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Showing most liked content since 01/19/2018 in all areas

  1. 4 points
    hI dIANNE, Another year slips around. Another anniversary of remembering his Life as well as his Death. I learn from you, my friend. You are a great person Dianne who has been through a lot. Where I would see a wall of dark trees hiding a murky puddle of mud, You continue to part the branches, find a forward path, the sun streams into the clearing with you (or are you the sun?) and the mud puddle becomes cute little pond of water, floating a family of little fuzzy ducks, and surrounded by flowers, green grass and forest animals coming to drink from the clear water. I hope that your weekend is good. All the best to you, jb
  2. 3 points
    I'm letting DW sleep. It's almost 3AM. Just finished cleaning up after my almost 5 year old daughter threw up for the 5th time tonight since going to bed. I guess that's one bright side to PD effects like insomnia and a poor sense of smell. Poor kid. Just hope she feels better tomorrow.
  3. 3 points
    This exercise post is near and dear to my heart. I am 55 years old and in pretty good shape. I have always been physically active. I've been involved in martial arts for years and I also enjoy going to the gym and lifting weights, among other things. I was diagnosed about 3 years ago. Even before my diagnosis I was starting to slow down on some of my activities because of excessive fatigue. I still go to the gym and my martial arts classes. I just don't try to be superwoman anymore. When I read that study that says intensive exercise will stop progression of the disease I was excited and thought "Yay! This proves what I already believed" because my progression has seemed to be slow so far. So I jumped on the bandwagon and increased my exercise. I enrolled in some classes at a local MMA school called "Fight Fit" which is basically an extremely difficult HIIT class that lasts for an entire hour. I was very proud of myself when I made it through the first class. However, this was not without a lot of increased tremors going on and literally almost no energy to get myself in the car and drive the 2 miles back home to my house. The next day I was exhausted and I felt like every last bit of dopamine had been wiped out of my body. Hmm...I thought exercise was supposed to make you better and increase your dopamine production. Where are those endorphins? I don't like to give up because like I said...I'm hardheaded, I'm a woman and I think I can be superwoman. The article says I need intensive exercise will make me better so I'm not giving up. I ended up going to 2 more classes. When it was time to go to the next class I literally cringed inside. I couldn't bring myself to go and do that to my body again. I loved the actual exercise and the comaraderie of the other women in the class. But I just felt sooo bad after the class and the next day. My symptoms actually started getting worse and then I started feeling depressed. Yes I know that I can do other exercise but I've actually been having a hard time in some of my martial arts classes lately because of an increase in tremors. I actually quit my Saturday class cause they practiced for 3 hours. I have felt like a failure because I'm now doing less exercise than I was before diagnosis. Yet everybody tells us that you must do intensive exercise. I talked to a friend who's had this disease for 25 years. She made me realize a few things about this "study" that is posted all over the internet. 1) This is not a scientific study by any means. 2) Everybody progresses at a different rate so you can't compare one person to another. 3) There's no way to determine how much somebody would have progressed in 6 months if they had not done the exercise. Seriously, there's no baseline. Six months is a very short time in the space of a lifetime. They might not have gotten worse during that time. 4) What the hell is "intensive exercise?" The study doesn't even mention how long the subjects exercised for. Obviously intensive exercise will be different for every person. So I decided I'm not going to let myself get depressed because I can no longer do "intensive exercise". I'm going to continue doing whatever I can. I'm really sick of all the people who post pictures of themselves doing bodybuilding, running marathons and similar things and trying to tell the PD community that they are not progressing because they are doing this intensive level of exercise. Maybe the truth is that their disease is progressing slowly so therefore they have the ability to continue working out like that and not the reverse. Seriously, an entire year before I ever had a tremor or other symptom of PD I suffered with extreme fatigue. At the time I was going to the gym doing a five day split, lifting very heavy (for a 110 pd woman). I was so tired in the evenings, I could barely make dinner for myself and my teenage son, then I would be crawling into the bed. My mom kept telling me to go see the doctor because that wasn't normal. Of course, I refused because I thought it was just because I had increased my weight lifting routine and I just needed to get used to it. I didn't want to quit because I had a goal. Anyway, the doctor's would have never figured out what was wrong with me even if I had gone cause I was misdiagnosed even when my tremors started manifesting. I'd like to end all this rambling to say that PWP should always keep moving and do whatever exercise they are capable of doing even if it's just walking. Yes, it will help you to feel better and probably help to keep your muscles from becoming rigid and locking up on you. However, there is no scientific evidence that it will keep you from progressing. Likewise, you are guaranteed to feel like crap if you give up and lay in the bed all day.
