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Showing most liked content since 09/22/2017 in all areas

  1. 6 points
    Chronic By Superdecooper © 2010In the comfort of my dreams, I feel no pain.No heartache. No hurt coursing through this unpredictable frame of mine.I’m clear like a stream, questing for the blue ocean’s warmthBut Time, my subtle enemy, rushes me unwillingly towards the moment I awake.I struggle to smother all the small prickles of fear that the coming transition will bring.The warm comfort of my dreamscape fades.I wake into a world of tattered thoughts, unkind nerve endings and the edge of memory.Still, I hope it might be a good day.Maybe no rain in the forecast, bringing chronic pain.No mysterious body movements that spark instant regret.I fill my lungs with the sweet life of morning and hope.But then, like a death-row denizen, I exhale. Slowly I breathe out hate for the pinch of thorns shackling my release. Hot, dull, deep, unrelenting, and unforgiving pain greets me. In between each breath, I debate the sacrificial bargain awaiting my acceptance.Do I swallow each small capsule at every appointed hour?With just the right combination of rainbow tablets, I will be granted the power to bring this disaster under control.I summon the strength of will to exchange my cool intellect for a dulled, foggy existence haunted by the grey specter of pain.For just one more day, I agree to do less, think and be less.In exchange, the thorns will be blunted just enough for me to remember.When true night falls, I will dream again.
  2. 3 points
    One of my latest music videos. Probably better to listen to than watch, since it doesn't show a lot. I tend to get stressed with a camera pointed at my face, versus pointed at my hands
  3. 3 points
    Good morning everyone, Good morning Ginger LAD and Violet Linda, Thank you for the kind words. My sister Sue tells this story from long ago better than I do. Mom was cooking supper for a family group that was coming to her house. Alice had been sick that week and as supper cooked my Mom was making soup for her. Sue was trying to help Mom with cleaning up to make ready for the incoming company when she realised that Mom was going to Alice`s house up the road to deliver the soup. We better get cleaned up here Mom said my sister Sue. First I deliver this soup my Mom replied. Alice is a lot more important to me than Company finding my house in a bit of a mess. Kind acts that help others cannot be given a dollar value, but if they could, My Mother has given away a fortune in her lifetime.
  4. 3 points
    Hi Doubleup, I empathize with how troubling all the uncertainty can be. But if it were me, I would be very hesitant to pay out-of-pocket for a DaTscan. Clinical diagnoses by an MDS is very accurate--as accurate or more so than a DaTscan. For example, my PD symptoms are quite mild--a couple weeks ago, I participated in a presentation to first year med students about YOPD. Only about a third of the group was able to see that I had any symptoms, in spite of having just seen an MDS give me a neurological exam and being told (by both of us) exactly what to look for. Yet, three years earlier, when my symptoms were even less apparent, my MDS was able to diagnose PD in about 15 minutes. Someone who sees PD patients day-in, day-out, with all sorts of different symptoms, gets very good at spotting even early, mild PD. If your MDS isn't seeing it, that's worth really thinking about. I was offered a DaTscan at diagnoses, and my MDS said they would push the insurance to pay for it. I told him if he was sure of the diagnoses without the scan, that was good enough for me. As it happens, I had a DaTscan this summer as part of screening for a clinical trial (no cost to me)--the results clearly showed PD. The odds are very high you will spend a lot of money to get the scan, and still have no answers. If a PD specialist can't give you a clinical diagnoses at this point, it seems unlikely medical treatment for PD will do you much good either--there are NO proven disease-modifying medications available. Exercise and good diet are always good approaches, PD or not. So is financial planning, esp. as PD can mean earlier retirement than planned. If it were me, I'd take the money I was going to spend on DaTscan and put it in my 401k.
  5. 3 points
    My DH always answers the question "How are you today Al? With "I am fit as a fiddle!!!" Even if he is having a bad day. Their response is always " Oh so glad you are having a good day." It brings a smile on their face with his comment and it makes him feel good with theirs. Being in a Nursing Home he is asked this every day by nurses, staff and residents.
