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  1. 3 points
    Oh, we have four levels of classes. Bob, who was doing the Bosu Ball, is in the "Blue Class" I got bumped into "Orange Class" and like the chart implies, some days I feel like I'm maxed out on 10. The cardiologist has approved my intense workouts, with a bpm hitting 161! Normally I hit 145 bpm. The irony is my resting heart rate is now down to 52 with the working out. Hitting the 6 0 this year, so 161 is considered 100% cardio effort. A definite "9" on the chart. My MDS, PCP, Cardio, Pulmanory, Oncology all have one comment "You look great!" The exercise is a huge part of my medical treatment! I have some other odd stuff going on [ Eosinophils off the chart] but love the new doc. Stuck his head into the office, excused himself, came back a few minutes later and apologized but after reading my chart and meeting me thought he had gone into the wrong room!
  2. 3 points
    Here's the link: http://besthealthherbalcentre.com/testimonials.html They apparently not only cure Parkinson's, but ALS, COPD, Herpes, and just about everything else. Let's see...first time poster.... claims of a cure for just about everything. C'mon! Where's that eye roll Emoji???
  3. 2 points
    Hi NCFred, Key is to keep exercising. HIIT (High-Intensity Interval Training) is good! Cross-fit is good! Key, as pointed out, is not to hurt yourself but work up to those levels. I had blown out my lower lumbar disc. Think squished jelly donut. Found a great neuro/spine surgeon who explained if I felt OK to walk, keep walking! That helps the spine pump fluid and gives room for those "squished donuts" to come back together. In my case, no sit-ups. I do a modified crunches for ab workouts while the rest of the class is doing sit-ups! Thankfully our coach is great and has different instructors rotate our workouts, all geared for Parkinson's. I found starting the day with 10 Sun Salutations (yoga - google is your friend) gets me moving first thing after I've had my morning espresso. Working out, core exercises (yes planks and pushups with head-shoulders-butt inline have helped the back issues! Bob is rocking the Bosu ball. His rear should be lower, but what a way to celebrate your 80th birthday! Yes that is our class.
  4. 2 points
    Another good one ..."if you can't be kind, be quiet."
  5. 2 points
  6. 2 points
    Tjon In my personal experience, I am better off taking an evening dose even if I feel like I don't need it. I find that when I skip doses in the evening, the next day will not be as good. There is some buildup effect over time as well as you adjust. From your initial post, you seem to be on a high dose for someone that is just starting. If I am reading correctly you are titrating up to 1000 mg/day? That's a big dose. When I first started I ramped up over several months to 600 mg/day and found out the hard way that this was actually too high and causing some fluctuations (took almost a year to realize that). I added entacapone and reduced to 300 mg/day and am much better now. Everyone is different but I would recommend asking your neuro about dose schedule and if what you are currently on is too high. It is possible that the rapid titration to a high dose was for diagnostic purposes and not intended as long term therapy. (Some people are resistant to the lower doses, so some docs like to push the dose to make sure they aren't missing a benefit, for those patients that don't initially respond. It sounds like your response is not so much in question at this point though). The usual starting dose is 300 mg / day. The transition to your potential new reality may be hard but just remember that PD and happiness are not mutually exclusive. Many people are scared by the idea of a progressive disease, myself included, but progressive symptoms don't need to result in progressive unhappiness. Stay positive and enjoy the benefit that getting your meds dialed in can offer. Ed
  7. 2 points
    Hi Tjon, I have to disagree with the above post - Sinemet is not like Ibuprofen (take only when you have pain). My understanding is that Sinemet has a long duration effect and a short duration effect. It works best if taken on a regular schedule regardless of symptoms at the time of your next dose. Some people (including me) find that it keeps them awake at night and adjust their schedule so that the last dose of the day is not too close to bedtime. I use an extended release at bedtime which seems to help with that problem. I'm in my 7th year since diagnosis and, like Adams, get almost total relief of symptoms unless I'm under stress or very tired. Good luck and keep us posted. Gardener
  8. 2 points
    Hello Everyone, When I grow up, and develop better work habits, I hope to become more disciplined and attend to required paperwork in a timely manner. I have had the papers here to renew license sticker on my car for about 2 months. It can be done online or at a government office. I renew mine at the office usually but decided to do it online this time. You can do it online up to the date of expiry which would be midnite tonite. It took me about 25 minutes and had about 30 minutes to spare. Next year I will do it at 6 oclock on the day of expiry instead of waiting until 11 pm. Linda, the hospital is a teaching hospital affilliated with the University of Toronto and there are many wonderful and clever minds at work there. The group that will work on my brain take referrals from neurologists from all areas of the country. I think that is the way they keep things in order, in Budget and organised. Your cousin could contact the hospital, Toronto Western, and ask for the neurology department and make a request for an appointment but it would be a long process. Most specialists take new patients through your family gp which partially sorts out cases and they see the proper doctor. Does this help you any? Good to see and hear you She Ra, Cabin in the mountain sounds great to me. If the thought of snow excites you Sheila, I will swap you a farmhouse for a mountain cabin down south for 3 months next winter. Hi Dianne, sounds like a rough weekend for you. That tube is bugging you again! Still? Sorry for that. THE VIEW SOUNDS LOVELY. I'm sorry it will take awhile yet to get the dbs device but that is the way it is here. Oh well. Good Luck to your son LAD y for his singing. As of this week, I am now 60 yrs old. I can't believe that. Good nite my friends jb.
