Jump to content
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    


Popular Content

Showing most liked content since 11/16/2017 in Posts

  1. 4 points
    Pure nonsense! The top 1% of earners pay 45% of individual income taxes. The top 20% of earners pay a whopping 84% of individual income taxes. Forty five percent of Americans pay no taxes at all. How much of a tax break should people get when they pay absolutely no taxes and when many get 'money back' (earned income tax credit, for example) when they didn't pay anything in the first place? Corporations and businesses do not pay taxes. Corporations and businesses pass their taxes on to consumers. When the corporate tax rate is higher in America than other countries, corporations move off shore so that they have lower taxes to pass on to consumers and therefore lower prices giving them a competitive advantage. I don't remember you saying a word about the national debt when Obama was President. He DOUBLED the debt. Why didn't you complain about that?
  2. 4 points
    I feel so much love and support from you, dear friends. As I leave for another day at the hospital with my family I will take y'all with me. Love, Dianne
  3. 3 points
    This tip is for those who are caregivers of someone bedridden, who sits a lot, or who spends a lot of time in a wheelchair and is at risk for bedsores or pressure sores. After DH was bedridden for a while, he developed a serious pressure sore on his tailbone. I was naive about the risk and thought hospice was covering all bases, but not. He cannot lie on his back and has to be regularly rotated from one side to the other. Because he is so thin, his hip bones are very prominent and soon red spots began to appear there indicating the beginning of pressure sores. I searched for a solution. I am a quilter and my favorite batting is Hobbs wool. I had a bag of leftover cuttings. Wool is resilient. It does not mat down. I had been using a sheepskin all along, but it didn’t prevent the tailbone pressure sore. The batting is spongy and I can use as many layers as I want for cushioning. We still rotate him regularly, but always with layers of wool batting under his hipbones. He has developed no bedsores there and the tailbone bedsore is healing miraculously when the hospice nurses told me it would not heal and would only get worse. The nurses are amazed and are now recommending the batting to other patients at risk for pressure sores. It is an effective, easy and relatively inexpensive solution for a difficult problem. I hope this information is of help to someone else.
  4. 3 points
    Hello BlueLion, Don't say you're sad for your young kids. For one thing you are still young and chances are you will witness new discoveries (meds) /maybe a cure ?? in your lifetime. Second, in my experience, my son (whom I had at age 40, some 6 years after diagnosis ) has grown up with a PD mom and has evolved into a very considerate person, always there to help others in difficult situations and does not seem to have been affected by his mom's disease. He will turn 25 on December 26 and is a very positive and successful young man. On April 1st last, I celebrated my 30th anniversary of diagnosis. Am still around, doing reasonably well (I had surgery in the meantime). PD is not a life sentence. You can keep an almost normal life (except for taking meds). So enjoy life and treasure every moment. Take care, Mireille
  5. 3 points
    Saw my MDS yesterday, along with the Speech Therapist. I wasn't supposed to see her again until mid-January, but I've been having problems with being dizzy when standing, been having a hard time sleeping sometimes, and meds have been wearing off and less effective overall. Plus, following my neuropsych eval back in April she had said at my July meeting that she wanted me to see the speech therapy folks due to the issues with word finding. Overall, not terribly eventful, but I did get my Rytary increased from 3x3 to 3x4 per day. I had been taking them at 8/2/8 so a six hour interval. I'll now be taking them, I think, at 7/11/4/9 which will give me a 4 hour interval during the work day, but I'll stretch it to 5 hours in the evening. We will see how that works out. For breakfast it might actually work out better. I seldom eat at home before going to work, so taking it at 7AM will mean that by the time I'm getting peckish at work I'll be at a good time to eat. Plus, the 8AM timing was tough on Wednesdays since I a standing teleconference with the India team from 7:30-8:30, and I'm usually in my boss's office for that call (boss and an India team rep in the office too), which means I either take meds 30 minutes early or late those days. This should avoid that issue. I think 11AM won't interfere too much with lunch