I had an appt. with my MDS today and she suggested adding Azilect to my Sinemet to help even out my on/off episodes. I have read that many of you are already taking Azilect. I have private insurance (i.e., I don't have group/employer coverage, I pay for my own policy) and the drug is in the formulary so I looked up the cost on the internet this evening and found that it costs about $510.00 per month! I'm curious about how others afford this drug. I also would like to know if anyone thinks it is so beneficial that it would be worth $510/month. Thanks for your help.
Posted 11 February 2014 - 06:54 PM
Gardener, female, 58, diagnosed at 55, 650 mg of Sinemet daily.
Posted 11 February 2014 - 07:31 PM
I take it. Have taken it since 2006 when I was in the original drug study. I would not pay $510 per month for it. Currently, my insurance through my job has formulary drugs via mail order for $60 for a three month supply.
Posted 11 February 2014 - 08:03 PM
When I was first diagnosed with PD, my Neuro wanted me to start taking Sinemet. But, I didn't want to start taking "heavy" drugs. So I was prescribed Azilect. Like you, with my Medicare Part D plan, it would have been super expensive. Fortunately, since I'm a Vet, I can get a 90 day supply for $27 from the VA.
My experience with Azilect (prior to starting Sinemet) was that it did not offer me any reduction of my tremors. After 3 months, I went on Sinemet. The only reasons why I still continue to take Azilect is 1) For me, it's cheap and 2) My Nuero thinks I should stay on it (no harm no foul).
70 year old married Caucasian male. PD symptoms first expressed approximately 1995. First dx'ed with PD 2012. Cause of PD believed to be exposure to TCE 1964-1968
MY LIST OF DAILY MEDICATIONS *
1200mg URSODIOL since 10/16/2013 to Halt PD's Progression [ It's still working!!! ]
1mg Azilect because it may slow down PD's Progression [ Doesn't seem to work for me ]
6 tabs 25/100 Sinemet to control PD's tremors
400mg Ibuprofen to relieve Back Ache, Nocturia and minimize RBD [ Don't know why, but it works ]
100mg Losartan for High Blood Pressure
5 mg Amlodipine for High Blood Pressure
10 mg Lipitor to improve LDL/HDL ratio
1000mg Vitamin D3 because my wife thinks I should take it
* All medication are taken after meals, not by the clock, without experiencing any "downtime."
Posted 11 February 2014 - 08:41 PM
For my husband, we pay $50 for a three month supply through our insurance, it is what they call a "Tier 3 Drug". Once the insurance company made a mistake and removed my husband from our coverage (was supposed to be our son who got a job with insurance!). We went to pick up the Azilect and it was going to be $1,400 for a three month supply. We waited a few days until the insurance company could get his coverage straightened out before getting the prescription. I don't think we could pay the $510 a month.
Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine; Sister and Best Friend from Childhood also have PD
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