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Showing content with the highest reputation since 05/20/2018 in all areas

  1. 2 points
    Thanks for all the good wishes everyone. I have been getting lots of advice from a man in our parky group that lives not that far away. He tells me too that I need to slow down and recover. I should know that too. Sorry for the panic attack. His name is Rob and he had the same opration as I did, at the same hospital at the same clinic. I did get my stitches (wire ) out yesterday in town. I have lots of help here at my house with neighbours cutting my grass. I still have trouble with my sore shoulders and that is an old problem. And .today was a better day. I slept better last nite and that clears up my head as well. I still have a long wait until it is programmed and turned on. I look forward to that day. In the meantime , I need to get the pill routine down to a better scedule which seems to be a bit less than I was taking before. Thanks everyone for your help.
  2. 2 points
    Good Morning Everyone. I was off for a few weeks of road trip/camping Goals for 2018/19. Buy Van Grab a kiddo for a week and do a road trip. So one kiddo down; three more to go Dinner over a stove, with my faithful friend watching. A van big enough to not only sleep in, but do some morning stretches
  3. 1 point
    In addition to all the good advice you're getting here consider this: 1. When you "drop cigarettes" don't pick them back up. Research nicotine and PD and you'll find there is some active research into whether nicotine has a role in alleviating PD symptoms. If you need to continue to self-medicate, use a less destructive route of administration (gum, lozenge, patch). 2. Caffeine has also been shown in some research to correlate with improved symptoms and/or enhanced medication effects. The only non-medical activity that seems to matter is exercise - which you can and should do (Rock Steady boxing, mountain cycling, running, swimming etc.). No matter whether you're diagnosed or not, this will be the start of your future (protection against all manner of illness). Also you might want to go online to find Federal government PD researchers recruiting volunteers (https://www.ninds.nih.gov/current-research/focus-research/focus-parkinsons-disease ) (likewise the Michael J. Fox Foundation). It is possible to get your diagnosis refined by one of the medical centers conducting research.
  4. 1 point
    My name is Christian an I'm new to posting on the forums, but have been reading for a while now. I'm 29 years old and have been displaying some neurological symptoms for about two years. I'm losing my mind not knowing for certain what is going on. The symptom that pointed me to Parkinsons was reduced arm swing in the right arm and now my right foot scuffs the floor. I move slower than i used to (i used to dance) and i just have fatigue all the time. I've been treated for essential tremor, but it is not an action tremor, it will mostly only move when my hand is sitting there. It does make it hard to text and type. I have bipolar disorder as well, and starting me on antipsychotics greatly amplified the slowness and feeling of apathy. Over the past two years I've become a recluse, haven't had much of a social life and haven't been able to study like i used to. The non-neuro doctors I've spoken with tell me it isn't Parkinsons because i don't have rigidity and the tremor isn't a full pill-rolling tremor. I've got a scheduled appointment with an MDS, but it is 4 months away. It's killing me feeling my body and mind change and not have any answers.
  5. 1 point
    We usually titrate up as you have done and we keep going until all bothersome symptoms are alleviated or improved, however in many cases you will not reach 100% improvement. It is important to get the upper limit from your doc (some will go to 4-5mg per dose) but also to monitor and have your spouse or family member monitor for side effects such as impulse control disorders and dizziness/GI symptoms (among others).
  6. 1 point
    Missing a meal or eating junk food doesn't seem to noticeably effect to much. Unless it's more than a meal or two in a row , besides the feeling like I ate terrible . Stress and anxiety throw the tremor into overdrive . Everyone will say avoid stress at all cost , but unless you live in a bubble stress is a reality of life . How you cope with the stress is the key . And for that the answer is probably as diverse as any question addressed on the forum . Preemptive strikes on stress only last so long ( exercise and such ) . I haven't found a " in the moment " relief to stress yet that is effective . I know when my family tries to deflect or keep stressful situations away from me , it stresses me even more . I would rather be involved than be treated like I am sick and need to be shielded . I will be following this also ,maybe someone has an effective way to deal with the in the moment stress . Dan
  7. 1 point
    We are so lucky to have the Ask the Doctor and Ask the Pharmacist forums here. Dr. Okun and Mark Comes have been so helpful (and patient!) with my many questions. Does anybody know of a similar forum somewhere where I could ask a question of a physical therapist? Thanks. Diana
  8. 1 point
    We could all write to the Administrators and ask for that. We used to have an Ask the Dietitian (or was it Ask the Nutritionist?). It never hurts to ask. Dianne
  9. 1 point
    Hi Chris, just a thought...If you are thinking to buy any kind of Insurances, do it now prior being diagnosed in your medical recod. I was either rejected for my Life Insurance or rocket prices. Take Care, PD
  10. 1 point