  4. 2 points
    You have to let bridges that lead to nowhere burn. Life is too precious to spend it traveling aimlessly.
  5. 2 points
    I've become something of a gym rat. This was a less good week - I only made it to the gym 4 times (work was insane). My eating has gotten worse because I don't feel like cooking when I come home. And my house is pretty messy. Sometimes when I'm in spin class or yoga class or whatever, I just feel thankful for what my body is able to do. I wonder what lies in store but hope for the best. My neurologist said - if you come through my door the diagnosis you want is Parkinsons - we know how to treat it, you might be lucky and have slow progression. So... may all of us be lucky!
  6. 2 points
    It would appear that the spamming posts, at least in this thread, have been removed. Thank you, moderators!
  7. 2 points
    From where I sit (husband, sister, and best friend from childhood all have PD), here are my thoughts: Run, don't walk, to the best Movement Disorder Specialist you can find (listen to your sister!) Start a Parkinson's-specific exercise program (like BIG, PWR! Moves, Dance for Parkinson's, etc.) Find a Registered Dietitian Nutrition who specializes in Parkinson's and get an individualized assessment and recommendations Learn all you can about PD I'd suggest skipping posts from Dr. Hinz as the posts appear to be spam on this forum. Take a look at other threads for more info.
  8. 2 points
    JB, thanks for the great tour guide recommendations and also thanks to TM and LAD. I looked at the manitoulin island photos on trip advisor and it does look beautiful. I'm not a fan of big crowds when I go on vacation. I work in the US Capitol and everyday I see thousands of tourists blocking hallways and meandering around what is essential a big government office building complex inside a museum. So the idea of getting away from people is attractive. We are thinking about taking Amtrak north and then exploring other places in Canada. I'm taking the advice of a counselor who told me to plan something nice so I can look forward with hope. -S
  9. 2 points
    It also depends on if you are interested in getting involved in research. I would think the centers may have more opportunities....you can look into that if that interests you. No right or wrong answer If it's an MDS and you like them. Start exercising if you don't already. Don't get hung up on what's the right way...just do something you like to get moving! LAD
  10. 2 points
    Hi, Haven’t posted before, just wanted to relate the exercise I do that I am certain has held off PD progression. I was diagnosed 7 years ago, I am 56. 3 times a week I go to spin class and reach HR numbers of 130-150. 2 times a week I box with a boxing coach, regularly reaching HR of 150. I golf 3 x a week 2 x a week, general work out. This is a fairly rigorous schedule and I am pretty much always sore but my symptoms have actually reduced. I no longer have a tremor and I walk more smoothly. Whether this is just being stronger and more limber I don’t really care...I feel so much better being active. One interesting thing that occurred today, was in taking my medication prior to spin class, I took my extended release drug, Rytary, instead of carbidopa/levodopa . This resulted in the drug wearing off halfway thru class. I presume the lower concentration of the extended release drug was not strong enough to provide sufficient dopamine for the high intensity workout. Has anyone else experienced this. I hope this post finds everyone well, KEEP MOVING.
  11. 2 points
    Number one, there have been people diagnosed with Parkinson's earlier than 27, so no, it isn't a "record". I agree that the person probably doesn't have Parkinson's, but that attitude is exactly the reason why some people (a lot of us in this forum 29-35) get the neurologist run around before we get a diagnosis.
