helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Leaderboard


Popular Content

Showing most liked content since 03/26/2017 in Posts

  1. 10 likes
    I finally have some good news to share. I met the Interventional Radiologist today who will be inserting a G-j tube on Friday, April 21. I will begin using Duopa the next day. Today is World Parkinson's Day 2017. I wore my special t-shirt to raise awareness. Dianne
  2. 7 likes
    Welcome! Here are a couple of things that help me come to grips with Parkinson's. You may not find them comforting or helpful so please disregard if that is so. The day after I received my diagnosis I reminded myself that I don't have anything that I didn't have the day before and the day before that, I just didn't know what it was. If I could handle yesterday then it is most likely I can handle today and tomorrow. Don't cross that bridge before you come to it. It is so easy to dwell on all the possible and often frightening things about this disease. But, remember no one knows what tomorrow will bring. Yes, I might develop a new symptom but I might also get in a car accident, get killed and consequently never develop any other symptoms. There might also be new treatments. Life is a crap shoot. We just don't know what will happen. We might want to plan for some of the possible negative things, but there is no point in dwelling on something that may not even happen. Sometimes those around us are very concerned and mourn some of the losses they see in our health and wellbeing. It is also tempting to feel sorry for ourselves and start thinking that no one else has problems. No one gets through this life alive! We all must face mortality. Hubby, don't worry so much about me as I might not be the first one to go. Let's make the most of today - no premature mourning, there is enough time to mourn tomorrow. Start making a bucket list and fill it with both the bold and daring as well as the simple. Go on that once in a lifetime trip but there is also a lot of satisfaction in some of the more simple things, such as attending a grandson's ballgame or attending a granddaughter's graduation. It is good to reflect upon the number of things that have been checked off the list and contemplate new things to add. In other words don't forget to keep living. It is hard if not impossible to always feel positive - so don't try. It's ok to take a break and vent, scream, cuss, have a good old tantrum and cry. Just be sure not to hurt the innocent while indulging yourself. Remember you are dealing with the loss of dopamine which not only affects our movement but emotions as well. Feeling down is not a sign of weakness but a symptom of the disease itself. See your doctor often and don't be afraid to be your own advocate or ask a loved one to assist in this regard. Life goes on. All we can really do is make the best with what we've got.
  3. 6 likes
    I went shopping. In my mind I'm repeating eggs, whipping cream, baking powder. Just three things, I should have written them down, but just three things so I got it. Park the car at the far end of the parking lot, place was packed. Three things, that is all I have to remember. Truck backed out suddenly, startle reaction, fell over (remembered to tuck my head in). Got back into the store and came back with Ice Cream, coffee, and baking soda. My wife now writes out the shopping list.
  4. 6 likes
    Yesterday I got a chance to meet Beau's Mom. I was heading to my wife's aunt and uncle's to stay the night so I was closer to Evergreen for a neuropsychological exam this morning. Got to visit with Dianne for about an hour. It was certainly nice to meet someone in real life from here. Edit to add: I'm on my phone, so I'll write more when I have a real keyboard to type with.
  5. 6 likes
    Hello, Gulfvet -- Here is my contribution. It was when I was playing the piano that I first suspected I had a neurological problem. By the time I got my diagnosis, I could barely play at all because of my lack of manual coordination. Having studied classical piano for more than ten years, I was sad to lose that beautiful and rewarding pastime. With medication started and some improvement observable, I tried practicing again. It was pretty discouraging at first. But as the medications grew more and more effective in fighting symptoms, I practiced more often. Today I could never play on a concert stage, to be sure, but I can enjoy playing pieces of music that I never expected to play again! (A few examples are Chopin's "Fantaisie Impromptu in C# minor," two Rachmaninov preludes, Mendelssohn's "Rondo Capriccioso," and Chopin's "Berceuse.")
