Edited by sarahjo, 14 June 2013 - 12:48 AM.
learning to laugh at self again
Posted 14 June 2013 - 12:38 AM
Posted 14 June 2013 - 07:38 AM
Posted 14 June 2013 - 08:25 AM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.
All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.
Posted 27 July 2013 - 02:46 AM
There is the famous Parkinsons "left turn" that's when you intended to walk straight ahead but ended up veering off to the left.
Then there is the I cant find the word game, best played with someone who knows you and knows you have PD. Great fun for all - sometimes they even find the word I was looking for.
And not to be forgotten is the I'm still awake joke - yes I have been awake for 36 hours, but I have accomplished alot while the rest of you were sleeping. I did laundry, ironed the sheets and pillowcases, baked a fresh blackberry pie (after I picked the blackberries by flashlight), and went skinny dipping in the pool.
Smile every day and laugh at least once at something the PD is now causing you to do. I personally love the "left" turns that happen as I walk. The smile really works - it makes everyone worry what you have been up to!
Posted 27 July 2013 - 07:37 AM
Laughing at myself is one of my favorite things.
Me too! Its the only way to live... PD or no PD.
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users