Hello, I am 47 and was diagnosed in February 2013. They started me on L-Dopa to diagnose the Parkinsons then put me on Mirapex which made me horribly nauseated and sick, as well as tired. So then my dr. switched me to ropinirole 2mg three times daily which I was supposed to increase to 6mg three times daily over the course of 3 weeks. Same issues. I became very depressed and apathetic and went off everything because all I did was sleep and feel sick, but all my symptoms came back and I wound up stiff, weak and shaky. UGH! soooo...tried ropinirole extended release. Nausea was improved but I was napping for about 4 hours everyday! I couldn't stay awake. This is not okay - life needing to be lived and all. I am soooo frustrated and tired of feeling like crap. does anyone have any suggestions on ways to handle the side effects of the meds? any help would be greatly appreciated! My doctor, unfortunately, is not much help and I'm trying to find a new one that will be able to address issues instead of not knowing what to do.
Meds and side effects
Posted 22 October 2013 - 06:37 PM
I'm sorry you are having such a rough time. I didn't do well on the antagonist drugs either but my MDS switched me to L-dopa and I've done fine. Don't settle for a doctor who doesn't work with you to find the right balance.
Posted 22 October 2013 - 09:18 PM
Are you seeing a neurologist or a Movement Disorders Specialist. The MDS has much more knowledge and expertise in PD than a plain neurologist. The first neurologist I went to had never even heard of a Movement Disorders Specialist. You can call the NPF Helpline number on this website to find one close to where you are.
Best wishes on your journey. You are not alone.
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
Posted 23 October 2013 - 05:21 AM
If you can't tolerate any of the agonists there's always the option to go back to levodopa monotherapy. Levodopa is the most effective symptomatic treatment available. Its short-term side effects are minimal (nothing even close to some of the DAs side effects...). Its sole disadvantage as compared to the agonists is (possible!!) earliest induction of dyskinesias in the long term, especially in patients with disease onset <40 years. if you are more concerned about living a better life NOW instead of a possible better life at some time in the future you could discuss with your neurologist the possibility to switch to levodopa.
That said, you could also try another dopamine agonist (maybe rotigotine/Neupro patch) to see if side effects are milder, or just wait for a few weeks to see if side effects improve with gradual adjustment of your body to these powerful chemicals.
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