  6. 6 likes
    Hi, everyone. Am back from my unplanned and long hiatus. There was no ban (neither on me nor the thread), FYI. Just a series of mainly health issues I was dealing with, like life sometimes sends us all. I was without a laptop for most of that time, and it's good to now have a new one up and running.
  7. 5 likes
    Hope everyone had a good day...I follow another online PD site ... this is the pledge....works for me!
  8. 5 likes
    Thnking about our new member, The Count, I will change my format this morning. 1. Good morning to every one. 2. It takes two Levadopa to get me awake in the morning. One for each eye 3. A third hand may be helpful some days. Ah, who needs three shaky hands. 4. Four--ward I trudge, hauling myself along this mysterious trail called Life 5. favourite 5 sandwiches-BLT, roast beef, egg salad, ham and cheese and Peanut Butter with Honey 6. the big 6 -0 is Looming within a year and I plan to...... 7. I baked cookies yesterday and today I will eat seven of them. I did get a jump on this topic, only 3 more to go . 8. I went to the local Chinese buffet last nite with a buddy. I 8 a lot. 9. At age 9, I went to a one room country school, grades 1-3 with no running water. 10. Despite some challenges, maybe about 10 of them, and in my tenth year of Parkinsons, It is a good life I have even if I have to take 10 Levadopa pills a day.
  9. 5 likes
    Hi Gulfvet I agree that PD dx does not mean a drastic change in life. I have been dx'd for 4 years and DH (dear husband) has been dx'd one year. I recently drove our Harley trike with DH sitting behind for two hours. The next week, DH and I went kayaking ...in separate boats..for two hours We are now planning a 7,000 mile road trip with boats and trike in a trailer...AND fulfilling our bucket list. On our list is a hot air balloon ride, a wood carving seminar, a pontoon plane ride, deep sea fishing charter, 10 days on waterfront of Vancouver Island, BC, a kayak trip up Cowlitz river to dam...only a partial list. I will be 70 soon, DH will be 72. Of course, we are spending our children's inheritance...but intend to make memories for a lifetime. 😉 Each day we accept...adapt...and laugh..... try to serve others...and thank our creator for the many blessings we have. NN
  10. 5 likes
    Patients who eventually get diagnosed with MSA typically have abnormal Datscans early in the disease course. Similarly to PD. Datscans CANNOT differentiate between PD and MSA cause they are abnormal in both occasions. A normal Datscan -or, even more so, a series of normal Datscans within several years from diagnosis- strongly argue not only against PD but also against MSA. Thus, the diagnosis MSA is not typically considered for patients with parkinsonism and normal Datscan (s). The differential diagnosis of patients with parkinsonism and normal Datscan may include dystonia, essential tremor and several types of secondary parkinsonism: vascular parkinsonism, hydrocephalus, drug-induced parkinsonism (such as antipsychotics), or toxin-induced parkinsonism (such as manganese poisoning -may be observed during occupational exposure, as in welders, after chronic use of ephedrine-based psychostimulants or even after chronic use of bath salts made from ephedrine!!).
  11. 5 likes
    Glad you are doing better, Linda! Luke, I like your tone. When I first saw this thread on the forum, I had no idea it would turn into one of the most entertaining of all! In state-run organizations (such as the high schools in which I once taught) I was unyielding in observing a strict separation of religions and general education. But this forum is not state-run and its threads not mandatory reading for pwp. Although I do not label myself "Christian," those who find Christianity helpful in their self-treatment are welcome to their own thread as far as I am concerned. They are not proselytizing if I am not reading. Like Luke, I say . . . carry on!
  12. 5 likes
    Saw my MDS today. She said your mindset & attitude can have a huge ettect on your PD. I've been exercising, and building an excercise program in my area. I'm feeling good and helping others as best as I can. She looked at me and said "you're doing great - I can tell by your posture. Keep doing what you are doing". So stay positive and stay hopeful!
