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  1. 3 points
    Oh, we have four levels of classes. Bob, who was doing the Bosu Ball, is in the "Blue Class" I got bumped into "Orange Class" and like the chart implies, some days I feel like I'm maxed out on 10. The cardiologist has approved my intense workouts, with a bpm hitting 161! Normally I hit 145 bpm. The irony is my resting heart rate is now down to 52 with the working out. Hitting the 6 0 this year, so 161 is considered 100% cardio effort. A definite "9" on the chart. My MDS, PCP, Cardio, Pulmanory, Oncology all have one comment "You look great!" The exercise is a huge part of my medical treatment! I have some other odd stuff going on [ Eosinophils off the chart] but love the new doc. Stuck his head into the office, excused himself, came back a few minutes later and apologized but after reading my chart and meeting me thought he had gone into the wrong room!
  2. 3 points
    Here's the link: http://besthealthherbalcentre.com/testimonials.html They apparently not only cure Parkinson's, but ALS, COPD, Herpes, and just about everything else. Let's see...first time poster.... claims of a cure for just about everything. C'mon! Where's that eye roll Emoji???
  3. 2 points
    Hi NCFred, Key is to keep exercising. HIIT (High-Intensity Interval Training) is good! Cross-fit is good! Key, as pointed out, is not to hurt yourself but work up to those levels. I had blown out my lower lumbar disc. Think squished jelly donut. Found a great neuro/spine surgeon who explained if I felt OK to walk, keep walking! That helps the spine pump fluid and gives room for those "squished donuts" to come back together. In my case, no sit-ups. I do a modified crunches for ab workouts while the rest of the class is doing sit-ups! Thankfully our coach is great and has different instructors rotate our workouts, all geared for Parkinson's. I found starting the day with 10 Sun Salutations (yoga - google is your friend) gets me moving first thing after I've had my morning espresso. Working out, core exercises (yes planks and pushups with head-shoulders-butt inline have helped the back issues! Bob is rocking the Bosu ball. His rear should be lower, but what a way to celebrate your 80th birthday! Yes that is our class.
  4. 2 points
    Another good one ..."if you can't be kind, be quiet."
  5. 2 points
  6. 2 points
    Tjon In my personal experience, I am better off taking an evening dose even if I feel like I don't need it. I find that when I skip doses in the evening, the next day will not be as good. There is some buildup effect over time as well as you adjust. From your initial post, you seem to be on a high dose for someone that is just starting. If I am reading correctly you are titrating up to 1000 mg/day? That's a big dose. When I first started I ramped up over several months to 600 mg/day and found out the hard way that this was actually too high and causing some fluctuations (took almost a year to realize that). I added entacapone and reduced to 300 mg/day and am much better now. Everyone is different but I would recommend asking your neuro about dose schedule and if what you are currently on is too high. It is possible that the rapid titration to a high dose was for diagnostic purposes and not intended as long term therapy. (Some people are resistant to the lower doses, so some docs like to push the dose to make sure they aren't missing a benefit, for those patients that don't initially respond. It sounds like your response is not so much in question at this point though). The usual starting dose is 300 mg / day. The transition to your potential new reality may be hard but just remember that PD and happiness are not mutually exclusive. Many people are scared by the idea of a progressive disease, myself included, but progressive symptoms don't need to result in progressive unhappiness. Stay positive and enjoy the benefit that getting your meds dialed in can offer. Ed
  7. 2 points
    Hi Tjon, I have to disagree with the above post - Sinemet is not like Ibuprofen (take only when you have pain). My understanding is that Sinemet has a long duration effect and a short duration effect. It works best if taken on a regular schedule regardless of symptoms at the time of your next dose. Some people (including me) find that it keeps them awake at night and adjust their schedule so that the last dose of the day is not too close to bedtime. I use an extended release at bedtime which seems to help with that problem. I'm in my 7th year since diagnosis and, like Adams, get almost total relief of symptoms unless I'm under stress or very tired. Good luck and keep us posted. Gardener
  8. 2 points
    Hello Everyone, When I grow up, and develop better work habits, I hope to become more disciplined and attend to required paperwork in a timely manner. I have had the papers here to renew license sticker on my car for about 2 months. It can be done online or at a government office. I renew mine at the office usually but decided to do it online this time. You can do it online up to the date of expiry which would be midnite tonite. It took me about 25 minutes and had about 30 minutes to spare. Next year I will do it at 6 oclock on the day of expiry instead of waiting until 11 pm. Linda, the hospital is a teaching hospital affilliated with the University of Toronto and there are many wonderful and clever minds at work there. The group that will work on my brain take referrals from neurologists from all areas of the country. I think that is the way they keep things in order, in Budget and organised. Your cousin could contact the hospital, Toronto Western, and ask for the neurology department and make a request for an appointment but it would be a long process. Most specialists take new patients through your family gp which partially sorts out cases and they see the proper doctor. Does this help you any? Good to see and hear you She Ra, Cabin in the mountain sounds great to me. If the thought of snow excites you Sheila, I will swap you a farmhouse for a mountain cabin down south for 3 months next winter. Hi Dianne, sounds like a rough weekend for you. That tube is bugging you again! Still? Sorry for that. THE VIEW SOUNDS LOVELY. I'm sorry it will take awhile yet to get the dbs device but that is the way it is here. Oh well. Good Luck to your son LAD y for his singing. As of this week, I am now 60 yrs old. I can't believe that. Good nite my friends jb.
