I am a caregiver for my dear friend and love of my life for 35 years. She started showing symptoms that I noticed in Sep of 2012. They worsened in March of 2013 to the point where she had a hard time brushing her teeth, was mumbling and had soft speech, drooling and slow gait. I demanded she see her doctor and assertively get a referral to a neurologist. (She is very stubborn/passive - and I was not local at the time to help her get this accomplished) The doctor kept blowing her off as being clinically depressed and after 4 months sent her to a Psychiatrist. The Psychiatrist told her it was not clinical depression and that it was physiological. he referred her to a neurologist and for blood tests.
Her blood tests were normal except for higher than normal levels of arsenic in her system. She has since had further 24 hr collections tests that were within normal ranges. The neurologist was giving appointments 4-5 months out and upon us being more forceful suggested she go to the ER. As ridiculous as it may seem, it was our only option in Fresno Ca. (I looked on this website and there was no resource for a PD Dr within 100 miles. The closest is the Parkinson's institute in Sunnyvale Ca. (2.5 hrs away) And yes I am currently working on getting her in for a consult. As I write this they are scheduling for July 2014.
After a 27 hr.....YES 27 HR visit to the ER, she was seen by a neurologist and diagnosed as PD. She had one follow up two weeks later and her meds were increased. The next appointment is 8 months away.....YES 8 MONTHS! WTH???? Her neurologist is on maternity leave. I asked her office who was seeing her patients and I was told no one. If she needed to see a doctor go to the ER. Really? Brand new patient....who knows if her meds are gonna work and no follow up with same doctor for 8 months. Absolutely ridiculous.
I spoke to the Parkinson's Institute in Sunnyvale, Ca. and will work on an appointment there. In the interim, they referred me to this website to find a regular local neurologist. There are none!!!!
Help!! Anyone live in the Central California valley and know of a specialist in these parts that is actually available to be seen?
Thanks in advance.