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#1 AnthonyB

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Posted 23 October 2013 - 08:23 AM

How do you keep fit,workout or just keep moving ?

 

we just moved states and it's time to get back on a fitness program. 

I love riding a bike,on the road or at home.

Myself i started to ride at least 15 miles a day 7 days a week and will step up 5 miles a day every few weeks.

This month i've clocked up 470 miles,when i can't sleep i add a few miles on the bike.

 

Interested to hear what everyone else does, a little or a lot it doesn't matter as long as we keep moving.



#2 Golden01

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Posted 23 October 2013 - 08:41 AM

My husband was diagnosed with PD eight years ago. While I agree any exercise is good, what has really made a difference for him is PD-specific exercises like the "BIG" or "BIG and LOUD LVST" (he did BIG training) and PWR! Moves. His symptoms are usually noticeably reduced when he does those type of exercises. He also rides a bike, pole walks, hikes, etc. We are planning to convert one of our bedrooms into a mini-gym for him with a treadmill and recumbent stationary bike. He does a lot of balance and "agility" exercises. Right now, he has been sidelined a bit with a back problem and his PD symptoms are much worse. He is anxious to get back to his regular exercise routines.  Next year, he will go for his third "retreat" offered by the Parkinson Wellness Recovery (PWR!) non-profit organization. Find out more about the "exercise as medicine" philosophy at http://www.pwr4life.org/. You can look for clinicians trained in your area through one of the tabs on the website. Look for "Find a PWR! Expert" at the top of the page. 


Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine, Levodopa (1X/Day); Sister and Best Friend from Childhood also have PD


#3 MarciaJ

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Posted 23 October 2013 - 09:02 AM

I noticed I feel better when I get more exercise . So we bought a recumbent bike . I thought it would be easier to keep my balance on. Someone told me there are apps of different cities which you can pedal through. We have an extra room which we will use for exercise . It's on the side of the house so I can sit and watch traffic as I pedal. We may get a treadmill also. Just the fact that I feel better makes it worth while.

#4 markjlyon

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Posted 25 October 2013 - 12:40 PM

Hi--

 

I have found that exercise is so important in living with PD. For me, it's primarily paddling my surfski. I live in San Diego and paddle 4-5x per week, either on the bay or, if I'm feeling adventurous, in the surf. Surfski is great for exercise, balance, and simply moving. And there's nothing like the ocean for giving you a sense of perspective.

 

I also love cycling, but I am limited by exercise-induced dystonia in my left foot. Any kind of walking, running, or cycling can bring it on and cripple me.

 

Best of luck to you.

 

--Mark



#5 Beau's Mom

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Posted 25 October 2013 - 12:46 PM

Way to go, Mark!


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

 

Diagnosed December 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 63: Duopa gel via PEG-J tube, 6ml loading dose; continuous dose 2 ml.  Trazodone 150 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 135 caregiver hours per month keep me moving.

 

Edited 2/5/2016


#6 Golden01

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Posted 26 October 2013 - 06:35 PM

Our son lives in Hawaii and is an avid paddle boarder. My husband is working on his balance exercises so he can paddle board when we go to Hawaii early next year.


Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine, Levodopa (1X/Day); Sister and Best Friend from Childhood also have PD


#7 Anna G

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Posted 27 October 2013 - 12:53 AM

I have benefitted from the exercise classes "Delay the Disease.  The classes are offered at a local Family Y.  I know you can get videos, too.  The program is Parkinsons specific and the exercises address balance, posture, coordination among others.  I recommend anyone who is looking for an exercise program to check it out.  Not only has it helped me physically, the participants end up supporting each other and being a community.  You can learn more here: http://delaythedisease.com/  

 

And no, I am not a paid spokesperson, just someone the program has helped.


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#8 lazlo

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Posted 01 November 2013 - 05:52 PM

I also cycle a lot, both on my single and on a tandem with my wife.  The Brian Grant Foundation sponsors a boot camp class called Powering Forward, I do that twice a week.  I also do a yoga class and tai chi.  It all helps in different ways.  Mark, I envy you being in San Diego and being able to paddle in (relatively) warm water.  I'm in Portland; used to paddle marathon canoes and outrigger, but got burned out racing.  Tried surfski, but never got the hang of it, I guess I need training wheels.  Paddling is recommended for PD, for balance and core strength.  I miss it and need to make time for that, too.  I'm wondering if anyone else gets regular massage treatment?  I get both Shiatsu and Traeger work done regularly, and it helps loosen things up.



#9 johnnys

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Posted 01 November 2013 - 06:01 PM

Il have to try paddling. I could keep a canoe or surfski down by my boat at the yacht club.Walking for me is bad becuse I have a bad subtailer joint when i broke my heel twenty years ago.The nordic trac ski machine is good becase the foot never leaves the ski and there is no side movement.I have sort of gotten lazy lately with exercise and it shows with reduced flexability and ridgity.



#10 bakestein

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Posted 15 February 2016 - 10:20 PM

OK, what's paddling?



#11 bakestein

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Posted 15 February 2016 - 10:20 PM

And are my kids involved?



#12 swimmer

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Posted 15 February 2016 - 10:49 PM

I recently had to give up swimming .. something happened to my shoulder and it became too painful.  I have switched to riding a recumbent stationary bike and have found it gets my heart rate up much higher.  I also do stretching and balancing exercises in a warm water pool.  I do all this 6 days a week.  I go in feeling sluggish and uninspired and leave feeling strong and determined.