  9. 2 points
    JB, I am still here, reluctantly. I have experienced some progression, albeit mild, but enough to upset me for a while. It has greatly disturbed my state of denial. Had my MDS visit about two weeks ago and he increased my C/L which was another blow. Another bite of acceptance I guess...:( On a brighter note, DH and I are set to retire July 20. A couple of months ago, we moved full time to our Georgia "mountain" house up in NE Georgia but are still working full time in downtown Atlanta. It is a b!tch of a commute but we are saving quite a bit of money. Just a few more months to go. It actually snowed a tiny bit yesterday which always thrills me. Hugs to all here! I read everyday to see what you are up to. The smiles you give me help more than you know. Love, Sheila
  10. 2 points
    One of my interests is raptors, eagles, owls etc. I'm a veterinarian. An elderly man died leaving two Macaws in a cage. The animal control office brought them here to be euthanized. I dawdled while trying to find other solutions. My daughter volunteered at Tracy Aviary. One of their directors said he'd take the birds. The guy drove 3 hours to see and collect the two birds. I didn't hear anything more til he left a message for me. He said when he got the birds home his dog went ape-shit crazy barking. One of the birds screamed, "SHUT THE INAPPROPRIATE UP!" And the dog did, instantly. He wanted to tell me he couldn't be happier. He built them an indoor enclosure. And if the dog acts up the birds put him in his place by calling, "SHUT..."
  11. 2 points
    Hi all.., I have spent some time crunched in a corner at my son's vocal lessons watching him get ready for a competition next week...i anchor my arm on the armrest Here's a snippet of his one song....watch if you want ....have a good Sunday LAD
  12. 2 points
    Some days I fight, Some days I cry, Some days I get out bed and wonder why, But every day I walk with my head held high. Because I know, I will get by. Blessing Everyone.
  13. 1 point
    The way I live my life is not in spite of my disease...it's because of it. (I can't remember where I read that but it stuck with me) Choose to stay hopeful, strong & happy! LAD
  14. 1 point
    TURNING POINT with Dr. David Jeremiah--March 18 Peace, Be Still! Then [Jesus] arose and rebuked the wind, and said to the sea, “Peace, be still!” And the wind ceased and there was a great calm. Mark 4:39 In ancient literature, water often represents chaos. In Genesis 1:1, water covered the formless, empty, dark earth. God used a flood of waters to judge the earth in Noah’s day. In Exodus, the Red Sea threatened to destroy the escaping Hebrew slaves. And during the ministry of Jesus, storms on the Sea of Galilee threatened the well-being of His disciples. In each case, God brought order out of chaos; God was bigger and more powerful than the disorder. Recommended Reading: Psalm 89:8-9 There is a lesson there: Whenever chaos or danger appears imminent, our concern is not how big the problem seems but whether God is with us or not. The disciples learned this lesson when a storm threatened to take their lives on the Sea of Galilee. Jesus commanded the storm (the chaos) to be still and peace was restored (Mark 4:35-41). They learned that having Jesus with them was more important than the storm that was against them. If chaos is threatening your peace, let Jesus be your ark of safety in the storm. He can bring peace in any storm. Jesus Christ is no security against life’s storms, but He is perfect security in life’s storms. Wendell Loveless
  15. 1 point
    So, I'm dealing with a mild case of swimmer's ear right now. That just an outer ear infection. Last week the pool filter broke and the gym replaced it on the fly without really closing the pool down or changing out the water quickly enough. This too shall pass. Doc says take ear drops, get some ear plugs, should be gone in about 10 days. I can still swim though. Which is good cause I signed up for swimming lessons at the local community center. I'm trying to learn the breaststroke, the backstroke and the flip turn. On the PD front, I've been waking up with a tremor some mornings - not every day, but often enough. And the occupational therapy for the dystonia in my hand seems to be helping with the pain some and grip strength. I'm supposed to get a physical therapy evaluation next week - I've got some mild freezing going on so I'm trying to pick up a few tricks on how to get up quickly and how to walk a bit more smoothly. I'm also getting some work on knowing where my hands and are placed - hopefully that will cut down on the knocking things over. -S
  16. 1 point
    Sherrie, the dyskinesia I experienced in 2012 was due to having been prescribed way too much carbidopa/levodopa for several weeks. When the dosage was suddenly reduced, my body reacted with more severe dyskinesia than I had when the dose was too high. I later learned that I have biphasic dyskinesia; I become dyskinetic at the peak of the c/l dose and as the c/l leaves my body. Dianne
  17. 1 point
    Thanks for posting, NC.
