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Tremor vs Rigidity PD


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#1 saad

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Posted 30 August 2013 - 06:13 AM

I have read that PWP that have predominantly rigidity symptoms have far worse cognitive problems compared to those who have predominantly tremors issues. They also have a more pronounced decrease, or complete loss, of their sense of smell.
What are your opinions on this?
Which category do you belong to and how have things been for you?

Edited by saad, 30 August 2013 - 06:14 AM.


#2 Donald Ennis

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Posted 30 August 2013 - 07:37 AM

I have rigidity and tremors in what I would say are equal measure, I have little or no problem with my sense of smell, and although I am forgetful, I have been that way for sometime, I occasionally will be at a loss for specific word, but since I have not had any cognitive tests done I wouldn't say I have cognitive problems.
My opinion based on PWP I know, family experience, and personal experience is, PD varies so much from individual to individual that it is near impossible for a casual observer to put symptoms together in catagories like this. To effectively make statements grouping people with specific symptoms together you would need a massive group of test subjects/ observation group.

#3 Daven

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Posted 30 August 2013 - 08:40 AM

I have the same equal parts as Donald, although my sense of smell is quite diminished. My sense of smell has been poor for a very long time, and only recently have I noticed that I miss a lot of good smells. Unfortunately, I am still able to smell a skunk or the foul stench from a Porta Potty. I have some mild cognitive issues that can be a result from PD or aging, who really knows for sure. Like Donald, I lose words, which can be quite frustrating but its not the end of the world. It's my understanding, major cognitive issues don't take hold to the latter stages of the disease. My symptoms are very minor in the grand scheme of things, and my new prescription of Neupro has improved everything immensely.

Saad, have you managed to get in to see a Neurologist as of yet? I know its hard, but you're going to drive yourself crazy researching this disease. I hope your appointment is soon so your mind can be put at ease. I sure hope you don't have PD.

Dave

#4 Beau's Mom

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Posted 30 August 2013 - 09:15 AM

I have little rigidity, quite a bit of tremor, and significant cognitive deficits. Go figure!
Dianne

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

#5 saad

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Posted 30 August 2013 - 09:51 AM

I guess it's the luck, unluck would be more appropriate, of the draw.
Although scientific papers seem to indicate that predominantly rigidity has a much poorer prognosis for the short and long term.
I am worried because I think my PD is predominantly rigidity. Sometimes I can't bend over to pick up an object. I have an acute pain and the muscles simply refuse to obey me. This on top of the words and names of people that I am forgetting more and more is leading me to assume that I am heading to dementia in the very short term. Maybe 2 or 3 years at most.
I know I am jumping the gun, but I can't help it.
My sense of smell has dropped dramatically in a fairly short span of time. Just less than year ago I could smell the slightest thing. Now I can barely smell anything. And my food is starting to taste like cardboard. It's actually tasking subtle things that I miss the most. Food was extremely important to me. I used it to fill all the voids I felt inside. Now I can't do that any more. So every negative thought I used to numb with tasty food is now coming to the surface with a vengeance.
Please tell me guys that there is a life after PD because I personally can't see it.

#6 Daven

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Posted 30 August 2013 - 10:55 AM

Saad, You are aware that some of your symptoms can be from other causes. The rigidity in your back that prevents you from picking things up from the floor could be problems with your spine. Have you been examined by an Orthopedic Spine Surgeon or Neurosurgeon who specializes in the spine. First they'll tell you to stop bending over. Your bending problem is more indicative of a back problem. As someone who has major back issues, I highly recommend you get yourself examined to insure you're not doing permanent damage to yourself. You really need to schedule appointments with the appropriate specialists that can help you sort everything out. You do have some symptoms of early PD, but these same symptoms can be from other causes. Have you had any other tests done besides the blood test that diagnosed your hyperthyroidism? You need to have an MRI of the brain to rule out other issues such as MS, MRI or CT Scan of the spine and EMG/NCS to rule out spine issues. You seem to want to package every problem you have and blame it on PD.

I'm still new to the world of PD, but throwing out doom and gloom statements such as "Please tell me guys that there is a life after PD because I personally can't see it." doesn't do any good for the people on this forum who have been dealing with Parkinson's for years and have a diagnosis. Like I said, I'm still new to this world, but I see myself living a fulfilling life along side PD.

Dave

Edited by DaveN, 30 August 2013 - 10:57 AM.


#7 Donald Ennis

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Posted 30 August 2013 - 11:17 AM

Saad,
My dad has had PD for 27 years now, he has been active most of that time, swimming, fishing, shooting archery and guns, hunting, building cradles in his wood shop out in his wood shop. you ask, is there life after a dx of PD, my dad stands as a firm example to the answer to that.
Not just yes, but "Hell Yes" there is.

