Jump to content
helplinedonate

Leaderboard


Popular Content

Showing content with the highest reputation since 04/27/2018 in Posts

  1. 2 points
    A worthy read and reminder about God's love from a brother in Christ Marty Kessler who is a gospel preacher in Oklahoma. Have a great day! For my fellow Bible students..... The Bible teaches that we will all stand before the judgment seat of God. The very thought of standing before the one who knows me as I actually am, is terrifying, because I know I’ve done a lot of stupid, ungodly things for which I have no excuse. But I am not afraid. I am not afraid because of his son’s cross. “…..having forgiven us all our transgressions, having canceled out the certificate of debt consisting of decrees against us and which was hostile to us; and He has taken it out of the way, having nailed it to the cross”, Colossians 2:13-14 I am not afraid because he takes my weak, faltering faith and counts it as his own righteousness. “But to the one who does not work, but believes in Him who justifies the ungodly, his faith is reckoned as righteousness…..”, Romans 4:5 I am not afraid because God loves me in spite of my past. His love for me is not dependent on me being good, because I can’t. Instead, his love is based solely on his eternal goodness, and therefore completely reliable. “And we have come to know and have believed the love which God has for us. God is love, and the one who abides in love abides in God, and God abides in him. By this, love is perfected with us, that we may have confidence in the day of judgment; because as He is, so also are we in this world. There is no fear in love; but perfect love casts out fear, because fear involves punishment, and the one who fears is not perfected in love. We love, because He first loved us”, 1st John 4:16-19. Life without fear is freedom.
  2. 1 point
  3. 1 point
    Lori, You should make an appointment with an Orthopedic Doctor to make sure that it’s not something else. Not all problems are PD. Dave
  4. 1 point
    Tightness in my hips is painful. Stretching helps, LAD
  5. 1 point
    I have experienced pain in my right hip area for the past three years. In the beginning, it was in the front and along the top of the pelvic bone. My MDS doubled my Baclofen (muscle relaxer) dose and ordered physical therapy. I've been to a Physiatrist for cortisone injections over several months two times. She knew nothing about PD and didn't understand dystonia, which is the muscle tightness that we experience as rigidity. After the second set of visits produced no relief, I begged her to try Botox. She didn't check with my MDS to see an appropriate dose for that large a muscle so the injection was not strong enough to give me any relief. Now, I have two PT visits at home each week and use a small dose of pain medication twice a day. The painful area has expanded to include the right groin, the entire iliac crest around to the muscles in my right buttock and the very lowest part of my back. Riding in a car makes it more painful. Exercise helps. I had been on carbidopa/levodopa for five years when the dystonia began. If your PD is unmedicated, there is a good chance you will get relief with just carb/levo. Like PD itself, dystonia is progressive. I strongly urge you to stay ahead of it as long as you can. Dianne
  6. 1 point
    This is hard but if you could use your situation to gain something very positive in life, a new identity, a new you, that you like more than the previous you. Make it a blessing in disguise whatever the situation is whether you truly have Parkinson’s or not. Something very positive in life that would not have happened had the diagnosis was not made.
  7. 1 point
    Loved that clip LAD! He is soooo talented. Thanks for sharing.
  8. 1 point
    Here is a clip from a cabaret at a local restaurant... LAD
  9. 1 point
    Thank you Marcia. That is a very sweet wish. I hope it comes true! jb-I'm getting so anxious (in a good way) regarding your upcoming surgery. We are all thinking and praying for you. I'm so excited about the wonderful outcome I'm sure you'll have and can't wait to hear from you. As soon as you're able please touch base with us. Hugs all around.
  10. 1 point
    I haven't posted in so long that I forgot how. So I just wish everyone pain free days ahead. m
  11. 1 point
    Yes I can definitely relate to the mouth tremor. It starts with my tongue which starts to shake inside my mouth. This is what landed me in the neurologists office as well. The tremor can get so bad that it interferes with my speech. Plus it is downright embarrassing. It occurs a lot in the evenings when I'm tired but also when I'm in social situations. I am glad to know that other people have this problem. Manilo, I am not an expert on meds but my view is if you can live without them then that is the best thing. They come with a lot of side effects. I take the meds because if I didn't I would have tremors, along with other symptoms all day long. It is true that when you are anxious no amount of Parkinson's meds will help.
  12. 1 point
    Thank you, Linda. Over the years as I have watched DH lose mental and physical abilities, sometimes the pain and grief has been almost unbearable. This might sound odd to say, but his death has almost been anticlimactic. I have had my heart torn out on a daily basis and cried myself dry for many years. His death was a sweet release for him from the prison of the hospital bed, a body and mind that weren't functioning for him, and the indignities of not being able to care for himself. My heart aches. There is a lonely emptiness, but not for what he was at death, but for what he was when he was whole. I believe he is whole now, with his abilities restored and waiting for me, I am compelled half a dozen times a day to go to the door of his room and check to make sure he isn’t still there waiting for me to take care of him. I have been vigilant and on call for so long, it will take some time for that feeling of responsibility for his care to leave me. Though it was very hard, it was my pleasure to be the one to care for him through all the difficult times.