  6. 3 points
    Good morning M2Boys, I've travelled this trail. 1. Keep in touch with LAD above. She could be a wonderful guide for you. 2. Requip is an agonist and there is much to find out about that class of drugs. 3. Be very careful with Requip in your system. I was on it for about three years a long time ago. I have fallen asleep with a hot tea cup in my hands, listening to someone tell me something and driving was not safe when I look back upon those days.. It doesn't affect everyone the same but I think it was not a good choice for me. Be strong, yoga is good for lots of things. Stay positive. All the best to you, jb
  7. 3 points
    Good morning everyone, Nobody makes lemonade out of lemons like Dianne does. Bless you Dianne and I hope you are feeling better. LAD, your family loves you well. Your sons sound wonderful and it must be a very nice feeling to have them attentive to your moments when you need a hug. Peace, that is nice that you can look at that less than perfect un round Canadian penny and think of me!! What did you do to that poor penny?.You didn't put it on the train tracks and saw it get squarshed did you? I'm just joking of course. That is a cute story you shared. I am sure that it was in good shape when it left the mint and Canada. It is still worth one cent Peace but in Canada, pennies are out of circulation and transactions involving cash are rounded up or down to the nearest nickel. It isn't a 1958 penny is it? Probably it has maple leaves on the one side and the queen on the other.. The bank still takes them back at face value but they have to be rolled up. Oh Unround Penny, what roads have you travelled? It may of fallen from a pocket of a Canadian tourist who travelled to Nashville to see Reba in concert. Some kid picked it up and had enough to buy some penny candy. When the clerk counted the change that night and made up the days deposit, he realized that he didn't have enough money to pay the wholesaler next day as promised. In despair and needing dental work done on his aging and sometimes achy teeth, he saw that there was an odd Canadian penny in his hand and he threw it in disgust out the door where it rolled to the gutter., I shouldn't have done that he sighed, every penny counts these days. Out the door he walked to pick up that strange Canadian penny . Why do I bother he wondered as he searched the dirt for that coin. Just then a blast erupted and the ancient gas fired gum drop candy oven blew up. Wow, I had been sitting right beside that old machine before I came looking for you and he picked up the coin from the dust as the sound of fire engines came to his ears. That strange Canadian penny was all that was left of that days receipts he realized. But the next day the insurance agent appeared and gave him a huge cheque to cover the loss of his business which in fact was over insured for some reason for three times what it should of been worth. Also it had been a money losing venture everyone of the 15 years he operated it. As fate would have it, the burnt out site was now vacant and two months later he put another huge cheque, signed by a Canadian lady named Twain, in his pocket for the sale of the property. Now, with a lighter step, he packed up his car with his wife and two kids, and said goodbye to Nashville. He was going back to Texas, bankrolled with his insurance settlement, the property sale money and deep in his pocket, a funny looking Canadian penny. His lucky penny! Yes, he was going to go back to Amarillo to take over his Uncles piano tuning business. I hope you all have a lucky day. Thanks Peace, happy trails to you jb
  8. 3 points
    I used to read this forum religiously, but stopped because this running debate over TUDCA had become over the top tedious. I just tuned back in assuming everyone had finally gotten bored repeating themselves and moved on, but not so. The simplest concept and most obvious observation that every person on every Parkinson’s forum immediately figures out is that some drugs and supplements work for some people and not others. Is that really so hard? If a particular drug or supplement does not work for you, the only intelligent thing you can say about it is that it does not work for you. It is fundamentally ignorant to argue a supplement doesn’t work because it doesn’t work for you. The TUDCA skeptics, for example, have written many posts telling us what has worked for them, yet I don’t see anyone questioning the veracity of their comments. Everyone who reads their posts has the class to take them at face value, yet for the better part of four years now and the better part of 47 pages, they have disparaged Mr. Fritz insisting that TUDCA does not work - even though there are others who say it does. The only conclusion one can draw is that they are not so much interested in teaching and learning, that is, helping other PWP as they prefer being argumentative. “What does TUDCA do?” It helps some people with Parkinson’s disease. Is that simple enough? I believe Mr. Fritz must enjoy this endless back-and-forth as much as the naysayers do, otherwise he would’ve quit responding long time ago. Get a life, people. See you next year.