since I can just wait until noon to eat, which I do anyway probably at least 3 days a week. Meds at 4PM likewise should be no problem with food since I rarely eat dinner before 6PM, and by 5PM I'd be good to go. The 9PM one might occasionally be a problem, as sometimes we don't eat until 7-8PM or so. But that will still be better than the 8PM med time from before since if we ate anytime before 7:30 I'll be OK. For dizziness she wants me to work more on hydration, including adding more electrolytes. We'll see if that cures it. Hope so. For difficulty sleeping she was recommending Sleepytime Tea, or chamomile tea/herbal supplements, and/or melatonin. She also thought the additional Rytary would help. Thankfully she was in agreement that anything stronger was uncalled for. The speech therapist had me do some additional tests for word finding. One of the things she had was a book with pictures and I had to name the object. Started off great, then got to some that I really struggled with. The harmonica, beaver, paint, and couple others I'm not recalling I really stumbled over. The picture of the paint board I could never come up with the name until she flipped it over. Then she had me do the "every word (not proper nouns or different forms of the same base word) starting with the letter S" in one minute. Struggled with that about like in the neuropsych eval. Got some exercises from the speech therapist to try to help out with that. As I mentioned in a DBS thread, I stated that I assumed at this point we were still several years away from even beginning to discuss DBS. She agreed with that, and said that even if I was getting close to that point, which I'm not since the meds are working well and I don't have any dyskinesias yet, that she would recommend waiting if possible for another 2-5 years. There are a ton of advancements coming down the pike for DBS that will make it less invasive and better overall. Currently battery packs and controllers are implanted in the chest or abdomen in operations that, at least in the USA, are typically done under general anesthesia. Average life for the battery packs is 5 years, so if you have DBS done at, say, 45, you're looking at an expectation of 9 total battery packs if you live to 90, so the initial pack plus 8 replacements. Some will need more, some less depending on a lot of variables. But even you only need 5, that's still a lot of surgeries to replace it. One advancement she said is in development is a battery that can be placed under the scalp, and it sounded like it was intended to last substantially longer, possibly long enough to never need replacement in your lifetime. Plus, with now I think 3 companies with FDA approval for DBS systems (IIRC they're Medtronic, Boston Scientific, and St Jude) they are all working on improving leads, lead placements, control systems, programming, and so on. We are likely in an inflection point for advances in DBS such that waiting, if tolerable, is likely the best plan. Eventually things will taper off in terms the rate of advancements. I'm hoping that we'll be in that phase of the development curve by the time I am ready to seriously consider DBS.
  6. 2 points
    Good Morning. LAD, that's a beautiful Nativity. I find just looking at a Nativity scene brings a feeling of peace. I'm having trouble getting myself motivated to clean the house. I just did it last Saturday and I'll do it again next Saturday so do I really need to do it this Saturday? The chickens came up on the deck and one started pecking on the glass door. My DH said she wants her eggs back. JB-I fluffed up the straw and planted decoy eggs in the nesting boxes, and two chickens fell for it. So now I can count on at least two eggs a day. We usually keep nuts and seeds around the kitchen to snack on. I tell you this so you'll understand a little why my DH did what he did. I have a container of oats (animal feed) on the counter. This morning, he opened it and put a handful in his mouth. HaHa! If anyone has ever tried eating an unhulled oat you know it doesn't work very well. It took him only a split second to realize his mistake. LOL The large lighted star we have over our barn needs lights replaced. We usually have it lit up from Thanksgiving to New Years Day. But because some bulbs need replaced we haven't turned it on yet. Yesterday our neighbor from across the field told me his little girl noticed the "stable star" was not lit. So my DH got the replacement bulbs and the goal is to have it fixed and lit up by tomorrow. I think I might put my plastic lighted Santa kneeling at Jesus's manger under it this year since there are no animals in the pasture to disturb it. Marcia, I also hope we all have a happy Saturday and I'm glad your meds are working. Take care everyone.