  9. 2 points
    JB, I am still here, reluctantly. I have experienced some progression, albeit mild, but enough to upset me for a while. It has greatly disturbed my state of denial. Had my MDS visit about two weeks ago and he increased my C/L which was another blow. Another bite of acceptance I guess...:( On a brighter note, DH and I are set to retire July 20. A couple of months ago, we moved full time to our Georgia "mountain" house up in NE Georgia but are still working full time in downtown Atlanta. It is a b!tch of a commute but we are saving quite a bit of money. Just a few more months to go. It actually snowed a tiny bit yesterday which always thrills me. Hugs to all here! I read everyday to see what you are up to. The smiles you give me help more than you know. Love, Sheila
  10. 2 points
    One of my interests is raptors, eagles, owls etc. I'm a veterinarian. An elderly man died leaving two Macaws in a cage. The animal control office brought them here to be euthanized. I dawdled while trying to find other solutions. My daughter volunteered at Tracy Aviary. One of their directors said he'd take the birds. The guy drove 3 hours to see and collect the two birds. I didn't hear anything more til he left a message for me. He said when he got the birds home his dog went ape-shit crazy barking. One of the birds screamed, "SHUT THE INAPPROPRIATE UP!" And the dog did, instantly. He wanted to tell me he couldn't be happier. He built them an indoor enclosure. And if the dog acts up the birds put him in his place by calling, "SHUT..."
  11. 2 points
    Hi all.., I have spent some time crunched in a corner at my son's vocal lessons watching him get ready for a competition next week...i anchor my arm on the armrest Here's a snippet of his one song....watch if you want ....have a good Sunday LAD
  12. 2 points
    Some days I fight, Some days I cry, Some days I get out bed and wonder why, But every day I walk with my head held high. Because I know, I will get by. Blessing Everyone.
  13. 1 point
    Best of luck for Debbie.I''ll remember her in my prayer.
  14. 1 point
    Every opioid I've had to try eventually gave me a rash. I also never found them to be remotely recreational. Between those I'm highly unlikely to ever have any addiction problems. But I'm also a bit of a wuss when it comes to pain. Since I can't take NSAIDS for a week post surgery due to requiring blood thinners for that time frame I really just need to avoid the need for surgery. For those that need them, and don't abuse them, the restrictions on opioids are a real shame.