  9. 3 points
    Super, At first, it is overwhelming to say the least. You need to go through the grieving process leading to acceptance. Once in the acceptance place, you will encounter new symptoms that will force you to go through the process again. We can only find peace in the acceptance mode. Living in denial, anger, depression or compromise is more difficult. I deal with PD by 1. keeping a positive attitude, 2. looking for the right medication cocktail, 3. exercising, 4. resting, 5. eliminating stress, 6. staying warm. Having PD is like a new life you have not chosen. Forget the old one, or at least detach from it otherwise nostalgia will lead to frustration. Try not to look too far in the future as this will lead to anxiety, causing stress which will exacerbate symptoms. Be grateful for the positive aspects present in your new life. It is a marathon, save energy, don't rush. Be systematic and analytical. You will become the PD expert for yourself. Don't compare too much to others as we are all affected differently and progression is different for all. The future has too many unknowns, stay in the present as much as possible.
  10. 2 points
    Good morning everyone. I'm very sorry for your loss Peace, I have had horses put down and I have found them passed away. It sounds like your Max died in a peaceful manner. He certainly lived long but I know that his death still hurts your heart. I am sure that he had a good life with you and that you did all that you could for him over the years. I hope he finds himself in a big open meadow with lots of green grass and clear water holes with warm sunshine on his face. Be happy with your memories of Max today and always. Big hug for you Peace, jb
  11. 2 points
    I helped my dance instructor with a Harvest Moon Dance at a senior living community...I was terrified but it was great.....I met a Vet from WWII who was almost 100 and wore red dance shoes and was bustin a move....I danced with a couple little ladies in their wheelchairs and took selfies with all of them....one guy couldn't figure out how he could see himself in my camera. I didn't get paid but I got lots of hugs and "God Bless You"'s so I'm guessing I'm earning my way to heaven:) Good day all! LAD
  12. 2 points
    Jb - My absolute favorite characteristic in a person is "Humility." If one accomplishes great things or has great wisdom, but is not humble, it cancels out all the good, at least for me. Then there are those that accomplish no great things and are not wise, but have egos the size of the globe. So, Jb, you are probably too humble to realize you shine as a person with my favorite characteristic..........now, don't let it go to your head! lol!
  13. 2 points
    Good morning everyone. Hi Emms, how are things on the Emerald Isle today? Those little messages are great LAD. We used to brainstorm Parky slogans for T shirts here on the forum. We had a good time at my Sisters house for Thanksgiving. My sister, braver than a Pilgrim woman, sits about 50 people down in her house for the annual meal. Turkey and dressing. Ham. Mashed potatoes, squash, candied apples, salads with strange little seeds and rice and beans (coos coos?) cooked carrots. Desert is apple and pumpkin pies, cookies, butter tarts, pumpkin squares. It is all pretty tasty. This bit that follows was a reply that I made in the open forum. I thought I was in this young onset forum and some of it was aimed at this forum, so I copied it back over to here. Sorry for the confusion. Hello Super Scoop, I'm glad that we have another super hero on the forum. One can't have too many Super Heroes in their corner when the Evil Parkinsonaurus is on the prowl. Which Reminds me. Where is Super Lady Shera? And while I have your thread detoured a bit Mr. Super D Scooper, I need to ask Linda this: You like nicknames for everyone...how have you managed to stick with just plain Linda. Should we start a "Pick a name for Linda Campaign." Not that there is anything wrong with Linda. It is a lovely name and you wear it well. Okay Super Scoop, I will get back on topic. Back in 2007, when I still worked as a carpenter 50 hours a week, I was starting to encounter a bit of a problem with my right hand. It was not doing what the old brain was telling it to do by way of the nervous system and all those neurotransmitting cell towers that connected up the communication system between Motor control portion of my brain, and parts of my body that needed to move as requested. Or be still as requested. I had been treating it as you suggested Super De Cooper: I was ignoring it. I knew it was only a pinched nerve and it would eventually revert back to normal and I went to my doctor to confirm my assumption. Imagine my surprise when the good doctor did a few tests on my movement and said that I needed to see a neurologist and perhaps even a trip to a movement disorder clinic. And few months later it was confirmed. I had Parkinsons. When I started to review what this was all about and scrolled through typical symptoms, one thing that came up was that handwriting gets smaller and trails off. Which was exactly