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Location state YOPD under 50 region

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#21 annfisher43

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Posted 28 December 2013 - 08:31 PM

I'm 48 and dx almost 5 years ago. I'm in ohio

#22 annfisher43

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Posted 28 December 2013 - 08:32 PM

I'm 48 and dx almost 5 years ago. I'm in ohio

#23 Prospector

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Posted 30 December 2013 - 08:40 AM

41 diagnosed 2012. Louisville ky. Currently in deep depression after loss to UK in basketball. :)
Dx Nov 2012 at 40

Meds: generic sinemet 25/100 x4 a day
Azilect 1 mg x1 a day

#24 Beau's Mom

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Posted 30 December 2013 - 12:04 PM

Prospector, I have a brother in Radcliffe, KY who works for Keyboard Carriage in Elizabethtown. His step-kids are all huge college basketball fans. One stepson and his wife and daughter actually live in Louisville. I can't remember, of course, who they root for.

 

Did we ever get dressed in 30 seconds? I can't recall how to be that fast any longer!


Dianne

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

#25 Gardener

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Posted 30 December 2013 - 05:47 PM

Ann, where in Ohio are you? I'm in Ohio also. Gardener

Gardener, female, 59, diagnosed at 55, 600 mg of Sinemet daily, 1 mg Azilect


#26 Annikin

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Posted 30 December 2013 - 08:02 PM

Melbourne FL   Symptoms started at age 36 (left thumb twitching) , diagnosed last year 11/29/12 at age 46 (went hang gliding the next day!). Still working and going strong. No history of PD in family.



#27 Twitch

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Posted 30 December 2013 - 08:51 PM

Bristol, Rhode Island. Diagnosed Dec, 10 2013. Symptoms started at least 10 years ago with severe stiffness, muscle and joint soreness. Developed a tremor in right arm that's been getting worse for the last year. Also have many other symptoms including gait issues. Haven't gathered myself since my diagnoses.

#28 bluedotsmom

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Posted 31 December 2013 - 04:38 PM

49, just diagnosed 12/18/13, noticable & problematic tremor noticed about October.  Looking back, loss of smell probably 10 yrs ago & have been watched for possible autoimmune disease for about six years.  No one in family with PD.

I live in AR



#29 Rogerstar1

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Posted 31 December 2013 - 06:38 PM

Welcome.  But who is Bluedot?



#30 bjenczyk

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Posted 01 January 2014 - 03:38 AM

49, diagnosed at 47 due to loss of arm swing.  Complained to doctor of loss of smell around 5 years ago.  I am a CPA just outside of Boston, Massachusetts.  My biggest problem is rigidity, not tremor.  Sometimes when the rigidity is really bad I can't bend my left leg and can't walk for more than 100 feet or so.  Still, try to stay positive and enjoy life.


Dx'd 3/12 @ 48. Symptoms 7 years prior.
carbidopa/l dopa 25/250 6x daily, CR 2 pills at bedtime
No DaT scan, normal MRI. Dx'd by observation of neurologist,

Symptoms: left side rigidity when "off", sleep disruption, no sense of smell, minor fatigue, back pain

 

Still an optimist - what is wrong with me?


#31 bluedotsmom

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Posted 01 January 2014 - 01:29 PM

Great question Rogerstar!  Blue is my oldest dds middle name & Dottie is my 2nd dd.  :-)

 

Sorry to be slow replying, I usually get a chance to read at my lunch break & it can be a while before I get back.



#32 johnnys

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Posted 01 January 2014 - 04:46 PM

66 now ,dx 2011,loss of smell 2009,upstate ny near rochester.

 

We are going to get a Noreaster  tonight .Love the vertical snow.

