Jump to content


E-Newsletter Signup Like us on Facebook Sign Up For Our e-Newsletter
Photo

onset symptoms?


  • Please log in to reply
38 replies to this topic

#1 AnxiousAn

AnxiousAn

    Advanced Member

  • Members
  • PipPipPip
  • 40 posts
  • LocationSingapore

Posted 10 November 2010 - 04:09 AM

Hi everyone/anyone,

I am a fit 28 year old male who visits the gym (weight training) at least 4 times a week (for the past 2 yrs) and on top of that play soccer twice a week (2 hours each session).

Here's my case... It started out as an occasional right index finger (up and down, rythmic - follows my heartbeat) twitch during and after gym 5 months ago. Initially, I let it go by... thinking that it was due to my excessive weight training and protein consumption (180g of protein per day). However, 3 weeks ago, I realized that the twitching (up and down, rythmic - follows my heartbeat) in my right index finger has since became a non-rythmic muscle twitch (in between my right index finger knuckle and the thumb knuckle) which pulls my right index finger towards my right thumb, a daily body-wide twitch ( scalp, lips, hands, calf, groin, hamstring, chest... basically the entire body is experience this daily) when I'm resting. And just a few days ago, I kinda felt my legs trembling internally... what one would describe as internal tremors (it can't be seen, but it can be felt when i placed my palm flat on my hamstring). And this morning I woke up with an internal tremor of my right arm... and progressing to internal tremors of both my legs (from the min I wake till now!)! Even my colleague felt it vibrating when he placed his hands on my hamstring. oh I also have a bad right shoulder but i attribute that to my intensive weight training. I've since been rather forgetful and find myself thinking alot to use the proper word when i talk.

I know it isn't healthy for one to scour the net for answers... but my curiousity and anxiety just got the better of me... and thanks to that, I am scared senseless after learning that all these may just the onset of a nerve disease like Parkinsons, brain tumour, als and what not you have out there. I've been scaring myself silly thinking that this is the onset of parkinson's or brain tumour or ALS...

Based on your experience... what can this be? Is this anxiety kicking in? or am i experiencing something that is really life-threatening. I am trying to keep myself calm but it seems to consume me... hence this post.
Btw… I’m not on any meds.

Please help... I have a trip to the neurologist due (1 month from now) but any form of reply would be good.

Thanks!

ND

#2 Mihai

Mihai

    Advanced Member

  • Members
  • PipPipPip
  • 207 posts
  • LocationCleveland, Ohio

Posted 10 November 2010 - 07:47 AM

Greetings, ND...

My first piece of advice is to slow down and take a breath! I know you are anxious. Knowing that something is not right in your body, and not knowing what that is, can be nerve-wracking. No one here can really diagnose you...so, I'm glad you have a neurological appointment scheduled. I have had Parkinson's for nine years (33 at diagnosis). My initial symptom was poor fine motor control in my fingers. While tremors are a common indicator of Parkinson's, they are more common in later onset as opposed to early onset (diagnosis before 50). To date, I still do not experience tremors. PD tremors usually begin on one side and, with time, move to the other side. They are also resting tremors, meaning they appear when at rest and go away upon movement. What you are experiencing could be due to many things...from anxiety to PD to whatever... Your best bet is to gather all of your symptom information and share all of that with the neurologist. With PD, there is no definitive dianostic test. The diagnosis is made after rule-out of other conditions via various tests. So, be prepared that you will likely not get an answer on the day of your appointment. I know it's hard not to worry (especially at 28)...but try to relax and proceed logically. It is my prayer that you'll find the answer...

If you'd like to talk by phone, e-mail me and I'll get contact information to you.

Peace and blessings,
Mihai (Michael)
Diagnosed in 2001 at 33 years of age

#3 Mihai

Mihai

    Advanced Member

  • Members
  • PipPipPip
  • 207 posts
  • LocationCleveland, Ohio

Posted 10 November 2010 - 07:51 AM

One more thing, ND...