  15. 1 point
    TURNING POINT with Dr. David Jeremiah--March 18 Peace, Be Still! Then [Jesus] arose and rebuked the wind, and said to the sea, “Peace, be still!” And the wind ceased and there was a great calm. Mark 4:39 In ancient literature, water often represents chaos. In Genesis 1:1, water covered the formless, empty, dark earth. God used a flood of waters to judge the earth in Noah’s day. In Exodus, the Red Sea threatened to destroy the escaping Hebrew slaves. And during the ministry of Jesus, storms on the Sea of Galilee threatened the well-being of His disciples. In each case, God brought order out of chaos; God was bigger and more powerful than the disorder. Recommended Reading: Psalm 89:8-9 There is a lesson there: Whenever chaos or danger appears imminent, our concern is not how big the problem seems but whether God is with us or not. The disciples learned this lesson when a storm threatened to take their lives on the Sea of Galilee. Jesus commanded the storm (the chaos) to be still and peace was restored (Mark 4:35-41). They learned that having Jesus with them was more important than the storm that was against them. If chaos is threatening your peace, let Jesus be your ark of safety in the storm. He can bring peace in any storm. Jesus Christ is no security against life’s storms, but He is perfect security in life’s storms. Wendell Loveless
  16. 1 point
    So, I'm dealing with a mild case of swimmer's ear right now. That just an outer ear infection. Last week the pool filter broke and the gym replaced it on the fly without really closing the pool down or changing out the water quickly enough. This too shall pass. Doc says take ear drops, get some ear plugs, should be gone in about 10 days. I can still swim though. Which is good cause I signed up for swimming lessons at the local community center. I'm trying to learn the breaststroke, the backstroke and the flip turn. On the PD front, I've been waking up with a tremor some mornings - not every day, but often enough. And the occupational therapy for the dystonia in my hand seems to be helping with the pain some and grip strength. I'm supposed to get a physical therapy evaluation next week - I've got some mild freezing going on so I'm trying to pick up a few tricks on how to get up quickly and how to walk a bit more smoothly. I'm also getting some work on knowing where my hands and are placed - hopefully that will cut down on the knocking things over. -S
  17. 1 point
    I appreciate the responses more than you know. In talking to the MDS, he is using the Levodopa challenge as a test of exclusion. He did say that some of the symptoms should have improved after 5 weeks, but they have not. Unlike most diseases, this beast has no simple conclusive testing to identify its presences. Patience is a virtue that hasn’t graced me yet at 45 yo. Continuing the chase for answers. Thank you all for the feedback.
  18. 1 point
    Sherrie, the dyskinesia I experienced in 2012 was due to having been prescribed way too much carbidopa/levodopa for several weeks. When the dosage was suddenly reduced, my body reacted with more severe dyskinesia than I had when the dose was too high. I later learned that I have biphasic dyskinesia; I become dyskinetic at the peak of the c/l dose and as the c/l leaves my body. Dianne
  19. 1 point
    Doubleup, The first Neurologist I saw was a general neurologist who had and treated many Parkinson's patients. I went to him after I noticed that my right arm had stopped swinging, my right hand would curl up into a fist, and I had stiffness in my neck and shoulders. I also noticed a minor tremor in my right middle finger. He said he strongly suspects that I have PD after going through a battery of test. He then recommended that I go to the University of Rochester's Movement Disorder Clinic. His hope is they would want to do a DatScan, the only test he did not do and did not have the ability to do. He was also hoping there would be a study I could join since I was young and a rare case. The first MDS I saw I was not impressed with. She did order the DatScan because of my young age to make sure I was not have some other issue. I went through with the DatScan and received a copy of it in the mail a week later. It also included a results letter from the examining neuro. It stated that my scan was consistent with PD if clinical results suggested PD as well. I then got a call from the clinic asking if I would like to join a study. I said yes. On my first study appointment they did the clinical exam then looked at the DatScan results and accepted me into the study. The study lead neurologist was accepting new patients so I had her become my main MDS. Once I was part of the study I had to remain off meds till I had completed six months of the study. It was a struggle but I stuck with it. Once I had my Six month study appointment we started with Azilects then 2 months later added sinement or C/L. I felt so much better. The search is tough, some much of the diagnosis process is subjective and base solely off of a neurologist opinion. I hope you find the answers you are looking for. Can I ask. Are you having other symptoms as well as the tremors?
  20. 1 point
    I agree with gardener totally, I did significant research before deciding to take Carbidopa/Levodopa aka sinemnet. There is no evidence that suggest C/L is solely responsible for dyskinesias based on the amount you take in a given day. I have met and talked to several people who take over 1000mg of c/l a day and do not have dyskinesia. Dyskinesia happen with a combination of disease progression and use of sinement. One study that is in its infancy suggest that dyskinesia happen when a chemical in the brain called GABA starts to diminish because Parkinson's disease has progressed to a point to affect its production in the affected part of the Parkinson's brain. The brain Chemical GABA acts like a throttle on a car, it meters how much dopamine reaction is need when the brain sends a signal. When that is no longer present the signal gets over intensified and you get dyskinesias. Remember, when big pharma came up with there synthetic dopamine called agonist, they spent millions discrediting C/L so they could reap billions in profit for their new creation with terrible side effects. This stigma still exist today even though big pharmas studies have been disproven. Want you to have the whole story when you make your decision Blessings Adam
  21. 1 point
    Tjon, I would suggest taking Sinemet only when you really need it. I wouldn't take it at night if I didn't really need it. There is such a thing as dyskinesia which is a side effect of long-term use of Sinemet or other drugs like it. This is something you want to avoid. Of course, remembering that we are all different.