  7. 2 points
  8. 2 points
    Hi, jb, everyone. I'm still checking in now and then but am having to pull back on posting for a few more weeks until I can catch up on some things that are timely and that take me forever to do now. Thanks for not forgetting me. Miss everyone.
  9. 2 points
    my favorite part of Christmas- our nativity ... we add a piece each year. One year my son hid baby Jesus so well we found him by New Years!! LAF
  10. 2 points
    It is a process. Anger is part of it but so is accepting, adapting & adjusting. If you exercise and get a good MDS, PD symptoms can be managed. Exercise is the best thing you can do for yourself - find something you love to do- exercise with your family. My husband and I started Dance lessons when my MDS recommended it. We've been dancing for 3, years. I also do a program called PWR...www.pwr4life.org. PD is not for wimps so choose to fight it. Be present in your life. Don't worry about what may or may not happen. Everyone is different. Your mindset is part of the battle every day. Eat ice cream for breakfast with your kids. Keep a journal-it's a great way to vent. You will look back and see how far you've come. LAD
  11. 2 points
    I just had my second programming after a year of DBS in- DBS out - DBS back in. I found out that Entacapone was giving me trouble afterwards. as far as my mental health goes. I am totally off that medication and down to half the CL and Amantadine and I have more energy (recently). So far, it has been worth it. I am typing easier too!
  12. 2 points
    Yes JB - I am quite ADHD - my son gets it from me. Glad you all are well. I made biscotti cookies and they got a bit crunchy -my mom told me I need a new oven! I did get an error code for temperature out of range so my 350 could have been 500! They are good in coffee or wine. Happy Friday!! We lift each other up!!! LAD
  13. 2 points
    Good morning eveyone. Thank you for the nice wishes for the upcoming Christmas season Lad. Maybe it was the turkey and everyone is sleepy still. But I think that Em is working on her writing course, Bard is getting his snowblower ready for the next snowstorm. Mrs Pathfinder is just trying to squeeze a couple more pies into her freezer. LAD y, Well It would take a couple writers to keep up to your activities. Linda is not online as much now. And Dianne is busy with family matters I think. Peace is getting A special Christmas together with a 3 yr. Old girl in the mix and Marcia is still Marcia. Be safe everyone! Best wishes to all J b
  14. 2 points
    If you read my post on frustration finding PD supports that are actually accessible for young, working people, then you probably understand I’ve had to find alternatives to programs that work balance, core, strength, and stamina that fit into my schedule and that are comfortable to do. Tried yoga but for me that wasn’t enough movement. I run multiple times a week (though I’m far away from my marathon person of four years ago, sadly). Anyway, I stumbled on a program available online since there are no studios by me and it’s pretty inexpensive. The best part is that they encourage shakes!! So I could probably attend an inperson class and not feel self conscious:). It’s called Barre3 and it incorporates Pilates like movements but also light weights, lots of repetition and a ton of balance work! Been doing it for almost a year and my MDS said my exercise regime is really a good one. Every time I do a workout I think of you guys that are on my boat so figured I’d share. Hopefully this doesn’t come off as a promotional thing, as it definitely isn’t, just want to share something helping me fill a gap. Take it or lose it :).
  15. 2 points
    I have Dementia with Lewy Bodies, which is parkinson stuff and dementia stuff, and I am 67 now in my apartment at a CCRC on my way to memory care, later than sooner I hope. Thankful for disease? Hell no. Thankfully for still being able to breathe and know I'm here, hell yes. I thankful wife and my son and his family. Thankful that I was able to put things in order financially for everyone. Thankful that I have good care. Thankful for being able to see others here like me who also can still see some of the good things we still have to be thankful for. Bill.
