I am in complete shock, all this great info and support about Parkinson every where on the internet and it takes
weeks, or months, to get an appointment to see a neurologist ? My father sits in a mental hospital getting no help for
what they suspect is PD. ( saw a neuro 2 weeks ago and was told he had the disease, put him on meds, then got sick herself and can't see any of her patients and no fill in doctor)
Seriously this is so wrong - I am so flipping mad ! My fathers legs and arms losing muscle tone, he has lost all hope, and is depressed. No doctor seeing him other then a hospital shrink who knows nothing about PD, so she took my father off his meds. He just lays in bed 24/7. No physical therapy - no doctor working on medication. His mind is just fine, totally with it, just very depressed and hopeless. As far as I can tell depression is often part of the problem with PD, I feel what he needs is a good neru/movement disorder doctor, a PT and shrink. How in the world does anyone with this disease get medical care for these problems. It seems like there needs to be a team of doctors not just one neuro... I don't know I am so confused...
I tell him there is hope and they need to tweak his meds, he say's no doctor has told him there is hope, which is right they didn't, my mother was there, in fact he walked out of the doctors office with no info sheet - no nothing about what PD even was. My parents are 84, they don't know what this is, they don't use the internet.. ERRRrrrrrrr
No one getting him out of bed, not even once - No stockings on his legs for circulation, no grab bars in the bathroom so he can help himself to the toilet. He is so upset because there is no bib, so food is all over his clothes. I made thousands of calls trying to get help for him but there is no one in this area of Maine.
I have an apt for him with Dr. Okun in Fla but that won't be until end of Feb. Really ??? 3 months before he can be seen. He may not even make that apt, as he is stuck in Maine, in a mental hospital for trying to harm himself.
Sorry just needed to vent..
Edited by Rebecca2z, 03 November 2013 - 09:19 PM.