Posted 25 February 2014 - 01:31 AM
Dinnes, in the first two years after diagnosis I was extremely irritable and short tempered when I had not been before. Part of it was fighting the diagnosis in my head. A huge portion was being tired all the time, foggy-headed, and slow.I was used to being the helper, not the person needing help. I alienated people with my irritability and unpredictable moods. Over time, as I accepted my diagnosis and began to choose what was best for me and not try to be who I always was for everyone, those feelings are much more manageable now. It helped that I had a Rehab psychologist I saw every week who was very knowledgeable about PD. I still see her every two weeks.
Be gentle with yourself as you work through the grief process (many times, with each new loss). It is a necessary and survivable experience that leads to some measure of happiness and hope for a good life even with PD. Keep sharing. It helps, and we are here to listen and support where we can.
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.
All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.