Jump to content
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    


Popular Content

Showing most liked content since 10/15/2017 in all areas

  1. 3 points
    One of my latest music videos. Probably better to listen to than watch, since it doesn't show a lot. I tend to get stressed with a camera pointed at my face, versus pointed at my hands
  2. 2 points
    Good morning everyone. I'm very sorry for your loss Peace, I have had horses put down and I have found them passed away. It sounds like your Max died in a peaceful manner. He certainly lived long but I know that his death still hurts your heart. I am sure that he had a good life with you and that you did all that you could for him over the years. I hope he finds himself in a big open meadow with lots of green grass and clear water holes with warm sunshine on his face. Be happy with your memories of Max today and always. Big hug for you Peace, jb
  3. 2 points
    I helped my dance instructor with a Harvest Moon Dance at a senior living community...I was terrified but it was great.....I met a Vet from WWII who was almost 100 and wore red dance shoes and was bustin a move....I danced with a couple little ladies in their wheelchairs and took selfies with all of them....one guy couldn't figure out how he could see himself in my camera. I didn't get paid but I got lots of hugs and "God Bless You"'s so I'm guessing I'm earning my way to heaven:) Good day all! LAD
  4. 2 points
    Jb - My absolute favorite characteristic in a person is "Humility." If one accomplishes great things or has great wisdom, but is not humble, it cancels out all the good, at least for me. Then there are those that accomplish no great things and are not wise, but have egos the size of the globe. So, Jb, you are probably too humble to realize you shine as a person with my favorite characteristic..........now, don't let it go to your head! lol!
  5. 2 points
    Good morning everyone, Good morning Ginger LAD and Violet Linda, Thank you for the kind words. My sister Sue tells this story from long ago better than I do. Mom was cooking supper for a family group that was coming to her house. Alice had been sick that week and as supper cooked my Mom was making soup for her. Sue was trying to help Mom with cleaning up to make ready for the incoming company when she realised that Mom was going to Alice`s house up the road to deliver the soup. We better get cleaned up here Mom said my sister Sue. First I deliver this soup my Mom replied. Alice is a lot more important to me than Company finding my house in a bit of a mess. Kind acts that help others cannot be given a dollar value, but if they could, My Mother has given away a fortune in her lifetime.
  6. 1 point
    I am so very sorry for your loss Peace, the loss of an animal is a very hard loss to endure. The bond we form with them is so wonderful. It is hard to describe to anyone that has not experienced it. I have had many animals of different kinds, but never a horse. The few opportunities I had to pet and ride a horse brings back fond memories, they are such majestic, amazing creatures. You are very fortunate to have had the experience to bond closely with Max, how wonderful. I'm sure you have beautiful memories that you will have forever. I agree, it is much better finding that they passed away peacefully rather than having to make the decision, although, at least with domestic animals, it is fairly rare. I hope you find peace and healing.
  7. 1 point
    Oh, my. I am so very sorry that you lost your dear horse, Peace. I can imagine how awfully painful it is. I'm so touched by how the Lord showed His love to you (and your horse) through this experience. Am thinking of you and will pray for you. Take good care of yourself. Linda
  8. 1 point
    In the middle of summer I was beginning to get very worried about my senior horse making it through another winter. Though we gave him special food and his appetite was good he continued to lose weight. As long as he was eating and whinnied whenever I went to the pasture I was not going to have him put down. I was, however, very concerned of his health failing in the harshest part of winter. So, I began praying to God that he would pass peaceably and that I would just find him dead one morning. Prayer answered. Still shocking to walk out and find him but I had to smile through the tears. I saw no signs of distress, it just appeared he layed down and passed away. I was saved from a heart wrenching decision and Max was protected from a harsh Midwest winter. He was 3 months from turning 32!
  9. 1 point
    good morning everyone, lost a post yesterday, running late today. hope everyone is capital g Good jb
  10. 1 point
    I spent the last six months extensively "testing" a wide range of cannabis strains. I found the best use for me is a sativa dominant for sleeping. Did not derive a noticeable benefit for any other symptoms. I now use less than half a gram (3-4 puffs) per night at bedtime. I went from an average of 6 hours to 8 hours of sleep with 4-6 hours uninterrupted, and wake refreshed without any noticeable after-effects. Extremely pleased with the results.
  11. 1 point
    Not sure if you all are a FB crowd but here is a link to the PD exercise program my friend/trainer and I started....I'm winning today! LAD
  12. 1 point
    Thx, Linda. Ok, here's another one from a few years ago.
  13. 1 point
