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Showing content with the highest reputation on 03/13/2018 in all areas

  1. 2 points
    Hi Tjon, I have to disagree with the above post - Sinemet is not like Ibuprofen (take only when you have pain). My understanding is that Sinemet has a long duration effect and a short duration effect. It works best if taken on a regular schedule regardless of symptoms at the time of your next dose. Some people (including me) find that it keeps them awake at night and adjust their schedule so that the last dose of the day is not too close to bedtime. I use an extended release at bedtime which seems to help with that problem. I'm in my 7th year since diagnosis and, like Adams, get almost total relief of symptoms unless I'm under stress or very tired. Good luck and keep us posted. Gardener
  2. 1 point
    Doubleup, The first Neurologist I saw was a general neurologist who had and treated many Parkinson's patients. I went to him after I noticed that my right arm had stopped swinging, my right hand would curl up into a fist, and I had stiffness in my neck and shoulders. I also noticed a minor tremor in my right middle finger. He said he strongly suspects that I have PD after going through a battery of test. He then recommended that I go to the University of Rochester's Movement Disorder Clinic. His hope is they would want to do a DatScan, the only test he did not do and did not have the ability to do. He was also hoping there would be a study I could join since I was young and a rare case. The first MDS I saw I was not impressed with. She did order the DatScan because of my young age to make sure I was not have some other issue. I went through with the DatScan and received a copy of it in the mail a week later. It also included a results letter from the examining neuro. It stated that my scan was consistent with PD if clinical results suggested PD as well. I then got a call from the clinic asking if I would like to join a study. I said yes. On my first study appointment they did the clinical exam then looked at the DatScan results and accepted me into the study. The study lead neurologist was accepting new patients so I had her become my main MDS. Once I was part of the study I had to remain off meds till I had completed six months of the study. It was a struggle but I stuck with it. Once I had my Six month study appointment we started with Azilects then 2 months later added sinement or C/L. I felt so much better. The search is tough, some much of the diagnosis process is subjective and base solely off of a neurologist opinion. I hope you find the answers you are looking for. Can I ask. Are you having other symptoms as well as the tremors?
  3. 1 point
    I agree with gardener totally, I did significant research before deciding to take Carbidopa/Levodopa aka sinemnet. There is no evidence that suggest C/L is solely responsible for dyskinesias based on the amount you take in a given day. I have met and talked to several people who take over 1000mg of c/l a day and do not have dyskinesia. Dyskinesia happen with a combination of disease progression and use of sinement. One study that is in its infancy suggest that dyskinesia happen when a chemical in the brain called GABA starts to diminish because Parkinson's disease has progressed to a point to affect its production in the affected part of the Parkinson's brain. The brain Chemical GABA acts like a throttle on a car, it meters how much dopamine reaction is need when the brain sends a signal. When that is no longer present the signal gets over intensified and you get dyskinesias. Remember, when big pharma came up with there synthetic dopamine called agonist, they spent millions discrediting C/L so they could reap billions in profit for their new creation with terrible side effects. This stigma still exist today even though big pharmas studies have been disproven. Want you to have the whole story when you make your decision Blessings Adam
  4. 1 point
    Tjon, I would suggest taking Sinemet only when you really need it. I wouldn't take it at night if I didn't really need it. There is such a thing as dyskinesia which is a side effect of long-term use of Sinemet or other drugs like it. This is something you want to avoid. Of course, remembering that we are all different.
  5. 1 point
    Bard, Em and Sean, Linda, LADy,, Dianne and Miss Swampette, thank you all for the birthday wishes. jb
  6. 1 point
    Hello Everyone, When I grow up, and develop better work habits, I hope to become more disciplined and attend to required paperwork in a timely manner. I have had the papers here to renew license sticker on my car for about 2 months. It can be done online or at a government office. I renew mine at the office usually but decided to do it online this time. You can do it online up to the date of expiry which would be midnite tonite. It took me about 25 minutes and had about 30 minutes to spare. Next year I will do it at 6 oclock on the day of expiry instead of waiting until 11 pm. Linda, the hospital is a teaching hospital affilliated with the University of Toronto and there are many wonderful and clever minds at work there. The group that will work on my brain take referrals from neurologists from all areas of the country. I think that is the way they keep things in order, in Budget and organised. Your cousin could contact the hospital, Toronto Western, and ask for the neurology department and make a request for an appointment but it would be a long process. Most specialists take new patients through your family gp which partially sorts out cases and they see the proper doctor. Does this help you any? Good to see and hear you She Ra, Cabin in the mountain sounds great to me. If the thought of snow excites you Sheila, I will swap you a farmhouse for a mountain cabin down south for 3 months next winter. Hi Dianne, sounds like a rough weekend for you. That tube is bugging you again! Still? Sorry for that. THE VIEW SOUNDS LOVELY. I'm sorry it will take awhile yet to get the dbs device but that is the way it is here. Oh well. Good Luck to your son LAD y for his singing. As of this week, I am now 60 yrs old. I can't believe that. Good nite my friends jb.
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