Posted 23 April 2014 - 10:16 AM
I agree with Golden01. Seeking an expert opinion from a Movement Disorders Specialist is imperative. Usually there is a trial of Sinemet, the gold standard medication treatment for PD, to see if it helps. Your symptoms sound an awful lot like mine were in the beginning. Also, if it is confirmed as PD, there are things you can do to keep you feeling as well as you can for as long as you can. A good MDS will refer you for a physical therapy, occupational therapy and speech therapy evaluation. There are specific treatments for voice problems. Finally, there is a test called a DAT Scan, which measures the amount of dopamine uptake in the brain that your MDS can order. It's a lot to take in, and if you consider it a fact-finding mission, it might not feel so scary or overwhelming. You can call the NPF Helpline number for a referral to an MDS near you.
Please keep us posted on how you do.
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.
All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.