what was happening. Signing a stack of Christmas cards became a task. Filling out addresses on envelopes became a chore. I told them at the bank that my cheques may have a signature that looks like this or this or this.... If not careful, I could have trouble reading my own grocery lists. The problem with handwriting is that it is an act requiring fine motor control. If I was writing on a chalk board with big strokes powered by shoulder and arms, my writing is better than when doing finer strokes using more wrist and fingers. Try carrying a chalkboard through the bakery section at the grocery store. In conclusion, No one should let me perform any type of neuro surgery on your brain., don't look for Christmas cards from me in the mail, I'm glad that we have a journalist on the forum, I hope that you don't have Parkinsons SuperdeScooper, Linda is still Linda and that is fine with me, and I hope Shera is doing great but she should say hi once in awhile (maybe you have and I missed it), there are many others who should check in once in awhile, and I hope that you don't mind me yammering on in a straight circle on your well intentioned thread . Hope that you get the answers that you are seeking SuperdeScooper. All the best to you and everyone, jb And now I better get going. Lunch time is rolling around. It has been a very wet morning here as we get the tail end of Nate. You must of gotten the same rain Marcia. Then, with a short struggle, he pulled on his latex gliding suit and with a running leap, he began his descent from the snow capped peak. Twisting he steered himself between the twin spires of Chimney Rock, met up with a surprised looking Falcon as he glided past the Empire ledge. His web cam was switched on as he hurtled under the big rock bridge and the webbed suit strained as he flew like a flying squirrel. The desert floor was now giving up details to his eyesight and with great effort he cut to the right and torpedoed between two huge Redwood giants and pulled the chute strings and fluttered to a landing on a patch of green grass and he rolled to a perfect landing. have a good day, jb
  14. 2 points
    Good morning World, This is Thanksgiving Weekend in Canada. It is a good time to be thankful for what we do have. I have lots to be grateful about. I may have Parkinsons and wish for certain things to be different but I can handle that situation. I am glad that my thinking is still clear enough to know that the things in Life that are most important to me are not valued in terms of dollars. My friendships with people, here on these pages where you all pop to life on my screen and offer up so many well wishes to me and each other rate very high on that list. My wife and family, old friends, digging a hill of nice fresh potatoes in the garden and watching the dog herd the cats, seeing blue jays eat the seeds from the sunflowers, sitting by the woodstove on a cool night and the list could go on. There are lots of good things each day. To enjoy the sunshine of each day though, sometimes we need to position ourselves beyond the Shadow cast by that Mr. P. Best wishes to fellow Canadians this weekend, be safe on the roads driving , and to everyone here, good blessings to you all. jb
  15. 2 points
    Good morning everyone. Hi Em, yes, all is well here. VV busy. Weekend activities, getting ready for winter, family stuff, cleaning up the garden, dogs and cats ah. the list goes on my friend. Hello Dianne. Yes. Marco has many looks in his eyes. He is a character. I am happy to report that he is pushing back against the cats. He has a new voice, a very excited bark. That means he has the cats holed up under the car and he is running circles around the car keeping them penned in. He also gets very excited when a cat finds itself inside of the chicken run. I saw the fox running through the horse field yesterday. The Sly Red Fox is not welcome around the chickens. I am very sorry about the shooting in Vegas. It is beyond my little mind how anyone could do that in such a cold manner with no respect to the laws of society and the morals of human civilization. I want to thank each and everyone who post or read this thread. You have been good friends to me over the years. Have good days today, be brave, be safe, and enjoy your day. All the best to you all ...jb. , group hug!
  16. 2 points
    Got a great MDS doctor that spent a long time with me today. Physically my tremors are unlike "typical" PD however since my symptoms mainly developed after stopping medication he said this is an unusual situation that very rarely comes up. So now we have moved on to a DAT scan which will take awhile to get approved and scheduled. He said this should help guide us... Then he seemed reserved about using the scan results to make a diagnosis regardless of outcome as he puts more weight on classic PD signs or documented progression of symptoms than DAT scan results. Not sure if that is common practice. So not sure good or bad news however at least I am more informed, patience and time will likely be the answer here for me. Thanks all for listening and hope everyone is well.