In your case with out a dx of PD your placing the cart before the horse. You really need to relax, if I had to guess the majority of your symtoms could be stress induced.

Edited by Donald Ennis, 30 August 2013 - 11:18 AM.


#8 saad

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Posted 30 August 2013 - 02:18 PM

Donald,

If my symptoms turn out to be stress related, I promise to come to your place and take you for a bike ride around the US. You will get to pick the route and the places you want to visit.

#9 tremblenurse

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Posted 30 August 2013 - 06:39 PM

Saad,

First, in answer to your question....I have, what seems to be more rigidity than tremor, though I definitely have both and was told that I also have dystonia (uncertain but seems as if MDS thinks this is a symptom of my disease process and not from meds or primary dystonia)....I also am uncertain if I have loss of sense of smell..I'm sure I don't smell as well but I have used my growing love of spicy things (which has grown hugely) to the fact that I need more OOMPH to taste things because my sense of smell may have diminished (but I am guessing) Cognitively, I am definitely impaired but only in certain areas...this has been one of the symptoms I have the most difficulty with but also have the most fun with when I allow myself to make fun of some of the totally blond things I come out with these days (I'm blond, so I can say this)

As far as this being the end of the world..THIS DX is the beginning of mine...Instead of going through the plethora of tests that NEED to be done to rule out EVERYTHING else, I NOW have a name of what I am fighting and accepting...I have a way to treat it (although MS would've been a much easier dx due to the disease modifying drugs)..........THIS to me is a HUGE relief...not the end of my world.....Its the opportunity for me to find ways that will work in my life to keep it going forward....and to continue to try to find the silver lining each and every day.....ONLY when I KNOW what I am fighting can I have the chance to win the battles...sometimes many through out the day...sometimes little hiccups.

Dave and Donald are right....you need to check into other things, not EVERYTHING will be related to PD even if you have it......Christie and I (a doctor and a nurse, respectively) have given you things from patient points of view as well as from medical professional points of view....but only YOU and your doctor can lead you in the direction that is right for you....Its unfortunate that you rarely respond to sound medical advice, you never seem to take a look in a different direction..but, this could be your depression or need to find an answer (to find an answer you will need to turn over a bunch of rocks, not just one).

As a professor..If a student came to you with a paper and could only give you theory and couldn't site factual evidence I can't imagine that you'd give them a passing grade, unless you were just asking for opinion.....I understand deeply the need to find answers...just please don't sell yourself or your health short.

#10 Luthersfaith

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Posted 31 August 2013 - 04:52 PM

Rigidity here, and ssssllllloooowwwwwnnnneeesssssss of movement, and stiffness, and multitasking is impossible .
Little tremor, it gets worse when I get stressed.
"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)

#11 Gardener

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Posted 21 March 2014 - 05:45 PM

Luthersfaith,

 

I have similar symptomology as you have described and wonder if you could tell me about any pain that you experience with the rigidity.  I'm having a difficult time determining if the pains I have are PD-related.  It is difficult for me to lift anything over a few pounds w/o pain; my hands feel like they are arthritic, my shoulder, elbow, and hip on my affected side experience various levels of pain especially when I lay down.  I have quite a lot of neck discomfort.  Are these pains consistent with rigidity?

Thank you for any help you can give. 



#12 MShep

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Posted 21 March 2014 - 06:22 PM

Saad:  I have both tremor and rigidity.  Meds have done wonders for both especially the ridigity.  I still have tremor but not as much as I used to.  My movement is still very slow compared to what I call my previous life. My balance has gotten very bad.  I also have a problem with my speech, losing a word now and then and I have developed a bit of a slur and stutter at times.  Fatigue is also a factor for me and frequent rest periods are needed.  Get to a Neurologist ASAP and make sure of your condition. I hope it is not PD, but, if it is, IT IS NOT THE END OF THE WORLD.  Make the best of every day that you can.  If you can't do certain things or tasks, just take it in stride and look around you, I can almost guarantee you will see another that is far worse off than you or I. I think you have to keep a positive outlook because with PD, what choice do we have, worry will not change a thing.  Find a support group, I have found they can really be a very positive thing to participate in. 

 

Gardener:  When I was first diagnosed, 11yrs ago, pain and ridigity were my main symptoms.  My neurologist has told me it goes along with PD and the med's I take for pain have helped a great deal.

My pain was everywhere, any movement was a struggle and I did not even want to get out of a chair because of the pain.

Good luck to you both,



#13 Gardener

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Posted 22 March 2014 - 06:06 AM

Thank you MShep.  Did you titrate Sinemet until the pain was gone?  I started at (3) 25-100 a day two years ago and I am now taking (5) plus a 50-200 CR at bedtime.  I would like to take more to see if the pain subsides but my doctor is reluctant to this idea.



