My husband has his follow up appointment with the Neurologist next Tuesday. We are trying to come up with a list of questions. Any ideas on things we should ask? I am going to ask him if he thinks it would be a good idea to see an MDS eventually. Since we are still in the early stages, and the DAT scan seems pretty conclusive that this is PD, we are not in a great hurry to see an MDS. Do you all see any reason to see one early in the disease, if you are sure of the Dx? I would also like to ask him how many PD patients he has treated, and how many he has that are as young as my husband - he is 50. But I am hoping these questions won't make him defensive or anything. I guess this way we get to feel out what he is really like and if he is a good fit for us.
I also wonder how often we will see him. Neuro's are way overbooked around here and their time is limited. How often do you see your Neuro? Also, since we pretty much decided to wait a little longer before trying meds - what if we don't see him for 6 months but in 4 months my husband goes downhill and wants to start meds. I know nothing happens really quickly in PD, so it's not usually an emergency but having to wait months seems like it could make things difficult. A friend of mine said her Mom's PD neuro is available by email for med questions, etc.. -- it sounds very tempting to try to switch to her. How available are your neurologists? And is that important?