  17. 2 points
    We have an orange cat and he is psychotic-truly crazy! He's cool looking though. England was cool but I liked Italy so much more. Those are the only two places I've visited.
  18. 2 points
    Good morning, It is a beautiful day out here today, back to seasonal temperatures. We were stuck on 90 degrees with humidity over the weekend. Whew , too hot for me! Thank you Linda, EllaCat, Dianne, and Lad on tour, Marcia, Em, and everyone else who pick up my day when I get tired. REALLY MEAN IT, THANK YOU. mrs Path Finder.. How are the apple pies coming. I just pulled a dozen muffins out of my oven. New recipe, pineapple with sour cream and cream cheese in the mix. Hey, this does not need to be in bold print. I could not wait any longer, barely cool enough to eat, I can tell you that they taste good. My neighbour couple just dropped off a nice big potted mum. they are so nice, He was my school principal for grade 7 and 8. The 6 oclock news is full of nasty things but there are a lot of wonderful people in the world. I better get going outside. Two new cats are in the barn and I am sure that they await for me and the cat food that will follow. Have a good day everyone. jb
  19. 2 points
    Maral77, I wish you and your husband the best and hope you were not offended by my comments. My DH has been diagnosed for 20+ years, has severe dementia and has been bed bound and on hospice for eight months. I care for him at home. The daily battle with the help of CNA's and nurses is to prevent and treat pressure sores. He has a deep bedsore on his tailbone that we are keeping from spreading and getting infected. It means constant turning and vigilance. A nurse changes his dressing daily. Today we are dealing with bowel issues. Feeding him has become a challenge. He has no co-morbid conditions and his vital statistics are very good. He is very thin. He has no quality of life. This may sound harsh, but with what he is suffering, if he had passed away quickly from a fall, in my opinion, it would have been a blessing. As the nurse left a few minutes ago, she said it breaks my heart. There are things worse than death.
  20. 2 points
    We had buckingham palace on our list of must see in London but there's no guards in puffy red hats?! LAD
  21. 2 points
    I first noticed my tremors in November 2014. Didn't even say anything to my wife until January 2015, and didn't see my family doc until March. Waited until almost May to ask for the referral to a neurologist, and saw her at the end of June that year. She said it looked like PD and had I been 68 instead of 38 she'd have given the Dx right away. But she had me go through all the tests to exclude other diseases and I got the formal Dx in late September 2015. Sorry to say this but loss of smell is a hallmark of PD. I can barely smell bad milk, rotten meat, garbage, dirty diapers, and so on. Most folks on here will say similar things about their sense of smell.
  22. 1 point
    I am so very sorry for your loss Peace, the loss of an animal is a very hard loss to endure. The bond we form with them is so wonderful. It is hard to describe to anyone that has not experienced it. I have had many animals of different kinds, but never a horse. The few opportunities I had to pet and ride a horse brings back fond memories, they are such majestic, amazing creatures. You are very fortunate to have had the experience to bond closely with Max, how wonderful. I'm sure you have beautiful memories that you will have forever. I agree, it is much better finding that they passed away peacefully rather than having to make the decision, although, at least with domestic animals, it is fairly rare. I hope you find peace and healing.
  23. 1 point
    I just received word today that the DBS team at Vanderbilt have approved me for DBS surgery. I am scheduled to meet Dr. Hamid M Shah, neurosurgeon, at the end of the month. If any of you have personal experience with this surgeon - good or bad - I would appreciate you sending me a message to let me know, as I don't know anything about him. I have been reading a lot about DBS and weighing the risk-benefit ratio. A couple of good books on the subject are: DBS: A Patient Guide to Deep Brain Stimulation by Sierra M Farris, PA-C and Dr. Monique L Giroux, M.D.; and Parkinson's Disease: Diagnosis and Clinical Management by Stewart A. Factor and William J. Weiner. They intend to do bilateral STN. I have to admit that I go back and forth on whether I should have the surgery or not. When my meds are working well, I think that I don't really need the surgery. Actually, I think I need this surgery like I need another hole in my head. And when they're not (and I'm standing in the back of the store unable to walk due to sudden dystonia in my leg and foot), I can't wait to have the surgery. If only I could see into the future and know exactly how it will affect me. I'm sure that those of you who have already had the surgery know all to well what I'm going through. Anyways, just thought that I'd share where I'm at in my journey and hopefully get some feedback on the person who is most likely going to poking around in my brain. Kevin
  24. 1 point
    In the middle of summer I was beginning to get very worried about my senior horse making it through another winter. Though we gave him special food and his appetite was good he continued to lose weight. As long as he was eating and whinnied whenever I went to the pasture I was not going to have him put down. I was, however, very concerned of his health failing in the harshest part of winter. So, I began praying to God that he would pass peaceably and that I would just find him dead one morning. Prayer answered. Still shocking to walk out and find him but I had to smile through the tears. I saw no signs of distress, it just appeared he layed down and passed away. I was saved from a heart wrenching decision and Max was protected from a harsh Midwest winter. He was 3 months from turning 32!
