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Should I be diagnosed?

young symptoms diagnosis swallowing balance treatment

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5 replies to this topic

#1 Betho



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Posted 09 September 2013 - 02:10 PM

Hi. I am a 37 year old woman with a grandfather and father with Parkinson's. I feel as though I have early symptoms, but my doctors have brushed them off saying it would be unlikely as a woman in my 30's to have Parkinson's. I know that I have the same gait as my father and grandfather, and occasionally a resting tremor. My main symptom is when I get up from sitting I have to take 8-10 steps before I can raise myself straight up from a hunched over "L" position. I am in pretty good shape and work out, but I experience this being "stuck" whether I've worked out or not. I also feel like I have trouble swallowing at least a few times a day. I know I don't have very severe symptoms, but I wonder when I should really bring it up seriously with my doctor or see a neurologist. Any thoughts?

#2 Luthersfaith


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Posted 09 September 2013 - 02:29 PM

My vote is yes see a Neuro. What can it hurt? To not do so... will drive you nuts. You might not have PD, but something is going on... if not... then you know. (PS Tell your doctors to brush up on their YOPD facts.)
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"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)

#3 Donald Ennis

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Posted 09 September 2013 - 02:51 PM

I agree with Luther, go see a neurologist or MDS (Movement Disorder Specialist), my doctor gave me the same brush off and I am 42, if your health insurance doesn't require a referal to a specialist, don't tell your doctor your going, I didn't, then I fired my Primary Doctor.

Also regarding Dad and Gradfather, what ages where they when initially diagnosed? My understanding is that the odds of PD being genetic increase if the PD in other generations is also YOPD.
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#4 Betho



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Posted 09 September 2013 - 04:53 PM

My grandfather was in his 80's but my father has had symptoms since his 30's. Thanks.

#5 JakeL



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Posted 09 September 2013 - 04:57 PM

I agree with Luther and Donald that you should go to a Neurologist. I had the same worries before I went to get my checkup. There's a helpful article on the questions you should ask during your Neurologist visit that I found extremely useful: http://bit.ly/1fS4FJt
It's best to go and get all the worries out of the way.
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#6 bjenczyk


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Posted 10 September 2013 - 04:10 AM

I agree. See a neurologist. My mother has PD, and I started suspecting I did when I lost my sense of smell 5 or 6 years ago. I was reassured by my primary care physician that it was nothing, and it wasn't until I lost my left arm swing a year and a half ago that I was finally diagnosed. I don't know that an earlier diagnosis would have helped in any way, but in your case since you have family history and possible symptoms it would be reassuring to see someone with more knowledge. The thing about unlikely occurrences is that they do happen. Apparently the odds of my having PD at my age are around 1 in 20,000 or so. Very unlikely, but I beat those odds!
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Dx'd 3/12 @ 48. Symptoms 7 years prior.
carbidopa/l dopa 25/250 6x daily, CR 2 pills at bedtime
No DaT scan, normal MRI. Dx'd by observation of neurologist,

Symptoms: left side rigidity when "off", sleep disruption, no sense of smell, minor fatigue, back pain


Still an optimist - what is wrong with me?

Also tagged with one or more of these keywords: young, symptoms, diagnosis, swallowing, balance, treatment

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