive saliva during my pregnancies which made me have super bad nausea.

#6 Beau's Mom

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Posted 03 April 2013 - 05:20 PM

I just had my third Botox injection late this morning. I can have up to four a year. They make a big difference, but not all MDS are qualified to give them. It makes a big difference for me.

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#7 KimAgain

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Posted 07 April 2013 - 06:42 PM

My MDS told me that Botox shots can be given in the facial muscles, feet, salivary glands, hands, even armpit sweat glands... well, all sorts of places, really! Worth looking into perhaps?

Good Luck!

Dx 2004, age 45.  DBS surgery, 2009:  Bi-lateral; wires to one battery - on my left side.  500mg Sinemet CR daily.  

"Be kind, for everyone you meet is fighting a hard battle." --Plato


#8 Jenette

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Posted 07 April 2013 - 07:58 PM

I drool at night, and I have to wear mask at my neck for my trach humidifier. Talk about gross! I always put a soft towel on my pillow

#9 Richie10000

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Posted 28 April 2013 - 06:33 PM

Hi -am a new member. I too had trouble with drooling, but after taking Amytrptiline as an anti-depressant, it has a side effect of drying up your mouth and therefore stops the drooling.

#10 Luthersfaith

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Posted 01 September 2013 - 06:09 AM

Some days are better than others. What really is bothersome is when I drool during the day! I'll be doing something and all of a sudden "drip, drip"
"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)




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