  25. 1 point
    good morning everyone, lost a post yesterday, running late today. hope everyone is capital g Good jb
  26. 1 point
    You are in the right place on these forums. Agree with just about everything stump put out there. Attitude critical. Being in good shape a plus. Switch to an MDS if possible if you don't have one. Learn all you can about PD and be an "informed consumer" with your caregivers. There are some very educational fact sheets at www.pdf.org as well as this website. For me I have found that the disease progression on the physical movement side is on a different track than the mental cognitive side and it differs per individual of course. The drug equation requires periodic attention in terms of what your take as well as strength and frequency/interval. I did not need any drugs for first year at age 60 with a right hand tremor like yourself and have progressed from there over 4 years. There are some good discussions about meds on both the doctor and pharmacy sections of this websites forums. Every new drug introduced to me was carefully titrated up to the desired dosage. You are a cancer survivor and will deal with PD head-on and well I think once you get your bearings on this! Hang in there!
  27. 1 point
    Absolutely. Keeping active, while you still can, is so very important to keep the symptoms to a minimum. Walking is actually one of the best exercises a person with PD can do. Even doing one step more today than what you did yesterday is progress, that is true with any person at any age.
  28. 1 point
    It IS interesting, but it's also coming from a source with a vested interest in a positive outcome. I still try pot every now and then, but haven't received any great results when I do. I actually tend to feel worse, but it could be the strain, or just me.
  29. 1 point
    That would be awesome if you could hike at the canyon. There are so many places to choose from. I was able to hike a few with the help of my walking sticks and help from my husband and daughter. i have DBS implants and was pleasantly surprised how easy it was. My biggest concern was falling came close a few times but didnt fall. So it was a good timed!!
  30. 1 point
    So sorry for your loss. The more we love, the more we grieve. Grief is the price we pay for love.
  31. 1 point
    ellaangel2, yes he wanted attention. He checked his dishes to make sure they were full and then wanted to be brushed which was always done in the morning but as long as he had the attention he'd get as much as he could. Then he jumped on the back of the chair the DH was sitting in. He looked mighty smug.
  32. 1 point
    Happy Thanksgiving Holiday to you Jb. Your post was so well said (as always.) Dianne - You are so right. Seems our Thanksgiving mixes into Christmas for some, I guess it is too close on the calendar. It is obviously a distinct separate Holiday with special meaning and I have always said it does not get enough attention, people seem to forget the meaning of Thanksgiving and just use it as a day to get ready for Christmas shopping. The worst is decorating for Christmas before Thanksgiving, please, let the Pilgrims have their day! I have always wanted to be Canadian. I spent a lot of time in Canada growing up, my family had cottages there and my Mother had relatives in Toronto. I have always felt a draw to Canada. Sure does seem the Canadians are not always in a political turmoil like we are in the USA. Maybe the "grass just looks greener,".......but, it sure does look that way.
  33. 1 point
    jb, Happy Thanksgiving week. Another thing to like about Canada besides the fact that you live there: a full week of giving thanks. Here in the US, it's a one-day celebration for most, followed by a frenzy of shopping for more things that will never bring the joy that simply being grateful does. Enjoy the warmth and love of your family in Canada and your extended family here in Parkyworld. Dianne
  34. 1 point
    LAD - I just love those pics of Baxter, he is adorable.......somehow I missed him before. Just love those bravelets, I have some of the newer charm type bracelets with messages, but never saw any like those that your boys gave you, very unique, very inspirational, very lovely.
