Hi, Whatnext, I think that it is natural that we fall prey to despair in such dreadful circumstances - so I think it is good to remember that there are ways to ameliorate this awful disease.
There are, apparently, a number of people who are now symptom-free. (Please note that this does not necessarily mean that they no longer have Parkinson's, but means that they
no longer suffer from it.)
Howard Shifke seems to be one such person. He has seemingly conquered his symptoms by daily practice of Qi Gong. Also, I think it interesting to see that PEMF (Pulsed
ElectroMagnetic Fileds) is becoming more widely used.
In short, there are many ways to positively affect people suffering from Parkinson's.
Btw, that doctor sounds like a real piece of work. I feel sorry that you had to endure that.
This is a general question to you all: Is it ok if I post my URL here?
I don't want to seem like some nasty spammer
My best friend has Parkinson's, I have done a lot of research for her, and now I want to see
if I can help others with some thoughts, ideas, and encouragement.
It's a non-profit, non-advertising page, its only purpose is to help people with Parkinson's, their carers, and their loved ones.
Whatnext, if it is possible to get counseling, then please proceed with that. I'm guessing most of us could do with some
counselling regarding this awful ailment, I know I certainly could!
It seems to me that Tai-Chi, Qi Gong, or yoga would massively help most people, but Tai-Chi or Qi Gong might be easier to do than yoga.
Some people swear by supplements, eg, Tibetan healing supplements, or just plain ol' multivitamins.
My guess is that B12, Magnesium, Selenium, and a whole bunch of other things may help.
Others might say that adhering carefully to a properly managed macrobiotic diet will eventually make one symptom- free.
(Macrobiotic diet is a tough one, though! No sugar, no coffee, no milk, no chemicalised food, etc.)
To make a long post a little shorter, research the web as much as you can, there are many ways to approach this disease.
And please remember that you are not alone - this forum is a wonderful thing for all of us to share and benefit from.
So, please try to keep your spirits up, Whatnext.
I wish you and your husband the very, very best of luck.
Edited by kaihoukan, 19 August 2015 - 02:44 PM.