  13. 5 likes
    From my observations and experience with DH who is in end stage, there is a time when his brain is no longer capable of the focus to want to do the things you would like him to do or be. Make sure that the problem is not depression. Medication can help depression. If it is the progression of the disease and the brain function is impaired, what is is. Loving him, taking care of his needs and making him feel secure is about all you can do. We all want things to be better and feel guilty we can't make things better. If all the medical cause boxes have been checked--what is is. If his brain were not impaired by Parkinson's, he would be eager to be an interactive grandfather, resume his painting, listen to his music. We can accept that someone doesn't play the piano anymore when arthritis has gnarled the hands in dysfunction and pain. We wouldn't force it. We can't see the plaques and shrinkage in the brain that make function difficult or impossible, but it is real.
  14. 4 likes
  15. 4 likes
    You would certainly THINK that each one of us fighting Parkinson's has enough on their own plate to concern themselves with, that they wouldn't feel the need to interfere with how someone else is coping with, and/or fighting PD in their own way. But alas, there's always that obnoxious 10% of ANY population....whether it's the diseased, sports stars, celebrities, police officers, politicians, etc., that feel a sick compulsion to tear down someone else's castle. History shows, however, that these type people usually self-destruct on their own. So, let them wallow in their own bitterness and nastiness....they CERTAINLY aren't helping themselves do any better with their own PD. (Personally, I hope it ramps up their symptoms). Linda, just start a new thread. If it also ends up shut down, start another.
  16. 4 likes
  17. 4 likes
    The Caregiver’s Reminders There’s sixty hours of chores, To complete in twenty-four. There is never enough time, To rid the bathtub of its grime. There’s tons and tons of weight to lift. Does this need washing? It passed the sniff. And If I have to make one more call, I’ll smash my head against the wall! I’m pretty sure sometime today a shower was to be taken, But my problem is I’m not sure whose, I think it’s mine- am I mistaken? There’s a clock on the wall that says it’s five past eleven, It can’t possibly be? The last time that I glanced at it, it wasn’t even seven! There are questions that I have to ask my higher power. I’ll demand answers at the church. Perhaps God’s hiding in the tower? Where are you God? I want to know when it is 4 am, If this is something meant to be I can not see the plan. “Where am I?” God smiles back “I’m in every act of love,” “In laundry, in a visit, or when you help them find a glove”. I have entrusted you my child with TWO of my beloved kids, To care for you, yourself and another one. Yes I did! To be my hands, and to hold theirs until their time is ended, And then to let them go knowing where they are headed is simply splendid. I’ve given you an honor that’s so hard to recognize, But if you take a moment to look in your loved ones eyes… You’ll see the bitty baby that came to save us all, For when you serve the least of these, you serve me as well. Sooner than you think, this season will be in the past, And you’ll be separated from them, until I call you home at last. Still, child I know you’re weary, you’re stressed, I know it’s true, And at times it feels like I have completely forgotten you. So when you speak to me, you’re welcome to yell, to scream, toSHOUT! Just be sure to take a moment remembering what this lifetimes all about… …the love that I showed you when I hung upon a tree… …Kid you learned that lesson well, as I can surely see. March, 6th 2017
  18. 4 likes
    Linda, I'm glad to have you as a friend. As to a few others, well Mom said it best "If you don't have anything polite to say, don't say anything at all". I miss Mom, very wise women. I finally rearranged my home office. Still working, grateful for the gifts I have, but at times realize there is a whole world out there and I need to step away from my computer. Oh, today is the anniversary of my parents 70th wedding. I still count my lucky stars to have had such wonder parents. Of the six of us kids, five are doing well. One is bitter about life in general and feels he had the worst childhood ever. My only thought is what we focus on brings out the best, or the worst, in all of us. Always amazed that some people can be in a lush garden, and yet just focus on the weeds. Meanwhile I'm up early, all three dogs camped out in the office with me. I've had my morning espresso and looking forward to a nice sunrise. Life is good.