  35. 1 point
    I just tried some today that is 0%THC. It is oderless and tasteless (like me). I feel great already at only a half drop. I reduced my C/L by 1/3 just because I feared taking too much in combination. I think I am going to like this
  36. 1 point
    Speaking of hugs... So my fingers got "stuck "'today while typing and I just started crying. My youngest son came over hugged me and kissed me on the head and just held me until I said I was ok. Hugs all around today! LAD
  37. 1 point
  38. 1 point
    Hi Mom2Boys. I'm sorry about your diagnosis. All of us here understand how devastating receiving a PD diagnoses can be. Just breath. I'm glad you found us. Remember, the day of diagnoses is the worst day. After that, you find your bearings and come to understand that not all is lost. Learn all you can about PD. The more knowledge you have, the less fear there will be. Living in the now is perfect and yoga will help with your balance issues. Hang in there and ask us any questions you may have.
  39. 1 point
    Try to take one day at a time. I was diagnosed about 5 years ago. I'm now 48. I recently had DBS. Over the years, I found that it's almost impossible for my wife and I to plan our days in advance. When I was working, I missed several appointments. I was basically unreliable. You and those around you need to understand each patient is unique. And each day is different. How I feel today doesn't dictate how I will feel tomorrow. It took a long time to accept this. Some folks will compare you to their Uncle John that had PD; thinking we are all the same. That is not the case. Take each day as it's own. Be ambitious, but don't expect to accomplish everything today. And, honestly, it's ok to have a pity party and stay at home once in a while. Rest is important. About once a week I spend almost a day just resting my body and mind. And get to your doc. Depression happens a lot with any incurable disease. And remember, PD won't kill you, it's not a death sentence. There's always someone at the grocery story that is worse off than you. Seek that person out and offer to help them. They could use your help.
  40. 1 point
    Here are some pictures I hope. THE PLAYERS, Marco, 3 year old rescue dog. Rat Terrier mixture of brains and devotion. Great housedog, loves the outside, comes when called, will chase big dogs out of the yard if he feels like it, but really loves to play with any dogs. Stays off the road, loves to ride in the car, on the ATV or walk to the woods. He is shy of some people, but unafraid to run among the horses. He can go a long time in the house without leaking, full of enthusiasm and loves to lie on the couch with you and fall asleep watching tv. Loves his corner crust of peanut butter in the morning. Toby, 4 month old cat. I'm not a big fan of cats, but we do have too many chipmunks an such running wild this year. This kitten, for a barn cat has been handled a lot and is quite gentle. The grandboys will love this cat. If I were a cave man and cats were not domesticated yet, Toby would be the one seeking food and wanting to feel the heat from the fire and part of the inner circle. Keith., He is the hit man of the two. The enforcer. Toby is the planner and Keith does the Hit. Keith hunts for mice and works out. If the cats ever attack me, it will be Keith chewing on my ankles. Keith purrs like his sister, wants to be a good cat, eat from my hand and be cuddled but is hesitant to trust a hand stroking his fur. I have not picked up this cat yet, and when I do, for sure I will have cat gloves on and a bag of my blood type on hand. Keith would be the pair of eyes reflecting the firelight back to the cave from the darkness of the outer ring. http:// http://http://i1181.photobucket.com/albums/x425/jaybee49/april foll/P11309http://http://
  41. 1 point
    Share this with Marco. Maybe it'll make him feel better. The things that chase Terra (my little rescue dog): 1. The Cat 2. The Rooster 3. The Goat 4. Errant Deer
  42. 1 point
    Many thanks for reporting this! It seems I made a mistake with the link, and I am really sorry about that, I understand your concern, the links are now updated, and no sign-in is required at all.
  43. 1 point
    Mine were so frequent that it was interfering with driving. Nothing like having your arm violently jerk while gripping the steering wheel. Clonazepam got rid of the jerks for me. Makes sense, as the drug was originally perscribed for seizures.