  18. 1 point
    Doubleup, The first Neurologist I saw was a general neurologist who had and treated many Parkinson's patients. I went to him after I noticed that my right arm had stopped swinging, my right hand would curl up into a fist, and I had stiffness in my neck and shoulders. I also noticed a minor tremor in my right middle finger. He said he strongly suspects that I have PD after going through a battery of test. He then recommended that I go to the University of Rochester's Movement Disorder Clinic. His hope is they would want to do a DatScan, the only test he did not do and did not have the ability to do. He was also hoping there would be a study I could join since I was young and a rare case. The first MDS I saw I was not impressed with. She did order the DatScan because of my young age to make sure I was not have some other issue. I went through with the DatScan and received a copy of it in the mail a week later. It also included a results letter from the examining neuro. It stated that my scan was consistent with PD if clinical results suggested PD as well. I then got a call from the clinic asking if I would like to join a study. I said yes. On my first study appointment they did the clinical exam then looked at the DatScan results and accepted me into the study. The study lead neurologist was accepting new patients so I had her become my main MDS. Once I was part of the study I had to remain off meds till I had completed six months of the study. It was a struggle but I stuck with it. Once I had my Six month study appointment we started with Azilects then 2 months later added sinement or C/L. I felt so much better. The search is tough, some much of the diagnosis process is subjective and base solely off of a neurologist opinion. I hope you find the answers you are looking for. Can I ask. Are you having other symptoms as well as the tremors?
  19. 1 point
    I agree with gardener totally, I did significant research before deciding to take Carbidopa/Levodopa aka sinemnet. There is no evidence that suggest C/L is solely responsible for dyskinesias based on the amount you take in a given day. I have met and talked to several people who take over 1000mg of c/l a day and do not have dyskinesia. Dyskinesia happen with a combination of disease progression and use of sinement. One study that is in its infancy suggest that dyskinesia happen when a chemical in the brain called GABA starts to diminish because Parkinson's disease has progressed to a point to affect its production in the affected part of the Parkinson's brain. The brain Chemical GABA acts like a throttle on a car, it meters how much dopamine reaction is need when the brain sends a signal. When that is no longer present the signal gets over intensified and you get dyskinesias. Remember, when big pharma came up with there synthetic dopamine called agonist, they spent millions discrediting C/L so they could reap billions in profit for their new creation with terrible side effects. This stigma still exist today even though big pharmas studies have been disproven. Want you to have the whole story when you make your decision Blessings Adam
  20. 1 point
    Hi NCFred - My routine is varied but I try to move for one hour a day minimum - including mat pilates, a bicycle HIIT routine, and 30 min on cross country ski machine 3 x per week, walking (outdoors if possible) for at least 30 minutes daily, free weights lifting 2 x per week. I don't participate regularly (yet) in any PWP classes as I don't find they push me enough but I do like the support aspect. I have found that the nutrition and sleep aspects of my life also hugely impact my symptoms so I follow the biohackers and alt medicine doctors for other ideas. Good luck. LindaG
  21. 1 point
    "We all have the drum major instinct. We all want to be important, to surpass others, to achieve distinction, to lead the parade. And the great issue of life is to harness the drum major instinct. It is a good instinct if you don't distort it and pervert it. Don't give it up. Keep feeling the need for being important. Keep feeling the need for being first. But I want you to be the first in love. I want you to be the first in moral excellence. I want you to be the first in generosity." (--Dr. Martin Luther King, Jr.)
  22. 1 point
    Hi, DB. Thank you for your post, which clearly explains what we learn through the Bible of why it is necessary and how someone becomes a Christian. I had a hard time understanding the concept of Christ dying for us (even early on in Bible college). I think what made it clearest to me is in reference to #1, above. I heard that God is so holy that anything sinful cannot be in His presence. For some reason, that made it clear to me. It's interesting how some of the simplest things can be made clear by just a certain turn of phrase. I turned to Christ as a young girl through a Christian Bible Camp ministry here in Maryland. I've always been amazed when looking back and seeing all of the influences the Lord brought into my life to draw me to him. My little 7-year-old neighborhood friend and my dad were very early-on influences. A Christian friend of my aunt offered to send me to the camp. I remember in my older years at the camp asking why prayer is said to God and to Jesus, but I was perplexed when someone prayed to the Lord. I asked who the Lord is. A friend explained that that covers all three--God, Jesus, and the Holy Spirit. We laughed together at the way she explained it. Such simple things that I didn't know and more things I am still learning as I go along. It never gets boring. I remember how grateful I was to learn of the Lord's love for each and every one of us and how He longs for us to love Him. His desire is that everyone would come to Him. "No greater love hath a man than to lay down his life for a friend." Jesus said that, and He did just that, out of love for us. He took our sins upon Himself and suffered the punishment for them. For us. And all He asks is that we come to Him--into His loving arms--asking His forgiveness for our sins and committing to following Him. I'd love to hear from others about their coming to Christ. I find it so interesting as to what pulled/lead them to believing in and determining to follow Him.
