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  1. 2 points
    George, Whether you take or delay meds is sometimes a hot topic depending on your opinion. One thing I have personally noted from my own experience is if you're focusing on the disease, your symptoms are gonna be magnified quite a bit. First, you need to find things that will distract you from having PD. It's not going anywhere, so fretting about it is wasted energy. Excercise everyday!!!! If you still feel that your quality of life needs something extra, then by all means discuss with your doctor on what they think would be best for you. You could try starting with Azilect to see if it might help (pretty rare if it does, but still worth the attempt). Be careful with the agonists as they can cause some serious unwanted issues. Not everyone experIences these problems, so if you go that route have your family keeps tabs on you. If all else fails, you can go for the gold standard of Carbidopa/Levadopa in the form of Sinemet or the new formulary which is Rytary. If you decide to go the meds route, it might take some time to find the right combination/dose that will improve your quality of life. I take Azilect and Rytary. It took nearly two years to find the dose and timing that provides the best relief for me. Patience is the key when it comes to Parkinson's. It progresses slow, so time is on your side. Regards. Dave
  2. 1 point
    First take a breath.... Get a good MDS doctor Everyone is different-there are different options. That's why a good movement disorder specialist (MDS) is important. Start exercising if you don't already...there's lots of choices for PD specific programs. Exercise is one of your best tools to fight PD! I do a program called PWR (www.pwr4life.org) & my husband and I take dance lessons. Find something you enjoy doing. Take one day at a time...you will find what works for you. Welcome to the forum! LAD
  3. 1 point
    Hi, Seward -- I must first confess ignorance of playing drum and guitar. Therefore, I cannot offer suggestions on technique. When I am at the piano and experience lack of coordination, when my fingers don't do what my brain is telling them to do, I know my medication is not in full effect. Sometimes I just have to take a break and try later. I know that is not very helpful, but the only other action I take is to try rigidly timed finger exercises and see if I can increase muscular control. Usually that has a positive result, though I never expect perfection. J
  4. 1 point
    George my husband found out he had Parkinson's at age 45, that was 25 years ago. He started taking Sinemet right away and for him it made a great improvement in his life. He knew something was wrong for a couple of years before but because he did not have a tremor he was not diagnosed right away. He still takes a combination of regular Sinemet and Sinemet ER. Lots of complications now but that is to be expected after all these years. Good luck and God bless
  5. 1 point
    Katrin, you did a fine job with your English.
  6. 1 point
    A great friend sent me this...Enjoy LUNCH WITH AN 85 YEAR OLD > > One day I had lunch with some old friends. Jim, a short, balding golfer type, about 85-years old, came along with them; all in all, it was a pleasant bunch. > > When the menus were presented, my friends and I ordered salads, sandwiches, and soups, except for Jim who said, "A large piece of home-made apple pie, heated please." > > I wasn't sure my ears heard him right, and the others were aghast, When Jim continued, completely unabashed...."along with two large scoops of vanilla ice cream." > > We tried to act quite nonchalant, as if people did this all the time, but when our orders were brought out, I didn't enjoy eating mine. > > I couldn't take my eyes off of Jim as I watched him savoring each bite of his pie a-la-mode. The other guys just grinned in disbelief as they silently ate their lunches. > > The next time I went out to eat, I called Jim and invited him to join me. I lunched on a white meat tuna sandwich, while he ordered a chocolate parfait. Since I was chuckling, he wanted to know if he amused me. > > I answered, "Yes, you certainly do, but you also confuse me. How come you always order such rich desserts, while I feel like I must be sensible in my food choices?" > > He laughed and said "I'm tasting all that is possible for me to taste. > I try to eat the food I need and do the things I should in order to stay healthy, but life's too short, my friend. I hate missing out on something good. This year I realized how old I was. (He grinned) I've never been this old before, so, while I'm still here, I've decided it's time to try all those things that, for years, I've been ignoring." > > He continued, "I haven't smelled all the flowers yet. There are too many trout streams I haven't fished. There's more fudge sundaes to wolf down and kites to be flown overhead. > > "There are too many golf courses I haven't played. I've not laughed at all the jokes. I've missed a lot of sporting events and potato chips and cokes. > > "I want to wade again in water and feel ocean spray on my face. > I want to sit in a country church once more and thank God for His grace. > > "I want peanut butter every day spread on my morning toast. > I want un-timed long distance calls to the one I love the most. > > "I haven't cried at all the movies yet, or walked in the morning rain. > I need to feel wind on my face. I want to be in love again. > > "So, if I choose to have dessert, instead of having dinner, then should I die before night fall, I'd say I died a winner, because I missed out on nothing. I filled my heart's desire. > I had that final piece of pie before my life expired." > > With that, I called the waitress over.. "I've changed my mind, " I said. "I want what he's having, only add some more whipped cream!" > > This is my gift to you - We need an annual Friends Day! If you get this twice, then you have more than one friend. Live well, love much, & laugh often - Be happy and enjoy doing whatever your heart desires. You only go around once on this crazy planet. > > SHARE THIS WITH YOUR FRIENDS including me, if I'm lucky enough to be counted among them. > > Be mindful that happiness isn't based on possessions, power, or prestige, but on relationships with people we like, respect, and enjoy spending time with. Remember that while money talks, ICE CREAM SINGS!
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