Searching for advice and tips
Posted 11 July 2013 - 02:45 PM
I hope I am posting this in the right place. My boyfriend was recently diagnosed with Parkinson's Disease. He is 37. Right now he experiences tremors and slowness in his left side. Mostly his arm. I am doing the best I can to be as supportive as I can however I don't know much about the disease and honestly I haven't done much research possibly out of fear of what I will find. I have 3 children, 1 9 year old and 2 twin 18 month old. Can someone help me in the direction where I need to go to better understand what he is going through and what to expect and most importantly how I can best help him! I am sure this is hard on him but he is very negative about his future with the disease and I just don't see why. Maybe that sounds silly I know what the disease does to a person but I don't feel it is something to be negative about for our future. Am I being overly optimistic. Any help or anyone who can point me in the right direction of where to start would be greatly appreciated.
I had posted this in the early onset portion but then saw the caregivers section.
Posted 11 July 2013 - 09:31 PM
Look for the Young Onset Parinson's disease book. I think there is one on this site and if not look at the APDA website. They have a young onset site. the thing to remember about Parkinson's Disease is that and I quote from a wise friend, "If you have seen one person with Parkinson's Disease, you have seen one person with Parkinson's Disease." It is so variable in how each person is affected, physically, emotionally, and cognitively. No one can predict how each person will progress or how severe it will get. The young onset people tend to progess more slowly and don't have some of the physical problems that older people get. The real kicker is some of the drugs will do nasty things and you don't know if it is the disease, the person, or the drugs. The sinemet seems to have the fewest problems. A Movement Disease Specialist would be a good person for him to see.
Keep your head up,
Posted 12 July 2013 - 07:57 AM
Posted 12 July 2013 - 08:02 AM
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