  23. 1 point
    https://www.christiancourier.com/articles/971-biblical-concept-of-atonement-the THE BIBLICAL CONCEPT OF ATONEMENT BY WAYNE JACKSON The English word “atonement” derives from an Anglo-Saxon term which, practically speaking, signifies “a making at one.” Though the English term “atonement” is common to the Old Testament, it is found only once in the New Testament (Romans 5:11 KJV). There the original term katallage is better rendered “reconciliation” (ASV; cf. also 2 Corinthians 5:19). The Greek word denotes the “reestablishment of an interrupted or broken relationship” (F.W. Danker, et al. 2000. Greek-English Lexicon. Chicago: University of Chicago. 521). In the biblical context, atonement has to do with the plan employed by the Lord to provide a way of salvation for sinful humanity by means of the redemptive mission of Christ. Here are the basic facts. (1) God is a perfectly holy Being (Isaiah 6:3; Revelation 4:8); sin, therefore, is contrary to his very nature (James 1:13). As a truly holy Being, the Lord cannot ignore sin, or tolerate wickedness indefinitely, in any form (Habakkuk 1:13). (2) Jehovah is also a God of justice. It is the very foundation of his rule (Psalm 89:14). Accordingly, some satisfaction for sin must be made. The principle is this: “The wages of sin is death” (Romans 6:23). (3) If, therefore, man was to be redeemed, God would have to extend mercy (cf. Ephesians 2:4) in some fashion whereby divine justice could be satisfied. Exactly how was that to be achieved? A “death” would be required to remedy the problem (Hebrews 9:22). (4) The solution is realized in the gift of Christ. Jesus lived the sinless life (John 8:29; Hebrews 4:15; 1 Peter 2:22), and therefore became qualified to function as a substitute offering on man’s behalf (cf. Hebrews 5:8-9). Through Jesus’ death, Heaven’s requirement of justice is satisfied (see Isaiah 53:11; Romans 3:22ff). Hence, the atoning offering of the Son of God became available to all men (Isaiah 53:6; John 3:16; 1 Timothy 2:4; 2 Peter 3:9 (5) Jesus is the author of eternal salvation to all who obey him (John 3:36; Romans 6:17-18; Hebrews 5:8-9). One is reconciled to God when he, through obedience, accepts Christ as his “atonement” offering. SCRIPTURE REFERENCES Romans 5:11; 1 Corinthians 5:13; Isaiah 6:3; Revelation 4:8; James 1:13; Habakkuk 1:13; Psalm 89:14; Romans 6:23; Ephesians 2:4; Hebrews 9:22; John 8:29; Hebrews 4:15; 1 Peter 2:22; Hebrews 5:8-9; Isaiah 53:11; Romans 3:22; Isaiah 53:6; John 3:16; 1 Timothy 2:4; 2 Peter 3:9; John 3:36; Romans 6:17-18 CITE THIS ARTICLE Jackson, Wayne. "The Biblical Concept of Atonement." ChristianCourier.com. Access date: March 10, 2018. https://www.christiancourier.com/articles/971-biblical-concept-of-atonement-the
  24. 1 point
    Today's Turning Point with Dr. David Jeremiah Four Burning Questions—For What Will It Profit a Man… March 10, 2018 For what will it profit a man if he gains the whole world, and loses his own soul? Mark 8:36 Two brothers in Wichita, Kansas, won the lottery, netting $75,000. They celebrated by purchasing narcotics. While using a butane lighter with their drugs, the vapors reached the pilot light of their furnace, causing an explosion that destroyed their house. One of the brothers was rushed to the hospital, and the other to jail. In the literal flash of a moment, the luckiest moment of their lives became a nightmare. Recommended Reading: Mark 8:34-38 Millions of people feel they have won life’s lottery. They’ve accumulated homes and clothes and vehicles and sufficient financial reserves to pay their bills and ensure their futures. Some have become rich. But sooner or later, it will all disappear in the flash of a moment, for without Christ there’s no hope of eternal wealth or everlasting life. The Lord provides for the needs of His children, and He gives us the wisdom to be wise stewards over what He entrusts to us. Our long-term well-being is found exclusively in God’s mercy toward us in Christ Jesus, which is why in all things He must be preeminent. When I put God first, God takes care of me and energizes me to do what really needs to be done. David Jeremiah http://www.davidjeremiah.org/site/magazine/daily_devotional.aspx?display=devoprod&tid=email_edevo-wknd-0310&_zs=tPmw91&_zl=JuhL4
  25. 1 point
    Update...my son is in the semifinals in his competition tomorrow😊 LAD
  26. 1 point
    Today's Turning Point with Dr. David Jeremiah Thursday, March 8 No Secrets But immediately, when Jesus perceived in His spirit that they reasoned thus within themselves, He said to them, “Why do you reason about these things in your hearts?” Mark 2:8 When children are very small, they develop a predictable short list of answers to some of their parents’ routine questions: “Did you eat the cookies?” “No.” “Will you go and pick up your toys?” “I’m too tired.” “Please come and help me set the table for supper.” “Okay—in just a minute.” Parents understand these responses because they are childish versions of their own (occasional) responses to their own responsibilities. Recommended Reading: Psalm 44:21 Sanctification involves learning to think and act honestly and righteously before God. And one of the primary motivations for righteous acts and thoughts is that God knows what we think, and what we think about doing, all the time. We have no secrets before God. When a group of men brought their friend to be healed by Jesus, a group of Pharisees took exception—silently—to Jesus’ compassion on the man. Jesus called them out on their self-centered and non-compassionate thoughts (Mark 2:1-12). Jesus knows the human heart like parents know their child’s heart. Rather than be “called out,” far better to have thoughts we are willing for God and man to know. When anger was in Cain’s heart, murder was not far off. Matthew Henry
  27. 1 point
    Thanks for saring this web site, Ginger LAD. Just what I've been looking for, and I plan to start it soon. Linda
  28. 1 point
    I think many people with YOPD have a similar story of a skeptical doc that does not want to commit to a diagnosis. Second opinion is definitely valuable. I'm on my third neuro after only a few years in the club. I too started with Azilect but developed impulse control problems on it. (It's not that common for this drug but just keep an eye out and don't ever walk into a casino). I had issues with night sweats that seemed to relate to being overmedicated in the late evening. I'm on sinemet now but I generally avoid taking it after 6 pm. I also had a lot of sleeping issues and finally tried melatonin. I take 3mg in the "gummy bear" form right before bed. 30 minutes and I'm out cold till 7 am. It took a week or so to get used to but I'm glad I finally let my neuro talk me into it. (I had bad experiences previously with melatonin but found the gummy form was way better for me, and it took time for it to really help). With the amount of stiffness you have has your doc considered sinemet? As far as risk /reward it's approximately 1000000000000% safer than a narcotic pain killer. Just a thought. As for dealing with the transition to your new reality, the nice thing is that PD is typically slow and lazy as a disease so you have time to adjust. I had similar feelings as you do but then I eventually got used to it and found a good med routine and now it's just an annoyance. Just know that there is a good chance you will be able to dial in meds better than they are now and you may well feel better next year than this one. In fact I'd bet you will agree with me a year from now. I was diagnosed a few years ago and still feel better today than the day I was diagnosed. Am I objectively better according to lists of symptoms etc.? No, probably not, but I feel better so heck with it. Don't believe the myth that life only gets worse after a PD diagnosis. Hogwash!
