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Lactose intolerance

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#1 Beau's Mom

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Posted 10 February 2014 - 10:57 PM

Dear Kathrynne,

 

I'm trying not to feel stupid asking this question, thus the title.

 

If I can't eat cow's milk and cow's cheese, would eating goat's milk or goat cheese also be a problem?

 

Thanks.

 

Dianne


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#2 Kathrynne Holden, MS

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Posted 11 February 2014 - 07:03 PM

Dianne, that's a very intelligent question, so much so that researchers are scratching their heads over it. There are a couple of common concerns --  allergy and lactose intolerance.

 

Usually we grow out of cow's milk allergy by the teen years; but not necessarily. However, children usually cannot tolerate sheep or goats milk;  some children can tolerate mare's or donkey's milk.

 

Lactose intolerance, however, can be lifelong, and individual tolerance of different mammalian milks varies considerably. I do think I would seek help from an allergy specialist, rather than trying it on your own -- there are so many possible confounding factors.

 

If you detail the concerns with cow's milk, I will  see if I can provide further help, i.e. has the problem with cow's milk been lifelong; is it a diagnosed allergy; is it lactose intolerance; did it occur after diagnosis of PD, etc. Details will be very helpful.


Best regards,

Kathrynne Holden, MS

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#3 Beau's Mom

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Posted 11 February 2014 - 10:12 PM

Thank you, Kathrynne. I was advised to stop drinking/eating dairy products as part of an IBS diet several years ago, before my PD diagnosis but not before PD symptoms. I've never been told I have a milk allergy, but have hated drinking milk since childhood. In elementary school milk was a nickel. I saved one nickel and every other day bought an ice cream bar for a dime. I didn't tell my mother for 30 years! Not eating foods that irritate IBS has caused considerable weight loss and helped my constipation to some degree.


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#4 Kathrynne Holden, MS

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Posted 12 February 2014 - 06:40 PM

That is a great help, thanks. I would have most certainly picked ice cream bars over milk, had I only had the choice!

 

My first thought, perhaps wrong, is that you will probably need to rule out all dairy. Your lifelong aversion to milk speaks volumes, and most often all kinds of milk are offenders. You may be among the exceptions, though.

 

My second, more important, thought is to be certain that you've been correctly diagnosed. More and more information is becoming available about IBS. Of concern, it is often misdiagnosed. Frequently, people are diagnosed with IBS but they actually have Small Intestinal Bacterial Overgrowth (SIBO), celiac disease, gluten intolerance or candida.

 

Most cases of IBS are triggered by cell-mediated delayed-type hypersensitivities. A colleague of mine specializes in this field, and I recommend you contact her:

 

Jan Patenaude, RD, CLT
Director of Medical Nutrition
Oxford Biomedical Technologies, Inc.
970-963-3695 (Mountain Time)
Fax: 215-895-9921
DineRight4@aol.com
 

She can direct you to a therapist who can determine the exact nature of your GI concerns, and precisely which foods to avoid; and whether you can safely drink goat's milk. The program has had many, many successes, including a relative of mine. I don't have nearly the breadth of knowledge and training in this field as Jan does; but certainly, if I can help further, let me know.


Best regards,

Kathrynne Holden, MS

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#5 Beau's Mom

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Posted 13 February 2014 - 10:22 AM

Thank you, Kathrynne. As always, your advice is right on target. I've been meaning to ask my GI about SIBO. I'll have to begin a list for my next appointment. I will also write to Jan Patenaude if it turns out that my problem is indeed IBS. That diagnosis comes from the early 1980's, so may well be wrong!

 

Dianne


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#6 Kathrynne Holden, MS

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Posted 13 February 2014 - 06:20 PM

You're very welcome; and please let us know the results when you've talked to your doctor.


Best regards,

Kathrynne Holden, MS

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