About your shoulder...is it painful, stiff...? A very painful shoulder is a common indicator of PD; however, again, that could be due to many things, especially knowing how physically active you are. It's worth bringing up with the neurologist, though!

Peace,
Mihai
Diagnosed in 2001 at 33 years of age

#4 AnxiousAn

AnxiousAn

    Advanced Member

  • Members
  • PipPipPip
  • 40 posts
  • LocationSingapore

Posted 10 November 2010 - 08:51 AM

Greetings, ND...

My first piece of advice is to slow down and take a breath! I know you are anxious. Knowing that something is not right in your body, and not knowing what that is, can be nerve-wracking. No one here can really diagnose you...so, I'm glad you have a neurological appointment scheduled. I have had Parkinson's for nine years (33 at diagnosis). My initial symptom was poor fine motor control in my fingers. While tremors are a common indicator of Parkinson's, they are more common in later onset as opposed to early onset (diagnosis before 50). To date, I still do not experience tremors. PD tremors usually begin on one side and, with time, move to the other side. They are also resting tremors, meaning they appear when at rest and go away upon movement. What you are experiencing could be due to many things...from anxiety to PD to whatever... Your best bet is to gather all of your symptom information and share all of that with the neurologist. With PD, there is no definitive dianostic test. The diagnosis is made after rule-out of other conditions via various tests. So, be prepared that you will likely not get an answer on the day of your appointment. I know it's hard not to worry (especially at 28)...but try to relax and proceed logically. It is my prayer that you'll find the answer...

If you'd like to talk by phone, e-mail me and I'll get contact information to you.

Peace and blessings,
Mihai (Michael)



#5 AnxiousAn

AnxiousAn

    Advanced Member

  • Members
  • PipPipPip
  • 40 posts
  • LocationSingapore

Posted 10 November 2010 - 09:08 AM

Heya!

Thanks for the reply. I feel my upper thighs/butt trembling both when sitted (in the office) and standing (straight, not doing anything)... I can feel it physically but is not vosible to the naked eyes. I can also feel it when i place my hands flat at both hips when either sitting or standing. Is iysafr to day that i'm at rest when i'm sitting or i'm standing straight not doing anything. The internal tremor is felt at noth sodes of my hips. Also, i just experienced my upper body trembling... :( (what a downer) i was at e airport sendin off my girlriend when i crossed my arms and rested it on my chest... I could feel the tremor. Gosh... And when i thought the fonger twitching is gone... It re-appeared... Again he same old towards the thumb non-rythmic twitch. As for my
right shoulder, it doesnt hurt at all when i rotate it. Its only when i wake it geta stiff and hurts... Or after a heavy session in e gym that involves any shoulder movements. Whatever this is... I am extremely determine to not let it
affect the way i live. I love sports and see lace armstrong as a role model in all that i do in life. :) if i am dx with it... I'll live with it. I'm just curious and anxious cause i do not know what is causing all this tremors/twitching/absent mindedness/speech probs. I thank u for this reply.

Its unfortunate that i live in singapore... Or i would have asked u out for a run should u live in e same neighbourhood as me. :)

i still on the look out for temp. ans and confort by the way. Hahaha... Sure lets keep in touch... Is there anyway i
could share with you my email addreas privately?

#6 Mihai

Mihai

    Advanced Member

  • Members
  • PipPipPip
  • 207 posts
  • LocationCleveland, Ohio

Posted 10 November 2010 - 09:20 AM

Sure...just go to my profile and click on the link to send an e-mail to me. When I get that, I will respond to it. I am in the United States. I look forward to "talking" with you more.