  22. 1 point
    Hi NCFred - My routine is varied but I try to move for one hour a day minimum - including mat pilates, a bicycle HIIT routine, and 30 min on cross country ski machine 3 x per week, walking (outdoors if possible) for at least 30 minutes daily, free weights lifting 2 x per week. I don't participate regularly (yet) in any PWP classes as I don't find they push me enough but I do like the support aspect. I have found that the nutrition and sleep aspects of my life also hugely impact my symptoms so I follow the biohackers and alt medicine doctors for other ideas. Good luck. LindaG
  23. 1 point
    Hi, DB. Thank you for your post, which clearly explains what we learn through the Bible of why it is necessary and how someone becomes a Christian. I had a hard time understanding the concept of Christ dying for us (even early on in Bible college). I think what made it clearest to me is in reference to #1, above. I heard that God is so holy that anything sinful cannot be in His presence. For some reason, that made it clear to me. It's interesting how some of the simplest things can be made clear by just a certain turn of phrase. I turned to Christ as a young girl through a Christian Bible Camp ministry here in Maryland. I've always been amazed when looking back and seeing all of the influences the Lord brought into my life to draw me to him. My little 7-year-old neighborhood friend and my dad were very early-on influences. A Christian friend of my aunt offered to send me to the camp. I remember in my older years at the camp asking why prayer is said to God and to Jesus, but I was perplexed when someone prayed to the Lord. I asked who the Lord is. A friend explained that that covers all three--God, Jesus, and the Holy Spirit. We laughed together at the way she explained it. Such simple things that I didn't know and more things I am still learning as I go along. It never gets boring. I remember how grateful I was to learn of the Lord's love for each and every one of us and how He longs for us to love Him. His desire is that everyone would come to Him. "No greater love hath a man than to lay down his life for a friend." Jesus said that, and He did just that, out of love for us. He took our sins upon Himself and suffered the punishment for them. For us. And all He asks is that we come to Him--into His loving arms--asking His forgiveness for our sins and committing to following Him. I'd love to hear from others about their coming to Christ. I find it so interesting as to what pulled/lead them to believing in and determining to follow Him.
  24. 1 point
    Today's Turning Point with Dr. David Jeremiah Four Burning Questions—For What Will It Profit a Man… March 10, 2018 For what will it profit a man if he gains the whole world, and loses his own soul? Mark 8:36 Two brothers in Wichita, Kansas, won the lottery, netting $75,000. They celebrated by purchasing narcotics. While using a butane lighter with their drugs, the vapors reached the pilot light of their furnace, causing an explosion that destroyed their house. One of the brothers was rushed to the hospital, and the other to jail. In the literal flash of a moment, the luckiest moment of their lives became a nightmare. Recommended Reading: Mark 8:34-38 Millions of people feel they have won life’s lottery. They’ve accumulated homes and clothes and vehicles and sufficient financial reserves to pay their bills and ensure their futures. Some have become rich. But sooner or later, it will all disappear in the flash of a moment, for without Christ there’s no hope of eternal wealth or everlasting life. The Lord provides for the needs of His children, and He gives us the wisdom to be wise stewards over what He entrusts to us. Our long-term well-being is found exclusively in God’s mercy toward us in Christ Jesus, which is why in all things He must be preeminent. When I put God first, God takes care of me and energizes me to do what really needs to be done. David Jeremiah http://www.davidjeremiah.org/site/magazine/daily_devotional.aspx?display=devoprod&tid=email_edevo-wknd-0310&_zs=tPmw91&_zl=JuhL4
  25. 1 point
    Update...my son is in the semifinals in his competition tomorrow😊 LAD
  26. 1 point
    Good afternoon. Somehow the morning slipped away. LAD, your son is very talented. I enjoyed his singing. It is amazing how quickly he can switch from one song to the next without missing a beat! Sheila, I sure can relate to the PD progression topic. Breaking out of the isolation is difficult for me, too. I was released from the hospital last evening after several days of IV antibiotics for an infection around the site of my peg-j tube. It was a very strange experience. They had only a few items on the menu that I could eat. The first doctor I saw told me I would have to have food brought in from home because they are not equipped to feed patients with special dietary needs. Fortunately one of my caregivers was able to bring a few items in. I was in isolation so there was no way to heat the food up once it was in my room. I lived on gluten-free banana muffins and peanut butter cookies, tangerines, and sliced bananas with lukewarm tea for three days. I had a stunning view of downtown Seattle and Elliot Bay from the window in my room. I will try to upload a picture if I can figure it out. JB, I feel sad about the delay in your DBS surgery. I've seen it help many people. It will happen exactly when it is meant to. Hang in there. Dianne