  12. 2 points
    Ahh, what a delight to wake up to one of your happy stories, jb! Thank you, thank you, thank you. My day began with a feeling of great love and joy in my heart for both of my children. In a week, it will be the anniversary of my son's death. Isn't it glorious that I can feel the joy as well as the pain of life? Blessings on your journeys today. Dianne
  13. 2 points
    Good morning Everyone, It is zero F degrees out today. Much warmer inside my house due to my central propane furnace and my woodpile built out of split beech, maple, white and red oak, I also mix in some soft wood fire starter such as pine. Nothing as nice as putting your feet up to the warm stove on a cold Canadian evening. This morning I wake up as usual: it takes me awhile to get going now, first some pills, flushed down with orange juice, coffee is ready and I sit on my butt for the next 15 minutes watching the news to see what is going on in the world. By now the horses see the lights on in the kitchen and they urge me to hurry up and get out here, cause we need fresh hay. Yesterday I saw a rabbit go at full speed past where I was standing. Followed closely by Keith, my best cat, twin brother of Toby. Once the rabbit got to the laneway with his 20 ft. lead, he disappeared. Probably He dove into a scrap wood pile, or the fence bottom, into the sumac brush or maybe even had a getaway car awaiting him. Looking out the window this morning, I saw a mouse under the birdfeeder. He was obviously out for a quick breakfast and he snarffed down black oil sun flower seeds that had fallen from the feeder. As he crossed the sidewalk and hit the soft snow, he started to plow a wide path leaving a distinct trail but then I think I heard him cry out, "down periscope" and his dark nose went out of sight and again I heard. "prepare to dive, secure all hatches, planer fins at minus 45, available weight forward, full revolutions, set course for John';s basement. " With that, the plowed out trail in the snow from the mouses body grew fainter as he went deeper into the depths of the snow and then, nothing, Just a hole, white cold snow and me awondering if that mouse will end up in my basement one day, or may be he already is, (displaying shopping bags of today's booty to his wifey who was busy with the 10 baby mouses) and thinking maybe Keith should be guarding the basement against the Mice rather than playing Coyote-Roadrunner with the rabbits in the lane. I gots to get going here. Meeting my coffee club.. Em, I will come and tidy your backyard. Would love to. If you tidy my garage. Let me know when, I will arrange a dumpster. Hello Lad, Linda and all of you. Take care you'all. jb.
  14. 2 points
    My husband is 70 years old. He was diagnosed about 5 years ago. He is so diligent about doing what needs to be done to stay well. Our Neurologist department has LSVT exercise three times a week. He tries faithfully to get to these exercise classes. He also went through the LSVT exercise program. THE EXERCISE MAKES ALL THE DIFFERENCE IN THE WORLD. He used to shuffle and he no longer does that. He seems to be having some difficulty with his speech. His voice becomes horse and he speaks quite. He has also become less of a conversationalist. His Neurologist suggested he go to speech therapy. He has gone through the LSVT LOUD program and it has helped. I would like to know why LSVT charges $45.00 for their DVD for practice. Seems as if they are taking advantage of Parkinson's patients. Just Note: He recently suffered from a bout of whatever is going around. IN MY OPINION - HE IS A GREAT GUY BUT WHEN HE GETS SICK...... HIS BODY SHUTS DOWN. HE SEEMS TO HAVE TO USE EVERY EFFORT TO FIGHT THE SICKNESS AND HE BECOMES A ZOMBIE. IT TAKES HIM LONGER TO GET OVER IT. So anyone who is suffering any flu, cold, sickness. Take note: if you have Parkinson's your extra slowness is most likely being caused because your brain is fighting the illness. Take it easy. Caregivers note: Be patient, make the Parkinson's patient take extra care of themselves. The one thing that I stress for my husband is to please make sure you put your medication in pill boxes. I only take a Blood pressure pill and thyroid medication and if I don't have those two pills in my pill box........ I don't recall if I took it this morning or not. As I say to my husband, if you are on a plane you need to put the oxygen mask on first in order to help yourself to help others. It is the one things that I insist. MAKE SURE YOU FILL THE PILL BOTTLES AND TAKE YOUR MEDICATION ON TIME. A very happy new year to you all and read and learn what helps other patients and remember. Every case of Parkinson's is different. But we can all learn from each other. God Bless
  15. 2 points
    I just want to interject in this thread that you all (PD_guy_MN, Gardener, Superdecooper, & BillBRNC) sound like such wise, thoughtful, considerate men that I believe you will find solutions to these marital issues. Sometimes marriages have to change shape. Best wishes, J
  16. 1 point
  17. 1 point
    I reported it yesterday. I hope Admin does something soon. Dianne
  18. 1 point
    7 marathons, 7 days, 7 continents and one man with Parkinson’s. Can he make it? Facing cramps, foot injuries and an unrelenting disease, Bret Parker was determined to finish. https://www.washingtonpost.com/national/health-science/7-marathons-7-days-7-continents-and-one-man-with-parkinsons-can-he-make-it/2018/02/09/ef39ce80-0c14-11e8-8b0d-891602206fb7_story.html Bret Parker reacts as family members and friends greet him before one of the events in the 2018 World Marathon Challenge. (Melina Mara/The Washington Post) During the first marathon, Bret Parker felt great — for the first 15 miles of ice and snow. “I was chugging along, and I had no symptoms,” he recalled the next day. “I was running a good pace. I said, ‘You got this.’ ” He paused. “And that was the kiss of death. I started slowing down. It got colder. It got windier.” It was Jan. 30, and Bret was running a marathon on Antarctica. It wasn’t actually that cold for most of the race — about 20 degrees. But it was windy. And Bret has Parkinson’s disease. Like the 50 or so others on this adventure, he wore ski goggles and trail shoes and lots of layers. Unlike them, he carried a tiny plastic bag of pills that he was regularly popping to keep the stiffness, cramping and tremors of Parkinson’s at bay. ...