    Hi Meriban, Welcome to the forum! It sucks that you've been battling cancer and now have PD. However, if you've had a 5 year battle with cancer and won, PD should be a breeze! Unfortunately, doctors in the USA are little more than drug pushers. Go to the doctor --- get a pill. Have any problem --- the doctor will push a pill. PD is an incurable, progressive, degenerative disease. It can not be cured or modified by a pill. There is not yet a pill that can even slow the progression of the disease, although there is at least one promising Phase III trial underway right now. The only thing shown to slow the progression of PD is exercise. If your doctor didn't discuss the importance of exercise with you, I'd find another MDS (movement disorder specialist). I'm about your age and like you had a serious disease (Late Stage Lyme Disease) before being diagnosed with PD. Like you, my neurologist didn't say a word about exercise or anything else that might be beneficial. I fired him and found a doctor that knows that exercise is better than any pill. My MDS didn't push any pills on me and in fact doesn't recommend medication until really needed. I have observed that there are two kinds of people when it comes to dealing with a serious disease. The first kind is devastated by the diagnoses; goes into a huge depression; and sits on the couch waiting to die. The second kind (people like you) declare war on the disease; gets moving with exercise; and continues with life as normal. You are a winner! KEEP FIGHTING AND KEEP MOVING!
  14. 1 point
    You are in the right place on these forums. Agree with just about everything stump put out there. Attitude critical. Being in good shape a plus. Switch to an MDS if possible if you don't have one. Learn all you can about PD and be an "informed consumer" with your caregivers. There are some very educational fact sheets at www.pdf.org as well as this website. For me I have found that the disease progression on the physical movement side is on a different track than the mental cognitive side and it differs per individual of course. The drug equation requires periodic attention in terms of what your take as well as strength and frequency/interval. I did not need any drugs for first year at age 60 with a right hand tremor like yourself and have progressed from there over 4 years. There are some good discussions about meds on both the doctor and pharmacy sections of this websites forums. Every new drug introduced to me was carefully titrated up to the desired dosage. You are a cancer survivor and will deal with PD head-on and well I think once you get your bearings on this! Hang in there!
  15. 1 point
    Absolutely. Keeping active, while you still can, is so very important to keep the symptoms to a minimum. Walking is actually one of the best exercises a person with PD can do. Even doing one step more today than what you did yesterday is progress, that is true with any person at any age.
  16. 1 point
    Nashville is on my list too.
  17. 1 point
    It IS interesting, but it's also coming from a source with a vested interest in a positive outcome. I still try pot every now and then, but haven't received any great results when I do. I actually tend to feel worse, but it could be the strain, or just me.
  18. 1 point
    That would be awesome if you could hike at the canyon. There are so many places to choose from. I was able to hike a few with the help of my walking sticks and help from my husband and daughter. i have DBS implants and was pleasantly surprised how easy it was. My biggest concern was falling came close a few times but didnt fall. So it was a good timed!!
  19. 1 point
    Doubleup - My advice to you is to have the test. You remind me a lot of myself. I feel you need the peace of mind and you need it now. There is no price tag on peace of mind. Some people can live without answers and take things as they come, some of us have a harder time living like that. If you need the peace of mind for quality of life, seek to get it. Without it, you may risk having it affect every part of your life, believe me, I've been there.
  20. 1 point
    Hi Doubleup, I empathize with how troubling all the uncertainty can be. But if it were me, I would be very hesitant to pay out-of-pocket for a DaTscan. Clinical diagnoses by an MDS is very accurate--as accurate or more so than a DaTscan. For example, my PD symptoms are quite mild--a couple weeks ago, I participated in a presentation to first year med students about YOPD. Only about a third of the group was able to see that I had any symptoms, in spite of having just seen an MDS give me a neurological exam and being told (by both of us) exactly what to look for. Yet, three years earlier, when my symptoms were even less apparent, my MDS was able to diagnose PD in about 15 minutes. Someone who sees PD patients day-in, day-out, with all sorts of different symptoms, gets very good at spotting even early, mild PD. If your MDS isn't seeing it, that's worth really thinking about. I was offered a DaTscan at diagnoses, and my MDS said they would push the insurance to pay for it. I told him if he was sure of the diagnoses without the scan, that was good enough for me. As it happens, I had a DaTscan this summer as part of screening for a clinical trial (no cost to me)--the results clearly showed PD. The odds are very high you will spend a lot of money to get the scan, and still have no answers. If a PD specialist can't give you a clinical diagnoses at this point, it seems unlikely medical treatment for PD will do you much good either--there are NO proven disease-modifying medications available. Exercise and good diet are always good approaches, PD or not. So is financial planning, esp. as PD can mean earlier retirement than planned. If it were me, I'd take the money I was going to spend on DaTscan and put it in my 401k.
  21. 1 point
    I'd say that the tests are to rule out other more serious things, like a brain tumor, MS, etc. Once all that is ruled out, then they will be able to more seriously consider PD. Even if you are diagnosed with PD, I wouldn't freak out. Millions of people each year get a diagnosis MUCH worse than PD. You can still live your life relatively normally with PD.
  22. 1 point
    I take Zofran. It is safe to use with PD. I wouldn't want to be drowsy on a boat. Dianne
  23. 1 point
    I play guitar every day...sometimes just a song, sometimes many. My dexterity is somewhat diminished, and my vocals suck, but I'll do it as long as I am able