 

Happy New  Year all



#33 Rogerstar1

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Posted 01 January 2014 - 05:04 PM

Hi Johnnys -  I envy you the impending snow storm predicted to exceed 12 inches with the 'lake effect" I hear.  I spent Christmas this year in your Catskill Mountains - little snow this time which was a disappointment to me.  Nothing quite like snow falling in the woods at dusk.  Robert Frost wrote of it so movingly and memorably in his famous poem:

 

 

Stopping by Woods on a Snowy Evening

BY ROBERT FROST

Whose woods these are I think I know.   
His house is in the village though;   
He will not see me stopping here   
To watch his woods fill up with snow.   

My little horse must think it queer   
To stop without a farmhouse near   
Between the woods and frozen lake   
The darkest evening of the year.   

He gives his harness bells a shake   
To ask if there is some mistake.   
The only other sound’s the sweep   
Of easy wind and downy flake.   

The woods are lovely, dark and deep,   
But I have promises to keep,   
And miles to go before I sleep,   
And miles to go before I sleep.
 


#34 AB-Normal

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Posted 24 May 2014 - 01:30 AM

currently 54, Dx in 2013 at 53.  Symptoms started in 1992. I am the 6th person in my family to have PD over the space 4 generations, the second with YOPD. Can we say "genetics"?


Edited by graflexmaster, 24 August 2014 - 07:21 AM.

Michael

Current age= 54

First symptoms: 1975

Prior mis-diagnosis: Dyspraxia, Essential Tremors, Ataxia, "Nerves".....

Final Dx. of Parkinson's: 10/ 2013

 

To quote Cowboy, (a former regular forum member)..........Parkinson's brings us all together. With our many differences and emotions. We have something in common here. It is progressive, dangerous and has adversely affected our lives. We come together here looking for knowledge and comfort from one another.

-- Thank you Cowboy-- wherever you may be......................

 

 


#35 hercules957

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Posted 24 May 2014 - 11:24 AM

56, dx one yr ago. First symptom was anxiety 7 yrs ago, then left tremors/bradykinesia 3 yrs ago.  Toronto, Canada


Norman

Dx 04/2013 at Age 56, No meds for 1yr. Now Sinemet 1 1/2 100/25 3t/d.

Main symptoms: Left side tremors, bradykinesia, fine motor skills problems, apathy, anxiety, swallowing problems.

Sinemet lifted the gloom and reduced all my symptoms, small tremors persist.


#36 DanC33

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Posted 04 June 2014 - 07:42 AM

I am 45, DX Sept 2013. Have had symptoms for 10 years, dystonia/rigidity. I am in Nevada  Also have Lupus


YOPD and dystonia DX 2013  symptomatic for 15 years   25/100 Sinemet 5x daily  1mg Azilect  50/200 Sinemet CR at bedtime  Miralax 17mg  5mg Valium 3x daily


#37 RNwithPD

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Posted 04 June 2014 - 06:24 PM

I'm right here.  Where are you?  :mrgreen:


Currently age 42.  Symptomatic at age 36.  Diagnosed at age 39.  Sinemet  25/100 mg 2-tabs every 4 hrs (800-1000mg levodopa daily); carbidopa/levodopa 50/200 mg CR at bedtime; entacapone 200 mg every 4 hrs; Amantadine 100 mg 3 times/dayy; gabapentin 200 mg 2 times/day; gabapentin 400 mg at bedtime; Klonopin 0.5 mg at bedtime; Seroquel 50 mg at bedtime; Effexor 75 mg daily; Vit-D3 5000 IU daily;Vit-B Complex daily; Melatonin 3 mg at bedtime


#38 afroney

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Posted 04 June 2014 - 08:06 PM

Just turned 29. Diagnosed at 27. Symptoms started at 21. I'm in Eastern Iowa.

#39 Annikin

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Posted 05 June 2014 - 12:54 AM

Afoney- what was the first symptom you noticed?



#40 afroney

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Posted 05 June 2014 - 08:39 AM

Afoney- what was the first symptom you noticed?


REM Sleep behavior Disorder. Kicking punching and yelling in my sleep. Id wake up with a hole in the wall and bleeding knuckles. Insomnia was becoming an issue too.





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