  27. 1 point
    Today's Turning Point with Dr. David Jeremiah Thursday, March 8 No Secrets But immediately, when Jesus perceived in His spirit that they reasoned thus within themselves, He said to them, “Why do you reason about these things in your hearts?” Mark 2:8 When children are very small, they develop a predictable short list of answers to some of their parents’ routine questions: “Did you eat the cookies?” “No.” “Will you go and pick up your toys?” “I’m too tired.” “Please come and help me set the table for supper.” “Okay—in just a minute.” Parents understand these responses because they are childish versions of their own (occasional) responses to their own responsibilities. Recommended Reading: Psalm 44:21 Sanctification involves learning to think and act honestly and righteously before God. And one of the primary motivations for righteous acts and thoughts is that God knows what we think, and what we think about doing, all the time. We have no secrets before God. When a group of men brought their friend to be healed by Jesus, a group of Pharisees took exception—silently—to Jesus’ compassion on the man. Jesus called them out on their self-centered and non-compassionate thoughts (Mark 2:1-12). Jesus knows the human heart like parents know their child’s heart. Rather than be “called out,” far better to have thoughts we are willing for God and man to know. When anger was in Cain’s heart, murder was not far off. Matthew Henry
  28. 1 point
    Awesome! Let me know if you need help. I'm going to be in MD Quite a bit over the next few months. message me.... LAD
  29. 1 point
    Thanks for saring this web site, Ginger LAD. Just what I've been looking for, and I plan to start it soon. Linda
  30. 1 point
    I think many people with YOPD have a similar story of a skeptical doc that does not want to commit to a diagnosis. Second opinion is definitely valuable. I'm on my third neuro after only a few years in the club. I too started with Azilect but developed impulse control problems on it. (It's not that common for this drug but just keep an eye out and don't ever walk into a casino). I had issues with night sweats that seemed to relate to being overmedicated in the late evening. I'm on sinemet now but I generally avoid taking it after 6 pm. I also had a lot of sleeping issues and finally tried melatonin. I take 3mg in the "gummy bear" form right before bed. 30 minutes and I'm out cold till 7 am. It took a week or so to get used to but I'm glad I finally let my neuro talk me into it. (I had bad experiences previously with melatonin but found the gummy form was way better for me, and it took time for it to really help). With the amount of stiffness you have has your doc considered sinemet? As far as risk /reward it's approximately 1000000000000% safer than a narcotic pain killer. Just a thought. As for dealing with the transition to your new reality, the nice thing is that PD is typically slow and lazy as a disease so you have time to adjust. I had similar feelings as you do but then I eventually got used to it and found a good med routine and now it's just an annoyance. Just know that there is a good chance you will be able to dial in meds better than they are now and you may well feel better next year than this one. In fact I'd bet you will agree with me a year from now. I was diagnosed a few years ago and still feel better today than the day I was diagnosed. Am I objectively better according to lists of symptoms etc.? No, probably not, but I feel better so heck with it. Don't believe the myth that life only gets worse after a PD diagnosis. Hogwash!
  31. 1 point
    Here is the link to the MJF webinar: https://www.michaeljfox.org/gated-content/researcher_templated_form.php?id=79&et_cid=1052287&et_rid=239696098&et_lid=watch+a+video+recording+of+the+presentation+and+download+the+slidesem_cid It was a good one and they referred to info from an earlier webinar (they didn't repeat the info shared in this one from last year). https://www.michaeljfox.org/gated-content/researcher_templated_form.php?id=72&et_cid=1052287&et_rid=239696098&et_lid=our+previous+presentation+outlining+key+legal+documents+and+estate+planning+considerationsem_cid
  32. 1 point
    Loss of smell often makes it harder to taste food and sometimes people with PD simply eat less or don't enjoy food as much as they did in the past. This can lead to unintended weight loss which can be a very serious problem. Upping the spices can help some and watching for weight loss is really important.
