Jump to content
helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Leaderboard


Popular Content

Showing most liked content since 12/09/2017 in all areas

  1. 3 points
    This tip is for those who are caregivers of someone bedridden, who sits a lot, or who spends a lot of time in a wheelchair and is at risk for bedsores or pressure sores. After DH was bedridden for a while, he developed a serious pressure sore on his tailbone. I was naive about the risk and thought hospice was covering all bases, but not. He cannot lie on his back and has to be regularly rotated from one side to the other. Because he is so thin, his hip bones are very prominent and soon red spots began to appear there indicating the beginning of pressure sores. I searched for a solution. I am a quilter and my favorite batting is Hobbs wool. I had a bag of leftover cuttings. Wool is resilient. It does not mat down. I had been using a sheepskin all along, but it didn’t prevent the tailbone pressure sore. The batting is spongy and I can use as many layers as I want for cushioning. We still rotate him regularly, but always with layers of wool batting under his hipbones. He has developed no bedsores there and the tailbone bedsore is healing miraculously when the hospice nurses told me it would not heal and would only get worse. The nurses are amazed and are now recommending the batting to other patients at risk for pressure sores. It is an effective, easy and relatively inexpensive solution for a difficult problem. I hope this information is of help to someone else.
  2. 2 points
    Good Morning. LAD, that's a beautiful Nativity. I find just looking at a Nativity scene brings a feeling of peace. I'm having trouble getting myself motivated to clean the house. I just did it last Saturday and I'll do it again next Saturday so do I really need to do it this Saturday? The chickens came up on the deck and one started pecking on the glass door. My DH said she wants her eggs back. JB-I fluffed up the straw and planted decoy eggs in the nesting boxes, and two chickens fell for it. So now I can count on at least two eggs a day. We usually keep nuts and seeds around the kitchen to snack on. I tell you this so you'll understand a little why my DH did what he did. I have a container of oats (animal feed) on the counter. This morning, he opened it and put a handful in his mouth. HaHa! If anyone has ever tried eating an unhulled oat you know it doesn't work very well. It took him only a split second to realize his mistake. LOL The large lighted star we have over our barn needs lights replaced. We usually have it lit up from Thanksgiving to New Years Day. But because some bulbs need replaced we haven't turned it on yet. Yesterday our neighbor from across the field told me his little girl noticed the "stable star" was not lit. So my DH got the replacement bulbs and the goal is to have it fixed and lit up by tomorrow. I think I might put my plastic lighted Santa kneeling at Jesus's manger under it this year since there are no animals in the pasture to disturb it. Marcia, I also hope we all have a happy Saturday and I'm glad your meds are working. Take care everyone.
  3. 1 point
    Hello Bluelion, i am father of 4 (4,9,13,15) diagnosed 4 months ago at 38. Still adjusting to my new symptoms. First month was a worst for me and now i am emotionally in much better shape .Humans are highly adaptive species, so I guess key is enjoy present moments you have and try not to blame yourself. I think there are quite a few more nasty deceases and life situations. It is also good filter to validate your relationships. I am financially worry about my kids, but at the same time they are biggest bright angels of my life and purpose to keep moving.
  4. 1 point
    LAD, blessings as you continue your PD journey. Dianne
  5. 1 point
    Caution, sounds too good to be true. Like a paid advertising post written by a sales person to generate web traffic...
  6. 1 point
    Thinking of you Dianne. Take care.
  7. 1 point
    Hugs to you Dianne. I'm sure Casey and your Dad had a wonderful reunion.
  8. 1 point
    Dear Dianne accept my sympathy and wishes. Thinking of you. Em
  9. 1 point
    Dear Dianne, Please accept my wishes of sympathy to you concerning the passing of your Father. He is at Peace now. Your heart will heal as you remember his life, and as time passes, you will emerge even stonger. Peace be with you Dianne. Virtual hug, jb.
  10. 1 point
    Diane Thoughts and prayers are with you. You are a very resilient person with all the things that have happened to you in the last year or so. Will be thinking of you Barry and Marsha
  11. 1 point
    Accept my sympathy Beau's mom,may his soul rest in perfect peace.Amen.
  12. 1 point
    Dianne- I am sorry for your loss. I will continue to keep you and your family in my prayers. LAD
  13. 1 point
    Thank you for all the feedback. I had an acupuncturist discuss medical cannibis with my mom last year - my mom was completely against it. It is a generational/stigma thing. I will revisit the idea as I think it could be very good for her.
  14. 1 point
    My husband is using it with GREAT success. Huge pain relief, huge restless leg relief. Helps anxiety and it is the very best thing we have discovered.
  15. 1 point
    My husband has found HUGE pain relief from Cannabis. He is having hip replacement today and over the last few months got off all pharmaceuticals thanks to medical cannabis. It helps muscle cramps, restless leg, pain, and anxiety. He is also eating better. He is 64 and was diagnosed with Young Onset 15 years ago.
  16. 1 point
    Good morning Here it is just 12 days from Christmas ,.But this is a task put before us not of our choosing. As of yesterday the reconciliation panel is meeting .The bill is 479 pages,so far there is 1 page of discussion,lol The plan is a early vote next week Just a few things to know what to expect.Little tax cuts for the middle class,most to wealthy donors, We will be the ones paying for the cuts in at least$25 billion in medicare.not even mentioning medicaid or research money for Parkinson A provision in the house version will allow a flood of dark money to flood the political contributions and also be tax exempt Businesses will be further rewarded to move their factories offshore courtesy US tax payers The list is wish list of losses for the American people If your representative has voted for these cuts please give them a call and voice your objection Make sure they take your name and address Have a nice day John