    DB and LAD: This follows along with your posts above. And DB, great post, by the way! Linda Turning Point, with Dr. David Jeremiah Monday, 5/21 Thought Therapy Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus. Philippians 4:6-7 It begins with a thought. Peter thought he would drown and looked away from Jesus. Moses thought he was inadequate and looked away from God’s calling. The disciples thought the soldiers were more powerful than Jesus and fled into the night. Every one of our actions flows from a thought: conscious or subconscious. Often our thoughts are automatic and reactionary. What area of your life do you want to improve? Just take a moment and think about that. In what area would you most like to grow? With God’s help, you can improve your one corner of the universe. What it really takes is the power of God in our lives, and there is a passage of Scripture on this very subject. It takes effort to examine the thoughts running on repeat in our minds. A thought repeated becomes a belief. This explains why God’s first words to His people time and time again are, “Don’t be afraid.” He knows our fears and anxious thoughts. He only asks that we bring them to Him and replace them with the truth of His power, love, and wisdom. Although each of us will face challenges and deep loss, God invites us to trust Him. As we do, our anxious thoughts are replaced with His peace. He is with us. He loves us. He is working on our behalf. Faith does not eliminate questions. But faith knows where to take them. Elisabeth Elliot
  11. 1 point
    Hi, Chris. I think most of us would agree that your symptoms are classic for Parkinson's. What we recommend is that you find a "Movement Disorders Specialist" who can give you an official diagnosis. Best to find one connected with a research-university-based medical center through their department of neurology. It's very important to call soon, as it can take awhile to get in to see an MDS since so many, many people your age and up are having symptoms, and the supply of MDSs at this point is not adequate. Medical students and practicing neurologists are in training for the specialty, however, as the growing need for them is obvious. You sound like someone who wants direct answers, so I hope you find our input helpful and not scary. We are here for you, and you will find the group here extremely compassionate, understanding, and helpful.
  12. 1 point
    Hi Christian, try to hang in there. It takes a while to get a diagnosis. Living in limbo is no fun. I know you're not seeking to have PD, you just want to get answers, get fixed and move on with life. While waiting, start exercising and find a hobby to get involved with. maybe it will make the time go quicker. -S
  13. 1 point
    I tried Mirapex and it didn't work for me... Felt horribly tired and just could not overcome the side effects. I really wanted it to work but after almost 2 weeks of misery I gave up... Azilect on the other hand does help and I don't find I am impulsive, just less stiff and feel a bit better when I take it... Funny thing is in the couple years before any physical symptoms and no meds is when I was most impulsive... I bought cars, toys, fancy vacations... It was like I was seeking filling a void and once I got whatever it was it was still not enough... I researched this a lot and seems to be a part of our reward circuitry failing as the dopamine levels deplete... We tend to need bigger and bigger extremes to "feel that natural high" that used to come as easily as smelling a scent or a good song... Now for me very little gives me this sensation anymore... Guess sadly my dopamine is just too low... If the advise is for you or someone else I would suggest taking to the doctor about it for one... Beyond that I would also try to find a "free hobbies" to do that wont end in bankruptcy... There are gambling type games that do not involve money... Buy a Playstation, play cards with friends...
  14. 1 point
    Sounds like SSA has a view that if you can't do your current professional job that does not necessarily mean you are not able to do any job? Filing for Social Security Disability with a Parkinson’s Disease Diagnosis Under guidelines set forth by the Social Security Administration (SSA) in it's "Blue Book," Parkinson’s Disease is a condition that can qualify a person for Social Security Disability benefits provided that certain diagnostic criteria are met and documented whiich include: rigidity bradykinesia, or tremor in two extremities causing ongoing problems with movement gait, or ability to stand There is no single test that can provide a definitive diagnosis of Parkinson’s Disease. Diagnosis is based upon an evaluation of the symptoms present, as well as a neurological examination. Also, the presence of at least two of what are considered to be the “cardinal symptoms” of Parkinson’s (which are tremor, bradykinesia, and muscle rigidity) can be considered to be strongly indicative of the presence of the condition. Additionally, tremors of the hands that occur while the hand is at rest, symptoms that begin on one side of the body, and/or a positive response to levodopa (a standard Parkinson’s medication) are also telltale diagnostic tools. It can be assumed that these symptoms could be used as the basis for a Social Security Disability case on their own should they become serious enough to inhibit one’s ability to work. If the disease has progressed to this point, however, the patient has likely already qualified based on physical/motor symptoms.
  15. 1 point
    Personally, I've got a problem with all of it. When words can be redefined at will, the fabric of society is destroyed. When truth is relative, then we are lost. The TRUTH is that Bruce Jenner is still a man, pretending to be a woman. The TRUTH is that Rachel Dolezal is still white, but pretending to be black. The TRUTH is that marriage is between a man and woman. Anything else is not marriage, even though some may pretend it is. The TRUTH is that I have PD, whether I accept it or not. If we call PD "Health", we are still sick.
  16. 1 point
    I get these same "zaps." I've always attributed it to the anti-depressants (SSRI's such as Celexa and SSNRI's like Effexor). Have you ever tried stopping those? WOW! Major electrical zaps! Kevin
  17. 0 points
    I am having some trouble gettiing my thinking and work skills back together.