  19. 1 point
    stay strong everyone!! LAD
  20. 1 point
    Thanks again LAD sensational work! Some interesting food for thought.It seems like this is a bit of an issue for a few people. I will definately look into it kindest regards silversurfer
  21. 1 point
    A year and a half after DBS surgery and exercise definitely helps. Prior to surgery I was using a cane or walker to get around with no energy to exercise. Much credit goes to DBS, but if I slack off for a couple days, stiffness sets in. One mile dog walk and Tai chi every morning. Alternate pickleball and road cycling every other day. The ability to bicycle still amazes me. Two hours is about my limit for (fairly) strenuous exercise. I have a separate DBS setting specifically for exercise, and also take a little more medication. I have to be careful cycling because if I run out of energy I have trouble with balance. I'm sure every PWP has their own limitations that will change with disease progression.
  22. 1 point
    Wow! snow storm in progress. We are suppose to get up to 12 inches. My DH was going to go out and shovel but he looked out the window and the weather report and decided to work on the bathroom . It's been ongoing the last couple years. He's remodeling. My family has stopped asking if it is done yet. So snow storms are not all bad. We have what several states don't. Moisture. Here is where I should post a picture. The snow is not expected to stop till 12am. Continuous. So there is a good picture out there someplace. I'm going to try and get one to share. I keep sending that pointy point all over. I think and could be hitting unexpected keys. So here I go till I manage to post a picture. I have a blog and that is where I put pictures on its way here. The snow is deeper than it looks. There is snow on the porch railing just can't see it that well.
  23. 1 point
    Hi all, I was in the clinical trial for this medication. It is very effective. It did take effect after about 10 minutes and lasted for about 45-50 minutes. It's not meant to replace other PD medications, but simply as a "pot-hole filler." That's how they described it to me. It's a good option when a quick "on" episode is needed. I'm glad to hear it is making its way to the market! It was a few years ago that I was in the trial. It feels good to see a positive outcome from clinical trial involvement! Peace, Mihai
  24. 1 point
    Good one LAD,....I always have the music on when using computer...
  25. 1 point
    Hi NCFred, The first few years my MDS was scheduling me every 4-5 months. I traveled 6 hours roundtrip. Looking back, I think it was excessive as my progression was slow. It really depends on your symptoms and progression. If you are managing well with your current treatment, there is little to be gained by frequent appointments. If I had it to do over I would have allowed them to schedule me a follow-up but cancelled if things were going well. Welcome to the forum. Gardener
  26. 1 point
    Absolutely see a Movement Disorders Specialist. The Hopeline can refer you to a PD Center of Excellence near you. Treating PD is about so much more than medication. Dianne
  27. 1 point
    Just got off the phone with the dr. she wants me to double the dosage of sinemet. She said it's very rare for the med to increase symptoms. If I have problems, call her back.
