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Could be Parkinson's?


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#1 kelly97

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Posted 20 February 2014 - 02:31 PM

Hi everyone. I have MS, but I have symptoms that lead me to think I might have something else going on with me.

 

I have hypophonia, dysphagia, fatigue thru-out the day, drooling (nighttime & daytime), loss of balance, right arm doesn't swing very much when walking, intermittent tremors/fluttering of fingers on right hand - if I have my arm down to my side, I'll feel fluttering in my pinky & ring finger, other times if I have my hand down right in front of me with palm up, my fingers will flutter/quiver as well as my thumb, sometimes my thumb will be out of control when I'm trying to push a button on my phone - it will be going side to side every which way uncontrollably, & I have hallucinations - feeling of someone coming up behind me & also a shadow of person out of corner of my eye & vividly really seeing someone standing there all of a sudden out of the corner of my eye that makes me jump out of fear & flinch & then they're gone, & I'm having major cognitive difficulties per a neuropsych evaluation.

 

What do you think?

Thank you,

Kelly


Edited by kelly97, 20 February 2014 - 02:32 PM.


#2 Rogerstar1

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Posted 20 February 2014 - 03:26 PM

It's impossible for me to do more than speculate.  Your symptoms don't sound anything like the way my PD commenced, however.   Your underlying MS diagnosis enhances the likelihood that my own and most of the opinions you'll develop  here are conjectures  Diagnosing PD is a little bit of an art form and I've come to believe that amateurs who dabble can obfuscate to the point of interference. That's my two cents. I wish  for you  a good outcome  and a speedy one. Kelly.  


Edited by Rogerstar1, 20 February 2014 - 03:27 PM.


#3 afroney

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Posted 20 February 2014 - 09:00 PM

It's impossible for me to do more than speculate. Your symptoms don't sound anything like the way my PD commenced, however. Your underlying MS diagnosis enhances the likelihood that my own and most of the opinions you'll develop here are conjectures Diagnosing PD is a little bit of an art form and I've come to believe that amateurs who dabble can obfuscate to the point of interference. That's my two cents. I wish for you a good outcome and a speedy one. Kelly.


My doctor ruled out MS after a negative spinal tap and MRI.

#4 kelly97

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Posted 20 February 2014 - 09:19 PM

Hi again, Can you please tell me a little about your presenting symptoms? Is there a link or a search I can do on this forum to find what others have experienced at the onset that went on to get a diagnosis of PD?

Thank you.



#5 Rogerstar1

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Posted 20 February 2014 - 09:55 PM

My early symptoms included tinnitis (ringing in the ears), loss of arm swing on one side and a tendency to visibly scuff the sole of ,my right shoe(s).  Then later writing smaller as a line of words moved across the page.  Family members mentioned that the shape of my head had changed presenting sharper features.  But you see  the wide variety of symptoms, including loss of smell and drenching sweats are so diverse as to be poor determinants....as is a confusing  tendency to present psychosomatically.  You need to consult a neurologist, Kelly or a doctor at this forum.


Edited by Rogerstar1, 20 February 2014 - 10:24 PM.


#6 kelly97

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Posted 20 February 2014 - 10:17 PM

Thank you. I'm going to see a new neurologist in mid March to speak to her about it.



#7 afroney

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Posted 21 February 2014 - 06:22 AM

My early symptoms included tinnitis (ringing in the ears), loss of arm swing on one side and a tendency to visibly scuff the sole of ,my right shoe(s). Then later writing smaller as a line of words moved across the page. Family members mentioned that the shape of my head had changed presenting sharper features. But you see the wide variety of symptoms, including loss of smell and drenching sweats are so diverse as to be poor determinants....as is a confusing tendency to present psychosomatically. You need to consult a neurologist, Kelly or a doctor at this forum.


My earliest symptoms was insomnia, REM Sleep disorder, and trouble concentrating. That was about 7 years ago. Then came the unexplained neck pain and cramping in my legs. About 5 years ago. The stiffness, limp in my left leg, and no left arm swing was about 3 years ago. Then the resting tremor, 4 hour per night sleep, daily panic attacks came about 2 years ago.

Find a good neuro. Preferably an MDS who has lots of Parkinson's experience. Doctors missed my diagnosis for 7 years. By the time they finally got it, I was prsenting all the obvious symptoms.

#8 PatriotM

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Posted 21 February 2014 - 10:04 AM

Hi Kelly,

 

As I'm sure you already know, many of these neurological diseases have the same or similar symptoms.  I have late stage Lyme Disease, which it took the doctors many years to diagnose.  I was diagnosed last September with Parkinson's Disease also after the tremor in my left hand and foot became so pronounced that I went to see my neurologist.  Many of the symptoms of PD are identical to Lyme Disease (and probably MS also) and therefore all of these diseases are difficult to diagnose even by a competent doctor.

 

I have many of the same symptoms that you have including dysphagia, fatigue, tremor, balance issues, and decreased arm swing. 

 

Good Luck!



#9 kelly97

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Posted 21 February 2014 - 06:16 PM

Thank you!  :-)



#10 New normal

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Posted 11 March 2014 - 06:40 AM

Hi Kelly,
I went several years with MS symptoms which included bowel dysfunction. I started having Parkinson symptoms. Conventional testing, Dat & MRI were inconclusive. A Parkinson specialist neuro gave me L dopa and symptoms resolved. What I hv read says Ms and other diseases do not respond to L dopa. So it is now conclusive I hv PD not MS.

However, I hv read where people can have both. A movement disorder specialist neuro can be yr best resource. One benefit wd be that IF u hv PD, the L-dopa wd give you relief from the tremors.

God bless u, Kelly. You have purpose. You show others one can endure and prevail. My prayers are with you that you find something that can provide relief for you. It never hurts to have hope.
Dx'd 6/13 @ 66. Symptoms 10 years prior.
carbidopa/l dopa 50/200 5x daily
Normal DaT scan '13, normal MRI, '13 Dx'd w/l dopa challenge in office by MDS
Second DaT scan, 10/14, normal.
Symptoms: tremors rt & lft side, rt leg drag whn tired, balance, cognitive/ speech issues, apathy
Live, laugh, and be happy.

#11 kelly97

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Posted 11 March 2014 - 10:46 AM

Thanks for sharing your experience with this. Hope I can find a good doctor....






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