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CBD Parkinsonism


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#1 livingwithtau

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Posted 09 October 2013 - 08:50 PM

I know it is more rare form but so hoping to connect with some others with this diagnosis. If you are or know of someone with this variation please post! Thanks.

#2 Beau's Mom

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Posted 10 October 2013 - 10:56 AM

Dear living,

 

Try the following website: www.patientslikme.org


Dianne

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

#3 Beau's Mom

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Posted 10 October 2013 - 10:59 AM

www.patientslikeme.com.


Dianne

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

#4 christie

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Posted 10 October 2013 - 04:23 PM

Livingwithtau...I'm so sorry for your diagnosis.

 

You may also find this site helpful   http://www.psp.org/   (Foundation for PSP | CBD and Related Brain Diseases)

 

This is the link for the PSP/CBD forum  http://forum.curepsp...2c37ea8fd165f24

 

Please remember that CBD is a very rare disease, meaning that the  progression/prognosis in the individual patient is almost impossible to predict. Don't compare yourself to anybody else cause really there isn't much to compare! Statistics don't apply to individuals with so rare diseases...Try stay positive, never give up, and never lose hope.

 

You can also hang around whenever you want and share with us your fears and thoughts...

 

Keep in touch !


-English is not my first language !

-Aged 39. Diagnosed at 35. On levodopa monotherapy (500mg daily).


#5 livingwithtau

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Posted 10 October 2013 - 09:55 PM

Thanks to both of the above responses!




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