  29. 1 point
    Michelle, You are more than welcome. Anytime.
  30. 1 point
    Loss of smell often makes it harder to taste food and sometimes people with PD simply eat less or don't enjoy food as much as they did in the past. This can lead to unintended weight loss which can be a very serious problem. Upping the spices can help some and watching for weight loss is really important.
  31. 1 point
    JB- I too read GOOD NIGHT MOON 20000 times. I would do it all again in a heartbeat! LAD
  32. 1 point
    This is a little long, but an excellent read. Based on II Timothy 3:2-4,7. Controversy swirls around last week's tragic shootings at Marjory Stoneman Douglas High School in Parkland, Florida. As is to be expected, the information being revealed about the shootings is sketchy and often contradictory. Arriving at the truth about these events is usually a tortured process. The final story is seldom what it appears at first to be. Two things are clear to me, though. The first is that certain factions appear to have been poised and ready to strike a blow at the Second Amendment at the first opportunity. As Rahm Emmanuel said -- and Hillary Clinton confirmed -- one should never let a good crisis go to waste! The second is that, contrary to what the four students we are seeing across the mainstream media may think, guns alone are not the problem. It is simplistic to think that and will be disastrous to continue to believe it. Our problems run much, much deeper than guns. America is in a moral free fall. We are at a cultural crossroads and if we choose the simplistic path, we will be doomed to collapse. Sooner, perhaps, rather than later. In 1962, there were few laws governing the ownership and use of guns. In 1962, there were no school shootings. In fact, in the entire 20th century, there were 227 school shootings. In the first 18 years of the 21st century, there have been 207! And that alarming number despite the fact that we have an ever-increasing number of ever-increasingly restrictive gun laws. Now, I'm no rocket scientist, but it seems to me that if school shootings have gone through the roof AFTER we started tightening our gun laws and even creating "gun-free zones" (schools and entire cities), then there is either no relation between the two or the restrictive laws are contributing to the increase in violence. Why is it that in the "old days," young men carried rifles to school in the gun racks of their pickups, and some schools even taught shooting classes and competed against each other in shooting competitions, yet we would go entire years with no school shooting incidents? Simply because guns don't cause violence. Humans do. And until we realize that we humans are the culprits, we are going to see more incidents as tragic as Parkland, or more so. The Apostle Paul warned that in the last days, people would be "without self-control, brutal, haters of good...." (2 Timothy 3:3 NASB) Is that not a perfect description of what we saw last week in Parkland? Or Las Vegas? Or Sutherland Springs? Or San Bernardino? Or Orlando? Or South Carolina? Or Aurora? Or Newtown? Or Columbine? Or... and the list goes on. Unimaginable brutality. Experts who are much smarter and better informed than I have warned for years that we are raising a generation of "avid video game players who turned their sick fantasy into our tragic reality." And, "From a military and law enforcement perspective, violent video games are 'murder simulators' that train kids to kill." (Lt. Col. Dave Grossman, US Army, Ret.) Obviously, video games alone have not bred this climate of violent brutality. Movies, television, the music industry, academia, social media, the breakdown of the family, and more have all contributed to the moral depravity that has engendered such self centeredness, lack of self control, and brutality. But I believe the most critical contributor to this onslaught of violence, brutalness, and terror that now grips our schools and our lives is the fact that America has turned its back on God. When our nation made the decision to begin systematically erasing God and His influence from our national psyche, beginning with our schools, we started down a road that has grown ever darker and more treacherous with each passing day. It's like a man who stops eating nutritious foods and taking vitamins, then wonders why he is getting weaker and experiencing greater health problems. What did we think would happen when we decided to cut ourselves off from the very life stream that has brought America so much blessing, so much abundance, and so much freedom and safety? In 1962, the US Supreme Court decided that it was no longer constitutionally acceptable to have institutional prayer in our public schools. Of course, that didn't necessarily stop everyone from praying at school. Ronald Reagan observed at the time that "as long as there are final exams, there will be prayers in school." But when we proclaimed as a matter of national policy that God and our acknowledgment of Him and His positive influence in our lives was no longer important or acceptable, we did something dangerous. We closed the door to God and opened the door to Satan. It's not that America chose Satan over God, we didn't. But we told God that we didn't need Him, that we could handle our lives and our futures by ourselves. We didn't need His influence in our lives, but, most importantly, in the lives of our children. We -- through our teachers and professors -- were quite capable of raising good kids without Him. Now, just two generations later, America is on the brink of becoming a third-world nation filled with violence, tribal conflict, poverty, and exploding danger. And I believe it's largely because we have raised 57 years of