Have always had "on' dystonia from sinemet. Although gpi location for my 9/13 dbs surgery was suggested by my neurologist , my neurosurgeon thought stn was best. Now programming and meds both provoke shoulder and foot dystonia. I like both my docs but we are all stymied. Can you please recommend programming or meds suggestions for stn dystonia. Or tell me there is nothing that can be done. The neurosurgeon recommended a 2nd gpi surgery which I would like to avoid.
My husband and I heard you speak on dbs at the YOPD Minneapolis conference in 2004. It was great. THANK YOU for all that you do for the Parkinson's community. Finally had DBS 9/13. shows great potential but I am frustrated now. Hope that you can help.