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#1 chelle

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Posted 15 November 2013 - 07:47 AM

I know some will agree and some will disagree but I have seen several remarks that can be construed ( I'm an aweful speller) as negative. Sometimes its not even the way its meant to be said. We all come here for support. We are not always right ( this includes myself) or wrong. But we are all rowing the same boat. I know that this maynot change anything but I thought the ultimate goal here was to help, support, and guide people who have no where else to express their feelings. Wether is mad, sad, or happy. You have all helped me through my difficult times and I hope that along this unwanted journey I can be of some help too. I hope that. Everyone has a blessed and safe weekend.

Lots of love
Chelle

#2 thedaveman000

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Posted 15 November 2013 - 09:38 AM

Chelle, 

I haven't had very much conversation with you but I think you are right on the money with this. Whether it's PD, MD, MSA, ALS, etc we are all in this Neurological boat in life. When a person has a broken arm everyone can see it their pain. When a person is dealing with neurological issues however everyone else can't always see the pain and that's where this forum really has value. We all are rowing that boat and know what it's like. I also feel that sometimes, typed words don't exactly show human emotion that we maybe feeling such as, sympathy. Our words might make logical sense and might be correctly structured based on our experiences but people can't always see our genuine concern for them through words (sometimes). Anyway in short, I agree with you Chelle and I value everyone's opinion and support here on this site. Have a good weekend also.



#3 metfan31

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Posted 15 November 2013 - 04:46 PM

Wow. I totally agree, and I think depression and anxiety should be added to Dave's list. I would like to sincerly apologize if any of my comments were read as offensive or cruel. Sometimes my humor doesn't play in the written word, and when I'm not being funny I tend to be too honest. So I hope we all can agree to try to not take things on here personally and try to put our energy in being supportive.

#4 Jlc

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Posted 15 November 2013 - 04:47 PM

Same here. I love this place and everyone here.

#5 chelle

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Posted 15 November 2013 - 07:31 PM

Thanks for posting back. I am guilty of this myself. When I say something in my head it sounds one way then I type it and it sounds different. Sometimes depending on the person reading its state of mind. I know this happens in everyday life not just on here. I try and reread my post to see if its sounds as I was expressing it. And I even try to watch my language (that don't happen often ) we all have happy days, bad days, stressful days and we are all in this together. At least I feel like I would be there for everyone.

Ok its gonna be a lomg weekend. Friday Night Football. Its the firsr game of the playoffs tonight and a wrestling tourny tomorrow so I will be off till then.

Chelle

#6 Beau's Mom

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Posted 15 November 2013 - 08:02 PM

Y'all brought tears to my Parkie dry eyes. The warmth and caring here are palpable to me. There are other places I go for support both in person and online. This was my first home after I was diagnosed and believe it or not, there is less obvious dissensi in these threads than in some other groups. Love you all!


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.





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