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#1 Steven1428

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Posted 22 April 2013 - 10:52 AM

I am a 31 year old male. Have been going to a MDS specialist at UT Southwestern in dallas.
Symptoms
Left hand tremor
Stiffness in legs and arm
Depression and apathy
Some kicking and punching in sleep while dreaming though it hasn't happened in a year or so.
Doctor said I have reduced left arm swing
Also said my left hand fingers curl in towards palm which I never really noticed.
Said I had some slowness in left hand
And a few other things
The thing I'm wondering is about these very fast jerky eye movements. The doctor said he saw nystagmus but I didnt tell him about this eye movement issue. Sometimes when I'm looking at something my eyes will jerk very fast side to side it feels like. Reading is hard sometimes. They are so fast of movements that I close my eyes real fast and it fixes it. Have you ever heard of this? Could this be caused by it? I am on sinemet trial and have a datscan scheduled. Thanks


#2 Dr. Okun

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Posted 22 April 2013 - 12:27 PM

Typically these types of spontaneous eye movements are uncommon in PD but not impossible. You should see a neuro-opthalmologist for a specific diagnosis of the eye movement issues and occassionally a MRI scan will be needed. Also note, other diseases and also many medications can result in eye movements. Ocular flutter type movements are complex and require an expert to sort out.

Michael S. Okun, M.D.
Author of the Amazon Bestseller Parkinson's Treatment: 10 Secrets to a Happier Life
National Medical Director | NPF
UF Center for Movement Disorders & Neurorestoration
Read More about Dr. Okun at: http://movementdisor...hael-s-okun-md/
or Visit Parkinson's Disease treatment and research blogs at:
NPF's What's Hot in Parkinson's disease
or his parkinsonsecrets.com blog for treatment tips


#3 Steven1428

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Posted 22 April 2013 - 12:40 PM

Thank you for the response. So nystagmus or jerky eye movements usually aren't seen with pd?
Does the doctor seem to be correct with what he has me doing?

Thanks again

#4 joy h

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Posted 22 April 2013 - 03:23 PM

I had the same thing saw eye Dr also. Both my Movement disorder dr and my eye Dr felt it was Parkinson related. Dr decrease my sinemet and it got a little better. I still have it and I also have sensitive to light issues first thing in the am and late in the PM when the sun is rising and setting. IT is coming through the trees I need to wear dark glasses.

#5 Dr. Okun

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Posted 23 April 2013 - 05:59 AM

Jerky movements called saccadic pursuit occur in PD but are usually not noticed by the sufferer. There can be rare ocular dyskinesia that can be improved by reduction in dopaminergic dosages. The most important thing is seeing someone experienced and getting optimized.

Michael S. Okun, M.D.
Author of the Amazon Bestseller Parkinson's Treatment: 10 Secrets to a Happier Life
National Medical Director | NPF
UF Center for Movement Disorders & Neurorestoration
Read More about Dr. Okun at: http://movementdisor...hael-s-okun-md/
or Visit Parkinson's Disease treatment and research blogs at:
NPF's What's Hot in Parkinson's disease
or his parkinsonsecrets.com blog for treatment tips


#6 Steven1428

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Posted 23 April 2013 - 10:17 AM

The MDS and the neuropthamologist both see nystagmus, which I didnt have till around 5 years ago. They don't see the fast jerky eye movements though. The fast jerky movements only happen a few times a day. Sometimes 3 times and sometimes 10 times in a day. Seems to really do it when I look from one thing to another. The action of looking at something else seems to trigger it. It last for a split second, and I notice it. Someone at work noticed it once. They said while I was looking at laptop reading that my eyes jerked fast back and forth really noticeable. They happened to be looking at me when it happened. Guess my datscan in a month will have some answers. Thanks again for your replies.

#7 Steven1428

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Posted 23 April 2013 - 10:19 AM

Sorry meant to add. This happened before the sinemet trial. It seems to not happen as much while on medicine.




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