Mihai
Diagnosed in 2001 at 33 years of age

#7 AnxiousAn

AnxiousAn

    Advanced Member

  • Members
  • PipPipPip
  • 40 posts
  • LocationSingapore

Posted 10 November 2010 - 09:50 AM

Awesome! Will drop u an email when i can. To be honest, i am expecting e worst. As i stand in front of my mirror just nw, i could feel my arms trembling... But not visible. Again the internal tremor... Both the arms and thighs... CRAP. Hahahaha. its funny how i didnt feel these sensations 2 weeks back... But can feel almost every form of vibration nw. The internal tremor of the upper thighs and now both my arms and chest... Its crazy. Funny how e body works... Hw bout u, what made u pay e doc a visit? And when did you first experienced e symptoms... Also, hw can i ensure that i have a productive first visit to the neuro next month... Any tips?

#8 Mihai

Mihai

    Advanced Member

  • Members
  • PipPipPip
  • 207 posts
  • LocationCleveland, Ohio

Posted 10 November 2010 - 10:13 AM

Hey ND...

My first symptom was a problem with fine motor in my left hand. I play the piano and was having difficulty keeping pace with the left hand. My main first issue was poverty of movement and weakness. I still have those. I have many more symptoms now than when I was initially diagnosed; however, the symptoms are all manageable with medication. The medications are difficult to regulate with all of the "on/off" periods, but they do make me feel "normal" when they are working...even 9 years into the disease. Sometimes the worst part of the medications is the side effects. PD is frustrating, but it is manageable. It does progress, but usually quite slowly with early onset. Don't worry though...you may not even have PD... It seems to me like your "tremors" all appeared quite rapidly...I don't think that's usually the case with PD...usually a slower, more gradual onset/progression. Many people have spoken to the presence of internal tremors (felt, but not observable). All this is good stuff to discuss with the doctor. My advice for that visit is to take a written journal of what you are experiencing and when. Also, ask LOTS of questions...the more information the doctor has the better.

Please keep in touch!

Peace,
Mihai
Diagnosed in 2001 at 33 years of age

#9 MarciaJ

MarciaJ

    Advanced Member

  • Members
  • PipPipPip
  • 1,110 posts
  • LocationEarth

Posted 10 November 2010 - 10:57 AM

Just to let you know that we aren't able to private message on this site. It's disabled.

Hi ND.

Mihai gave you good advice. I'm not really young onset because diagnosed at 55. But I had the internal tremor first and the tremor followed but only in my arm. Other symptoms followed later. Everyone says exercise helps. Don't jump to conclusions, maybe it's not Parkinson's. Good luck with your doc appointment.
<3.<3.<3.

#10 Guest_TonyaV_*

Guest_TonyaV_*
  • Guests

Posted 10 November 2010 - 11:11 AM

Hi ND,

Mihai has given you great advice! I would definitely take it.
My situation is much like his. I was 35 when I first noticed symptoms and it has been 8 yrs since then. Although, mine started with a tremor in left hand. There are so many variations with the onset, so it is sometimes hard to compare symptoms in that way. Some general symptoms that almost all PWP(people with Parkinson's)have: tremor, arm doesn't swing when walking, stiffness, slowness of movement, one leg drags(shuffling feet, hard to pick up your feet when walking), muscle tension and spasms(not all PWP have the spasms).
I suggest you do some good stretching and try to stay stress-free. Sorry you have to wait on your neuro appointment. I went to a neuro specializing in Parkinson's and she knew I had it within 15 mins after seeing me. I, too, did much research on the internet and highly suspected I had it. Didn't go to a doctor for it until 5 yrs later.

Peace to you and my thoughts are with you,
Tonya

Edited by TonyaV, 10 November 2010 - 11:12 AM.


#11 suzinaz

suzinaz

    Newbie

  • Members
  • Pip
  • 9 posts

Posted 10 November 2010 - 03:00 PM

Hi everyone/anyone,

I am a fit 28 year old male who visits the gym (weight training) at least 4 times a week (for the past 2 yrs) and on top of that play soccer twice a week (2 hours each session).