  16. 2 points
    Dear Amy2beth, Dear kat2017, I too am a young onset. Was diagnosed at age 34, some 30 years ago. I took Ldopa (Modopar) right away, as I wanted to enjoy my "young years" to the fullest. An enjoy I did, I even had a baby at 40. I am still taking Ldopa so don't believe those who say it only lasts 5 years. I also had DBS surgery in 2000 and 2002. Being diagnosed with Parkinson's is not a death sentence. You can lead an almost normal life (with reasonable expectations of course). I worked until I was 55, but enjoyed a very favorable job environment in Brussels (Belgium). I have the chance also to have a very dedicated husband who cares for me. I am sure others have provided good advice ( i haven't read all contributions). Welcome to the club. Come and join us in our fight for the cure ! Mireille
  17. 2 points
    Not thankful for the disease...no way... But it has made me thankful for the good stuff in my life. It has changed how I view things. I have a seize the day mindset and have gone on some great adventures. My husband & I discovered dancing and that would NEVER have happened. So I'm thankful that my life is good despite the fact that it's different. But I'll take a cure and be real thankful for that!!! LAD
  18. 2 points
    Hi amy2beth, I was diagnosed 16 years ago at the age of 33. I am now 49 and doing really well. I am fully independent and still working full-time. I have been on C/L the entire time (currently on Duopa, a pump infusion of C/L...it works great at managing both the symptoms of the disease and the side effects of the medication). My main issues are bradykinesia, rigidity, gait/balance issues, and dyskinesias (the result of long-term C/L use). Don't let the PD diagnosis get you down. It is true that we all progress differently; however, young onset PD is usually a slow progression overall. I have two children (9 and 13) and a wonderful wife. PD just becomes part of who you are, but it is never the sum total of who you are. You will learn how to adapt and live with it. We are here for you. It's not always easy...good days and bad days... Sometimes I am strong and can offer advice. Sometimes I am weak and need a shoulder to cry on. So much is happening in the PD world...new medications and treatments due to vast research. Hang in there. Lean on us as you need to! Peace and blessings, Mihai (Michael)
  19. 1 point
    Caution, sounds too good to be true. Like a paid advertising post written by a sales person to generate web traffic...
  20. 1 point
    Hugs to you Dianne. I'm sure Casey and your Dad had a wonderful reunion.
  21. 1 point
    Dear Dianne accept my sympathy and wishes. Thinking of you. Em
  22. 1 point
    Dear Dianne, Please accept my wishes of sympathy to you concerning the passing of your Father. He is at Peace now. Your heart will heal as you remember his life, and as time passes, you will emerge even stonger. Peace be with you Dianne. Virtual hug, jb.
  23. 1 point
    Dianne- I am sorry for your loss. I will continue to keep you and your family in my prayers. LAD
  24. 1 point
    Thank you for all the feedback. I had an acupuncturist discuss medical cannibis with my mom last year - my mom was completely against it. It is a generational/stigma thing. I will revisit the idea as I think it could be very good for her.
  25. 1 point
    My husband is using it with GREAT success. Huge pain relief, huge restless leg relief. Helps anxiety and it is the very best thing we have discovered.
  26. 1 point
    My husband has found HUGE pain relief from Cannabis. He is having hip replacement today and over the last few months got off all pharmaceuticals thanks to medical cannabis. It helps muscle cramps, restless leg, pain, and anxiety. He is also eating better. He is 64 and was diagnosed with Young Onset 15 years ago.
  27. 1 point
    Another tip. Because DH is lying on one side or the other most of the time, his ears are at risk for compression sores. I have a plush throw that I put over his pillow to cushion his ears. It washes easily and has been effective. This is not minky. Minky sheds too much. It is a soft plush—maybe like a fleece, but I call it plush. It is soft and cushiony. My daughter says they are popular as throws and there are a lot of them in the stores.
  28. 1 point
    Hard to know without seeing and it should be read by you and your neurologist together. It is a qualitative read looking for asymmetry in the putamen.
