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kgs914

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About kgs914

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  • Birthday 01/01/1956

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  1. Not so good. I'm 58 years old and was diagnosed with pd about 17 years ago. I've been on Sinemet for 15+ years. I was prescribed the weakest strength (out of the four) 23.75/95. The first time I tried it, i took one every three or four hours during the day. Didn't feel anything at all. Next day, same schedule, but two at a time. Nothing. I tried three at a time (different day) and still nothing. Same thing a couple of days later with four at a time, still felt nothing. So I went back to the 50/200cr's I've been using for years now. i get a lot of side effects, but at least when they are over, there is some relief for a while. Hopefully, you will have better luck. ken
  2. Not so good. I'm 58 years old and was diagnosed with pd about 17 years ago. I've been on Sinemet for 15+ years. I was prescribed the weakest strength (out of the four) 23.75/95. The first time I tried it, i took one every three or four hours during the day. Didn't feel anything at all. Next day, same schedule, but two at a time. Nothing. I tried three at a time (different day) and still nothing. Same thing a couple of days later with four at a time, still felt nothing. So I went back to the 50/200cr's I've been using for years now. i get a lot of side effects, but at least when they are over, there is some relief for a while. I have a neuro appt next week and will get the 61.25/245 (highest strength) prescribed and see what that does. Hopefully, I will have better luck. ken
  3. Hi Mark, things have improved a bit for me lately, and I think I have a medication schedule that is working, at least for now, so here it is. I'm down to just 5 sinemet 50/200 cr's on most days. 2@5am (approx), 1@7:45pm, 2@9pm. If needed, I will also take 2@late morning. Mirapex, 1 pill, .125mg , 3x/day spread out throughout the day. I tried doubling the dose to 2 pills 3x/day, but the side effects were too severe, so am sticking to original schedule. Celexa, 1 pill/20mg, once a day at 6:30pm. This has helped with sleeping at night, as well as depression. 2 ativan, .5mg, at bedtime. I've been taking this for years and have been thinking of trying just 1 each night, nosw that I've started using the Celexa. At least for now, this is allowing me to avoid thinking about the dbs surgery. Phew! Happy Holidays, Ken
  4. Mark, thanks for your reply, and I will keep you posted. Ken
  5. Hi Mark, thanks for your response. Hopefully, these answers will make sense: 1 - .125 mg mirapex three times a day (7am 1pm 7pm approx), 2 - after 1 week, start taking 2 of the .125 mg mirapex at each of the times mentioned above (7am 1pm 7pm approx), basically double the dose from the first week 3 - not specially, but hopefully i will not want/need to take as much sinemet as i'm currently taking, anywhere from 7 -12 , 50/200 cr's, which i know is too much, and it's not working the way it used too. 4 - tremors and shaking, especially in my left lower leg. i am trying to avoid DBS surgery. My neuro also suggests taking it in between sinemet doses for the same reasons you suggest. again, i appreciate your thoughts more than you can imagine. Ken
  6. Hi Mark, In consultation with my neurologist, i will be starting Mirapex later this week. What, in your opinion is the best way to take Mirapex in conjunction with Sinemet? Currently, I take 2 50/200 CR's at approx these times. 3:00am, 7am, 2pm, 9pm, and 1 CR at 7:30pm. (total of nine most days, sometimes more, occasionally less). Do you think it is better to take Mirapex at the same times, or in between, or some other schedule . . . ? Thanks in advance, Ken
  7. Thanks you Mark. I have a couple of neuro appts over the next week and will let you know what happens.
  8. I am 58, living with PD for 15+ years and basically on Sinemet the whole time. Now, to make a long story short, Sinemet simply doesn't work anymore. I see DBS as a last resort, but are there any other drugs either in combo with Sinemet or standalone (but not Stalevo or Comtan) that anyone could recommend I try ? Thanks
  9. Hi Jenette, Try Sinemet CR (controlled release) 50/200. This should lessen the side effects (I hope). I have been on sinemet for a number of years now and like others have mentioned, it has really improved my quality of life, and although I stopped working a couple of years ago, I worked much longer than I thought I was going to be able too. I also started with the 25/100 and got some of the same side effects. I started with 2 CR's (1 in morning, 1 at bedtime). This worked well for me for a very long time (along with Amantadine 2x a day also). At the moment I am now taking 3 or 4 of the CR's each day and Amantadine. In any case, I am a sinemet cheerleader as none of the requip/mirapex/permax's of the world gave me anything but difficult side effects. Good luck, Ken
  10. Hi xaxa, I have been on Amantadine 100mg 2x/day for about 7 or 8 years now (I also take Sinemet 50/200 cr 3x/day. The Amantadine has worked really well so far without side effects. I have no complaints. I also had a lot of trouble with the agonists years ago and switched over to the Amantadine/Sinemet combo. Ken
  11. Excellent show !! Thanks for the post. Ken