Here's my case... It started out as an occasional right index finger (up and down, rythmic - follows my heartbeat) twitch during and after gym 5 months ago. Initially, I let it go by... thinking that it was due to my excessive weight training and protein consumption (180g of protein per day). However, 3 weeks ago, I realized that the twitching (up and down, rythmic - follows my heartbeat) in my right index finger has since became a non-rythmic muscle twitch (in between my right index finger knuckle and the thumb knuckle) which pulls my right index finger towards my right thumb, a daily body-wide twitch ( scalp, lips, hands, calf, groin, hamstring, chest... basically the entire body is experience this daily) when I'm resting. And just a few days ago, I kinda felt my legs trembling internally... what one would describe as internal tremors (it can't be seen, but it can be felt when i placed my palm flat on my hamstring). And this morning I woke up with an internal tremor of my right arm... and progressing to internal tremors of both my legs (from the min I wake till now!)! Even my colleague felt it vibrating when he placed his hands on my hamstring. oh I also have a bad right shoulder but i attribute that to my intensive weight training. I've since been rather forgetful and find myself thinking alot to use the proper word when i talk.

I know it isn't healthy for one to scour the net for answers... but my curiousity and anxiety just got the better of me... and thanks to that, I am scared senseless after learning that all these may just the onset of a nerve disease like Parkinsons, brain tumour, als and what not you have out there. I've been scaring myself silly thinking that this is the onset of parkinson's or brain tumour or ALS...

Based on your experience... what can this be? Is this anxiety kicking in? or am i experiencing something that is really life-threatening. I am trying to keep myself calm but it seems to consume me... hence this post.
Btw… I’m not on any meds.

Please help... I have a trip to the neurologist due (1 month from now) but any form of reply would be good.

Thanks!

ND


ND,

I completely understand your anxiety. I was just diagnosed in February at 41 years old. I started with a resting tremor in my right hand. I went to my PC and he referred me to a neurologist. By the time I saw the neurologist I had searched the net to the point that I was very anxious and knew that I probably had PD. PD was confirmed and I actually felt better knowing for sure. Not that it was good news but at least I know what I have to deal with.

I've had some of those weird body jerks (like when children are just falling asleep) also. Some time one side of body sometimes entire body. My left leg is often cramping and I have found that exercising seems to make it cramp more. I also have been experiencing memory difficulties and the really irritating lack of finding the right word I want to say. Nothing like talking to someone and completely unable to think of the correct word! :unsure:

As Mihai and Tonya have both said you need to keep calm and try to stay stress-free.

Hope all goes well at your apppointment. If it is PD you are not alone! :grin:

Marlena

#12 AnxiousAn

AnxiousAn

    Advanced Member

  • Members
  • PipPipPip
  • 40 posts
  • LocationSingapore

Posted 10 November 2010 - 04:12 PM

Hey ppl! Thanks for the advice and words of encouragement. I am trying t stay as calm as possible... Its 5am nw... And i am experiencing a full body tremor while lying dwn (was actually sleeping!). I also acted out a dream while was slpin just nw... Cant remember what though. I am sure its PD... I do notice shuffling at times with my right foot (it kinda kicks the floor esp when there's a sudden inclination of the ground). My friend did say that my posteur when i walk looks fine.... Hmmmm... Another bit that is confusing me. Oh well.... Whatever the case is... I'll leave it to the doc to diagnose me... :) but am pretty certain now that its PD (after intensive research). Hey... It cant be that bad right? Just a qns... Can i still carry on doing sports? Like weight training and soccer?