  19. 4 likes
    Yeah!!! This is who we need on our side, fighting for a solution. https://www.ibm.com/news/ca/en/2016/10/12/w711820i37027w27.html
  20. 4 likes
    That statement would only make sense if someone asked for your opinion right? Looks like BIg Brother is watching very closely now.
  21. 4 likes
    Good Morning Everyone, I hope that everyone had a good weekend. I am happy to say that I finished with the maple syrup boiling on Saturday. Now the cleanup!!! So Ella, I have become the MC, you made me chuckle. I just write stuff and try to engage people to come forward and say hi. A long time ago, I realised that a lot of the topics on the forum were complex and I felt that I never had enough knowledge to offer a comment on it. But me being me, I couldn`t just read and not say anything. That is how Good Morning`` got started. No topic really. Just a place to say hi! Or whatever you want. Like a never closed coffee shop where we can all sit down and chat and come and go. Make a comment, or just a nod, I know some of you just walk up and peek in the window, perhaps you are shy to come in and pull up a chair and that is fine too. Just know that everyone is welcome to join in with a comment if you wish. There is lots of room for everyone to join in. And Ella, If I get to be the MC, and a strand of this thread, and I can be so bold to say; it is only through the dedicated postings and readings of all of you that have taken all of these strands and created a good and strong strong thread that with passing time has become a strong rope. With a strength of history, a purpose of the present, and hopes of the future the rope grows stronger. Well, I didn`t sit down intending to spout off about all this. Maybe LAD it was triggered by your comment a couple days back when you said we all ``seem to know each other so well``. Good days to all, jb
  22. 4 likes
    Tom, Glad you posted.. I relate so much. Results of diminishing cognitive/psych exams tell the story. However, it doesn't reflect the impact I'm experiencing. Yeah, I dont match colored cards...ok...that does not equate to the slaps I feel ...not just the embarrassment...but losing confidence. Lately, when asked a question, my response is followed with, "Are you sure?" Beau's Mom, Diane, often speaks of the "grief process" with each change in symptoms...denial, anger, acceptance. She is correct. I posted before that cognitive skills are the hardest...cuz one feels alone...hiding deficits...while disappearing....no one hands you a crutch when ya fall. Tom, I think I'm in acceptance phase now. I no longer help DH in finding locations in the car..(smile)...not only do I dont know where I am .....DH doesn't listen to me...lol... I worked for a lot of letters after my name...and now it means nothing.....can't do simple math, can't follow directions from automated phone "people".... the list is long. I'm ok with it. I've posted before, but bares repeating: I'm no longer a professional, no longer a mom, I seldom leave the house...I am a shadow of myself....I've pondered...why am I here....knowing I face a long good bye.... I prayed...prayed for weeks... to know my purpose. Finally, I received an answer.....just to me...I am to be the best daughter of God I can be. Period.: Life is not about comparison, competition, or living up to expectations of others...especially those from me. It was like a catharsis..a cleansing of a life time pressure I created and carried....I no longer need to convince anyone of my worth....I am worthy. I wish this for everyone...I am at peace with PD...and I've peace in my heart. Each day I give thanks for knowing my purpose....and it is not limited to our time here.....I believe there is good ahead for each of us. I've again made a long post....Tom, I understand. Let's both hope there are some lurkers out there who can relate. love the ones you love, NN
  23. 4 likes
    It's super rainy in Seattle today but we have magical nesting hummingbirds sitting on eggs in our backyard!
  24. 4 likes
    Check these exercises for hands
  25. 4 likes
    Discussing religions for the purpose of comfort is one thing. Pushing a religion for the purpose of conversion is another. Ninety percent of the content here was generated by Linda in her effort to convert the so called lost souls to the glory of her god. The recent post that bothered me most was the one she posted regarding the scientific documentation that supports her position that LGBT community persons actions are a choice rather than a natural condition of their birth. What has this to do with PWP? IMHO again this forum is no place for this anti LGBT propaganda.
