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Does this sound like PD?


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#1 invisable

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Posted 14 June 2013 - 02:08 PM

I know their are no doctors on here, but if I could just have some educated guesses. I am at wits end, having trouble living my life, so worried and anxious all the time. Can hardly eat, sleep, enjoy anything.

4 years ago I started with abnormal electrical sensations all over my body, had every test imaginable (MRI's, 100's of blood tests, Spinal Tap) no findings.

I also started with an "internal" tremor, on one side, at rest, never visable.

These symptoms have not changed in 4 years, no better, no worse.

Doc says if PD, other symptoms would have shown by now, I am not sure I "buy" that. Why would tremor be on one side only at rest??

Please, just wondered if you people would throw me some educated guesses/opinions on this.

I am filled with so much worry and anxiety, any thoughts would be so very much appreciated.

Thank You.

#2 sarahjo

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Posted 14 June 2013 - 02:30 PM

invisible. like I said last night, write down all symptoms you are having including anxiety worry, etc. these are all symptoms that you are disregarding as part of symptoms regarding pd, my symptoms stayed same for several years due to the fact of staying very busy, so I didn't notice the non-motor symptoms, you can look on web for non motor symptoms in Parkinson's and there were a list that made me dig deaper and ask more questions, my friend is on phone with me as I type this and helping me remember what we did. start there and write down everything from burning sensations, to shaking, stiffness when trying to get out of chair or bed to heaviness on one side of body, increased need to urinate, foot drop and dragging, to drooling and word finding, easily frustrated with things that never bother me before, etc.... but this will help you see that there are many symptoms that regular drs. do address as part of parkinsons.

#3 sarahjo

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Posted 14 June 2013 - 02:32 PM

invisible, DONT GIVE UP your search, you know your body better than anybody else, so don't quit looking for answers.

#4 annfisher43

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Posted 14 June 2013 - 02:44 PM

Have you checked with a psychiatrist. They can help with the anxiety and the electrical impulses. I take nurotine and that did wonders for me. Good luck

#5 invisable

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Posted 14 June 2013 - 02:55 PM

Actually, I don't have any other symptoms, the anxiety and depression are from not getting an answer and worrying about the possibility of PD.
MDS checked by neuro exam just a month ago, no telling symptoms, no stiffness, slowness, arm swing good, handwriting, etc. all good.

I am on antidepressents and yes I am on Neurotin which has been a Godsend for electrical impulses.

Thanks for your replies.

#6 Rogerstar1

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Posted 14 June 2013 - 03:11 PM

Doesn't sound like Parkinsons Disease to me. Try the Sinemet test is my advice.

#7 christie

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Posted 14 June 2013 - 05:09 PM

"Sinemet test" (levodopa challenge) should be done only under doctor's supervision. It's much trickier than it seems. Some patients show a positive response to levodopa as a response to placebo. Other patients respond to levodopa only after several weeks or even months of treatment and/or sufficient dose escalation. Only a physician-preferably a movement disorder specialist-can evaluate the results of this test. Only a physician can make a diagnosis.

Invisable,we are no neurologists, exactly as you said. From our experience as patients, we can only tell you that your current symptoms don't sound like PD. If your symptoms worsen or new symptoms appear you could seek another opinion from a movement disorder specialist. Just to put your mind at rest.

-English is not my first language !

-Aged 39. Diagnosed at 35. On levodopa monotherapy (500mg daily).


#8 invisable

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Posted 14 June 2013 - 05:30 PM

Thank you Christie, your advise makes a lot of sense.

I do realize you people cannot dx, just as you said wanted some opinions more or less because you are experienced patients.

Can I just ask though, why being that my internal tremor is at rest and on one side it doesn't sound like PD to you?

Is the fact that I have had no additional symptoms for 4 years the reason?

Sorry to be a pest, but I have no one to discuss this with and feeling like I am backed into a corner all alone.

Thanks again.

#9 christie

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Posted 14 June 2013 - 06:32 PM

Invisable, PD is a clinical diagnosis primarily characterized by the presence of rest tremor, cogwheel rigidity and-most importantly-bradykinesia. In the absence of bradykinesia the diagnosis of PD cannot be established. The sole presence of a single symptom-even if typical for PD-is not enough. Nobody in here can say anything with certainty but the fact that do you don't seem to have any other symptom except an internal "rest" tremor, and no clinical progression over 4 years stongly argues against a diagnosis of PD.
Again, we are no neurologists.

PS: an internal tremor may be more evident at rest....that doesn't mean it's a typical resting tremor.

-English is not my first language !

-Aged 39. Diagnosed at 35. On levodopa monotherapy (500mg daily).


#10 invisable

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Posted 15 June 2013 - 02:42 PM

Thanks again Christie, again you made a lot of good points.

Actually re: the tremor at rest though, it is in my right leg and the minute I move it it stops, just like a switch turned it off. That's how I know it is a resting tremor.

Although, I do realize no progression over 4 years does seem a bit unusual for PD.

#11 sarahjo

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Posted 15 June 2013 - 03:20 PM

invisible, what if you look into other forms of tremors, maybe you already have, before my dx. one neuro dr. said possible essential tremors, or familial tremors, just a thought, praying for you don't give up...




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