Posted 06 September 2013 - 03:25 PM
Here is my experience. Went to neurologist to see if modern science could help active tremors. Things got complicated. The neuro claims I am deveoping Parkinson's and puts me on Sinemet, though he thinks the pd is exacerbated by medications. He does not consider it secondary parkinsonism because the tremors started six months before I ever took any neuroleptics. So far so good. But the neuro decides to keep me on the medications that may be enhancing the deceleration's effects and rob me of the only way I could rule one possibility out. So I went to another doctor and he took me off the neuroleptics. My tremors improve quickly but all other symptoms linger, some getting worse after that. My neuro put in my records that Sinemet gave me a positive response which was never true at all. I will never know for certain perhaps until five years or so, just exactly what the problem is from because the neurologist did the most stupid thing you can do if you are unsure of the diagnosis and you actually care if the patient gets better. Meanwhile the secondary symptoms continue without discouragement. Meanwhile the movement specialist I have been referred to is dragging his feet in a maze of confusing office clerical mistakes and incompetence. This is how even one of the best hospitals in the U.S. conducts their business. It has been three weeks since I requested a referral to no avail. There is no end to the requirements they are making for me to do. All I wanted was an appoitment and now I am told that I will not get one until a month has passed since the referral was made. I want to know if the sinemet is responsible for helping the tremors and why are the other symptoms hanging on without any slowing them down. Or is it because of the withdrawal of the offending neuraleptics? Both methods concurrent there is no way of knowing to my brilliant neurologist in Bowling Green, KY. Educated at Harvard School of Medicine might mean something to someone, but not to me. Sinemet can help you if the conditions are not like mine. I will never go off it, because there is no way in the world to know what is really going on in my disease. And to withdraw it now would mean less effective, if effective at all on it's readministration. People with an whose diagnoses is cloudy need to know all this. Most parkinsonism is secondary from the taking of medication that causes lesions in the brain comparable to other types of it like acute encyphilitus, TIA's and Strokes, Toxic substances and a very rare street drug like XTC. Idiopathic parkinson's is so amorphus and of isolated form unless perhaps derived from the extremely rare genetic mutation type. Sinemet would not have a positive effect on secondary parkinsonism that was more than marginal, but every body responds to any drug in its own way. So the diagnosis I seek out is the one from the movement tests. Having REM sleep disorder, OH and genetic factors support my possibly having PD. But I took offending medication for a decade and a half that would be hard to ignore. Who knows?