  29. 1 point
    With eyes barely open, "Good morning world".he said to the light That had pushed in and burned away the last shadows of the night. He tossed and struggled. Mere blankets bound him secure to his bed. With effort he slipped free of his nest. His feet now on the floor led His unsteady body with tentative steps, but they had to start to hurry To get to the toilet in time. Ah. Made it he sighs. His eyes still blurry. There is a bit of poetry for you all this morning. Can anyone re!ate to that.? Hello Swamper. That is a term I used to use to indicate that I was riding in the front passenger seat. Usually it was in a Friend's car. I think people often call that position Shotgun now. But in highschool, if I sat there, I was The Swamper but you could call me Swampy. Anyways, nice to hear from you. Good morning Dianne. Hi Linda. Hope you are reading along. Hi Em. Well, I better get going here. I have "a lot of pianos to tune today " Be safe everyone. Jb
  30. 1 point
    Peace, for you and the family, Diane. You are in my thoughts and prayers.
  31. 1 point
    Prayers to you Dianne.... LAD
  32. 1 point
    What fun reading. I was in top zone during working years. Because I saved and invest, I now have more than I need, but then my wife will need when I am gone, and my son and his family need some because he is college professor who earns about what a regular public school teacher makes in blue states. He earns more than most red state teachers, but big deal. Anyway, I am finished with fighting culture wars, race wars, economic wars, diversity wars, ideology wars, and all that crap. As for tax bill in congress right now, I could care less for me and my family, as I have mostly done all that I can do. As for future, I have little hope really, as neither Dems or Repubs are worth dry spit if you ask me. Folks, we are on our own here with these diseases I know for sure. Family helps, but that about it. My view is make the best of a bad situation, because what else can we do. I finished for today. Bill.
  33. 1 point
    I can think of many things to be thankful for from only lessons learned. Parkinson's is a dreadful bottomless pit of a disease that only gets worse. The only thing to be thankful for in the stage you are at now is that it is downhill from here on so cherish how you are feeling now because you will look back later and say "boy those were the good old days" I cannot understand why people keep saying you should be happy that you don't have other diseases as if it's a competition. They are all equally dreadful and make you and your loved ones suffer. Everything you have planned out for yourself prior to getting this will be stalled or cancelled. My mom started off with just a tremor in her left pinky. No big deal right? Sorry but it doesn't just stay like that. We have been through hell in this journey that I wouldn't wish on my worst enemy. Along the way friends and family leave as if it's contagious. There is no sunny side to this. You either face reality and keep moving or hide under a rock.
  34. 1 point
    Not really. Twitching and tremors are different things, and twitching is not a PD symptom at all.
  35. 1 point
    This is the biggest one in my book, at least as far as PD research goes.
  36. 1 point
    Hi Dianne.. yes I am also thinking of you and your Dad..take care.. Em
  37. 1 point
    Good morning Everyone, Hello Mr. de'Scoop, Fear not for the little Chicken who crossed the road and became a favourite in Philosophy circles as to her intent. Up to that point in its life, she perhaps felt insignificant and now enjoys the speaking tours and the late night talk show circuit. Well?....maybe.. Hi Linda, good to hear from you. Dianne: I hope that you feel warm vibes from your circle of friends here; a shoulder to lean on. ears to listen, a tissue to wipe a tear. We can be whatever you need. Our lives have Parkinsons Disease and handfuls of pills that we pop like Smarties. We feel the medicine reaching out to our limbs and grease our joints into movement again not unlike the Tin Man of Oz fame. Sometimes I wonder who will win the contest, played out several times a day. Will my Body loosen up and do what a body should do or will the pills cloud my brain with fog and my legs be forced to dance that restless ballet written by Mr. Dykinesia. Often I get pulled down into the undertow but usually I emerge , I ride that wave of "on time" and for that, I am thankful. I hope all of my American Friends enjoy a safe and meaningful Thanksgiving Day today! The Best to you all, Jb.
  38. 1 point
    Hi Dianne, So sorry that happened to your father. I will think of you in the coming days and will hope the best for your Dad. Once again Dianne you are in the center of a medical situation requiring your strength and faith to guide you and make you strong. I wish you well my friend. Hug you, jb.