 

VERY envious of those of you who have decent PD exercise programs that are challenging.


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--Chris
Age 66, female

Diagnosed December 2013 @ 64 

C/L 25/100 3x daily 

also take medications for depression/anxiety; thyroid, GERD and cholesterol 
2 years prior to dx, experienced dizziness issues and extreme pain in shoulder & upper arm
tremor in right hand (same arm where shoulder pain is in)

swallowing difficulties
difficulty in reading .. staying on one line
occasional toe cramping
unbalanced, but not falling
occasional muscle pain
some cognitive (multi-tasking, over organizing, remembering, spelling) and 'fuzzy brain' episodes
Exercising daily, recumbent stationary bike accompanied by 1/2 hour in a warm water pool to do balancing and stretching

Daily: striving to accept what is ... and work with it


#13 hans55

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Posted 16 February 2016 - 05:57 AM

Boxing is getting popular among us parkies. I am not new to boxing and martial arts ( in fact, I started karate in 1973 and try to keep up during the years). I recently upped my boxing. When I start out on the heavy bag I can barely hold my trembling left arm up and jabbing goes real slow. Aftera couple of 3 min rounds it gets better. After 1 hr in the gym I feel much better and the symptoms abate somewhat. I try to exercise (boxing, stretching, weights)for an hour on weekdays during lunchtime, and some yoga/meditation and qigong at night before bedtime. In the weekends, during the day I try to be as active as I can but most of it is doing stuff in and  around the house and shopping. Not much time for gym. I might try to go back to judo on Saturday morning tho. I cant walk as much I would like as I have some hip joint issues.


Diagnosed sept 2014 at 55, symptoms several years before dx.
For now, exercise and meditation is my medication.


#14 johnnys

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Posted 16 February 2016 - 07:18 AM

Well Ive stuck to my stretching everyday and my treadmill and nordic trac.The ski machine is great except I need a brace to keep my foot from sliding off the ski.Streching was recommended by my doctor to relive the late day stiffness and back pain.t really did help so try it.One thing I have read and felt personaly is PD has a tendency to lengthen recovery times for exercise.I did a hour on the treadmill half running and felt it the next day.So now I do aerobic exercise every other day and avoid the problem.

Thanks so much for everyones input here

john



#15 hercules957

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Posted 16 February 2016 - 03:13 PM

Excrcise is a vry important part of treatment. I walk 45 min a day, I stretch daily too. Day 1, high intensity interval training, day 2, weights, day 3 karate and repeat. The more I move the better I feel.
Norman Dx 04/2013 at Age 56, No meds for 1yr. Used Sinemet 100/25 5 t/d 1 1/2 tab at 6:00, 1 tab at 11:00, 1 1/2 at 16:00, and 1 tab close to midnight. After 1 yr on Sinemet my neurologist put me on 10 mg of Selegiline. Another good move on his part, I feel better overall. Main symptoms: Left side tremors, bradykinesia, fine motor skills problems, apathy, anxiety, swallowing problems. Sinemet lifted the gloom and reduced all my symptoms, small tremors persist. Intolerance to stress persists.<p>After one yr on Sinemet, dyskinesia started in the form of head bobbing and squirming. Stopped Sinemet and Selegiline on May 18th 2016 to begin treatment with Mucuna Pruriens. Dyskinesia disappeared 4 days, found optimum level to be 13.5g of Mucuna a day.

#16 musicman

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Posted 16 February 2016 - 05:20 PM

I would like to try paddle boarding, as I spent 30 years of my life surfing. Even just paddling around on my surfboard would probably be great for me.


Bob

 

Diagnosed July of 2014 (age 57) by MDS and a DatScan. 

Began Azilect 8/6/2014

Started Sinemet 10/25/14.

 

https://www.youtube.com/acoustisongs

 

 


#17 Golden01

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Posted 16 February 2016 - 08:38 PM

My husband worked really  hard on balance exercises so he could try paddle boarding when we went to visit our son in Hawaii last summer. He was successful! We are looking forward to our next visit. 


Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine, Levodopa (1X/Day); Sister and Best Friend from Childhood also have PD


#18 papa57

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Posted 17 February 2016 - 08:43 PM

Have been running long distance, Half Marathons, one Marathon in the past. Our family tradition is to run a 10K in the spring in Green Bay WI. 

 

In trying to keep with tradition in 2015 I worked out, mostly treadmill and core body exercises and was successful in completing the 10K.

 

Currently I'm in the gym at least every other day. Mixing it up. Eliptical machine is a mechanical savior when dystonia strikes during workouts on a treadmill.

 

Starting to do some weight lifting. But very little. Seems important though. Just started doing some of the BIG stretching exercises on opposite days.

 

Personally I do better with a set schedule and have daily goals and hopefully a realistic long term goal.



#19 papa57

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Posted 17 February 2016 - 10:36 PM

Found some pretty good stretching and exercise clips on You Tube.



#20 Golden01

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Posted 18 February 2016 - 07:38 AM

My husband is starting a "Rock Steady Boxing" class for people with PD next week! Just $5 a class. Anyone else tried it? https://rocksteadyboxing.org/ 


Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine, Levodopa (1X/Day); Sister and Best Friend from Childhood also have PD





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