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#1 johnnys

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Posted 06 April 2014 - 08:43 AM

Hi,

Ive had PD now for five years.My condition is pretty much drug and exercise controled and I use the method from Dr. low to maintain my emotional health.

My spouse has been ill since Christmas.She is suffering from a bad case of diverticilitis.She has been in the hosptial several times and hopefully now she wont have to go back unless she needs surgery.

Ive been taking good care of her and especialy advocating  with her healthcare.one thing that has helped is i did alot of investigating her symptoms by googling all her conditions and drugs.She had alot of back pain spreading down into buttocks and legs.She also had burning in her shoulders and neck.i found simular cases even though her doctors were unaware.Now she is home and the pain is managable with pain killers.

Now before I had PD I doubt I would have had as much emathy for my wife.I mentioned to her doctors I knew all to well what uncontrolable pain when I had dystonia.In dealing with her providers I had alot of temper but I didnt express it and things improved with good communication.Express your feelings but supress your temper.

There are pluses of having PD and sufferers can be good caregivers. Of course i wouldn't have been able to do as well without Dr Low and his method.www.lowselfhelpsystems.org

I hope all you look into Recovery Inc.if your looking for mental comfort.

www.lowselfhelpsystems.org

John



#2 Tadpole

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Posted 06 April 2014 - 03:58 PM

I can identify. My husband and I have played "trading places" a couple of times since we retired. We figure we just role play the best way for the current situation.



#3 Didi

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Posted 06 April 2014 - 05:49 PM

I can definitely identify. Although my husband and I are  "young" --  47 and 50 respectively, we are both now dealing from chronic illness. I was diagnosed with an illness similar to Lupus 3 years ago and my husband cared for me, now 3 years later, I am doing well on medications, and we discover that he has PD. We can't both help but wonder what the future will hold -- Who will take care of whom?  Hopefully the trading places will work, and we won't both be dealing with a setback at the same time. At least we both will be able to have empathy for one another. Thank God we have our faith, our family, and  a strong marriage. With God we can deal with whatever lies ahead.

Your wife is blessed to have a caring husband. I hope she is feeling better soon!



#4 FlyBaby

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Posted 29 August 2015 - 05:12 PM

This makes me wonder how many of us here, are in a similar situation, of dual diagnosis of both partners in a relationship. I continue my fight against my PD, while my DW is just beginning her journey with MS. What do you do when your primary caregiver is DX'd with a disease as chronic as PD?


Michael

Current age= 55

First symptoms: 1975

Dx.

Parkinson's Disease, Ataxia

 

DBS surgery 12/2014............ Bilateral lead placement with a single battery/stimulator on RH side. Turned on 12/21/14

current settings:

2.0v Left, and 3.2V Right  and 3 - 25/100 Sinemet CR per day.................

 

"I will do what i can, while I can, and when i can't, I'll do something else" (that is.... unless I've already gone "squirrel".... and went looking for someone's horse......)

 


#5 miracleseeker

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Posted 29 August 2015 - 05:56 PM

Caregivers end up getting sick after putting their needs behind the people they look after so I think it's pretty common. 



#6 FlyBaby

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Posted 29 August 2015 - 06:16 PM

I'm not referring to the regular stuff, what I'm talking about is other conditions as bad as PD or worse.......... aka, Lupus, MS, Cancer, etc.....


Michael

Current age= 55

First symptoms: 1975

Dx.

Parkinson's Disease, Ataxia

 

DBS surgery 12/2014............ Bilateral lead placement with a single battery/stimulator on RH side. Turned on 12/21/14

current settings:

2.0v Left, and 3.2V Right  and 3 - 25/100 Sinemet CR per day.................

 

"I will do what i can, while I can, and when i can't, I'll do something else" (that is.... unless I've already gone "squirrel".... and went looking for someone's horse......)

 


#7 miracleseeker

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Posted 29 August 2015 - 07:11 PM

A lot of people on the forum have noticed their PD came during a time of great stress.   Caregiving is stressful so I'm not surprised that bigger health issues can come up as a result OR just a timing thing that you get sick and he/she get sick after you.  It just sucks either way.






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