  39. 1 point
    Good Morning! I am making some progress on decluttering my home. I've got a couple boxes full. Still ALOT to do. LAD, the only one in my home to help with this project would be DH and he's more tight fisted with stuff than I am! LOL. So in fact, he is actually a hinderance to the process. Em-have you gone to your writing course class yet? Is it for short stories or something else? Hey Dianne, How's it going? Are you doing alright? Good luck at your neuro appointment Marcia. jb, bard, pathfinder, Linda how are all of you doing? And hello there Superdecooper. Is everyone getting things done before the snow hits? I got the chicken house cleaned, heated water bucket ready to be plugged in and fresh straw put down. My darn hens have stopped laying in the house. 3 have begun laying in a pile of concrete blankets that are stored in the horse trailer and the other three have either stopped laying or they have a really good hiding place. Any one know how to get them laying back in the hen house? I have pumpkin bread baking. It smells marvelous. The recipe suggested adding raisins, so I did. I'm not sure I'm going to like raisins in my pumpkin bread but how will I know if I don't try? My son is dating a girl with a 3 year old daughter. I'm having fun thinking about and researching things to get the little girl for Christmas. We haven't had a young child around for Christmas in many years. I'm really looking forward to it. Kids just make Christmas day so much fun. It exciting to see things through their eyes. Well I've rambled on enough. Take Care Everyone.
  40. 1 point
    Hi S- Hand pain was one of my first symptoms and disappeared completely when I started Sinemet. I've now been on Sinemet for five years and the hand pain will sometimes return when my medication wears off or if I use my hand in a job that requires gripping. If you do have PD the medication will hopefully relieve most of your symptoms. Good luck and keep us posted. Gardener
  41. 1 point
    Hi amy2beth and Kat2017, Dx'd at 46, 3 years ago. As others have said, PD progression is generally slow, with young onset typically even slower than later onset. We are fortunate, I believe, in that we have time to come to terms with our situation. Michael J. Fox has some things to say about acceptance I find helpful (and hopeful). PD's different for everyone, but in my case, there's not been much change in symptoms over the last three years. I work full time and, at this point, expect to continue until full retirement. I'm also doing some things now (travel, etc), rather than putting off what I may have less ability to do or enjoy later. Exercise is huge--with the best exercise being something you enjoy enough to keep doing. When the initial shock wears off, there are a lot of opportunities to get involved in PD research, from surveys, to genetics studies, to clinical trials. For me, being involved in research feels like taking an active role in my future, rather than passively waiting for (or fearing) what's to come. Best, David
  42. 1 point
    Hi Stump, Thanks for the update. The word-finding issue sounds a bit troubling--interested to hear what the exercises are and how helpful you find them. I lose a few words from time to time--post-dx, it's hard not to wonder if it's a PD thing. Shortly after dx, I participated in a research study that included a battery of cognitive testing, two days worth IIRC. Was able to share results w/ my MDS; we figured it would be a good baseline for comparison down the road. Clinical trial I just completed included a short cognitive test about every visit--a couple of drawing tasks, some memory stuff, name-the-pictures like you mention, and the 'every noun starting with the letter _ in one minute' thing. Really hate that last one--I assume I did well enough at it, as my MDS never said otherwise, but feel pretty incompetent under that kind of pressure, regardless. Gets the tremor going, too. Re: DBS. It may be a few years off, but closed-loop machines seem very promising. Basically, the stimulation is continuously modified, in response to what is going on in the brain. Some details here (more specific to cortical stimulation than deep brain, but covers that, too): http://www.sciencedirect.com/science/article/pii/S1388245714000376#b0170
  43. 1 point
    Today, I fill my lungs with the sweet life of morning and hope. -S
  44. 1 point
    And really, really, really thankful for Doc, my wonderful service dog who brings light into my life every minute of every hour. Sorry, Doc, for leaving you off the list yesterday. Bill.
  45. 1 point
    I am thankful to have been blessed with the years I have lived, the experiences I have had, and the family and people around me. PD has fined tuned my priorities and sense of time like LAD discussed. We are all going to die some day, few get to choose, and I do not take the next hour or day for granted. I am just as vulnerable to be killed in a car wreck, or due to the mistake of someone else, by some other disease yet to come-- who knows? I look ahead and not behind. PD is another personal challenge in my life and Lord willing I will continue to deal with it.
