Jump to content

  • helpline
  • donate

E-Newsletter Signup Like us on Facebook Sign Up For Our e-Newsletter

Doctors who treat CIPD

  • Please log in to reply
1 reply to this topic

#1 Beau's Mom

Beau's Mom

    Advanced Member

  • Members
  • PipPipPip
  • 1,950 posts
  • LocationSeattle, WA

Posted 26 April 2013 - 09:44 PM

Dr. Okun,

I live in an Adult Family Home. A new resident who looked a lot like a PWP has been diagnosed with CIPD after a bout with Guillain-Barre Syndrome in 2011. Do you know of any centers that treat CIPD in the US? I know this is not your specialty, but you are the only person I know who might have some information on this disorder. Thank you.

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.


First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.


Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.


All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.

#2 Dr. Okun

Dr. Okun

    Advanced Member

  • Ask the Doctor Moderators
  • PipPipPip
  • 5,580 posts
  • LocationUniversity of Florida

Posted 28 April 2013 - 05:21 PM

The trick is to simply look for a neurologist who has taken the boards for electrodiagnostic medicine. These practitioners are called neuromuscular specialists.

Michael S. Okun, M.D.

Author of Amazon Kindle and Paperback 10 Breakthrough Therapies for Parkinson's Disease
Author of the Amazon Bestseller Parkinson's Treatment: 10 Secrets to a Happier Life
National Medical Director | NPF
UF Center for Movement Disorders & Neurorestoration
Read More about Dr. Okun at: http://movementdisor...hael-s-okun-md/
or Visit Parkinson's Disease treatment and research blogs at:
NPF's What's Hot in Parkinson's disease
or his parkinsonsecrets.com blog for treatment tips

0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users