  26. 4 likes
    Bill, this is why my avatar (photo next to my name) has my Golden Retriever. I tell everyone he is my dedicated smiler. My wife for years would ask "are you mad at me?" "Are you upset?" As I concentrate on anything, I forget to smile! It is just the muscle memory isn't there any more, it is still in our hearts, but not "automatic smile" on my face. Worst part is I'll be tired, and sit down for a while. Not only not smiling, but mouth drops open and suddenly I realize I've been drooling. Oh my! There is a wonderful cartoon by Peter Shohls-Dunlap that sums up "the parkie face" -- works great when buying a new car. Drives salesmen crazy as they can not "read" your expression.
  27. 3 likes
    I wouldn't call it consise or informative but this is what I posted on my blog April 1st: Happy Parkinson’s Disease Awareness Month April is national Parkinson’s disease awareness month, and since I have Parkinsonism I was planning on doing a big post. A post talking about things like the early warning signs (like changes in handwriting), as well as some of its lesser known symptoms (such as trouble swallowing, losing your sense of smell, and constipation; Parkinsonism is the gift that keeps on giving), then end the post with the fact that yes you can develop Parkinsonism at 32 (your drs are just going to diagnosis you with migraines, myasthenia gravis, an aneurysm, strokes, and seizures before they get around to giving you a pill that makes you vomit twice a day; but hey, at least it takes away your tremors). So I was planning on doing a fairly long post, but then my body went and decided to develop a large ovarian cyst (what can I say, my body does weird stuff; but at least I get great parking). In place of the post I had planned, I will leave you with what I would call my Parkinson’s disease charity, were I to start one: Cure Rotten Awful Parkinsonism Michael J Fox totally wishes he’d thought of that acronym first!
  28. 3 likes
    Excellent question, great responses. I like it when people, especially ones I know, ask detailed questions, either about PD in general, or my PD specifically. I really don't mind answering questions as I'm happy to educate people. Sometimes, things are hard to explain, but it's still ok because I figure the challenge is good for maintaining my cognitive function. Not many people ask, though. Perhaps they think I don't want to talk about it. It amuses me when people comment about my relative youth. My best response is, "Disease knows no boundaries. I have a friend who was diagnosed with breast cancer at 33." What I wish others knew: Routine tasks are anything but. They require more effort than they could imagine, but they won't hear me complain because I don't want pity. Everybody has problems. Mine aren't necessarily worse than someone else's, just less common & less understood.
  29. 3 likes
    Oh boy. I have nothing but sympathy and warmth to send. I have cared for 2 parents at this stage of life, and it was wrenching. I have watched and helped my friend with PSP go through this. Hang on. Take walks. Ask people to come in and sit for 20 minutes so you can run and get a cup of coffee somewhere OUT of the house. Talk to the hospice people. If he is in pain, can they up his pain medication to make him more comfortable? There are risks to that (depressed breathing, addiction) but it may be worth exploring. Meditation for you may help. Classical music playing softly in the background can also keep your spirit calmer as you go through this. Reaching out to friends, I hope you know you can pm me at any time, and I will respond with warmth, sympathy and respect. Deep breaths, this must be the hardest loss of all. Certainly my experience is a very pallid reflection of what you are going through. We're all here to help in whatever way we can.