  13. 1 point
    I find moving around - walking makes it go away faster. It seems to be the shot of adrenalin for me and as soon as I get the adrenalin out of my system I'm fine. It's worse when I'm sitting or confined.
  14. 1 point
    Within minutes of talking to a certain person, I would get a violent right hand tremor— I am almost exclusively left side symptomatic otherwise! I used it as a reason for changing a relationship status and taking Cognitive Behavioral Therapy and assertive communication training. The assertive communication was revolutionary! My whole life I had thought I was a firm yet fair person only to find out I’m a pushover!😁. My children were shocked I hadn’t known how passive I was. Now I appreciate my nervous tremor because it’s an indicator to take care of my needs and I can say “Ooh, look at that tremor, we’ll have to discuss this later.”
  15. 1 point
    I agree with gardener totally, I did significant research before deciding to take Carbidopa/Levodopa aka sinemnet. There is no evidence that suggest C/L is solely responsible for dyskinesias based on the amount you take in a given day. I have met and talked to several people who take over 1000mg of c/l a day and do not have dyskinesia. Dyskinesia happen with a combination of disease progression and use of sinement. One study that is in its infancy suggest that dyskinesia happen when a chemical in the brain called GABA starts to diminish because Parkinson's disease has progressed to a point to affect its production in the affected part of the Parkinson's brain. The brain Chemical GABA acts like a throttle on a car, it meters how much dopamine reaction is need when the brain sends a signal. When that is no longer present the signal gets over intensified and you get dyskinesias. Remember, when big pharma came up with there synthetic dopamine called agonist, they spent millions discrediting C/L so they could reap billions in profit for their new creation with terrible side effects. This stigma still exist today even though big pharmas studies have been disproven. Want you to have the whole story when you make your decision Blessings Adam
  16. 1 point
    Thought these links would beneficial in understanding what CBD oil is and the best you can buy. https://healthyhempoil.com/hemp-cbd-vs-cannabis-cbd/ https://ministryofhemp.com/made-from-hemp/cbd/reviews/ Also a list of the best Cannabis for PD https://cannabis.net/blog/medical/top-5-cannabis-strains-for-parkinsons-disease https://www.leafly.com/explore/conditions-parkinsons
  17. 1 point
    Stump, off topic, brief personal note. DH always wanted to hunt moose. Instead he spent most of his hunting days helping his father. We r on our "bucket list" trip revisiting our favorite places. In Idaho, DH met a great outdoor guide who will provide guide service, meals and lodging in a cabin on his property. DH will hunt am for moose, pm for deer for a very reasonable price. Again, we are reminded to take time to enjoy along the way. This is a unique chance for DH to realize an experience he thought was not possible. Had we not made the effort to get out in the world again, this would not have happened. You are a great example of maximizing time....an inspiration to many. I encourage you to post often and share the diverse aspects of your life. It says a lot about you when you are subject to sea sickness, yet pursue your passion for fishing. Hmmmm, a great analogy for living with PD, ya think? Good luck with the " Urpies." ? NN
  18. 1 point
    A priest is walking down the street one day when he notices a very small boy trying to press a doorbell on a house across the street. However, the boy is very small and the doorbell is too high for him to reach. After watching the boys efforts for some time, the priest moves closer to the boy's position. He steps smartly across the street, walks up behind the little fellow and, placing his hand kindly on the child's shoulder, leans over and gives the doorbell a sold ring. Crouching down to the child's level, the priest smiles benevolently and asks, "And now what, my little man?" To which the boy replies, "Now we run!"