#13 bbira

bbira

    Advanced Member

  • Members
  • PipPipPip
  • 335 posts
  • LocationColorado

Posted 10 November 2010 - 04:39 PM

Hey ppl! Thanks for the advice and words of encouragement. I am trying t stay as calm as possible... Its 5am nw... And i am experiencing a full body tremor while lying dwn (was actually sleeping!). I also acted out a dream while was slpin just nw... Cant remember what though. I am sure its PD... I do notice shuffling at times with my right foot (it kinda kicks the floor esp when there's a sudden inclination of the ground). My friend did say that my posteur when i walk looks fine.... Hmmmm... Another bit that is confusing me. Oh well.... Whatever the case is... I'll leave it to the doc to diagnose me... :) but am pretty certain now that its PD (after intensive research). Hey... It cant be that bad right? Just a qns... Can i still carry on doing sports? Like weight training and soccer?


Hello...I am a 44-year old male dx w/YOPD 11 years ago. My first noticeable, to me, symptom was a lite "twitching" in my left hand...especially my thumb and forfinger with the "pill rolling". Honestly, I've had that for 10 or more years but ignored it. One morning, I awoke with a stiff neck but sloughed it off thinking I just slept wrong and that the stiffness would improve in a short time. Well, as they day went on the pain intensified. Honestly, it was the worst pain I've ever experienced. I kept telling myself that I would go home, take a long hot shower, get a good night's sleep and all would be well the next day. The next day came and the pain was worse! After a few hours at my office I decided to go to the ER. I thought I was having a heart attack! After many tests I was told that I probably had a pinched nerve. My PCP referred me to a neurologist who originally thought I had carpal tunnel syndrome. However, when he say the "twith" in my left hand he changed his diagnosis to YOPD. I sought out a Movement Disorder Specialist and made an appointment. Luckily, she had an opening within a week and did an MRI and some blood work. She gave me some sinemet to take for a couple of days and then had me back in. She then confirmed the YOPD diagnosis. My first thought was, "at least I now know how I'll die." I went home and my Sweet Wife had already done some research on the subject and we talked it all through. I continue working full time and I travel quite a bit for my work. In these 11 years, I've not missed one day of work due to anything PD related. I've come in late and I've left early a time or two but PD hasn't caused me problems with working. Short term memory loss has been most frustrating for me. I do get embarrassed when I can't remember simple words or phrases. So, I write most everything that I really need to know.
The more physically active you can be then please continue. Run, walk, stretch, lift weights...moderately. Play football, baseball, basketball, raquetball, tennis...anything you want.
Take care...Bill

#14 Mihai

Mihai

    Advanced Member

  • Members
  • PipPipPip
  • 207 posts
  • LocationCleveland, Ohio

Posted 10 November 2010 - 04:46 PM

Hey ND...

Be careful not to jump to a quick conclusion. This is a complicated process. Many of us had quick, uncomplicated diagnoses...but many others have gone for years without a diagnosis...much depends on the doctors involved. PD is frustrating as I said before, but it is not the worst thing to have by any means. There are definitely bad days where movement is labored and difficult. But there are many good days as well. I am 9 years into the disease and can still pretty much do anything I want to do...I just have to be careful on my "off" periods (when the medication is not working so well)...you'll learn more about the on/off periods if you do have PD. The good news is that PD is very manageable with medication and other interventions. Surgery is an option as well, which I'm hearing positive things about. Millions of dollars are being poured into PD research right now too, so better medications and better treatments I'm sure are on the way. We may or may not ever be cured, but we all have long, rich lives to live even with PD. Stay active...exercise does help tremendously. I was in the Cleveland Clinic study looking at the effects of exercise (cycling) on movement. They are making inroads with that research as well...good things are happening. Keep the faith and keep living, regardless of what you hear in a month from the neurologist!!!

Peace and blessings,
Mihai
Diagnosed in 2001 at 33 years of age

#15 AnxiousAn

AnxiousAn

    Advanced Member

  • Members
  • PipPipPip
  • 40 posts
  • LocationSingapore

Posted 11 November 2010 - 01:42 AM

Hi All,

As I click on your profiles.... the system fails to allow me to send you guys private emails. I wonder why. I would definately love to keep in touch with the lot of you. Anyways, I noticed that i do shuffle my right leg when i walk... i tripped over the FLOOR. I'm slowly trying to come to terms with this new me and am really preparing myself for the worst. Once again I tahnk you all for your comforting words and know that i am NOT alone when it comes to whatever that I will be having.

