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Follow the DBS Road

DBS Stage I

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10 replies to this topic

#1 ScottSuff

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Posted 30 November 2016 - 12:31 PM

Decided to blog my journey with DBS, if anyone wants to follow along.

Scottsuf.blogspot.com
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#2 Linda Garren

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Posted 06 December 2016 - 05:57 PM

Scott: 

 

Great posts!  Another aviator on our forum is Dancing Bear who was in the Air Force as a pilot and then flew commercially.  Just FYI, in case you would enjoy chatting with a "brother."  :-)


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Age 69.  Retired from Johns Hopkins University and Medical Institutions after 36 years in a number of administrative coordination positions for Deans and Department Directors within the various institutions.

Diagnosed with PD summer 2014. 

 

 

 

 

 


#3 ScottSuff

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Posted 11 December 2016 - 07:26 PM

DBS Update

Scottsuf.blogspot.com



#4 MurrayPD2

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Posted 12 December 2016 - 06:41 PM

  thanks for the update


Diagnosed May 7th 2015 - at 43 yrs old, just before my birthday

Mainly left side issues

Fused spine L4-5, C5-7

Active father

Active worker

 


#5 ScottSuff

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Posted 16 December 2016 - 09:56 PM

blog update

scottsuf.blogspot.com



#6 ScottSuff

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Posted 24 December 2016 - 02:37 PM

I'm 12 days post Stage III surgery (Vanderbilt ) with a couple questions. I was warned about stiffness in the neck but this feels worse than I thought might hit me. So, has anyone else experienced a stiff and tight neck after neurotransmitter insertion, from the extension lead having scar tissue build around it? I move my neck around frequently. When I get up I can turn my neck a full 90 degrees to the right, but to the left I might be able to get 60. What did you do? What was your outcome (positive I hope)? Sent surgeon pics, he thought it would resolve itself basically but repeat pictures next week.
Thoughts? Comments?

#7 Linda Garren

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Posted 24 December 2016 - 03:11 PM

blog update

scottsuf.blogspot.com

 

 

Great job of explaining it all, Scott.  I would think this would be extremely helpful for those who are facing DBS and have lots of questions. I hope any issues (like your stiff neck) resolve/get resolved and that you get the very best result over all.  Very interesting to journal us through your surgery!


Age 69.  Retired from Johns Hopkins University and Medical Institutions after 36 years in a number of administrative coordination positions for Deans and Department Directors within the various institutions.

Diagnosed with PD summer 2014. 

 

 

 

 

 


#8 swva

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Posted 09 January 2017 - 10:54 PM

Latest update not good.
http://scottsuf.blogspot.com/2017/01

Male

Noticed tremor December 2014 at age 44

Diagnosed March 2, 2015

3 Sinemet CR 25/100 per Day
2.5 mg Isradipine twice a day


#9 Linda Garren

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Posted 10 January 2017 - 10:36 AM

Scott, that sounds awful to be going through.  I hope they can pinpoint the specific pathogen and knock it out quickly for you.  in the meantime, rest lots and drink lots of fluids, as I'm sure they are encouraging you to do.


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Age 69.  Retired from Johns Hopkins University and Medical Institutions after 36 years in a number of administrative coordination positions for Deans and Department Directors within the various institutions.

Diagnosed with PD summer 2014. 

 

 

 

 

 


#10 ScottSuff

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Posted 15 January 2017 - 11:54 PM

Blog Update

Attitude Adjustment

scottsuf.blogspot.com



#11 Linda Garren

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Posted 16 January 2017 - 12:41 AM

Scott, you have really been through a lot with this.  Hang in there.  It sounds like they are taking good care of you,

and your wife sounds like she's been such a tremendous support.  That's so important, and a real blessing.

Will pray for you right now, and please keep us updated.


Age 69.  Retired from Johns Hopkins University and Medical Institutions after 36 years in a number of administrative coordination positions for Deans and Department Directors within the various institutions.

Diagnosed with PD summer 2014. 

 

 

 

 

 






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