Newly DiagnosedNewly Diagnosed
Posted 17 August 2013 - 01:33 AM
My diagnosis was rendered at the Phoenix VA Hospital June 19, 2013 by Dr. Kenneth Harris, a dynamic Neurologist. Don't think I ever had a more detailed Dr's appointment than this one. Having worked at the VA Hospital for a year and a half in the Internal Medicine Clinic I became very familiar with Dr. Harris's work. I was honored that he was going to handle my Neurology Consult. If I am going to get bad news might as well be from someone I respect. I was prepared to hear a diagnosis that my MS came back not Parkinson's. Looks like Agent Orange got me again. Thank God I had my wife of 40 years at the consult. She is an amazing woman and I know after the weeks of reading will be an awesome caretaker.
Dr. Harris ordered me to see the physical therapy department of the VA for a Berg Test because I have fallen so many times in the past 12 months. The Technician Mr. Hansen and a Dr. in training administered the exam. They were both exceptional in making me feel comfortable. They gave me exercises I could to at home and scheduled a follow up appointment Aug 29th.
Your web site has given me video's to watch. Ability to read articles written by Dr Okun and all of the health care providers involved. Not sure how this is all going to play out but I am learning to dance in the rain, taking one day at a time, and faith in the Lord Jesus above. Thank you for allowing me to vent.
Posted 19 August 2013 - 07:58 AM
Welcome to our little forum, hope you find anything information you need, There are alot of good people here happy to give advise, answer questions, or just listen when your having a bad day and need to vent. There are a few more of us on here that are Vets also, I'm prior Coast Guard.
Posted 29 August 2013 - 11:44 PM
Having some really problems like today freezing in place and grabbing anything in front of me. Today was a light pole and the wife. Horrible. While at the VA they sent me to ER because my sugar was over 700.
Anyhow, thank you for the warm welcome. I will stay in touch.
Posted 30 August 2013 - 07:49 AM
Thank you for your service also, My oldest is looking to go to the Air Force Academy next year. The youngest of my 3 kids my son is missing from the picture.
I found this site you might be interested in it is a program for VA program for PD, no one at my VAMC even knew about it until I brought it up.
I hear there are alot of great groups out there in AZ.
Posted 30 August 2013 - 08:06 AM
Posted 30 August 2013 - 11:10 AM
Like those words going to AFA. I am so happy for you and him. Sure will enjoy following his steps through your eyes.
I do not understand the VA not having more PD connections. At VA yesterday nobody had anything. I found a place in Gilbert AZ that has meetings so we are planning on attending next week. The coordinator seems real nice, left a positive email.
So I have to ask is your PD a result of Agent Orange? So far the VA Neurologist I have feels it is all AO? Just curious about yours and Vanillab?
Thank you again, you made my day. Look forward to hearing back from you.
Posted 30 August 2013 - 11:23 AM
I hope you will hang around and keep sharing your thoughts with us...
PS: sorry for not responding earlier. BTW, we should all do our best to welcome all newbies. How about a "welcoming committee" for the newcomers? I'm the first to volunteer !
-English is not my first language !
-Aged 39. Diagnosed at 35. On levodopa monotherapy (500mg daily).
Posted 30 August 2013 - 11:34 AM
My PD is idiopathic, meaning unknown cases, I'm abit to young at 42 to have came into contact with AO. I am also a second generation PWP (person with Parkinsons) my Dad was DX 27 years ago in his 40s (Young Onset like me), and Mom was DX last year at 71 years old. Most likely My PD is genetic from my Dad if you play the Odds. ( I've read about 60% of young onset cases are genetic) Although the VA has declared my Dad's PD as service connected.
Posted 30 August 2013 - 02:49 PM
Posted 31 August 2013 - 12:11 AM
Christie thanks for your nice welcome. It really meant a great deal to me. Way past my bed time, taking care of Grandchildren just got them down. Wanted to make sure I checked in with the clan here. My sincere thanks.
Posted 31 August 2013 - 11:42 AM
Posted 31 August 2013 - 05:03 PM
How's the back of your head doin?
Keep those leg muscles moving!
Posted 01 September 2013 - 11:56 AM
Posted 02 September 2013 - 10:17 AM
Posted 02 September 2013 - 09:27 PM
Hey Lee looking forward to visiting your website. In advance thank for putting in the effort.
Hello to tremblenurse. Luthersfaith 1949 was a great year.
Thanks for being there, nice knowing your there.
Posted 03 September 2013 - 12:48 PM
Posted 03 September 2013 - 08:46 PM
As I told Donald Ennis I am surprised that the VA does not do more with Parkinson's? They have groups for Renal, Diabetes put not Parkinson's. They seem to rely on the local Muhamed Ali group at Barrows or the Michael J. Fox organization? I am going to a group meeting Friday at a local hospital in Gilbert AZ really looking forward to hearing from that group of folks. Great progress for me. Thankful I have all of you.
The VA folks enjoyed my "Shaken, Not Stired" t-shirt. My wife has one that say's I am with Shaky. Got to have a sense of humor. I do think that the mantra of Life isn't about waiting for the storm to pass...It's about learning to dance in the rain" makes a great deal of sense. I guess what ever floats your boat?
That's it gang. Again my sincere thanks. Jack
Posted 04 September 2013 - 07:20 AM
Posted 04 September 2013 - 08:03 AM
For your morning pleasure:
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
Posted 04 September 2013 - 09:03 AM
Beau's Mom thank you for the song. Yep good memories. I had an MRI this past weekend and the first song that came on was the Beatle's Magical Mystery Tour, I new I was in sync with something higher, LOL I am sincerely glad I made you smile. Thank you also for the work you do. Keep up the work.
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