P.S. please email me so that we can keep in contact. Who knows?... maybe one day i might just drop by states and meet u lot up for coffee. :) haahahahah!

Cheers!

ND

KEEP IN TOUCH!

#16 Guest_TonyaV_*

Guest_TonyaV_*
  • Guests

Posted 11 November 2010 - 07:11 AM

Good morning ND,

The private messaging system doesn't work. If you want to leave a comment on someone's profile, just click on their user name and you will see where you can comment. But, it is not private; any member can read it.
I agree with Mihai that you shouldn't be too quick to jump to a conclusion about PD. Wait 'til the expert sees you and evaluates you.

Tonya

#17 Mihai

Mihai

    Advanced Member

  • Members
  • PipPipPip
  • 207 posts
  • LocationCleveland, Ohio

Posted 11 November 2010 - 10:28 AM

Hi ND (and others!)...

I'm sorry, but I was unaware that the e-mail links on this site do not work. Here's an e-mail address you can use to reach me: sleuth26081@mypacks.net. It's an anonymous e-mail, but is linked to my actual e-mail address, so I'll get any messages sent to it. This is open to anyone here who would like to reach me personally.

Peace to all,
Mihai
Diagnosed in 2001 at 33 years of age

#18 shakyjon

shakyjon

    Advanced Member

  • Members
  • PipPipPip
  • 36 posts
  • LocationWashington, PA

Posted 11 November 2010 - 10:35 AM

Hey ND,

You've got a plethora of tests to go through before a neuro will even entertain the idea of PD. At the same time, I was the idiot who searched "shaking in one arm" to find that the list of things was headed by at least five articles on PD. I really started worrying about that when the NCV/EMG came back normal. What they're going to do is rule out everything else and, once that's done, wait. There's a lot of things that mimic early PD, so there's hope. Shaky Spice on this forum was a voice of reason for me on the old YOPA board. I feel for how scared you are, even the idea of PD sucks like hell. Just keep us posted on the test results. Here's hoping they find something curable. If it comes to PD, know that there's worse things out there. But these are a great group of people. Hang in there, guy.

Jon

#19 gazelle66

gazelle66

    Advanced Member

  • Members
  • PipPipPip
  • 1,049 posts
  • LocationBlighty

Posted 11 November 2010 - 12:32 PM

Hi ND, I recognise some of what you say. My first symptoms were tripping / catching my foot followed by a bit of a limp and the finger twitching / shoulder stiffening / internal tremour thing. All much better now btw - most of these symptoms have largely dissapeared with some drugs and regular stretching / exercise. The cognitive stuff i've found a bit trickier, but that is jumping the gun. You've been given very good advise by people here, best of luck to you.

Sue

#20 cwhitlock

cwhitlock

    Member

  • Administrators
  • 14 posts

Posted 11 November 2010 - 01:31 PM

Its unfortunate that i live in singapore... Or i would have asked u out for a run should u live in e same neighbourhood as me. :)

i still on the look out for temp. ans and confort by the way. Hahaha... Sure lets keep in touch... Is there anyway i
could share with you my email addreas privately?


AnxiousAn,

Cathy from NPF here. I saw what you said about living in Singapore and wondered if you knew that NPF has a Center of Excellence there? Here is the information, just in case:

National Neuroscience Institute
Parkinson's Disease and Movement Disorders Centre
11 Jalan Tan Tock Seng
Singapore 308433
Louis Tan, MD
65-6357-7171
www.nni.com.sg

I hope this information helps.
Cathy Whitlock
Digital Communications Manager
National Parkinson Foundation




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users