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9 replies to this topic

#1 mike709

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Posted 29 December 2013 - 06:41 PM

Does anyone else get numbness in hands and feet when lying down. Is this normal with Parkinson's

#2 redsox34john

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Posted 29 December 2013 - 09:13 PM

Hi Mike,

 

Yes Numbness and Tingling is a PD side effect, like the tremors, achy muscles, memory problems etc isn't enough, check with your Parkie DR, or your primary and let them know you are experiencing this, I get this every now and then my Parkinson's is on my right side for now, I am only 40.

 

Hope this Helps

John



#3 MjolnirTime

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Posted 30 December 2013 - 12:03 AM

Mine comes on despite of position, and is typically only surface numbness (just the skin).

#4 Mihai

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Posted 31 December 2013 - 08:30 AM

Hi guys,

I have noticed a lot of numbness in my hands and feet (toes mostly) in the past several months...not sure what that's all about...have to research it. I do empathize with you on that topic!

Mihai
Diagnosed in 2001 at 33 years of age

#5 sarahjo

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Posted 31 December 2013 - 02:37 PM

yes i get it on my right side usually when laying in bed or sitting for long periods of time. dont know what they can do for it i just take it as it comes, don't stress to much about it, if you get answers let us know, bless you all.



#6 Annikin

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Posted 11 January 2014 - 03:30 PM

Hi guys,

I have noticed a lot of numbness in my hands and feet (toes mostly) in the past several months...not sure what that's all about...have to research it. I do empathize with you on that topic!

Mihai

Mihai- I have noticed the numnbness in my toes as well- any luck researching it? Mine fits the description of peripheral neuropathy-sometimes it feels like something is wrapped around my toes like tape or a strand of  hair- waiting to hear from the neuro doc if it is PD related and what I can do for it. Sometimes its numb, other times it is numb but  shocks me when I walk, worse with shoes on- it started in one toe now it involves three toes. The toes look pink and healthy but the spreading to adjacent toes has me concerned



#7 Beau's Mom

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Posted 11 January 2014 - 03:51 PM

At http://www.patientslikeme.com/, there is a questionnaire for PD patients to fill out periodically. One of the questions is about numbness, tingling and pain that can be attributed directly to PD. So, yes, the pain and tingling in my toes that began years before I was diagnosed is PD related. It's a wonderful, free website where you can find many diseases and track your symptoms, join a forum if you like, keep a journal, and remain anonymous. You can even make a printout showing your ups and downs over time to take to your MDS visits. My new MDS really liked that I brought that with me last week. Even those of you with multiple disorders will find people just like you there. Check it out!


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#8 Mihai

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Posted 11 January 2014 - 04:43 PM

Nope, haven't looked into it yet...I'll try to see what I can find...

 

Mihai


Diagnosed in 2001 at 33 years of age

#9 lethe

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Posted 12 January 2014 - 11:48 PM

I've felt general numbness in my legs, up to my thighs, for the last year.



#10 sarahjo

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Posted 13 January 2014 - 12:55 AM

i was just thinking about this topic the other day, several months ago, i told my husband when i am laying down in bed or just paying attention i guess i feel as if my legs and sometime hand and arm up to elbow and occasionally my cheek on right side feels as though they are numb just on the skin, its different than when i have the heaviness in my limbs, i am right side symptomatic  but lately i have had some of these wonderful symptoms on both sides, trying to stay positive, and take one day at a time. I hope the best for you all. 






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