#14 MShep

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Posted 22 March 2014 - 08:45 AM

Gardener: Sinemet, for me, was not the answer for the pain.  I started out with (1) 25-100 a day.  Over the years, we have increased to (6)25-100 a day and (1)50-200CR at bedtime.  In addition, I take 1mg ropinirole hcl (3) times a day.  The pain was originally eased by Lyrica.  I was amazed how that worked.  It was like coming out of a bad dream.  After 2years, my insurance required me to change

to a different med, Gabapentin.  I take (2)100mg capsules 3 times a day.  It does not work nearly as well as the Lyrica but it does work.  Sinemet again did not make the pain go away for me.  I am

curious and I hope you do not mind the question.  For me, the pain I had was almost like I had the flu, the all over body aches but worse when a body part was moved.  Is your pain anything like

that?  I know it is hard to explain but that is the best I could do even for my Dr.s  I hope this has been a small help for you.



#15 Gardener

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Posted 23 March 2014 - 07:56 AM

MShep-

Thank you for your comments.  The pain is localized in various places.  It started in my left hand (I had it x-rayed - no arthritis) several years ago before I was diagnosed.  I now have it in my shoulder, hip, calf and elbow (all on the left side) and this past year it is moving to my right hand and arm.  It comes and goes, moves from these places and does seem to improve when I take (2) Sinemet but not for very long.  I have felt that flu-like symptom when everything hurts at once - but more often it is localized in a couple of places at a times.  Would like to know more about this - want to make sure that it is consistent with PD and not some other problem.



#16 afroney

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Posted 24 March 2014 - 07:13 PM

I have read that PWP that have predominantly rigidity symptoms have far worse cognitive problems compared to those who have predominantly tremors issues. They also have a more pronounced decrease, or complete loss, of their sense of smell.
What are your opinions on this?
Which category do you belong to and how have things been for you?


I have no tremor 90 percent of the time.

Rigidity and cognitive issues are my number one complaint. Neuropsych testing revealed my working memory, visual spatial skills, and concentration are very close to Dementia levels. I have lost most of my sense of smell.

#17 FDE

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Posted 24 March 2014 - 11:00 PM

I can not speak to all the pain questions and comments from a personal stand point, but I can tell you what I see my dad who was first diagnosed with PD about 15 years ago going thorough.  Around 15 years ago dad developed a bad pain in his left arm.  Dad went thorough countless doctors and tests before finally someone figured out it was the onset of PD.  After his diagnoses he was started on PD medications that relieved the pain 99% of the time for I would say around 10 years.  The last five years though have been a little more difficult pain wise.  Like I said about five years ago dad's pain was getting more frequent and it started spreading to different parts of his body.  Dad's PD doctor was still able to control the pain for the most part by adjusting the PD medications.  Then just over two years ago dad's pain intensified to the point the PD medication could not longer control it so his doctor put him on Vicodin as needed.  Dad took the Vicodin PRN every now and then during the day and most every night, but a low dose of the pain-killing drug seems to do the trick.  I wish I could say this is where we are at now, but unfortunately two months ago dad's pain became all but constant and then grew to where he now is on Vicodin around the clock and on a high dosage.  Dad's pain is so intense that if you are with him and the medicines effects start wearing off you will know it by his moaning in severe pain.  I know that this pain must be off the scale because dad has always had a very high tolerance to pain and for him to moan in pain, well I have never heard it before even when had a kidney stone or a broken jaw bone from an accident.  I don't tell you all this story to dishearten you only to share my experience and hope you can start finding a way to prevent going down this road (if possible).



#18 Gardener

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Posted 25 March 2014 - 04:29 AM

Thank you for writing FDE.  I'm sorry you and your Dad are having such a difficult time.  No parent wants his child to witness such things.  I think, for now, I'll assume this pain is PD related and see where it goes.



#19 McCall

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Posted 05 April 2014 - 09:26 AM

Mshep, 

your description of the pain you have sounds very much like Fibromyalgia, which I have, and the fact the Lyrica worked so well for you would also lead me to think that. Have you seen a Rheumatologist?



#20 MShep

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Posted 05 April 2014 - 10:06 AM

McCall,

Yes I have seen one.  He ruled out rheumatoid arthritis etc.  He said fibromyalgia was possible but my Parkinsons symptoms needed to be addressed much more aggressively from the symptoms he saw during my visit to him.  He contacted my Neurologist and gave him his reccommendations.  This was earlly on about 8 yrs. ago.  The medications were changed for the Parkinsons and results for those symptoms were improved within just a couple of days and continuted to improve.  They of course have changed over the years and so have the dosages of my med's.  I'm doing pretty well for now with all of the med's.  Thanks for your reply and I wish you well with the fibromyalgia also.






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