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Triathlon part 2


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#1 Prospector

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Posted 07 September 2013 - 08:12 PM

I finished my first triathlon today! It took me 1:20 and the run nearly killed me. On the pd side during the race I didn't have any real problems other than a stiff neck and shoulders right before the start but they vanished once the race began. After the race I was exhausted and took a big fat nap. I usually need to sleep for a bit after exercise so that was nothing new. Really a great experience and I plan to do more. Next time I'm going to run for team fox (Michael j fox foundation) and try to raise some money.
Dx Nov 2012 at 40

Meds: generic sinemet 25/100 x4 a day
Azilect 1 mg x1 a day

#2 young_dad

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Posted 08 September 2013 - 10:44 AM

Congrats! Have you read John Ball's book. I highly recommend it to those with PD who want to exercise. Very inspiring.

#3 metfan31

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Posted 08 September 2013 - 07:20 PM

Nice job! You did all us PWP proud.

#4 Prospector

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Posted 08 September 2013 - 07:24 PM

Thanks everyone.
Dx Nov 2012 at 40

Meds: generic sinemet 25/100 x4 a day
Azilect 1 mg x1 a day

#5 jb49

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Posted 13 September 2013 - 08:42 AM

Hey Prospector,

Congrats on your recent run. Most excellent. I always figured that physcial activity was worth a big handfull of pills. (No side affects either) Actually on second thought there are many side affects: good ones like you may find that you feel more energetic and a happy sense of accomplishment and well being. Unfortunately excercise is not always easy for a Parky. A catch 22 quandry. You want to go for a walk to feel better but you feel so lousy that you can't walk. anyways, do what we can I guess.

Good for you Prospector, keep fighting.

jb
Don't be hard on yourself, try your best and be strong!

#6 Prospector

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Posted 13 September 2013 - 01:00 PM

Thanks jb, I used to hate exercise but now if I miss a day I can tell symptom wise. I'm stiffer and as a result crankier. None of us, I guess, esp those w recent diagnosis, have a clue as to how fast things will progress, so my plan is to get in the best shape of my life before my life won't let me. Now I've just got to cut out the ice cream at 10 pm. That's gonna be tough
Dx Nov 2012 at 40

Meds: generic sinemet 25/100 x4 a day
Azilect 1 mg x1 a day

#7 newbob10

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Posted 15 September 2013 - 07:47 PM

Way to go Prospector! Exercise is king. I'm confident it's helping me feel better than I would otherwise. I've been training for the Milwaukee Lakefront Marathon on Oct 6. If I didn't have such a big target to hit I don't know if I would have been motivated enough to do as much as I have. But I'm glad I have. I've run farther than I ever have before in my life. I don't think I'll keep up the long distance part after the marathon (I'm still quite a bit more stiff on the right side and after about ten miles, it gets bothersome), but I'll redirect my effort to more diverse and consistent exercise. Your accomplishment is inspiring to me. I hope to be sharing my success soon.

Keep it going Prospector!

#8 Prospector

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Posted 15 September 2013 - 10:19 PM

Thanks newbob10! Let me say completing a marathon will be a monumental achievement. I ll be cheering for you on oct 6!
Dx Nov 2012 at 40

Meds: generic sinemet 25/100 x4 a day
Azilect 1 mg x1 a day

#9 newbob10

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Posted 06 October 2013 - 04:58 AM

Today's the day of the Milwaukee lakefront marathon. Raining now but supposed to clear up by race start in 2-1/2 hours. I'm ready!
Cross your fingers for me though just in case :). Thanks!

#10 Prospector

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Posted 09 October 2013 - 07:28 AM

Hope you ran well!
Dx Nov 2012 at 40

Meds: generic sinemet 25/100 x4 a day
Azilect 1 mg x1 a day

#11 newbob10

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Posted 12 October 2013 - 01:37 PM

Prospector. Thanks. The last 4 miles were painful, but I met my goal - to finish! Beautiful day, beautiful course, fantastic support (it's so great - they put your first name on your number bib, so there are people cheering you on by name the whole way). I might just have to do it again next year (I can say that now that the pain had gone away). For me, it took that big hairy goal to get me out there exercising regularly. Totally worth it.
Thanks again. Bob.

#12 Beau's Mom

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Posted 13 October 2013 - 05:42 PM

Congratulations, Bob!


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#13 Prospector

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Posted 14 October 2013 - 08:11 PM

That is awesome! Congratulations !
Dx Nov 2012 at 40

Meds: generic sinemet 25/100 x4 a day
Azilect 1 mg x1 a day




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