Parkinsons treatment 10 secrets to a happier life
Posted 05 April 2013 - 10:22 AM
Thank you Dr Okun for your powerful words! If it wouldn't be for this forum, i think my husband would be unemployed now. I kind of think he wouldn't of had to step down to an easier job if we would of had a neurologist and movement disorder specialist that would of been available and worked with us until my husband could move better. We have seen a movement order specialist but it wasn't very helpful. We have to keep looking.
I have talked many times about how a Dr needs to be empathetic, its just as important if not more than the medication he prescribes.
I remember the first appointment with the neurologist, he introduced himself with a hand shake and them sat down and said,' i wanted to be out of the office by 3pm today but someone thought this was life threatening and looked right at me ( I am the wife and he also smiled and said ha you think your husband has PD,)! We said nothing but after the appointment never wanted to go back again.
No it wasn't life threatening but very life altering. It was a miscommunication with our GP and neurologist office. All I did was call and ask if we have to wait 2months to see the neurologist can we order the labs and MRI while we were waiting that they suggested to r/t other conditions. By the time we went to the GP I had finally put the pieces together and had been reading and was pretty sure my husband at age 52 had PD and then all the puzzles of the past 10+ years started making sense.
I have often talked with my husband and said the whole family is effected and especially with young onset we are dealing with a lot, trying to keep jobs dealing with raising children. The Dr really needs to treat the whole person which includes the family.
I encourage everyone with PD or effected by PD to get this book. I got it on amazon for only $5. It is very encouraging to keep the fight and not give up and realize there are things you can do. To keep looking for a Dr that will be empathetic and validating that really is an ok thing to want.
I highly recommend the book!!!!
Thank you Dr Okun for practicing medicine as a calling not just another job! I would love to work in an office with the same philosophy.
Posted 06 April 2013 - 05:56 PM
I think I walked out of there having all I could do not to smack him! What a ass.
Finding a compassionate Doc can be difficult. When you do, they either move or retire.. :-/
Dx in 95' at 35- Normal MRI, Abnormal Da t Scan- Resting tremor- right foot, leg tremors. RX- 25/100 Carb/ l <600 mg,
1mg -Azilect, 3x daily -25/100 ER Carb/ Levodopa.
Posted 06 April 2013 - 08:02 PM
Posted 16 April 2013 - 06:15 PM
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