  17. 1 point
    Indeed it is lonely and life changing. I miss my husbands company very much, he is in bed most days, the exhaustion giving him no choice but to sleep. He also has Vascular dementia, and severe Gasteoparesis. When he is awake and alert I take advantage of it. I will post tips as I find out thru trial and error what works. I appreciate you all, the support really helps.
  18. 1 point
    Another tip. Because DH is lying on one side or the other most of the time, his ears are at risk for compression sores. I have a plush throw that I put over his pillow to cushion his ears. It washes easily and has been effective. This is not minky. Minky sheds too much. It is a soft plush—maybe like a fleece, but I call it plush. It is soft and cushiony. My daughter says they are popular as throws and there are a lot of them in the stores.
  19. 1 point
    Hi Peace, Em, Diane and everyone else. That was a very nice post Peace. I'm glad that 2 chickens fell for that trick. I have 5 good layers now that want to put the eggs all in one pile every day. One will be trying to lay her egg and another Girl is standing at the nest telling her to hurry up. The barn light: it is funny how things that we perhaps do or say are often looked upon by others and expected and we may not even know it. Your light obviously was reassuring to that little girl. It's good that you continue it. Next time you go to the feed mill Peace, take a Pail of oats and at least get them rolled for your Hubby. That would of been an unpleasant mouthful. I hope everyone has a great day! Oh Linda, the weather looks like Christmas up the Eastern coast with fresh snow on the ground. Jb
  20. 1 point
  21. 1 point
    I just had my second programming after a year of DBS in- DBS out - DBS back in. I found out that Entacapone was giving me trouble afterwards. as far as my mental health goes. I am totally off that medication and down to half the CL and Amantadine and I have more energy (recently). So far, it has been worth it. I am typing easier too!
  22. 1 point
    This awful experience serves as a good reminder : when traveling, I always carry a large part of my meds in my hand luggage and the rest in my suitcase (checked baggage). If my baggage is lost, I always have my meds in my hand luggage, and conversely. I always travel with more meds than necessary. And I always take a doctor's prescribtion just in case. Having dbs does not mean that you will be medsfree. Most people who had DBS still take medications but far less than prior surgery. Take good care, Mimi
  23. 1 point
    The reason why we were chosen remains unknown. The only plausible explanations or factors are, environmental exposures, genetic susceptibility, and age. I have no known family history, and since I am only 42 now it is reasonable to conclude that environmental exposures may very well have been a major factor in the manifestation of PD. The National Academy of Sciences, (NAS) and the CDC, subgroup ASTD, recently evaluated the medical and scientific evidence that the chemicals TCE and or PCE, is capable of causing PD, and concluded the evidence is strong enough to warrant VA Service Connection for PD due to such exposures. These same chemicals are also associated with Gulf War Service as components of the toxic soup Gulf War veterans were exposed to. These solvents are typically found in cleaners and degreasers. I have a campaign ribbon with an oak leaf cluster indicating two tours in the GW Zone. A total of nine months serving as a heavy equipment mechanic using degreaser daily. According to the MDS this more likely than not contributed to my PD. The natural aging process includes a loss of dopamine producing neurons as well as other pathological findings, some estimate that to be between 5-8% per decade. Dr. Okun, recently stated that this would be extremely hard to actually determine. The genetic susceptibility factors are estimated to represent an estimated 5-10% of all PD cases. This being determined by multiple members over multiple generations within the same family who have PD. The currently recognized genetic factors are also present in members of the same family who never develop PD, therefore most believe, "genetics loads the gun, and the environment pulls the trigger". This is of course merely my own lay persons assessment of the research I have reviewed.
  24. 1 point
    Welcome to the club in which only a few have the privilege of joining. The best advice I could give a person just diagnosed, is the same thing my MDS at the DALLAS VAMC, gave me. Stay active, don't overdo it, and me telling you, that you have PD today doesn't mean that you have a new condition. In fact you have had PD for a long time so nothing has changed. Just learn to live one day at a time and listen to your body and discover your own algorithms for managing "your" PD.
  25. 1 point
    I have been a hobby photographer for years... This is one of my favorites.... In honor of veteran's day.... LAD
  26. 1 point
    This is a great PD site! Dr Laurie Mischley's video on nutrition is awesome! Her health care practice is the model of how health care should be.... https://scienceofparkinsons.com/2017/09/18/food/
  27. 1 point
    I think the link below is a pretty detailed and accurate description of the pain of PD. Most of the time for me the pain is always present but at fairly low level - kind of like a chronic toothache that leaves you worn out by the end of the day. Akathisia is my worst enemy. My muscles are always tight and tense unless I consciously relax them. Problem is they tense right back up when I think about other things. Sleep is the only time it stops. I can work in the yard but when I come in to rest, I simply can't relax and find any comfort. To date medications have been largely ineffective but I keep trying. PD is often described as a movement disorder, but in my case it is more of a relaxation disorder. lol http://www.pdf.org/en/winter04_05_Pain_in_Parkinsons_Disease
×