children who think God and His principles are not at all important. And why do they think that? Because we taught them exactly that when we kicked God and His influence out of public education -- the very place He is most needed! The prophet Hosea could have easily been describing modern America when he wrote: "For they have sown the wind, and they shall reap the whirlwind; it hath no stalk; the bud shall yield no meal: if so be it yield, the strangers shall swallow it up." (Hosea 8:7 KJV) We have walked away from God and chosen to trust our own intelligence and abilities. The anemic seed we have sown is now yielding crops we never anticipated or desired: anger, despair, selfishness, hatred, lasciviousness, violence, sheer brutality, and so much more. Doesn't that sound eerily like the description Paul gave for these times? "...men will be lovers of self, lovers of money, boastful, arrogant, revilers, disobedient to parents, ungrateful, unholy, unloving, irreconcilable, malicious gossips, without self-control, brutal, haters of good, treacherous, reckless, conceited, lovers of pleasure rather than lovers of God... always learning and never able to come to the knowledge of the truth." (2 Timothy 3:2-4, 7 NASB) This week, Michael, my son in the Lord, sent me a photograph of a t-shirt. It was emblazoned with a powerful truth. It read: "Dear God, why do you allow so much violence in our schools? Signed, a concerned student." Below that was written the reply: "Dear concerned student, I'm not allowed in schools. Signed, God." Folks, I'm not saying that one disastrous Supreme Court decision in 1962 caused all of the mayhem that has followed, but it is indicative of the path America chose. It shows that, as a nation, we determined that God was unimportant to us. And when you walk away from God, you must walk toward something, or someone, else. As Bob Dylan once sang, "You gotta serve somebody...." On a personal note, I am, at once, saddened and joyful at the passing of our brother, Billy Graham. I believe he was the greatest influence for the Kingdom of God of our time. Truly, only eternity will reveal the impact he had on our world. His influence will always be felt, but his presence will be missed. I smile when I read what Billy once said. Echoing D.L Moody, one of his heroes, Billy said, "Some day you will read or hear that Billy Graham is dead. Don't you believe a word of it. I shall be more alive than I am now. I will just have changed my address. I will have gone into the presence of God." What encouragement for those of us who remain here. We, too, will soon change addresses. What a great day that will be. So long, Billy. See you soon. HL Ministries--2/23/18
  33. 1 point
    Had lunch yesterday with some friends at our pub where we ate newest trends. Then we walked to the new pool which lends old/new residents...what? It depends... on one's view of one's savings it rends. Then we walked the long halls with some bends, as I prayed the next bend (please!) just ends. It was fun--but this Parkie, she tends to need rest and time out, so she mends. So, "So long!" to her friends she then sends, and to home and a rest she then wends. This is how her slowed life it now tends.
  34. 1 point
    I love fables! But I don’t remember those. I was reading Aesop fables so that would make me 2600 years old. BC.
  35. 1 point
    I have been getting botox for a few years now. I get a few shots in my neck to keep my neck up straight I also get some in my shoulder it tends to creep up so i look like I am shrugging my houlders. Not a pleasant experience but it works
  36. 1 point
    Hey NCFred, My nephew runs a crossfit gym. It's pretty intense and there seems to be a few injuries from people coming in and trying to keep up with those folks who are already working out at a high level. So just be careful, is my only advice. -S
  37. 1 point
    PWP-people with Parkinson's- you will see that often on the forum. www.pwr4life.org is the website for PWRMoves I also take ballroom dance lessons with my husband-highly recommend it! LAD
  38. 1 point
    Crossfit is intense...don't injure yourself. I do a program with a small group of PWP. Our trainer is certified in PWRMOVES. We do everything from boxing to weight training, yoga & dance! It helps to have others who understand your issues plus we have become a support group. Good luck! LAD
  39. 1 point
    Good Morning everyone, Hi Em, thats a cute little poem, I wish you would post more of those. It makes a bit of time frame as well. You have had PD for 13 years. If I used your poem outline, I would say: PD can be annoying, I'm sure you all know. Diagnosed at 49, now I am six oh! You have been dxd for 13, and I for 11 years of pd EM, I think I almost forget what normal feels like. I have a dental appointment this morning to fix a broken filling. I hope that I don't get all dyskinetic and chew the fingers of the dentist. LInda, thanks for your kind words as always. I did make up little stories for the kids when we were driving. When I write about animals and nature and the Farm, I know that my thoughts are influenced by a set of books that I first discovered I will tell you some of the characters and lets see if anyone reading here today, knows the name of the series. Johnny Chuck, Sammy Blue Jay, Reddy Fox, ooh this is too easy for you. gotta get going. be safe, jb
  40. 1 point
  41. 1 point
    This was the case: https://www.casewatch.org/board/med/hinz/HINZ, Martin C 5-12-01.pdf Wow. Dr. Hinz had serious problems with his medical license in Minnesota. He had to pay thousands in fines and undergo lots of training to get it back. The link gives lots of details about patients under his care. This was the reinstatment: https://bmp.hlb.state.mn.us/disc/HINZ, Martin C (PY31670)/HINZ, Martin C 3-12-05.pdf