  28. 1 point
    Good morning World, It is morning time again. Actually I started typing this about 3 hours ago and got interrupted by my head was not straight yet, the kettle was boiling, I was hungry, the dog was huungry, oh yes, so were the Barn Animules, and I talked with Daughter on the phone, cleaned up from last nite, did some of the neverending dishes, I put out some fresh birdseed for the blue jays, woodpeckers, juncos, cardinal (1 pair) chickadees and nuthatches. And I thought that I was going to meet my daughter today in town for Toms hockey game but I had that wrong, It is tomorrow. Hi Texas Tom, how are you? Not your hockey game, but my grandson Tom's. That sounds unpleasant about your boxing club. It seems like there is always someone sitting in the wings, watching something become something bigger and then they try to grab it for themselves, I hope that you find a place within the rock steady that is pleasant to be at. There is a cold wind a blowing up from the east I think, and I think that it is a storm a coming. I should dig out a good book to read, stoke up the fire and think about all the things I think about but don't conclude my thoughts. Yes that is likely what I should do. My mind maybe is looking like a library where somebody takes down a book, reads some random pages but then leaves it open on a shelf or a table or the floor or the chair and moves to another book. When that is repeated several times and several books are on the go, and nothing gets finished and all these open books are all over the place and thoughts return to that book but which book is it: this upside down one here? Ah. I guess I will continue with my line of thinking that brought me this far. I need to organize myself better and spend my time more effectively. Here is something that is new to the world, google. (The earth is at least a million years old, google, is still new). Remember saying "I wonder how old the earth is"), (only question I could think of, lol), Well if you ask that question now, the smart phones are out in a hurry and someone will tell you the answer. Darn, I wanted to wonder about that for awhile and come up with an answer. If You want to wonder about stuff, do not let any one know or else the answer is handed to you. I need to get some things done. Have a good day jb
  29. 1 point
    There are only so many places that have good weather so that's not something you can do much about. Having support to me is a no brainer. The CG or PWP cannot do it alone sooner or later.
  30. 1 point
    My way of thinking has always been to be close to family so they can help when needed. Hired help has been a nightmare for me from the start. I have become skeptical of the level of care they give to my mom and how the truth is that they don't give a damn about her. Carpet vs floors. Love floors for the look but I do like the feel of carpet and some are fine with wheelchairs. It's easier to keep floors clean which is why I only have floors in my house. However... they can be slippery. This is a very important topic indeed. I hope more people will chime in. Thanks.
  31. 1 point
    Adam!!!! The Dideridoo??!!! That has to be the most unique instrument ever! Never heard anything like it. You'll have to send us video and audio of your playing it!
  32. 1 point
    Hello everyone, I used to be on this forum several years back, I think that I went under Darwin at the time. I can't remember why or what happened but for some reason I became unable to sign in. It's been longer than it seems because I now have a granddaughter that is ten. I would like to know if there are any of the ones that were on here still posting. Fly Baby and Kim Again, just two that pop into my head . It's been such a long time it seems since I posted . A lot has happened over the past, some good, some not so good. Everyone can say that just as much or more than I've got call to. I see a lot of new names here and I hope to be able to maybe offer some support and maybe just an ear. Thanks Doug .
  33. 1 point
    HOW DO I PRAY? https://www.exploregod.com/how-do-i-pray
  34. 1 point
    Hi Tweets32, I can relate to your story. Since I was diagnosed in Oct 2017 (after suspecting it for months), I started to ride a stationary bike nearly every day for a half hour at a moderate clip and added stretching and strength exercises to the mix (with the direction of a local PT). I attended a Good Start program the end of November and the PT speaker (who was great, btw) indicated that in order to get the full benefit, you should exercise at a more intense level for a minimum of 2 1/2 hours a week. Sooooo...I kicked it up a notch, nothing crazy, but within a few days every joint in my body was cracking and popping frequently throughout the day. My shoulders have been sore since then too (particularly one, and it's on my "good side", which is frustrating). I thought maybe it had something to do with the Pramipexole that I'm on since that can cause swelling, but I've reduced my dosage significantly, and it's still happening. Neither my doctor nor my PT now why it's happening either...I'm a mystery. Short story long, I've gone back to cycling at a moderate clip as I'm sure that's better than nothing at all...and being active makes me feel better physically and mentally. So, I just wanted to say that I agree with you; you don't want to push yourself to the point of extreme fatigue and injury. I'm taking it easy with my shoulder in hopes that whatever is going on will heal and I can start to gently strengthen it again over time. Wishing you the best!
  35. 1 point
    The Rock Steady program in the Baltimore area actually wanted $160 per month and they only have classes on M, W & F at 11 am. I was shocked and kind of angered because I really wanted to join that program. But the cost was outrageous and the class times were impossible for me. I still work full time although I do have some telework days. Not surprisingly they only have 5 people in the class. The man running the program has Parkinson's also. He claimed that he had to charge that much or he wouldn't make any money. I'm not a business genius but if you only have 5 people in the class paying $160, wouldn't you make more money if you could enroll 2 or 3 times that many people paying $80 a month. I would have joined it for that. Plus, with more people you could have more classes, preferably some in the evenings or weekends.