  30. 3 likes
    Hi Linda, Thank you for finding this. I really want to respond respectfully. Here it is : EEK! EEK! EEK! Okay, on a serious level, The PC discussion is good, but this Donald Frost is a shill for other interesting ideas. Specifically, did you know that Barney Frank and Barack Obama were responsible for the financial crash of 2007? Or that the Bundys are non violent patriots? So let's step back and just look at some of what the article suggests. "Political correctness is very appealing to many people, in large part, because it demands--not requests--kindness from others." Well, yes, except for the 'demands'. In my way of life, PC requests that if we have a discussion on an issue, belittling the other person is not helpful, and therefore should be avoided. If someone says something I think is non "PC" I have a right to respectfully ask that person to clarify their statement, as it makes me uncomfortable for X, Y reasons. If they respnd, great! We can have a discussion, and both will learn about the others viewpoint. If the discussion is refused, well, that is the refuser's loss. We cannot learn, unless we all consider other people's point of views that make us uncomfortable. Frost here is using a nifty logic trick, take "requests"t and turn it into unreasonable "demands", and then label the whole concept as a tool of "the ultra-liberal hierarchy for the purpose of achieving power." I do indulge in PC speak. I ask that people do not make personal attacks in my presence, consider other people's viewspoints as valid and not belittle those viewpoints, and treat everyone as fellow human beings. Pretty radical, huh? And no, I do not believe I am "an elevated human." I just try (and hopefully occasionally succeed) at being a decent member of the human race. I am not sure that I can say the same of Donald Frost, who writes a lot of letters to the editor which point out grievous faults in others, but never solutions or compassion.
  31. 3 likes
    Substituted in a classroom today. I had the kids doing my coordination exercises. They cracked up! They asked me why I needed them and I said I have Parkinson's. They were like "ok so....what's next? " it was fabulous....no poor you puppy dog eyes ...just get on with the brain teasers Mrs. D! Gotta love kids!
  32. 3 likes
    And it's dark out. And getting darker. But no matter how dark it gets it is worth it to stand in line for the famous JB maple syrup. Someone else in line is singing a beautiful song while I cook pan cakes on the griddle. The griddle is on a table with wheels. So I cook as I roll. And I yell out, "Who has number 300,000." Someone in line throws up his hand and I flip that stack directly into his palm. Just in time to also get his maple syrup also. Some people had waited in line since yesterday and slept in line in a sleeping bag. Some people are here so long that I give them little chores to do. Hey, you want the maple syrup so badly that chores does not phase you. You'd much rather he had the extra time to make that syrup. Except the season is over but JB saw ahead and made much and selling it now cause these people know their syrup. A number of Parkies are in line too. When we get to the next in line we say, "Oh I forgot something." and run back to the end of the line tugging the griddle behind me. It was so much fun that I decided to stay in line. That has to be a record. Then I float and something stopped the train of thought and open my eyes and realize it was a dream. And if you believe that one I have a swamp I could sell you. Or is it the London Bridge. I think they both are not available.
  33. 3 likes
    Well that says volumes about you, that you took my post in a negative manner. I could have said LOL because I agreed with you and thought your post was funny. On the other hand, I could have said LOL because I thought it was total hypocrisy on your part for polluting a thread about health insurance with your personal ideology. Either way, you polluted a thread. Not far in the past, you started a thread on Christian Faith that was polluted by a few non-believers. You didn't take it well, and I didn't think it was necessary either. What does impeaching Trump have to do with Healthcare questions? CNN, MSNBC, Fox and many others have political threads. Let your frustrations out there. Here's a hint: Nobodies minds will ever be changed. And yes, our political situation is in dire straits, but I didn't think this board was where I would have to encounter the endless blabber I see everywhere else! If you want to start a personal, political dialog, feel free to message me so it stays off this board. If you want to start a Christian dialog about judging others or casting the first stone, I'd also be happy to entertain you.....Keep it fair and civil regarding the intent of the thread. Is that so hard to ask?
  34. 3 likes
    I am extremely disappointed that you the entire thread started by linda. I am a christian and have enjoyed a number of posts on that thread. My faith is the only way I am able to cope with this awful illness. Now I understand that not everyone has the faith that I do and thats fine, if they dont believe then they should just not read the thread!! Its as simple as that. They have a choice to make : 1. Dont bother to read the thread b/c it doesnt purtain to you 2. Or read thread and try to make trouble. That thread provided alot of encouragement to many people. Isnt that what this web site is for?? To encourage one and another. By removing the entire thread you are taking away some source of comfort for many of members of this group. Now I dont call that supporting one another Do you???