  42. 1 point
    Hi Linda, Good advice. I'm skeptical of anything from Marty Hinz, MD. See below from Dr. Okun This is a public report written about Hinz and his company that appeared recently (Star Tribune) and details some of the companies claims and actions taken by the FDA. Apparently, the FDA had major concerns over the marketing techniques but you should read and decide for yourself: http://www.startribune.com/fda-acts-against-duluth-firm-selling-dietary-supplements/129808958/ FDA acts against Duluth firm selling dietary supplements The company has agreed to change its marketing tactics. By Jennifer Bjorhus Star Tribune DECEMBER 27, 2011 — 12:03PM A Duluth company has agreed to stop making unproven medical claims about the amino acid dietary supplements it sells after the Food and Drug Administration filed for an injunction. West Duluth Distribution Co., doing business as CHK Nutrition and NeuroResearch Clinics Inc., has been making drug-like claims that its amino acid capsules and powders can treat and cure various diseases, without the required regulatory approvals for a new drug, the Food and Drug Administration (FDA) said Wednesday. The companies' owners, Martin C. Hinz of Florida and his daughter Amy Gunthert-Hinz of Duluth, signed a consent decree Tuesday agreeing to change their marketing tactics. There's been no accusations that anyone's been hurt by the products, said lawyer Mark DuVal, a regulatory expert the companies hired. Their attorney Josiah Lamb said neither Hinz nor his daughter would comment. In a statement, CHK said its products are safe and effective. "We have been in contact with representatives of the FDA, and we expect to resolve this matter shortly by making appropriate changes to our promotional materials and resume selling," it said. Hinz could not immediately be reached for comment. DuVal described him as a well-known speaker and writer on the benefits of taking amino acid supplements. Hinz holds an active medical license in Minnesota, where he attended the University of Minnesota Medical School, according to the Minnesota Board of Medical Practice. However, the board has taken several disciplinary actions against him, starting in 1996 when it suspended his license after he was hospitalized in Duluth for bipolar disorder with sleep deprivation. Later actions show continued concern over his ability to practice. It suspended his license again in 2001 after a skills audit "identified concerns with [his] medical knowledge, prescribing practices, competency, and recordkeeping," but stayed the suspension contingent on his full compliance with the terms, provisions and deadlines set by the board. The license was reinstated in 2005. One of the things the FDA objected to was a link on CHK Nutrition's website to NeuroResearch Clinics' website where there were discussions about "amino-acid therapy" for treating such ailments as Parkinson's disease, Alzheimer's, depression and attention-deficit disorder. The FDA said it warned the company to stop making unapproved drug claims, but it didn't. DuVal said he was sympathetic to the FDA's mission to stop "elixir salesmen." But he accused the agency of being overzealous in its attempts to regulate the ill-defined field of dietary supplements and probiotics, which includes encapsulated microorganisms such as those found in yogurt. "It's a huge issue," DuVal said. "It's an emerging field, but it's an important one because that's where society is going. We're relying less on traditional Western medicine, which is reactive, and we're trying to be more proactive about our health." CHK Nutrition is the latest Minnesota supplements company the FDA has hit. In June, the FDA accused an Eden Prairie firm called UAS Laboratories of making unproven medical claims about its probiotic products, and U.S. marshals raided the company, seizing more than 80 cases of its products. In that case, the company also agreed to change its advertising, website and labels, said DuVal, who also represents that company.
  43. 1 point
    I see a neurologist every 12 months and any time in between visits if there is a problem with my meds.
  44. 1 point
    It also depends on if you are interested in getting involved in research. I would think the centers may have more opportunities....you can look into that if that interests you. No right or wrong answer If it's an MDS and you like them. Start exercising if you don't already. Don't get hung up on what's the right way...just do something you like to get moving! LAD
  45. 1 point
    I go to the MDS every 6 months. As for which MDS to go to, that's hard to say on the internet. Assuming they are both good doctors and up on the latest info, I would go to the closer one. The "gold standard of treatment" hasn't changed in many decades and I'm not sure what would be gained by driving the extra miles. The best treatment advice you'll get from any doctor is EXERCISE!
  46. 1 point
    This is a great topic/thread! Thanks for the great posts! A couple of my favorite verses: Isaiah 26:3-4 You keep him in perfect peace whose mind is stayed on you, because he trusts in you. Trust in the Lord forever, for the Lord God is an everlasting rock. To help me keep my mind on God there are time it's important for me to read through and pray the 18 attributes of God defined by A.W. Tozer. Here's a web link to them: https://www.allaboutgod.com/attributes-of-god.htm If I can stay focused on the REALITY of our great God, and his promises through Christ joy is possible. Another great source of encouragement is to listen to worship music on Youtube as much as possible. I"ve "saved" something like 200 songs in a list that normally begins my every day.
