Share Your Story with NPF
Posted 15 November 2010 - 01:07 PM
Are you living with Parkinson's disease?
Are you a caregiver of someone living with Parkinson's disease?
Are you a loved one of someone living with Parkinson's disease?
If the answer is YES, you have a story to tell. Your story may be featured on www.parkinson.org.
Go to http://www.parkinson...our-Story.aspx.
Digital Communications Manager
National Parkinson Foundation
Posted 18 July 2013 - 02:55 AM
Posted 09 August 2014 - 04:50 PM
I am a caregiver to my sister, who 5-7 years ago, developed Parkinsons...at least that's what i am told by a neurologist. I am very frustrated to say the least. Not only does she have Parkinson's ,but she is mentally challenged as well, which adds another dimension to my and i am sure her frustration. She is not a candidate for DBS , as the neurologist is afraid that it will only make her mental condition worse. the carbadopia/levadox (spelling) is not working well anymore and I don't know what avenues are available.
I am not complaining, though at times i look at her and wonder where is this beautiful person that was active and able to do things..because she is not here anymore...and it makes me sad...I work a full time job (which isn't always easy), take care of a house and husband. I would do anything for her to make her better,if even just a little bit....my parents are gone, brothers and sister have their own lives and frankly don't want to deal with this..
anyway...thanks for listening...
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