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getting sick when you have PD


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#1 metfan31

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Posted 23 October 2013 - 01:30 PM

Just curious if anyone else has had this occur or not. Recently Dx with PD in stage 1 only. My baseline symptoms there is minimal reduction in speaking volume but noticable, when medicated voice is normal. The issue comes with when I am sick...

The past two colds I have had resulted in me losing my voice for days. Cold before meds I actualy lost my voice for a week and was actually over the cold before it came back. This time I am on Sinemet 25/100 3xdaily and Azilect 0.5 mg daily I lost my voice completely for 48hrs and am still at about 50% still having cold symptoms.

Has anyone else had a cold impact their ability to talk more than normal? Wonder if this a PD thing or if I have just become prone to larengitist (sp).

Thanks

Richard

#2 christie

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Posted 23 October 2013 - 02:25 PM

Any stress (physical, emotional, trauma, infection, etc) can aggravate our symptoms. So, this could be just your PD symptoms going south, because of the virus effect, could be a combination of other factors as well. My first advice  is to consult an ear, nose and throat specialist. Make sure your PD is only to blame. My second advice: don't get sick. Avoid close contact with sick people, don't touch your eyes and nose with your fingers, wash your hands frequently, especially after touching surfaces such as doorknobs, tables, books, etc   in public areas.

 

Get well soon !!


-English is not my first language !

-Aged 39. Diagnosed at 35.

-Currently on madopar (levodopa and benserazide, 500mg daily) and Azilect (1mg daily).


#3 sarahjo

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Posted 24 October 2013 - 09:49 AM

i have noticed that when I get a cold or sickness that my stiffness and tremors are flared up. I try to stay well as much as possible, stress does it to me as well, best of luck could it be that out dominate symptom comes out?



#4 Beau's Mom

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Posted 24 October 2013 - 05:29 PM

Stress, even good stress, can make symptoms more intense. I've noticed during a suspenseful movie that I am thoroughly enjoying that I begin to twitch more. I've had an incredibly stressful 13 months: had two surgeries, an unsuspected 5 week overdose of Sinemet CR, a separation, at least 19 moves. The result of it all was that, last week, after my last hospitalization for an infection in my recently implanted feeding tube, I came down with shingles! That's why it is so important to do everything we can to reduce stress. One young man from Ireland with YOPD asked me on Facebook, "Who did you piss off?" after he read only the story of the past three weeks! I could just hear his Irish accent!  :D 


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#5 PatriotM

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Posted 24 October 2013 - 07:59 PM

Wow Dianne, that's quite a lot to endure in a short period of time! Things have got to get better after all that!

Diagnosed 9/2013

Not taking any PD meds (stopped taking Mirapex due to fatigue)

Using exercise to battle PD

Walk minimum of 12,000 steps a day which improves rigidity,balance, etc (everything but tremor)


#6 chelle

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Posted 24 October 2013 - 10:50 PM

Stress, even good stress, can make symptoms more intense. I've noticed during a suspenseful movie that I am thoroughly enjoying that I begin to twitch more. I've had an incredibly stressful 13 months: had two surgeries, an unsuspected 5 week overdose of Sinemet CR, a separation, at least 19 moves. The result of it all was that, last week, after my last hospitalization for an infection in my recently implanted feeding tube, I came down with shingles! That's why it is so important to do everything we can to reduce stress. One young man from Ireland with YOPD asked me on Facebook, "Who did you piss off?" after he read only the story of the past three weeks! I could just hear his Irish accent! :D



I really hope things start looking up for you. Very aorry to hear u are going through all that.

#7 Beau's Mom

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Posted 24 October 2013 - 11:09 PM

Things are starting to look up, thanks! The one think I've discovered with PD is that I can feel like a victim or be happy in my heart knowing that my body may have PD, but my spirit does not. I am resilient and an excellent advocate for myself and others, so while I'm lying in bed exhausted I'm still happy!


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#8 sessie

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Posted 25 October 2013 - 01:27 PM

I feel like people with PD shouldn't be able to get normal colds & illnesses. It seems like having PD should give a karmic medical pass for all other things! :P

 

Wish it were so!






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