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"I think I May Have PD? - frustrated wiith Drs" marycarol

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#1 BillPhil



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Posted 27 July 2013 - 08:50 AM

marycarol, Reading your account of symptoms on the "Ask The Doctor" forum, I thought I was reading my account - right down to the time period. I see my movement disorder specialist on Monday. He wants me to have a DATscan. I don't want one. I'm convinced I have PD! How's you sense of smell? Mine has declined. I am 59. BillPhil

#2 marycarolyn


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Posted 31 July 2013 - 01:51 PM

Hi Bill,
You have these same experiences? I'm not sure if my sense of smell has changed? Sometimes I think I don't taste things as well as before, but not sure. If there are changes, they are subtle. I'm not sure what to do next. I should see a Movement Disorder Specialist, but I'm nervous about not having clear enough symptoms that I won't be taken seriously still. I know something is not right, and I feel very odd, and clumsy, and my hand is not cooperating as normal, but maybe it is not noticeable on the outside? I feel more anxiety when I feel like they don't really listen to my concerns. But I don't think I've seen the right Dr. yet.

These were my complaints: now most of them are resolving (non-PD medication appears to have caused most of the issues): 

undiagnosed; seeking some understanding.

consistent/constant off-balance/mild vertigo experiences; uncoordinated.

decreased left hand dexterity and coordination (lumbrical weakness).

mild cognitive issues.

extreme fatigue.


#3 Rogerstar1



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Posted 31 July 2013 - 02:03 PM

My olfactory nerves started to fail in my first three years after being diagnosed. I would periodically and increasingly smell a unique, incomparable odor (almost like a sensation) of burnt, metallic scent. That symptom has departed and I can still smell perfume, smoke and more pungent aromas but not very well.

#4 BillPhil



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Posted 01 August 2013 - 12:50 PM


Our symptoms are nearly identical. I notice my symptoms alot (hands, gait, general coordination). My movement disorder doc (who I've been seeing for almost a year) can barely detect them and has not given me a definite diagnosis. My sense of smell declined ahead of my motor symptoms. I recommend a movement disorder specialist. He'll probably want a DATscan. Good luck!

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