  46. 1 point
    Why would anyone be thankful for being sick? No, not so thankful for a shaking hand, or PD mask, or memory problems, or word search problems, or...or...or.... Nope, not so much.
  47. 1 point
    The reason why we were chosen remains unknown. The only plausible explanations or factors are, environmental exposures, genetic susceptibility, and age. I have no known family history, and since I am only 42 now it is reasonable to conclude that environmental exposures may very well have been a major factor in the manifestation of PD. The National Academy of Sciences, (NAS) and the CDC, subgroup ASTD, recently evaluated the medical and scientific evidence that the chemicals TCE and or PCE, is capable of causing PD, and concluded the evidence is strong enough to warrant VA Service Connection for PD due to such exposures. These same chemicals are also associated with Gulf War Service as components of the toxic soup Gulf War veterans were exposed to. These solvents are typically found in cleaners and degreasers. I have a campaign ribbon with an oak leaf cluster indicating two tours in the GW Zone. A total of nine months serving as a heavy equipment mechanic using degreaser daily. According to the MDS this more likely than not contributed to my PD. The natural aging process includes a loss of dopamine producing neurons as well as other pathological findings, some estimate that to be between 5-8% per decade. Dr. Okun, recently stated that this would be extremely hard to actually determine. The genetic susceptibility factors are estimated to represent an estimated 5-10% of all PD cases. This being determined by multiple members over multiple generations within the same family who have PD. The currently recognized genetic factors are also present in members of the same family who never develop PD, therefore most believe, "genetics loads the gun, and the environment pulls the trigger". This is of course merely my own lay persons assessment of the research I have reviewed.
  48. 1 point
  49. 1 point
    Dear forum members, It is important to always talk to your doctor about the benefits as well as the potential and important neuropsychiatric effects of PD treatments. Below is a recent review article on the topic. Australas J Ageing. 2012 Sep;31(3):198-202. doi: 10.1111/j.1741-6612.2012.00632.x. Neuropsychiatric effects of Parkinson's disease treatment. Aarons S, Peisah C, Wijeratne C. Source Psychologist in private practice, Sydney, New South Wales, Australia. Abstract Advances in the treatment of Parkinson's disease have led to significant improvement in many of the disabling motor symptoms of the disease, but often at the cost of neuropsychiatric side-effects. These include psychosis, dopamine dysregulation syndrome, impulse control disorders, mood disorders and Parkinson's disease drug withdrawal syndromes. Such side-effects can be as disabling and have as much impact on activities of daily living, quality of life, relationships and caregiver burden as motor symptoms. Awareness of these potential side-effects is important both in terms of obtaining informed consent, and to aid early identification and intervention, as patients may not spontaneously report side-effects because of lack of insight, or deny them out of shame or embarrassment. The challenge of treatment can be a trade off between the emergence of such side-effects and the amelioration of parkinsonism, best mastered with an informed dialogue between clinician and patient. © 2012 The Authors. Australasian Journal on Ageing © 2012 ACOTA.
  50. 1 point
    Advances in the treatment of Parkinson's disease have led to significant improvement in many of the disabling motor symptoms of the disease, but often at the cost of neuropsychiatric side-effects. These include psychosis, dopamine dysregulation syndrome, impulse control disorders, mood disorders and Parkinson's disease drug withdrawal syndromes. Such side-effects can be as disabling and have as much impact on activities of daily living, quality of life, relationships and caregiver burden as motor symptoms. Awareness of these potential side-effects is important both in terms of obtaining informed consent, and to aid early identification and intervention, as patients may not spontaneously report side-effects because of lack of insight, or deny them out of shame or embarrassment. The challenge of treatment can be a trade off between the emergence of such side-effects and the amelioration of parkinsonism, best mastered with an informed dialogue between clinician and patient.