  44. 1 point
    This is a great PD site! Dr Laurie Mischley's video on nutrition is awesome! Her health care practice is the model of how health care should be.... https://scienceofparkinsons.com/2017/09/18/food/
  45. 1 point
    Same here. I meant no disrespect Maral. We are all being frank and honest with our suggestions and perceptions of how these situations are handled. Yes indeed there are worse things than death. It's the road getting there that sucks. My uncle had a sudden heart attack a year ago. He died in the ambulance on the way to the hospital. It was short and quick and his family never had to deal with what we are going through now as CG's. Only people in our shoes will know what I'm talking about. Death to me is the only way this can finally end. No more worries, planning, and second guessing.
  46. 1 point
    Hi folks, Been a while since I've dropped in to the forum. But I wanted to let everyone here know that next Wednesday (9/27/17), I'll be in surgery to place the leads for DBS. Following Wed., 10/4/17, I'll have the battery installed. First programming session is on Tuesday, 10/10/17. He is doing a frameless DBS which means I won't be attached to a halo. Rather, a lead feeder will be screwed onto my skull over each hole to insert the leads. Dr. Patel in Austin, TX is one of 6 neurosurgeons in the USA qualified to teach this procedure to other surgeons. He's done a lot of these, obviously. I know I'm in good hands. But, and this is the interesting part, standard frameless DBS still required 5 rods to be attached to the crown of the head so the computer model of the brain would have reference points to track any movements of the head. At the end of August when I had my initial consultation with Dr. Patel, he indicated later that week they were getting in a new machine that no longer required the rods to track movement. I guess it does it by some other method. If he was satisfied with the accuracy of the machine by the time of my surgery, he would be using it and I would not require even the five rods to be installled the day before. Well, last week I received the call that he's going to be using the new machine. So now the only thing being attached to my head is the lead feeder. How cool is that? Anyway, I'll be starting a daily blog journal on my PD blog beginning Monday (9/25) and planned on running it through 10/10 when I get my first programming. We'll see how far it goes from there. But thought it would be informative to detail my experiences with the procedure, as well as give family and friends a place they can get updates on how I'm doing with it. Anyone here is welcome to follow my blog if they are so interested. Go to https://rickspdjourney.blogspot.com (no ads or selling going on there) and on the right toward the top, or for mobile phones at the bottom of any post right after the comments, you'll see a field to enter your email to follow the blog. Once registered, you'll get any blog post I make there in your email. You can unsubscribe at any time. Sorry I've been gone for so long. So much to do and only so many hours in the day I'm afraid. But I figured many, including old friends, might be interested in my new adventure. I'll try not to be so much of a stranger.
  47. 1 point
    Good Morning Friends, It is Friday again, another week has escaped my grasp. The days seem full, lots to do. Or at least I feel really busy. I know that I am spinning my tires, going in circles, and trying to do things that I shouldn't be doing. But that is me. I have to get more firewood ready to burn Linda.. I wait for my brothers help to do that now. The garden I can still handle, but next year I think it will shrink in size. I find that I can not get everything done during my "on times" and I have to step back and look at things. Maybe change my expectations. I have hopes for DBS but I know that it won't transport me back to the days when I could work hard all day with lots of good achievements. I should delete this, I never added much to this forum this week in terms of positive attitude. This post is intended as being realistic, but I find that it is maybe a bit down. I didn't really intend that. I am very grateful for that which I can do. Like this afternoon, we are going to Peterborough to see my Grandson play hockey this evening. It is a pretty town and I think my wife will enjoy looking around before we head to the arena. I am ok. Have a good weekend everyone! be safe, jb
  48. 1 point
    As a hunter myself mainly bowhunting, I find it ridiculous to have to choose between your health and your 2nd amendment rights.
  49. 1 point
    Hi Thecount. Welcome to the forum. It's rough at the beginning learning you have PD. It DOES get better. Glad to hear you're on the exercise path. There is no comparison to bad days without exercise vs. bad days with exercise! I'm currently 59. Diagnosed at 57. As you'll learn there are usually hints of symptoms well in advance of diagnosis. We just don't recognize them as such. It would just make us a bunch of hypochondriacs. You'll ultimately find a groove. Best to you.
  50. 1 point
    I play guitar every day...sometimes just a song, sometimes many. My dexterity is somewhat diminished, and my vocals suck, but I'll do it as long as I am able