  36. 1 point
    BobbieH and johnny -- First, my apologies for replying so late. I have not been checking the forum lately. For a few years I was active on three forums and found that they were gradually consuming all my free time. Therefore, I have cut back on my online time considerably. BobbieH: Yes, I am still taking that hideously long list of medications! When I see them written out, I realize how many chemicals I'm putting in my body. But they do work for me. Once a few years ago an acquaintance learned that I have PD. She asked how I was keeping it under such control. When I told her that I take pills at four times during the day, she looked absolutely horrified. "You mean you'll have to take pills every day for life?" I had to laugh. And I told her that given the choice of swallowing pills or losing my ability to walk, I had never found it a difficult decision. Then there are those people who say, "But you don't have a tremor. Are you sure you have PD?" If we remain patient, I suppose, we can spread a little education out there. John: I know I am very fortunate in being able to tolerate these strong medications. For several years I was taking 6 mg. per day of Pramipexole (Mirapex)! My current doctor asked me to reduce that to 4.5 mg., which I did, adding a small dose of Sinemet. The only med that gives me a noticeable side effect is Sinemet: I have begun to have a mild form of dyskinesis, swaying my body from the hips. If I notice it, I can stop it by concentration, but often I'm swaying without even knowing it. My very slowly progressing case of PD is a piece of good fortune. I had my first symptoms approximately 21 years ago and am now 71 years old. When I was participating in a research program last year, a very young doctor examined me before and after the physical tasks I performed for the study. He said, "It's amazing! You've had this so long without marked symptoms. You probably won't . . . um . . . I mean you aren't going to . . . you'll probably never . . ." Finally I put him out of his misery and said, "Yes, I know what you're trying to say. I won't live long enough to get to the most advanced stage." J
  37. 1 point
    Hi Linda and everyone else. I seem to be busy and have trouble sitting still long enough to catch up. I am fine,but I need to get ready to go to a parky meeting. I will check out that writer Linda. Best wishes to all. Jb
  38. 1 point
    Some of my patients will increase their carbidopa/levodopa to every 3 or 4 hours and this will help. Six to eight glasses of plain water helps and in my clinic the drugs for GERD work well if needed. You may consider drugs like Domperidone or also Lodosyn for nausea if that is an issue. There is ongoing research into the microbiome and this may be a consideration in the future for treatment.
  39. 1 point
    I remember you because of your quote, Beau's mom. I think one asks if someone is still posting can be the need for consistency and comfort of knowing that some things are still relative to the time and that it's not a huge change we have to chock done. I'm seeing some old names and it's like oh WOW .they are . Kim again is/was a red headed blue eyed gal with an English accent with a southern drawl. She had the DBS before I had it and gave me the strength to move ahead.
  40. 1 point
    Cross your fingers, I seem to be turning a corner here. Since last week, ive slept between 7 and 8 hours and the night sweats seemed greatly diminished. -S
  41. 1 point
    +1 on Linda's comments. Just have to go get 'er done. I may add that if it is going to get done it will in the first two thirds of the day before fatigue sets in for me! I get up relatively early and by the third cup of coffee around 8am when the news on TV starts to repeat itself I know it is time to get in gear. I try and concentrate on that one or two main "to dos" and I keep a running list for the week and cross them off as they get done. Exercise, as a natural habit< is the biggest challenge for me and my sedentary type B personality. Executive function is taking some hits here and there in the planning stage. That all being said, there are still a few things I used to care about that just don't matter to me anymore! Thats no all bad when productive time is less. DB
  42. 1 point
    Super - noah is a lady. Took me a while to figure that out.
  43. 1 point
    You have to be the one to make the effort to change how you react to people. There is only so much a person can take or is willing to be someone's emotional or physical punching bag. We all have some form of demon that we are facing. It's up to us to break free and look beyond our own problems. I do a lot of boo hooing of my life and how it's been going but I made the choices and I live with it. Whatever you are going through now you are still better off than a lot of people in the world. I see it that way. Take care.
