Jump to content

  • helpline
  • donate

E-Newsletter Signup Like us on Facebook Sign Up For Our e-Newsletter
Photo

Early on in PD, how many bowl movements did you have in a day


  • Please log in to reply
12 replies to this topic

#1 Bills

Bills

    Advanced Member

  • Members
  • PipPipPip
  • 256 posts

Posted 10 April 2014 - 08:14 PM

Early on and currently, if you guys dont mind me asking?


Edited by Bills, 10 April 2014 - 10:20 PM.


#2 Jenette

Jenette

    Advanced Member

  • Members
  • PipPipPip
  • 490 posts
  • LocationPennsylvania

Posted 10 April 2014 - 08:21 PM

I didn't realize that constipation was a PD symptom. I was very constipated and was lucky to have a bm every other day. It was so bad that (this is gross) I felt I needed to dig it out. I still have trouble and when I need to, I'll use an enema

#3 Gardener

Gardener

    Advanced Member

  • Members
  • PipPipPip
  • 297 posts
  • LocationOhio

Posted 11 April 2014 - 04:02 AM

Bowel movement problems (mainly constipation) are a very common symptom and can present many years before diagnosis.  The question should be:  How many bowel movements did you have per week?  And, the answer for me would be none.


Gardener, female, 59, diagnosed at 55, 900mg of Sinemet daily

#4 DanC33

DanC33

    Advanced Member

  • Members
  • PipPipPip
  • 129 posts
  • LocationFallon,NV

Posted 11 April 2014 - 09:22 AM

From my limited experience, my MDS said that constipation is one of the first things that they look for in DX PD.  For me I went from daily then every 3 days to now if I go weekly I think I've accomplished something. I even use every softener and laxative out there.  


YOPD and dystonia DX 2013  symptomatic for 15 years   25/100 Sinemet 5x daily  1mg Azilect  50/200 Sinemet CR at bedtime  Miralax 17mg  5mg Valium 3x daily


#5 lethe

lethe

    Advanced Member

  • Members
  • PipPipPip
  • 864 posts

Posted 11 April 2014 - 01:58 PM

Often constipation is caused by the various meds one is taking as well as  diet (too much meat, not enough fiber). I have slow bowel motility - slow absorption and passage of food - caused by PD and I have no problem with bowel movements, although once in a while it may take an extra day, but it happens easily - no pressure....  I eat lots of fiber and little meat. Apparently MM is suppose to help bowel movements, especially diarrhea, though I've never noticed.

 

 



#6 The Ducks

The Ducks

    Advanced Member

  • Members
  • PipPipPip
  • 33 posts
  • LocationVirginia

Posted 20 April 2014 - 08:43 PM

Hello Forum Members,

My husband has had PD for 11 years and 1 g Fish Oil capsule taking at bedtime seem to help with constipation in addition to adding fiber in diet. Perhaps the Forum Nutritionist can give us her expertise advice

Thanks



#7 Beau's Mom

Beau's Mom

    Advanced Member

  • Members
  • PipPipPip
  • 1,926 posts
  • LocationSeattle, WA

Posted 20 April 2014 - 08:54 PM

Hello Ducks,

 

You will need to write to Kathrynne the nutritionist on her forum to get a direct answer. Just an FYI. I've had constipation and Irritable Bowel Syndrome for 30 years. I was just diagnosed with Small Intestine Bacterial Overgrowth and will start treatment for that tomorrow. SIBO is very common in PD. Kathrynne was the one who suggested I get tested.

 

Dianne


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#8 MjolnirTime

MjolnirTime

    Advanced Member

  • Members
  • PipPipPip
  • 56 posts

Posted 21 April 2014 - 09:52 AM

It varies, depending on which of my issues is dominant that day. I suffer from both constipation from PD, and overactive bowels caused by my lack of a gallbladder. Usually the second helps relieve the first if I eat certain foods. 



#9 SandyR

SandyR

    Newbie

  • Members
  • Pip
  • 6 posts
  • LocationMaryland

Posted 22 April 2014 - 08:44 AM

I've gone from every other day to maybe once every 4 or 5 days.  I always dread it because as everyone knows, it can be painful after that long.  I keep saying I need to take a softener, but always forget until it's too late.  :oops:


#10 verlin

verlin

    Newbie

  • Members
  • Pip
  • 8 posts

Posted 09 May 2014 - 04:03 PM

I find i am both i am ok one day then very lose then hard then so on is part of on pd

#11 verlin

verlin

    Newbie

  • Members
  • Pip
  • 8 posts

Posted 09 May 2014 - 04:05 PM

I find i am both i am ok one day then very lose then hard then so on is part of on pd

i mean is this part of on pd

#12 mike709

mike709

    Advanced Member

  • Members
  • PipPipPip
  • 58 posts
  • LocationMiddletown PA

Posted 17 May 2014 - 03:07 PM

I go once a week if I'm lucky



#13 stargate12

stargate12

    Newbie

  • Members
  • Pip
  • 1 posts
  • LocationSalt Lake City, UT

Posted 17 May 2014 - 05:01 PM

I have suffered constipation for years. With PD onset it got worse.

I have now found a combination of a herbal laxative and stool softener.

I also exercise a lot.

Now I go every day, and what a relief. :razz:

Don't settle for going every other day, or less frequently.

Keep asking and trying until you get the right formula.

 

You will feel ever so much better/ :cool:






0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users