The thing I find frustrating at this point is the books I read are in contradiction to my experience. For example, my left fingers and arm shake at times, my toes curl, however the tremor on my right foot seems more consistent. The book says this should be happening on my left leg/foot. Also, the books say that head tremors don't occur with Parkinson's yet Mr. Fox appears to have head bobbing issues.
Also, I find it frustrating that I cannot find good data on what to expect from the progression especially from a cognitive perspective. I have small children I need to plan for, as well as a job which requires a good deal of cognitive ability.
Also, I don't know what my rights are in relation to my insurance company, federal benefit (if I should become disabled), and health insurance.
Finally, I wonder about what I can expect from a psychological change. How much is caused by the drugs and how much is Parkinson's related.
I don't really care about my well being at this point, just worried about my family, I am too young (44)
Any insights you could give would be appreciated.
Edited by eddie sky, 05 September 2013 - 12:04 PM.