Posted Yesterday, 07:24 PM
Good question, Fred...I hope you,and your family are well..
I didn't want to get into,the whole,story...but yes, I took the ursodial for a couple of days...and I got improvement of symptoms....just like I,got improvement of symptoms when I took the coconut oil....
I stopped because I noticed change in bowel habits....AND I have a history of gall bladder disease...had my gall bladder removed....and have had high liver counts often...since it is likened or associated with bile products...and we really don't know how it works.......I chose not to continue.
Yes, I have tried several supplement regimens....and often they worked....my husband is a chiropractor and advised patients of supplements for nearly 30 years....so I had a basis.......but I don't know if it is apathy....or what...but I am dang sick of taking pills.....I exercise....try to have good nutrition...and working toward balance in my life....remove all stressors....but right now....I hate to admit I am not taking supplements. I just needed a break....I may resume again.
The success I,had with Ursodial was comparable to success I had with other regimens...so I am not able to say for sure any of them were totally effective or might have been placebo effect. I don't want to get into a debate about this....I only wanted to,point out that solutions for,diseases,have come from serendipitous beginnings....and unless someone takes on the project...such as,the character Robin Williams played in "Awakenings"...we,lose,the opportunity of discovery.
My symptoms,have advanced pretty quickly in the last few years...and I am going simple.....trying to reduce variables...so I can identify what is PD and what is not....I mentioned using a "doctors care" simply because "newbies" may choose to try things when they are still trying to get a handle on PD.
Fred...I admire you for,trying to help others...and perhaps I,shouldn't have posted....as I REALLY don't want to get into this discussion. I believe your intent is legitimate...and i thought my post was positive...not negative....
Good luck with your project...we all hope an answer is,found soon...
Dx'd 6/13 @ 66. Symptoms 10 years prior.
carbidopa/l dopa 50/200 5x daily. Amantadine 100 mg 2x per day.
Normal DaT scan '13, normal MRI, '13 Dx'd w/l dopa challenge in office by MDS
Second DaT scan, 10/14, normal.
Symptoms: significant tremors rt & lft side, rt leg drag whn tired, balance, slow movement, cognitive/ speech issues, apathy
Live, laugh, and be grateful.
"ACCEPT, ADAPT, AND MOVE ON."