  33. 1 point
    My local Y has a lot of classes. I try to mix it up. Cycle classes are great because it's easy to get a good workout without hurting yourself. At the same time, you can choose to hold back and go at your own pace. If I walk in the door of the cycle class, I'll do a vigorous workout for an hour. At home, chances are I would quit after 15 minutes. There are also cardio, zumba, step, and kick boxing classes that to me seem to be good for coordination and using lots of different muscles. It is super important to prevent injury - you can put yourself out of commission for weeks! I am not trying to work out to 100% of my ability. I figure 80% more days a week is better.
  34. 1 point
    This is a little long, but an excellent read. Based on II Timothy 3:2-4,7. Controversy swirls around last week's tragic shootings at Marjory Stoneman Douglas High School in Parkland, Florida. As is to be expected, the information being revealed about the shootings is sketchy and often contradictory. Arriving at the truth about these events is usually a tortured process. The final story is seldom what it appears at first to be. Two things are clear to me, though. The first is that certain factions appear to have been poised and ready to strike a blow at the Second Amendment at the first opportunity. As Rahm Emmanuel said -- and Hillary Clinton confirmed -- one should never let a good crisis go to waste! The second is that, contrary to what the four students we are seeing across the mainstream media may think, guns alone are not the problem. It is simplistic to think that and will be disastrous to continue to believe it. Our problems run much, much deeper than guns. America is in a moral free fall. We are at a cultural crossroads and if we choose the simplistic path, we will be doomed to collapse. Sooner, perhaps, rather than later. In 1962, there were few laws governing the ownership and use of guns. In 1962, there were no school shootings. In fact, in the entire 20th century, there were 227 school shootings. In the first 18 years of the 21st century, there have been 207! And that alarming number despite the fact that we have an ever-increasing number of ever-increasingly restrictive gun laws. Now, I'm no rocket scientist, but it seems to me that if school shootings have gone through the roof AFTER we started tightening our gun laws and even creating "gun-free zones" (schools and entire cities), then there is either no relation between the two or the restrictive laws are contributing to the increase in violence. Why is it that in the "old days," young men carried rifles to school in the gun racks of their pickups, and some schools even taught shooting classes and competed against each other in shooting competitions, yet we would go entire years with no school shooting incidents? Simply because guns don't cause violence. Humans do. And until we realize that we humans are the culprits, we are going to see more incidents as tragic as Parkland, or more so. The Apostle Paul warned that in the last days, people would be "without self-control, brutal, haters of good...." (2 Timothy 3:3 NASB) Is that not a perfect description of what we saw last week in Parkland? Or Las Vegas? Or Sutherland Springs? Or San Bernardino? Or Orlando? Or South Carolina? Or Aurora? Or Newtown? Or Columbine? Or... and the list goes on. Unimaginable brutality. Experts who are much smarter and better informed than I have warned for years that we are raising a generation of "avid video game players who turned their sick fantasy into our tragic reality." And, "From a military and law enforcement perspective, violent video games are 'murder simulators' that train kids to kill." (Lt. Col. Dave Grossman, US Army, Ret.) Obviously, video games alone have not bred this climate of violent brutality. Movies, television, the music industry, academia, social media, the breakdown of the family, and more have all contributed to the moral depravity that has engendered such self centeredness, lack of self control, and brutality. But I believe the most critical contributor to this onslaught of violence, brutalness, and terror that now grips our schools and our lives is the fact that America has turned its back on God. When our nation made the decision to begin systematically erasing God and His influence from our national psyche, beginning with our schools, we started down a road that has grown ever darker and more treacherous with each passing day. It's like a man who stops eating nutritious foods and taking vitamins, then wonders why he is getting weaker and experiencing greater health problems. What did we think would happen when we decided to cut ourselves off from the very life stream that has brought America so much blessing, so much abundance, and so much freedom and safety? In 1962, the US Supreme Court decided that it was no longer constitutionally acceptable to have institutional prayer in our public schools. Of course, that didn't necessarily stop everyone from praying at school. Ronald Reagan observed at the time that "as long as there are final exams, there will be prayers in school." But when we proclaimed as a matter of national policy that God and our acknowledgment of Him and His positive influence in our lives was no longer important or acceptable, we did something dangerous. We closed the door to God and opened the