  35. 3 likes
    Thanks. The one thing that went well was the programming. I got programmed the day before I went to the hospital and it worked great! So, at least I got a taste of how well it can work for me before I decide to risk it again
  36. 3 likes
    Welcome back Linda. I'm sorry about Madi. I'm glad you and Dusty have each other. Lenamegan-I watch the hummingbird migration site so that I make sure their food is out and ready for them when they get to my state. jb-count me in on the party. Give me plenty of notice because I'd like to go on horseback. LOL. Me and my Max would be lucky to make it to the mailbox at the end of the drive! On an old thread I think I remember reading that you drank tonic water for dystonia. Do I remember that correctly? If so, how much did it take for symptom relief? LAD-I love your attitude. Bard, Marcia, TexasTom, ellaangel-It's good to "see" you. em45-Nice to meet you. Dianne-I hope you're getting along well.
  37. 3 likes
    I appreciate that this forum is offered to those of us with PD. Its the only place some of us have to turn to where we are free to speak about our condition and receive support. However, by locking the Christian thread the Admin have rewarded certain malicious individuals while punishing many others undeserving of punishment. Instead of stopping the bullies they have encouraged them and in doing so actually propagate the unacceptable behavior. That thread gave some a fighting chance against apathy and depression. Am I wrong that I assumed Admin were NPF employed so therefore knowledgeable about PD? That thread was taken from people who already lose too much each day. I post this with all due respect and ask that the Admin reopen the Christian thread and block the combative individuals from posting on it.
  38. 3 likes
    This ongoing post has been closed. Please refer to the Forum Terms and Rules located here: If the abuse continues users will be banned. Thank you.
  39. 3 likes
    It's scarier to me that you paid $80 to get your toenails painted.
  40. 3 likes
    Why are you still posting to this thread if you don't agree with the content? What is a "special and exclusive club" on an OPEN forum? Start a thread on cats and dogs copulating; start one on how you roll chicken bones to see your future; start one how you think cows are holy. I don't think anybody cares; and if you do start a "counter-thread", most civil people will ignore it if they don't agree. I tend to follow and respond to threads that can relate to myself, and the title of the threads give me the first clue. It's an easy concept! Live your life and don't be scared of other's opinions that are not your own. Now you can carry on, I'm out....
  41. 3 likes
    Good morning everyone, It is the last week of March, the month of deep thoughts as I watch maple sap change into maple syrup as it bubbles on the boiler. The month of change and preparation for the year 2017 that has only smouldered thus far, ready to burst into a fresh flame of springtime glory. The calendar page will be flipped at the the end of the week to release April with its hopes of a budding Springtime. It will bring with it new Challenges for us all, but also with its hopes and expectations of an easier time of the year. April will let us know she is here with warm sunshine on our backs and gentle breezes brimming with scents of warm soil and promises of new growth to our eager senses. Even the birds gathered around the feeders sing in excited chirps as they discuss new nests, fat earthworms and how their winters in Florida went; like a group of people standing around the watercooler discussing their weekends. Ella, I think that I have more time to consider my past now. I am not going to work anymore and my thinking has become more clear. Even if my short term memory isn`t as good. Good morning LenaMegan. Wow, you were lucky to get a picture of the humming bird babies. Thank you. And LAD, welcome. back I have seen that you have been busy posting on the Forum and that is good. Positive thoughts and reinforcement are very important as we deal with this Parky thing. I hope that you had a good weekend Dianne. Everybody have a good week.¸¸ jb
  42. 3 likes
    I can't resist posting to this very long-standing thread. I am of Christian faith, so I decided to "open it" to see what it had to offer. If I followed Islam, Judaism, or any other religion (or non-religion), I wouldn't have bothered to read the post. If I read a sign on the door of a business that said "Only those who are atheists are allowed", I wouldn't enter. The title of the post tells you where you are headed "A thread for anyone interested in topics of Christian faith--all invited." What is so flippin hard to understand and complain about? If you find comfort in your religion to help with PD, then great. If you have no religion, great. Then post another topic expressing as such. Don't pollute a legitimate thread on a free, non-moderated forum. I'm always amused how non-believers always complain, and it never goes in reverse. My temperament tells me it may be time for my meds. Carry on....