  44. 1 point
  45. 1 point
    When You're Lonely, Where is God? Pastor Rick Warren, 8/5/17 “The first time I was brought before the judge, no one came with me. Everyone abandoned me. May it not be counted against them. But the Lord stood with me and gave me strength so that I might preach the Good News in its entirety for all the Gentiles to hear. And he rescued me from certain death” (2 Timothy 4:16-17 NLT). When you’re lonely, where is God? He’s where he has always been: right beside you. He is with you even if you don’t feel it. The Bible says over and over that if you have a relationship with Christ, then God is with you all the time. He says, “I am with you always, to the very end of the age” (Matthew 28:20b NIV). He’s always with you. You’re never really fully alone. A few years ago, Kay and I flew to Hong Kong to do a seminar for some of our missionaries. About halfway through the 17-hour flight, we went through the most horrendous storm. We were pitching and jolting. The plane was tilting, and everybody was getting antsy. They were obviously disturbed by the circumstances. The crew asked over the speaker, “Is there a minister on the plane?” I raised my hand. They approached me and said, “Everyone’s pretty upset because of the flight. Can you do something spiritual?” So I took an offering! No, not really. But the people on that flight needed to hear that God is with us. For believers, it’s a promise that we can cling to in our times of fear and loneliness. Not only is it a comfort, but it also gives us the opportunity to get to know God better. Loneliness is a time to become better acquainted with God. In your season of loneliness, you need to recognize God’s presence. Amy Grant used to sing a song with the lyrics, “I love a lonely day; it chases me to you.” Prayer is a powerful antidote to loneliness. God has a 24-hour drop-in service. You can talk to him anytime, anywhere, anyplace, and he understands how you’re feeling when you say, “God, I’m lonely. I hurt! My heart is splitting. I am miserable. I feel empty. Help me, God.” You can talk to him anytime. David says in the psalms, “Where can I flee from your presence?” Nowhere. You will never be in a place where God isn’t. If you’ve trusted Christ, he’s with you in your heart. Choose to refocus on that when you feel lonely.
  46. 1 point
    Grace........God's favor in the absence of merit. Where would mankind be without it? Ephesians 2:8-9 "For by grace are ye saved through faith; and that not of yourselves: it is the gift of God. Not of works, lest any man should boast." (KJV) Grace......How do we access it? Romans 5:1-2 "Therefore being justified by faith, we have peace with God through our Lord Jesus Christ. By whom also we have access by faith into this grace wherein we stand, and rejoice in hope of the glory of God." (KJV) Justified..........just as if I had never sinned. I read a commentary on grace the other day that amplifies the concept to me. In Gore Vidal's historical novel based on the life of Lincoln, Vidal pictures a cabinet meeting when it was evident that the South would be defeated and post-war plans were being made. When asked how he planned to deal with the rebels, Lincoln said, "I will treat them as if they never left". That's grace! DB
  47. 1 point
    I Thessalonians 5:16-18 (ESV): 16 Rejoice always, 17 pray without ceasing, 18 give thanks in all circumstances; for this is the will of God in Christ Jesus for you. It is sometimes very difficult to have a constant positive attitude and to be thankful for ALL things. But these simple but profound instructions given by Paul are a wonderful reminder how blessed we are and to thank Him in everything. To everyone - thanks for these wonderful verses.
  48. 1 point
    Great thread! Thanks for starting it. I know the following is referring to possessions but it still makes me stop and think before fretting over the everyday stuff---including my future with PD. Its been posted on my refrigerator long before my diagnoses.
  49. 1 point
    It's almost amazing. (from a negative point of view!). EVERY neurologist knows that the main side effect of dopamine agonists is nausea and vomiting. and that this side effect is 100% preventable: -With coadministration of domperidone, a dopamine antagonist, which does not cross the blood-brain barrier, does not affect our Parkinson's symptoms and practically eliminates levodopa and DA-induced nausea (domperidone is available through Canada, and is a relatively safe drug-with the exception of patients with cardiac arrhythmias- when the dose is <30-40mg per day and when used for relatively short periods). -With slow titration of dosage. Nausea usually subsides in a few weeks when the patient gets used to the drug/dosage Most neurologists fail to inform their patients on potential side effects of PD drugs.. including not only nausea but also impulse control disorders or hallucinations. Often with detrimental consequences. Why should any patient suffer for nothing? It beats me !
  50. 1 point
    Thank you for the information and a reminder of Mark Twin's warning " Be careful of reading health books. You might die of a misprint".... Or perhaps a misinterpretation ?