door to Satan. It's not that America chose Satan over God, we didn't. But we told God that we didn't need Him, that we could handle our lives and our futures by ourselves. We didn't need His influence in our lives, but, most importantly, in the lives of our children. We -- through our teachers and professors -- were quite capable of raising good kids without Him. Now, just two generations later, America is on the brink of becoming a third-world nation filled with violence, tribal conflict, poverty, and exploding danger. And I believe it's largely because we have raised 57 years of children who think God and His principles are not at all important. And why do they think that? Because we taught them exactly that when we kicked God and His influence out of public education -- the very place He is most needed! The prophet Hosea could have easily been describing modern America when he wrote: "For they have sown the wind, and they shall reap the whirlwind; it hath no stalk; the bud shall yield no meal: if so be it yield, the strangers shall swallow it up." (Hosea 8:7 KJV) We have walked away from God and chosen to trust our own intelligence and abilities. The anemic seed we have sown is now yielding crops we never anticipated or desired: anger, despair, selfishness, hatred, lasciviousness, violence, sheer brutality, and so much more. Doesn't that sound eerily like the description Paul gave for these times? "...men will be lovers of self, lovers of money, boastful, arrogant, revilers, disobedient to parents, ungrateful, unholy, unloving, irreconcilable, malicious gossips, without self-control, brutal, haters of good, treacherous, reckless, conceited, lovers of pleasure rather than lovers of God... always learning and never able to come to the knowledge of the truth." (2 Timothy 3:2-4, 7 NASB) This week, Michael, my son in the Lord, sent me a photograph of a t-shirt. It was emblazoned with a powerful truth. It read: "Dear God, why do you allow so much violence in our schools? Signed, a concerned student." Below that was written the reply: "Dear concerned student, I'm not allowed in schools. Signed, God." Folks, I'm not saying that one disastrous Supreme Court decision in 1962 caused all of the mayhem that has followed, but it is indicative of the path America chose. It shows that, as a nation, we determined that God was unimportant to us. And when you walk away from God, you must walk toward something, or someone, else. As Bob Dylan once sang, "You gotta serve somebody...." On a personal note, I am, at once, saddened and joyful at the passing of our brother, Billy Graham. I believe he was the greatest influence for the Kingdom of God of our time. Truly, only eternity will reveal the impact he had on our world. His influence will always be felt, but his presence will be missed. I smile when I read what Billy once said. Echoing D.L Moody, one of his heroes, Billy said, "Some day you will read or hear that Billy Graham is dead. Don't you believe a word of it. I shall be more alive than I am now. I will just have changed my address. I will have gone into the presence of God." What encouragement for those of us who remain here. We, too, will soon change addresses. What a great day that will be. So long, Billy. See you soon. HL Ministries--2/23/18
  35. 1 point
    Had lunch yesterday with some friends at our pub where we ate newest trends. Then we walked to the new pool which lends old/new residents...what? It depends... on one's view of one's savings it rends. Then we walked the long halls with some bends, as I prayed the next bend (please!) just ends. It was fun--but this Parkie, she tends to need rest and time out, so she mends. So, "So long!" to her friends she then sends, and to home and a rest she then wends. This is how her slowed life it now tends.
  36. 1 point
    I had botox for dystonia in my right calf. OUCH! Very little relief and of short duration. That was before DBS surgery. Only minor problem with dystonia since.
  37. 1 point
    Hey NCFred, My nephew runs a crossfit gym. It's pretty intense and there seems to be a few injuries from people coming in and trying to keep up with those folks who are already working out at a high level. So just be careful, is my only advice. -S
  38. 1 point
    PWP-people with Parkinson's- you will see that often on the forum. www.pwr4life.org is the website for PWRMoves I also take ballroom dance lessons with my husband-highly recommend it! LAD
  39. 1 point
    Crossfit is intense...don't injure yourself. I do a program with a small group of PWP. Our trainer is certified in PWRMOVES. We do everything from boxing to weight training, yoga & dance! It helps to have others who understand your issues plus we have become a support group. Good luck! LAD
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  41. 1 point
    This was the case: https://www.casewatch.org/board/med/hinz/HINZ, Martin C 5-12-01.pdf Wow. Dr. Hinz had serious problems with his medical license in Minnesota. He had to pay thousands in fines and undergo lots of training to get it back. The link gives lots of details about patients under his care. This was the reinstatment: https://bmp.hlb.state.mn.us/disc/HINZ, Martin C (PY31670)/HINZ, Martin C 3-12-05.pdf
  42. 1 point
    I see a neurologist every 12 months and any time in between visits if there is a problem with my meds.