  43. 3 likes
    pdmanaz, You are not the administrator of this forum, just a user like the rest of us. The administrators have stated that this area is unmoderated. If you don't like the content, then don't read it. It really is as simple as that. If something really offends you, report your objections to the forum administrators. If you want a moderated forum for PD, shell out some money and start your own. This forum is provided to us free of charge. Dave
  44. 3 likes
    I am a talker and I definitely inherited that from my mother. I'll talk to anyone about anything . If I see someone looking at me funny because of something I've done or how slowly I'm moving i'll just say "I have Parkinson's". I've never gotten a negative response sometimes people ask me questions sometimes they don't. If they ask questions I'll always give them a truthful answer. One day One of my husbands coworkers caught her spouse asking me questions about PD. She chided him and told don't ask her questions about her medical condition again . And here I was thinking it was great that now he knew more about my condition because we frequently travel with them so it's been very helpful that he understands more about what I'm going through. Truthfully I think my coworkers spouse knows more about my PD than my own spouse. So really I just want people to ask anything that They don't know or understand. Delta
  45. 3 likes
    FYI: I just discovered the "My Parkinson's Story" videos produced by the VA. I thought they were great.
  46. 3 likes
    Patriot, you may be right. I don't know. I know with my DH with Parkinson's, we have not overused the system. We are on Medicare and not Medicaid. He has had home health care and he is now on hospice, but managing without it would have been extremely difficult to impossible. I rarely see a doctor even with no co-pay with Medicare and a supplement. In fact, I probably wait too long to see a doctor which creates its own set of problems. I don't know people who overuse the system. There are likely some, but how many, who, and why, I don't know. There are trained researchers who can compile this information. My son is a Ph.D Medical Bioinformaticist working for a hospital. His job is to research whatever the hospital needs in regards to patient care and costs. We operate on personal observation and assumed information and neither may be accurate. When we get serious about quality healthcare for all and compile provable information on which to base decisions and policy, we will be much closer to a workable solution.
  47. 3 likes
    One of the keys to saving Medicaid is to make every recipient pay some sort of co-pay. When people pay nothing, they have no incentive to conserve. When I go to the doctor, I know that I'm going to pay 20%. If the doctor charges $200, then I pay $40. I do not go to the doctor unless I really need to. Many people on Medicaid go to the doctor or ER for very minor things because it costs them nothing (I'm paying for it).
  48. 3 likes
    I'm sure glad we can all agree on this, as I for one don't come here to read a bunch of political claptrap.
  49. 3 likes
    This was Linda's thread and her "mission statement" upfront was IMO clear. Over 44,000 hits is a testament to the interest (or critique) of topics related to Christianity. There have been some who have questioned why the entire thread is on a PD forum and they are certainly entitled to their opinion. I encouraged Linda to stay on track when she was discouraged over a year ago and I am glad she stayed with it. At the same time I support the right of atheists, agnostics, humanists, and other belief systems to start their own thread on this forum. Everyone has the freedom to chose what they read or don't read if they find the topic objectionable on the "Open" Forum.
  50. 2 likes
    Tai chi is one of the most recommended programs for Parkinson's members and having your wife along will benefit her also. My husband has attended his senior center's tai chi class for many years and he thinks it saved his life from a much faster progression of Parkinson's. He has better balance and coordination. There are several Parkinson's members in his class-and we always recommend this program to our support group. One enthusiastic member even gave up his cane and feels like a new person. Plus attending a tai chi class gives you a great social group-which is another huge benefit for the Parkinson's community. As the disease progresses it becomes more socially isolating for the individuals which tends to make the disease progress faster. This is a great long term activity that you should be able to enjoy and find great benefit.