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      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

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Showing most liked content on 09/15/2017 in all areas

  1. 3 points
    My dad has Parkinson's. I spent several years with an extreme paranoia that I was getting Parkinson's at a very young age. . I was anxious. I had resting tremors. My right arm was not swinging properly. I had elbow pain. Rigid muscles Knee pain. Depression. Constipation. Insomnia All the classic Parkinson's symptoms that you can think of. I would google all day about Parkinson's and even went to doctors. I would discover a new symptom daily. Finally I had enough and told myself if I am going to get Parkinson's, let it be. (This is key to solving the problem by accepting the problem gracefully) There is nothing I can do about it other than exercise and eat healthy brain food. I convinced my self that I am not going to worry about Parkinson's until my smell is completely gone and stopped paying attention to my body. Note the word completely. Otherwise my brain will make me think that I have diminished smell and will drag me back into the anxiety cycle lol.. Slowly all the symptoms miraculously disappeared within few months and my stress levels went down. I realized it was all my mind play tricks to heighten my anxiety because it got to the point my brain started craving for anxiety like body craves for sugar. So it comes up with something to match the picture. Note, If you take dopamine meds herbal such as mucuna or other otc, it may interfere with natural dopamine production. So wean them off so your body make its own dopamine
  2. 1 point
    I've been through a couple of sleep studies, basically it was commented "Parkinsons" related sleep disorder. CPAP to keep the oxygen levels up (I have central apnea and obstructive apnea events). Tried Clonezapam -- felt like I was in a fog for 24 hours afterwards. Hopefully everyone is away of long term issues with using that stuff, as it is meant as a short term (one to two week) For me no issue falling asleep, but often I'd wake up after four to five hours and couldn't get back to sleep. Silenor (doxepin) is helping. 3mg or 6mg does, and with my 240# size the 6mg seemed to be most effective. I've been on it for four weeks, pretty good nights sleep for about the last few weeks. It took about two weeks to become effective.
  3. 1 point
    You can get the videos on YouTube. They do have a book you can order and you can try to find a certified therapist or instructor in your area using the website. https://m.youtube.com/user/exercise4brainchange http://www.pwr4life.org/professional-directory/ LAD
  4. 1 point
    Hey folks, I was one to sign up for 23 and me to do PARKINSON'S RESEARCH! One of the things that came out for the initial research is there is more than one genetic component to Parkinson's. Somethings are very interesting including I am a fast metabolize. Basically I can drink five espresso's in the morning, and it is just a good day. Other people would be so jittery and buzzed it would stay with them the rest of the day. Flip slide is drugs flush through my system much more rapidly than most. Shaker Dave the "give up your rights" is really a broad paint brush. Police can not request your DNA profile from them. If they extract that you can smell asperugus after urinating it, well that is still your DNA. However they can discover there is a genetic link to being able to smell that scent. If anyone said "I'm opting out of all possible research" that means no future development in understanding why we have Parkinson's, nor helping out the next generation in finding a cure. Ditto with my blood (I've donated for cancer research). Once I'm done with it, researchers are welcome to my brain. http://www.parkinson.org/pd-library/fact-sheets/brain-donation I realize some people think and testing of DNA shouldn't be done, but to me if it helps out the next generation it is worth it.
  5. 1 point
  6. 1 point
    Wow! A gold star for you, Stump. What an undertaking. I feel so happy that you are able to enjoy your life the way you have in the past. Dianne
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