Ok let's see where do I start. I am a 56 y/r old woman who lives in central New York. Two months before my 50th birthday I had to have an unexpected hysterectomy and within 1yr I was diagnosed with pd. I swear that the lack of estrogen put me over the edge.(can't get any doctor to agree)
I grew up in a faith based home. My mom was a lay minister and a great example of how having a faith based life can help manage health problems she sure had her share. I don't ask why to much any more. I pray for strength to carry my cross that will honor God. What I do struggle with is how to honor him or how to be his hands and feet when you have all the limitations of pd.
I will have to retire soon and I struggle with what to do . My husband laughs and says if you retire you have to do something otherwise you will sit in the corner and cry(which I have known to do)that's the beginning of my journey with pd.
Noah! You're a she--not a he! LOL!! You fooled us!! It's so nice to hear back from you and hear a little about you. Thanks for writing.
Can you share (if you feel comfortable to) how PD has affected you? It seems it's a little different for most of us, and so usually we end up sharing our symptoms and challenges with each other..
What kind of work have you been doing? I know how the unknown as to what will come in retirement can be a little disconcerting. I retired a little early--3 years ago. Just couldn't go on, and really had a hard time for about my last five years at work. I think you may find retirement will be different than you envision, as have I. For instance, there is no stop to all the paperwork, doctors' appointments, prescribed exercises, etc, with PD Things that you do on a normal basis will take so much longer that you'll wonder why you ever worried that you wouldn't have anything to do, I bet. On the other hand, depending where you are in your journey with PD and in what ways it limits you, you may also be able to balance those things with some things you've always wanted to do, like maybe volunteering at your local animal shelter, if that's an interest. If you are like me and many of the other Parkies, though, you may find it an absolute blessing to actually be able to lie down and rest or sleep when you need to (which can be a lot!), and you'll have a chance to read, chat with us on line, catch up with friends, do things with your hubby that you and he may have in common or find something new in common to do together.... There is so much outside of work to discover. For some, it can be an adjustment, but it sort of sounds to me like you are going through that adjustment ahead of time, so you'll maybe be all ready when the time comes.
And as to how you could help honor the Lord with your limitations, I think you will definitely find ways, maybe different things than you've done in the past. Visiting communities where there are other Parkies who may need company--just to sit with and compare symptoms--can be so helpful for them, as well as for you. There are so many PD organizations and activities in which you could have a chance to perhaps participate--which may help you emotionally and physically and connect you with others. Honestly, as to PD activities, exercise programs, symposiums, on-line reading, chat forums.....you'll probably not have enough time to do much else, along with having to rest and take care of yourself. And you'll find, I'm sure, that the Lord will work through you as you meet others, in whatever capacity that may be. Small encounters with people you don't know can impact their lives by your manner, your faith, and things you may share with them.
So do write and let us know where you are as to your PD progression so others can also chime in and give you some support and suggestions, and also let us know a little about what kinds of things you've always enjoyed doing.
Take care. Put your hand in God's hand, put your chin up, and go forward into this new era of your life with all its possibilities and new things to discover, even with PD. We'll be here for you, as will the Lord direct you to what He may have for you next. I'm sure you're praying about that, and we'll be here to assist in any way we can.
In His love (and Parkie love),
Edited by Linda Garren, 14 November 2014 - 09:27 AM.