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Early on in PD, how many bowl movements did you have in a day


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12 replies to this topic

#1 Bills

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Posted 10 April 2014 - 08:14 PM

Early on and currently, if you guys dont mind me asking?


Edited by Bills, 10 April 2014 - 10:20 PM.


#2 Jenette

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Posted 10 April 2014 - 08:21 PM

I didn't realize that constipation was a PD symptom. I was very constipated and was lucky to have a bm every other day. It was so bad that (this is gross) I felt I needed to dig it out. I still have trouble and when I need to, I'll use an enema

#3 Gardener

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Posted 11 April 2014 - 04:02 AM

Bowel movement problems (mainly constipation) are a very common symptom and can present many years before diagnosis.  The question should be:  How many bowel movements did you have per week?  And, the answer for me would be none.


Gardener, female, 60, diagnosed at 55, 900mg Sinemet divided into 6 doses, plus 50/200 Sinemet ER at bedtime


#4 DanC33

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Posted 11 April 2014 - 09:22 AM

From my limited experience, my MDS said that constipation is one of the first things that they look for in DX PD.  For me I went from daily then every 3 days to now if I go weekly I think I've accomplished something. I even use every softener and laxative out there.  


YOPD and dystonia DX 2013  symptomatic for 15 years   25/100 Sinemet 5x daily  1mg Azilect  50/200 Sinemet CR at bedtime  Miralax 17mg  5mg Valium 3x daily


#5 lethe

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Posted 11 April 2014 - 01:58 PM

Often constipation is caused by the various meds one is taking as well as  diet (too much meat, not enough fiber). I have slow bowel motility - slow absorption and passage of food - caused by PD and I have no problem with bowel movements, although once in a while it may take an extra day, but it happens easily - no pressure....  I eat lots of fiber and little meat. Apparently MM is suppose to help bowel movements, especially diarrhea, though I've never noticed.

 

 



#6 The Ducks

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Posted 20 April 2014 - 08:43 PM

Hello Forum Members,

My husband has had PD for 11 years and 1 g Fish Oil capsule taking at bedtime seem to help with constipation in addition to adding fiber in diet. Perhaps the Forum Nutritionist can give us her expertise advice

Thanks



#7 Beau's Mom

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Posted 20 April 2014 - 08:54 PM

Hello Ducks,

 

You will need to write to Kathrynne the nutritionist on her forum to get a direct answer. Just an FYI. I've had constipation and Irritable Bowel Syndrome for 30 years. I was just diagnosed with Small Intestine Bacterial Overgrowth and will start treatment for that tomorrow. SIBO is very common in PD. Kathrynne was the one who suggested I get tested.

 

Dianne


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

 

Diagnosed December 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 63: Duopa gel via PEG-J tube, 6ml loading dose; continuous dose 2 ml.  Trazodone 150 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 135 caregiver hours per month keep me moving.

 

Edited 2/5/2016


#8 MjolnirTime

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Posted 21 April 2014 - 09:52 AM

It varies, depending on which of my issues is dominant that day. I suffer from both constipation from PD, and overactive bowels caused by my lack of a gallbladder. Usually the second helps relieve the first if I eat certain foods. 



#9 SandyR

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Posted 22 April 2014 - 08:44 AM

I've gone from every other day to maybe once every 4 or 5 days.  I always dread it because as everyone knows, it can be painful after that long.  I keep saying I need to take a softener, but always forget until it's too late.  :oops:


#10 verlin

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Posted 09 May 2014 - 04:03 PM

I find i am both i am ok one day then very lose then hard then so on is part of on pd

#11 verlin

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Posted 09 May 2014 - 04:05 PM

I find i am both i am ok one day then very lose then hard then so on is part of on pd

i mean is this part of on pd

#12 mike709

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Posted 17 May 2014 - 03:07 PM

I go once a week if I'm lucky



#13 stargate12

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Posted 17 May 2014 - 05:01 PM

I have suffered constipation for years. With PD onset it got worse.

I have now found a combination of a herbal laxative and stool softener.

I also exercise a lot.

Now I go every day, and what a relief. :razz:

Don't settle for going every other day, or less frequently.

Keep asking and trying until you get the right formula.

 

You will feel ever so much better/ :cool:






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