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one year and six months after surgery for the DBS

DBS worth it

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#1 cach9851



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Posted 22 October 2013 - 08:20 PM

  It has been one and a half year since I received my surgery to implant two electros in my brain for the DBS system. At first I was scared ,

the idea of someone doing this to me made me very nervous. The morning of the surgery ,I was told that they were going to do my operation with me fully awake.  I was very glad I had it done and so far It is helping me very much. Without it I  can not walk at all. The voltage range is only 2.8 & 3.8. Higher for my right side because it is the side that is affected the most. The only problem I have now is speech. I have to talk slow.  If anyone is considering DBS, it is worth it.   




TIP   FISHERMAN:   site www.no-knot.com

#2 KimAgain


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Posted 23 October 2013 - 08:08 AM

I agree--for the right candidate!  Speech is often impacted with DBS.  (My husband would likely say it's a shame MY speech wasn't affected, but that's another story!!)


Good Luck,


Dx 2004, age 45.  DBS surgery, July 2009:  Bi-lateral STN placement; wires to one battery - on my left side. Battery sustained for right at 8 years and a new one was implanted October 27th, 2016.   Zero Sinemet CR daily (this took six and a half years to accomplish). 100mg Amantadine 3 x daily.  60mg Cymbalta daily.  SPS: Right. I invite communication with anyone who wishes to discuss DBS, PD, or any related topic; my email address is:  wyndsong@charter.net - email me if you'd like my phone number.


"Be kind, for everyone you meet is fighting a hard battle." --Plato

#3 sessie


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Posted 25 October 2013 - 01:27 PM

Thanks for your story and input!

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