  19. 1 point
    The Office Visit I saw my Doc today. I had prepared what I wanted to tell him. “Doc,” I said, “This Parkinson’s thing has been very interesting, but I think I’ve learned from it all it has to teach me and I’m ready to move on. I’ve met a lot of interesting people and increased my vocabulary. I’ve tried a lot of drugs and it’s been good! Nevertheless, I’m ready to move on to other things. So, just sign me out, I’ll see you around!” Well, he just laughed. “Doc,” I said, “then just give me the really good pill! You know, the one that really works! Why are you withholding the really good pill from me? Give me the really good pill!” Well, he just laughed and said, “Let’s get real.” I’ll try again next time. My doctor sometimes uses words I am not familiar with such as “titrate.” We titrate this; we titrate that. I had no idea what he was talking about! I guess I could have asked, but I was trying to play long and be a good sport in hopes of getting that magic pill. I finally figured it out. To titrate simply means that you gradually increase your medication until it is just right. Just as I figured that out, our vocabulary lesson was over and it was time for math. While Doc was calculating my latest titration program, he called out a math problem like he needed help with the titration calculations, “What’s 24 times 7 plus 83?” There was no one else in the room, but why was he asking me? Did another patient steal his calculator? I remembered giving my son mental math problems to keep him busy while we were on long car trips. That worked until he decided it was my turn! I could dish it out, but could I take it? I thought about responding to the Doc by asking him, “What’s 3,215 times 16 minus 45?” I hesitated as I considered that maybe there really was a magic pill and he was just trying to see if I was ready for it. This line of thought led me to a revelation! Doc was just sneaking in a cognitive test! Silly person-living-with Parkinson’s! Last time I saw the Doc, I told him that I was gaining weight. He had told me that one of my meds was linked to weight gain, and took me off that med. I lost 9 pounds in a month! That was good, but now I had tremors and felt bad. After Doc completed his titration calculations, he went over my new regimen of meds. Doxycycline once a day in the morning before eating. That is for my skin. I now get acne without the benefit of being a teenager. Take the new med, Requip, three times a day. It is also known as something else. Everything has two names. That makes it simpler! The pharmacist said I should take it at night because it can make me drowsy, but my doc said take it three times a day, so that doesn't sound like at night. I was to take one tab of the lowest dose three times a day for a one week, then two tabs for another week, then I take three tabs a day for another week, then I switch to a higher dose tab for another week, and for the next three weeks something else that I can't even think about yet until I reach a stable dose at the end of two months. Okay. I also take two tabs of Carbidopa/levadopa, also known as sinemet, four times a day forever or randomly as I prefer. And, at night I take one tab of - oh, boy – Aricept! In case you don't know, that is a drug taken by people with memory problems. Now, if I really had memory problems, how would I figure out this drug regimen and stick to it? Especially with one med three times a day and another four times a day? Oh, did I mention that I can't eat protein one hour before or two hours after the sinemet/carbidopa/levadopa? Or maybe it is two hours before and one hour after. I can't do anything but pay attention to this drug regimen! The only thing worse than this is the thought of what life would be like without these drugs. Bon appétit! I have found Moscow mules (vodka, lime and ginger beer) to be much better than water for washing down drugs (any sort!) after 5:00 p.m. Repeat as needed. Let's see, I think it is time for 1 sinemet, 1 Requip, 1 aricept and at least one Moscow mule. And it is Wednesday, so that means I’ll watch Nature and Nova on TV unless my husband wants to watch loud, action TV that makes it sound like we live in a war zone! I can't imagine how I worked until recently! Since life with Parkinson’s gives me so much material, I am considering stand up comedy as a future career. Should I tell my long term disability guy that? Why not! Maybe I will just read him this when he asks if I would like to talk with a vocational counselor! Laugh or cry? You choose!
  20. 1 point
    Personally, I've got a problem with all of it. When words can be redefined at will, the fabric of society is destroyed. When truth is relative, then we are lost. The TRUTH is that Bruce Jenner is still a man, pretending to be a woman. The TRUTH is that Rachel Dolezal is still white, but pretending to be black. The TRUTH is that marriage is between a man and woman. Anything else is not marriage, even though some may pretend it is. The TRUTH is that I have PD, whether I accept it or not. If we call PD "Health", we are still sick.
  21. 1 point
    I don't judge other people's sexual orientation. Some comedian once said, "I support gay marriage. They have a right to be as miserable as the rest of us."
  22. 1 point
    People do "decide" to be homosexual, due to circumstances in their lives. That is a whole other topic though. Sometimes babies are born with two genitalia, the Dr. decides which to remove. He bases decision on blood work, sometimes baby may be "boarder line," or just over the line in blood work. The child grows up resembling the opposite sex, mentally, emotionally, physically. This is only one example of how a baby is born gay or with transgender tendencies, there are many other chemical "mishaps," that can take place before birth. This is why it is pure ignorance of the facts to ridicule or "not believe" in gay or transgender people.
  23. 1 point
    People are not born just "wishing they were another gender," they have hormonal imbalances. Do you really think people would go through operations to change their sexual beings just because they "want" to be another gender? It is a medical fact they are born this way, as are homosexuals. As far as our president taking away Christianity, that is false, he himself is a Christian, he is simply bringing to the forefront that the US is not only populated by Christians, we must respect that. It is not a requirement to be Christian to be an American. Some of you are not responding to fact, but stating that if people are not the same as you, they are wrong. Really? What would the world be like if we were all alike? Last time I looked, it was a "free country." In reality, this is a form of "bullying." It is mentality like this that sends kids, young adults and others to desperate means. If the Bible is your choice, I believe "Thy Shall not Judge," is in there somewhere.
  24. 1 point
    Hey, mm at least they get it in New Hampshire! Instead of making fun of people. They listen. The "Live Free or Die Alliance" has the post as an all time rated most read... So go cry that to your townspeople.
  25. 1 point
    I get these same "zaps." I've always attributed it to the anti-depressants (SSRI's such as Celexa and SSNRI's like Effexor). Have you ever tried stopping those? WOW! Major electrical zaps! Kevin
×