  43. 1 point
    It also depends on if you are interested in getting involved in research. I would think the centers may have more opportunities....you can look into that if that interests you. No right or wrong answer If it's an MDS and you like them. Start exercising if you don't already. Don't get hung up on what's the right way...just do something you like to get moving! LAD
  44. 1 point
    Hi NCFred, The first few years my MDS was scheduling me every 4-5 months. I traveled 6 hours roundtrip. Looking back, I think it was excessive as my progression was slow. It really depends on your symptoms and progression. If you are managing well with your current treatment, there is little to be gained by frequent appointments. If I had it to do over I would have allowed them to schedule me a follow-up but cancelled if things were going well. Welcome to the forum. Gardener
  45. 1 point
    I go to the MDS every 6 months. As for which MDS to go to, that's hard to say on the internet. Assuming they are both good doctors and up on the latest info, I would go to the closer one. The "gold standard of treatment" hasn't changed in many decades and I'm not sure what would be gained by driving the extra miles. The best treatment advice you'll get from any doctor is EXERCISE!
  46. 1 point
    This is a great topic/thread! Thanks for the great posts! A couple of my favorite verses: Isaiah 26:3-4 You keep him in perfect peace whose mind is stayed on you, because he trusts in you. Trust in the Lord forever, for the Lord God is an everlasting rock. To help me keep my mind on God there are time it's important for me to read through and pray the 18 attributes of God defined by A.W. Tozer. Here's a web link to them: https://www.allaboutgod.com/attributes-of-god.htm If I can stay focused on the REALITY of our great God, and his promises through Christ joy is possible. Another great source of encouragement is to listen to worship music on Youtube as much as possible. I"ve "saved" something like 200 songs in a list that normally begins my every day.
  47. 1 point
    Kathrynne Holden was the nutritionist. She now has a Facebook page titled Parkinson's - Chew on This. She is always very helpful. Dianne
  48. 1 point
  49. 1 point
    lu states (imo) your feelings are normal. Crabby is normal. You need to realize we kinda enter a new experience with PD. All of us change as we get older in what we used to do physically and socially. (well or PD) It is hard sometimes not to look back at the used to be's. There are things we can still do. I go with church members to serve meals at the saint francsis homeless center. You can scoup and sit in a chair if you can not stand. You won,t be typing. A woman at my church has terminal cancer but see still takes blood pressure and heart rates for people on Sunday. You can invite people over for coffee(one cup for yourself). Yes you have a fixed income. But there are things that you can do outside the keyboard. Those outing don't have to be expensive. The only way out of crabby IMO is don,t look in the mirror but look through it. Crack the shell and get out and do. Right now my meds are taking hold and I am heading to the pool at the wellness center. There are others that go there (all ages). For me it more than the working on flexability and muscle strength. I talk about everything but pd. I go home and have a good feeling. Socialized, exercised my mine as well as my body. I hope I am not to long here. But get out of the house and get away from the keyboard. I know you can do it. Tom
  50. 1 point
    Dear all, when i was first diagnosed, I was married and certainly did not see myself getting divorced even though it was a difficult marriage/ Because of my nature and the diagnosis,. it becam,e even ,more obyious to me to go and do tehe projects and trips[ the earliier the better.; My hiusbamf was not of the same mind. I see now that he was in denial. I decided to takea 3 week religious pilgrimage to India and gave him four years notice but as we drew closer to my leaving,things deteriorated. We divorced; i war quite awhile. So i rented a tiny cabin and have been very happy.However,, in March of this year eveything changed. My Parkinspm worsened. My medications did not work so well and i had extremely painful dystonia in legs and back for any wheres from 1-4 hours every day. At one point was in hospital and needed help at night. I had friends alternate and stay for a night. They were all fantastic,but I wore them out So i managed a way to keep on by myself, but it was sio scary when the discharge planner at the hospital asked who lived with me, who was going to help care for and i just burst into tears. I had no idea. And my head would spin trying to think of possibilities when no extra money available. Fortunately, the setback was temporary. Then i started looking at my possibilities for when it happened in the future. i am so grateful that my husband had taken out a long-term care policy that included assisted living.. So looked around, found one that o really liked and now i feel reassured. My hardest moments were when i was awake and alone at night and i was in a lot of pain. I just wanted to cry out to him and be soothed, i have a great network 0f friends and spiritual community and now i know where i can go when i can't take care of myself. It certainly has been easier to look into before i really need it and also to find out things like i need to pay the first three ,months with my own money. I do believe that I made the right decision because even though i would have security with my ex-husband, emotionally i would be happier alone that has proved true. We are friends and i still love him but unfortunately that doesn't solve everything' My heart is with all of you who are out there living alone, love Viriyagita