progression while on meds.
Posted 11 July 2013 - 12:50 PM
Posted 12 July 2013 - 09:59 AM
Sounds like your meds are working well, if you never notice those symptoms normally!!
Posted 12 July 2013 - 11:30 AM
Posted 29 July 2013 - 01:14 PM
Posted 30 July 2013 - 11:48 AM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 63: Duopa gel via PEG-J tube, 6ml loading dose; continuous dose 2 ml. Trazodone 150 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 135 caregiver hours per month keep me moving.
Posted 30 July 2013 - 02:00 PM
Posted 31 July 2013 - 06:35 AM
It's funny, but what you describe about your wife's left arm matches mine exactly. Sometimes I'll be walking along and realize that my left arm is sticking out, behind me, with the hand twisted around so that it is facing backwards. I wonder how that looks to people who don't know I have PD. I'm not sure if it's really noticeable, or if it just seems that way to me because I am so self-conscious about it.
I was diagnosed around 1.5 years ago at age 47, and I have definitely seen progression. I just had to increase my SInemet dose from 3 25/250 pills per day to 5 25/250 per day, because I was experiencing pretty significant off times around an hour before and after I would take a pill. It is incredibly frustrating not know what kind of progression to expect. I am a very active 48 YO male, and it feels like my PD is moving quickly. That is not a happy thought!
- coacht likes this
Dx'd 3/12 @ 48. Symptoms 7 years prior.
carbidopa/l dopa 25/250 6x daily, CR 2 pills at bedtime
No DaT scan, normal MRI. Dx'd by observation of neurologist,
Symptoms: left side rigidity when "off", sleep disruption, no sense of smell, minor fatigue, back pain
Still an optimist - what is wrong with me?
Posted 31 July 2013 - 08:53 AM
I don't walk like this all of the time but this has been part of my walking repertoire for years. The biggest difference between your wife and Bjenczyk is that I will grab my right arm with my left hand at the wrist behind my back. I don't even realize that I'm doing this. My latest thing is I that I find that I clench the fingers on my right hand in a twisted manner.
Edited by DaveN, 31 July 2013 - 08:54 AM.
Posted 31 July 2013 - 12:02 PM
- sarahjo likes this
Posted 31 July 2013 - 04:07 PM
Posted 31 July 2013 - 05:39 PM
You have to fix the options on the editor for that one, I had that problem but damned if I remember what I did to fix it.
Also, is anyone else having trouble with the enter button to start a new line?
Great now I'm forgetting things too.
Posted 01 August 2013 - 07:18 AM
( haha). Oh well what am I gonna do about it? Am I the only one who says Gonna? Just wondering if this is a southern thing.
I have where my toes curl and cramp but not my hands.
Posted 01 August 2013 - 07:59 AM
Posted 01 August 2013 - 08:38 AM
Posted 04 August 2013 - 06:01 AM
My left arm tends to bend up slight lately and hang (if you want to call it that), closer to my body, while my hand contorts to some kind of claw looking posture. If I concentrate really hard I make it hang down like it used to and make it swing (forcefully) but only while I have full focus on it. Even then I can make it swing forwards but it seems very difficult for it to swing behind me.The Nordic walking sticks help with this.
I also notice that when my meds are first increased, the symptoms though still there are minimal and gradually do get worse. I have increased the Rotigotine from 4mg. to 6 and now 8. Each time symptoms lessen and then gradually get worse.
Posted 04 August 2013 - 03:13 PM
I had what I describe as a dry drunk. (as though I had way to much (way way way to much)to drink) stumbling, slurring speech, moving in slow motion, etc.
Hi, and I have noticed this exact thing and coupled with my cognitive issues THAT was exactly how I described it, dry drunk....When I first went to the neurologist in January I had a couple of horrific days with alot of that. I was afraid of getting pulled over and was grateful to have my MRI in my car in case I needed to plead with a cop who might see me walking and getting into my car walking like that or to hear my slurred speech.
Posted 07 August 2013 - 12:23 PM
Posted 07 August 2013 - 12:52 PM
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