  47. 1 point
    This exercise post is near and dear to my heart. I am 55 years old and in pretty good shape. I have always been physically active. I've been involved in martial arts for years and I also enjoy going to the gym and lifting weights, among other things. I was diagnosed about 3 years ago. Even before my diagnosis I was starting to slow down on some of my activities because of excessive fatigue. I still go to the gym and my martial arts classes. I just don't try to be superwoman anymore. When I read that study that says intensive exercise will stop progression of the disease I was excited and thought "Yay! This proves what I already believed" because my progression has seemed to be slow so far. So I jumped on the bandwagon and increased my exercise. I enrolled in some classes at a local MMA school called "Fight Fit" which is basically an extremely difficult HIIT class that lasts for an entire hour. I was very proud of myself when I made it through the first class. However, this was not without a lot of increased tremors going on and literally almost no energy to get myself in the car and drive the 2 miles back home to my house. The next day I was exhausted and I felt like every last bit of dopamine had been wiped out of my body. Hmm...I thought exercise was supposed to make you better and increase your dopamine production. Where are those endorphins? I don't like to give up because like I said...I'm hardheaded, I'm a woman and I think I can be superwoman. The article says I need intensive exercise will make me better so I'm not giving up. I ended up going to 2 more classes. When it was time to go to the next class I literally cringed inside. I couldn't bring myself to go and do that to my body again. I loved the actual exercise and the comaraderie of the other women in the class. But I just felt sooo bad after the class and the next day. My symptoms actually started getting worse and then I started feeling depressed. Yes I know that I can do other exercise but I've actually been having a hard time in some of my martial arts classes lately because of an increase in tremors. I actually quit my Saturday class cause they practiced for 3 hours. I have felt like a failure because I'm now doing less exercise than I was before diagnosis. Yet everybody tells us that you must do intensive exercise. I talked to a friend who's had this disease for 25 years. She made me realize a few things about this "study" that is posted all over the internet. 1) This is not a scientific study by any means. 2) Everybody progresses at a different rate so you can't compare one person to another. 3) There's no way to determine how much somebody would have progressed in 6 months if they had not done the exercise. Seriously, there's no baseline. Six months is a very short time in the space of a lifetime. They might not have gotten worse during that time. 4) What the hell is "intensive exercise?" The study doesn't even mention how long the subjects exercised for. Obviously intensive exercise will be different for every person. So I decided I'm not going to let myself get depressed because I can no longer do "intensive exercise". I'm going to continue doing whatever I can. I'm really sick of all the people who post pictures of themselves doing bodybuilding, running marathons and similar things and trying to tell the PD community that they are not progressing because they are doing this intensive level of exercise. Maybe the truth is that their disease is progressing slowly so therefore they have the ability to continue working out like that and not the reverse. Seriously, an entire year before I ever had a tremor or other symptom of PD I suffered with extreme fatigue. At the time I was going to the gym doing a five day split, lifting very heavy (for a 110 pd woman). I was so tired in the evenings, I could barely make dinner for myself and my teenage son, then I would be crawling into the bed. My mom kept telling me to go see the doctor because that wasn't normal. Of course, I refused because I thought it was just because I had increased my weight lifting routine and I just needed to get used to it. I didn't want to quit because I had a goal. Anyway, the doctor's would have never figured out what was wrong with me even if I had gone cause I was misdiagnosed even when my tremors started manifesting. I'd like to end all this rambling to say that PWP should always keep moving and do whatever exercise they are capable of doing even if it's just walking. Yes, it will help you to feel better and probably help to keep your muscles from becoming rigid and locking up on you. However, there is no scientific evidence that it will keep you from progressing. Likewise, you are guaranteed to feel like crap if you give up and lay in the bed all day.
  48. 1 point
    Kathrynne Holden was the nutritionist. She now has a Facebook page titled Parkinson's - Chew on This. She is always very helpful. Dianne
  49. 1 point
  50. 1 point
    Dear all, when i was first diagnosed, I was married and certainly did not see myself getting divorced even though it was a difficult marriage/ Because of my nature and the diagnosis,. it becam,e even ,more obyious to me to go and do tehe projects and trips[ the earliier the better.; My hiusbamf was not of the same mind. I see now that he was in denial. I decided to takea 3 week religious pilgrimage to India and gave him four years notice but as we drew closer to my leaving,things deteriorated. We divorced; i war quite awhile. So i rented a tiny cabin and have been very happy.However,, in March of this year eveything changed. My Parkinspm worsened. My medications did not work so well and i had extremely painful dystonia in legs and back for any wheres from 1-4 hours every day. At one point was in hospital and needed help at night. I had friends alternate and stay for a night. They were all fantastic,but I wore them out So i managed a way to keep on by myself, but it was sio scary when the discharge planner at the hospital asked who lived with me, who was going to help care for and i just burst into tears. I had no idea. And my head would spin trying to think of possibilities when no extra money available. Fortunately, the setback was temporary. Then i started looking at my possibilities for when it happened in the future. i am so grateful that my husband had taken out a long-term care policy that included assisted living.. So looked around, found one that o really liked and now i feel reassured. My hardest moments were when i was awake and alone at night and i was in a lot of pain. I just wanted to cry out to him and be soothed, i have a great network 0f friends and spiritual community and now i know where i can go when i can't take care of myself. It certainly has been easier to look into before i really need it and also to find out things like i need to pay the first three ,months with my own money. I do believe that I made the right decision because even though i would have security with my ex-husband, emotionally i would be happier alone that has proved true. We are friends and i still love him but unfortunately that doesn't solve everything' My heart is with all of you who are out there living alone, love Viriyagita