Edited by sarahjo, 14 June 2013 - 12:48 AM.
learning to laugh at self again
Posted 14 June 2013 - 12:38 AM
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Posted 14 June 2013 - 07:38 AM
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Posted 14 June 2013 - 08:25 AM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 63: Duopa gel via PEG-J tube, 6ml loading dose; continuous dose 2 ml. Trazodone 150 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 135 caregiver hours per month keep me moving.
Posted 27 July 2013 - 02:46 AM
There is the famous Parkinsons "left turn" that's when you intended to walk straight ahead but ended up veering off to the left.
Then there is the I cant find the word game, best played with someone who knows you and knows you have PD. Great fun for all - sometimes they even find the word I was looking for.
And not to be forgotten is the I'm still awake joke - yes I have been awake for 36 hours, but I have accomplished alot while the rest of you were sleeping. I did laundry, ironed the sheets and pillowcases, baked a fresh blackberry pie (after I picked the blackberries by flashlight), and went skinny dipping in the pool.
- LoveMyHubby likes this
Smile every day and laugh at least once at something the PD is now causing you to do. I personally love the "left" turns that happen as I walk. The smile really works - it makes everyone worry what you have been up to!
Posted 27 July 2013 - 07:37 AM
Laughing at myself is one of my favorite things.
Me too! Its the only way to live... PD or no PD.
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